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Biliary atresia
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My Son after 3 weeks of Kasai procedure, please help with my below query
My son got diagnosed on 56th day of life for Kasai procedure due to
Biliary
Atresia
, first 2 weeks, he improved a lot, pop color was light yellow, eyes were becoming white, but on 3rd week after operation, noticed that pale stool and his eyes becoming yellowish, can someone help
My son got diagnosed on 56th day of life for Kasai procedure due to
Biliary
Atresia
, first 2 weeks, he improved a lot, pop color was light yellow, eyes were becoming white, but on 3rd week after operation, noticed that pale stool and his eyes becoming yellowish, can someone help
Sandipmoredw
in
Children's Liver Disease Foundation
5 years ago
Studies about Biliary Atresia
My question is do you follow any study or anything about curing/treatment of
Biliary
Atresia
. Do you think there is a possibility of a medical cure or an alternative operation (maybe with bioengineering?) in short/mid term period?
My question is do you follow any study or anything about curing/treatment of
Biliary
Atresia
. Do you think there is a possibility of a medical cure or an alternative operation (maybe with bioengineering?) in short/mid term period?
Pearon
in
Children's Liver Disease Foundation
5 years ago
biliary atresia
Hello everyone,my daughter is 6 months old,has
biliary
atresia
,awaiting liver biopsy results ,what can be done to keep the baby from feeling weak,we found out that she has a problem when she was 2 months,doctors said she is too old for a kasai procedure
Hello everyone,my daughter is 6 months old,has
biliary
atresia
,awaiting liver biopsy results ,what can be done to keep the baby from feeling weak,we found out that she has a problem when she was 2 months,doctors said she is too old for a kasai procedure
ZOO1
in
Children's Liver Disease Foundation
5 years ago
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Formula suggestions for a 4 week old Biliary Atresia newborn
After she was born a doctor from Texas Children Hospital who works in the GI field stayed in close contact with us due to my daughter possibly having
Biliary
Atresia
.
After she was born a doctor from Texas Children Hospital who works in the GI field stayed in close contact with us due to my daughter possibly having
Biliary
Atresia
.
Mbradle2
in
Children's Liver Disease Foundation
5 years ago
My long journey into parenthood (Biliary Atresia, multiple miscarriages, IVF)
I was born with
Biliary
Atresia
as an infant and had a successful Kasai Procedure that prolonged my liver until I was 25.
I was born with
Biliary
Atresia
as an infant and had a successful Kasai Procedure that prolonged my liver until I was 25.
Christine20200
in
Children's Liver Disease Foundation
5 years ago
Biliary Atresia
My daughters portal vein wasnt visible on an ultra sound - less than 48 hours of that ultra sound she was in hospital with Pseudomonas sepsis, liver failure, ascites and cholangitis. Does anyone know if there are any chances that any of those (includong sepsis) could of been caused by the portal vein
My daughters portal vein wasnt visible on an ultra sound - less than 48 hours of that ultra sound she was in hospital with Pseudomonas sepsis, liver failure, ascites and cholangitis. Does anyone know if there are any chances that any of those (includong sepsis) could of been caused by the portal vein
BA0619
in
Children's Liver Disease Foundation
5 years ago
My long journey into parenthood (multiple miscarriages, IVF)
I was born with
Biliary
Atresia
as an infant and eventually needed two separate liver transplants to recover as an adult (my husband first donated half his liver which saved my life, but the connection wasn’t good, and I eventually needed a cadaver liver).
I was born with
Biliary
Atresia
as an infant and eventually needed two separate liver transplants to recover as an adult (my husband first donated half his liver which saved my life, but the connection wasn’t good, and I eventually needed a cadaver liver).
Christine20200
in
Fertility, Miscarriage & IVF Support
5 years ago
My long journey into parenthood (multiple miscarriages, IVF)
I was born with
Biliary
Atresia
as an infant and eventually needed two separate liver transplants to recover as an adult (my husband first donated half his liver which saved my life, but the connection wasn’t good, and I eventually needed a cadaver liver).
