Immune system problems: I have had MS for... - My MSAA Community

My MSAA Community

9,432 members21,216 posts

Immune system problems

Weldon60 profile image
7 Replies

I have had MS for 29 years and have done fairly well. I was on Betaseron for several years, then switched to Tecfidera, but my liver function numbers were not good. I then switched to Copaxone. I am currently taking nothing. My white blood cell count is low. My blood platlet count is low. We are taking a medication break to see if these numbers will rebound. My neurologist does believe the medication is the cause of the problem. Has anyone else had a similar experience? If so, what was done to correct the problem?

Written by
Weldon60 profile image
Weldon60
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi Weldon60 welcome to the family! 🌞 I can't answer this for you sorry. I'm on Copaxon for the past 4yrs. And never had a problem with my counts or liver.🙄

They are switching me tho.

Hopefully someone else has a better answer for you.🤗💕

J🌌

Weldon60 profile image
Weldon60 in reply toJesmcd2

Thanks. What are you at changing to?

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toWeldon60

Ocrevus, seems like Copaxon isn't doing its job the traitor!🤣😂 Although I sure won't miss the shots!🙄🤗💕

What are they going to put you on next?

J🌌

Weldon60 profile image
Weldon60 in reply toJesmcd2

We have not talked about that. The last time we made a change the doctor gave me the information to look at and I selected from that. I choose what he would have chosen. I have not had a flair up in over 20 years, since I went on Betaseron when it was new.

Kenu profile image
Kenu

Welcome Weldon60 to our crazy group of MSERS. I was diagnosed over twenty four years ago and have been on seven different DMT’s. I am currently on Aubagio for the last two years and last two MRI’s were stable. I had been on Tysabri for seven years until I was diagnosed with cancer ♋️. After surgery, radiation and chemo my white t-cells fell and had to quit it🤬 worked great 👍 but now that things have settled Aubagio seems to be working as well as Tysabri. Not a doctor so don’t know what direction to go but I am sure if you have a ms neurologist he should be able to figure it out 👍. I do see that there is two more oral DMT’s approved the last two months 😉. Maybe one of those is an option? Good Luck and look forward to hearing from you 👍. Ken 🐾🐾

mrsmike9 profile image
mrsmike9

Copaxone made my white blood count drop like a stone which is why I don't take that. It rebounded some but has remained somewhat low. I take Aubagio and have for about 4 years now and it hasn't bothered me. My first med was Tecfidera and that also affected my white blood count. Who knows??

Weldon60 profile image
Weldon60 in reply tomrsmike9

Thank you for the information.

Not what you're looking for?

You may also like...

Had my follow up visit with my Neuro yesterday

It was a good visit. He confirmed that my MRI was clear of any new MS activity :) For my headaches,...
bxrmom profile image

Home from the Neuro

Saw my Neuro today. He upped my Nortriptaline since I am still having headaches. He said the cold...
bxrmom profile image

Tecfidera

I have been on Tecfidera since 2012. My white count is too low so the doctor is having me hold the...
kathy5500 profile image

Myelosplastic Syndrome

So I shared awhile ago that I continue to lose weight. I had a bone marrow extraction (very painful...
Amore55 profile image

Low white blood count

My neuro called me directly. My white blood count is low. I had my blood drawn Wednesday and got...
mrsmike9 profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner
DanaMSAA profile image
DanaMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.