newly diagnosed MS with history of PV: Devastated... - MPN Voice

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newly diagnosed MS with history of PV

KLCTJC profile image
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Devastated find out I can not take Besremi as it can make MS worse. I have wondered why my wbcs out of nowhere started to rise. I suspect I have had asymptomatic MS for a while. So I maybe going back to just watching and daily ASA because I am young. But just wanted to know if I have to do hydroxyurea how long people have been on it. I really will know more when I see the neurologist. I am still in the hospital. Truly the MS doesn’t scare me. I only started to have some mild vision issues, otherwise, I feel great. And MS has sooo many treatment options. My biggest fear is my PV progression. Praying no matter what I can get 30-35 “good” years to see my daughter grow. And I know I can get hit by a bus! But would like to hear long term hydroxyurea patients just in case this is my only option.

Thanks!

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KLCTJC
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monarch5000 profile image
monarch5000

Maybe I missed it, but I don't see anything here that mentions MS. It does mention possible auto immune disease incompatibilities, but some interferon users find their auto immune disorders do not get worse when taking interferon. So maybe it's a try it and see if anything happens deal. accessdata.fda.gov/drugsatf...

KLCTJC profile image
KLCTJC in reply to monarch5000

My fingers are crossed once I get with neuro they say we can try it! Because I didn’t see anything either. Technically if that was the case even people who have RA, ulcerative colitis, etc couldn’t take it either. I am just going to see if my smart docs can put their heads together! Because MS can be treated with interferons. Thank you for taking the time to look at this for me.

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