I was born with
Biliary
Atresia
as an infant and eventually needed two separate liver transplants to recover as an adult (my husband first donated half his liver which saved my life, but the connection wasn’t good, and I eventually needed a cadaver liver).
Christine20200
in
Fertility Network UK
5 years ago
Temperature while on antibiotics for cholangitis
My daughter has
biliary
atresia
and currently in hospital again due to a spiked temperature. She has been on iv antibiotics since middle of Friday night due to suspected cholangitis.
My daughter has
biliary
atresia
and currently in hospital again due to a spiked temperature. She has been on iv antibiotics since middle of Friday night due to suspected cholangitis.
BA0619
in
Children's Liver Disease Foundation
5 years ago
Biliary atresia- liver donor emergency
Emergency call: Anais Dissi is about 10 months, waiting for a liver transplant at the Kremlin-Bicètre hospital, Paris, she is in absolute emergency. She is actually in a pediatric resuscitation department, tel: 00 33 1 45 21 32 16. Her blood type is A+. The liver transplantation is her final option.
Emergency call: Anais Dissi is about 10 months, waiting for a liver transplant at the Kremlin-Bicètre hospital, Paris, she is in absolute emergency. She is actually in a pediatric resuscitation department, tel: 00 33 1 45 21 32 16. Her blood type is A+. The liver transplantation is her final option.
AnaisMyriam
in
British Liver Trust
5 years ago
Biliary atresia
Took my daughter into A&E friday morning due to a high temp turns out she had liver failure, cholangitis, ascites and sepsis! She was absolutely fine the day before and even had a check up on Wednesday at her big hospital to do with liver. We only came out of hospital 16 days before this after an 8 day
Took my daughter into A&E friday morning due to a high temp turns out she had liver failure, cholangitis, ascites and sepsis! She was absolutely fine the day before and even had a check up on Wednesday at her big hospital to do with liver. We only came out of hospital 16 days before this after an 8 day
BA0619
in
Children's Liver Disease Foundation
5 years ago
Post transplanted for 15 years.
My daughter was diagnosed with
Biliary
Atresia
a failed kasai. She had a liver transplant in (2004) and she has been well since the transplant. However, since last year 2018 my daughter blood test results have been coming back abnormal. My daughter has had a CT, MRI and a ultrasound scan.
My daughter was diagnosed with
Biliary
Atresia
a failed kasai. She had a liver transplant in (2004) and she has been well since the transplant. However, since last year 2018 my daughter blood test results have been coming back abnormal. My daughter has had a CT, MRI and a ultrasound scan.
Passion123456
in
Children's Liver Disease Foundation
5 years ago
Biliary atresia- Emergency liver transplant in need
Emergency call: Anais Dissi is about 10 months, waiting for a liver transplant at the Kremlin-Bicètre hospital, Paris, she is in absolute emergency. She is actually in a pediatric resuscitation department, tel: 00 33 1 45 21 32 16. Her blood type is A+. The liver transplantation is her final option.
Emergency call: Anais Dissi is about 10 months, waiting for a liver transplant at the Kremlin-Bicètre hospital, Paris, she is in absolute emergency. She is actually in a pediatric resuscitation department, tel: 00 33 1 45 21 32 16. Her blood type is A+. The liver transplantation is her final option.
AnaisMyriam
in
LIVErNORTH
5 years ago
Biliary atresia going abroad
My daughter had kasai procedure end of June this year for
biliary
atresia
and we are looking at going abroad to lanzarote next year (june) for a week. She will be just over 1 when we go. Have you been abroad with
biliary
atresia
and what did you do or how did you deal with it?
My daughter had kasai procedure end of June this year for
biliary
atresia
and we are looking at going abroad to lanzarote next year (june) for a week. She will be just over 1 when we go. Have you been abroad with
biliary
atresia
and what did you do or how did you deal with it?
BA0619
in
Children's Liver Disease Foundation
5 years ago
Bilary atresia. Start of this nightmare. Advice needed.
My daughter has just been diagnosed with
biliary
atresia
. She is 4weeks old and scheduled for surgery on wednesday (5days time). Bar the jaundice and pale poop she is gaining weight and alert etc. Can anyone give me a realistic out look to the next couple of months if everything goes well.
My daughter has just been diagnosed with
biliary
atresia
. She is 4weeks old and scheduled for surgery on wednesday (5days time). Bar the jaundice and pale poop she is gaining weight and alert etc. Can anyone give me a realistic out look to the next couple of months if everything goes well.
Clarepear
in
Children's Liver Disease Foundation
5 years ago
Elevated ALT - 2 months post kasai
Hi all, My daughter has
biliary
atresia
. Kasai done when she's 4 weeks old. Bilirubin went down since kasai but never below 20 (last 3 weeks is 26 - 23 - 24) but her ALT has been showing a trend of increase since a month ago. Latest ALT is 219.
Hi all, My daughter has
biliary
atresia
. Kasai done when she's 4 weeks old. Bilirubin went down since kasai but never below 20 (last 3 weeks is 26 - 23 - 24) but her ALT has been showing a trend of increase since a month ago. Latest ALT is 219.
4rie
in
Children's Liver Disease Foundation
5 years ago
Evaluated Liver Funcation Test after being post transplant for 14 years.
Hello Everyone My daughter is 17 year’s old and as a baby she was diagnosed with
Biliary
atresia
and had the Kasai producer at Birmingham Children’s Hosptial. After the surgery her liver funcation test were still high and therefore, she had a liver transplant at 2 years old.
Hello Everyone My daughter is 17 year’s old and as a baby she was diagnosed with
Biliary
atresia
and had the Kasai producer at Birmingham Children’s Hosptial. After the surgery her liver funcation test were still high and therefore, she had a liver transplant at 2 years old.
Passion123456
in
Children's Liver Disease Foundation
6 years ago
For baby evo
I have a friend, her son is 1 yr old and suffering from
biliary
atresia
.. I don't know how to help her. The hospital is asking for a big amount for his son to have a liver transplant. As her friend, i really to help her.
I have a friend, her son is 1 yr old and suffering from
biliary
atresia
.. I don't know how to help her. The hospital is asking for a big amount for his son to have a liver transplant. As her friend, i really to help her.
Saviourforbaby
in
Children's Liver Disease Foundation
6 years ago
Portal hypertension, enlarged spleen and liver damage
Can anyone give me any advice on portal hypertension, my 1 year old daughter has
Biliary
Atresia
, she has the kasai operation at 6 weeks old, everything was going really well, she had her 12 month post op check and liver scan a few days ago and it's shown now that she has portal hypertension, enlarged
Can anyone give me any advice on portal hypertension, my 1 year old daughter has
Biliary
Atresia
, she has the kasai operation at 6 weeks old, everything was going really well, she had her 12 month post op check and liver scan a few days ago and it's shown now that she has portal hypertension, enlarged
DanielleWhitfield4
in
Children's Liver Disease Foundation
6 years ago
Biliary atresia/ KASAI PROCEDURE post op management in 8 weeks old baby
Hello.my daughter of 8 weeks had
biliary
atresia
diagnosed 10 days ago.she underwent KASAI procedure 8 days ago. Any body can share his/her experience regarding this condition/procedure and post operative life. Looking forward for your replies
Hello.my daughter of 8 weeks had
biliary
atresia
diagnosed 10 days ago.she underwent KASAI procedure 8 days ago. Any body can share his/her experience regarding this condition/procedure and post operative life. Looking forward for your replies
Drmirzaali
in
Children's Liver Disease Foundation
6 years ago
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