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I have a profile in advanced prostate cancer. When I set it up I didn't realize there was more than one prostate cancer network/forum. People in the advanced prostate form suggested I join this one. It's been awhile, but here I am. I'm a 63 year old who had an RP in March 2021. So far my psa tests have
I have a profile in advanced prostate cancer. When I set it up I didn't realize there was more than one prostate cancer network/forum. People in the advanced prostate form suggested I join this one. It's been awhile, but here I am. I'm a 63 year old who had an RP in March 2021. So far my psa tests have
twostrats79
in
Prostate Cancer Network
9 months ago
biopsy - fragmented cores and progression risk
I had 3 biopsies from January 2020 to July 2022. The first two almost identical being Gleason 3+4 with <10% 4. However 6 months post HIFU it was Gleason 9 with 4+5 with 10% 5 and 70% 5 (see below). I am curious as the cores are fragmented and so it’s hard to know what this means and if it makes any
I had 3 biopsies from January 2020 to July 2022. The first two almost identical being Gleason 3+4 with <10% 4. However 6 months post HIFU it was Gleason 9 with 4+5 with 10% 5 and 70% 5 (see below). I am curious as the cores are fragmented and so it’s hard to know what this means and if it makes any
SimMartin
in
Advanced Prostate Cancer
6 months ago
Treatment Update IMRT with ADT 18 months later
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Mischa1111111
in
Advanced Prostate Cancer
9 months ago
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Long time reader / first time poster…
Hello all, Been on here for quite some time reading about other men’s stories but have yet to get in the trenches until now. Not sure why; maybe just reluctance to accept my situation, even though my “situation” has fully accepted me. It’s been a bumpy road. PSA 12.5 at diagnosis 11/2019. Been checking
Hello all, Been on here for quite some time reading about other men’s stories but have yet to get in the trenches until now. Not sure why; maybe just reluctance to accept my situation, even though my “situation” has fully accepted me. It’s been a bumpy road. PSA 12.5 at diagnosis 11/2019. Been checking
MrWonderful4U
in
Advanced Prostate Cancer
9 months ago
CR Advanced Prostrate Ca, and start of chemotherapy after PSMA
Dear All, I am posting my message with a hope to have better insight into my father's condition of Castrate resistant Advanced Prostrate Cancer and also seek the help of your experience.My father has had his cadaveric liver transplantation from Mayo Clinic, Jacksonville, Fl in 2001. We went from India
Dear All, I am posting my message with a hope to have better insight into my father's condition of Castrate resistant Advanced Prostrate Cancer and also seek the help of your experience.My father has had his cadaveric liver transplantation from Mayo Clinic, Jacksonville, Fl in 2001. We went from India
Ij2023
in
Advanced Prostate Cancer
9 months ago
new to methotrexate: will my MTX fatigue fade or continue?
I'm just a beginner here, having received an RA diagnosis in December on the basis of blood tests (I have no joint pain or problems, but my blood markers agree with the RA diagnosis; elevated RA and anti-CCP). I also have three other diagnoses: PSA (psoriatic arthritis), PMR (polymyalgia rheumatica),
I'm just a beginner here, having received an RA diagnosis in December on the basis of blood tests (I have no joint pain or problems, but my blood markers agree with the RA diagnosis; elevated RA and anti-CCP). I also have three other diagnoses: PSA (psoriatic arthritis), PMR (polymyalgia rheumatica),
benhemp
in
NRAS
6 months ago
Pluvicto (lutetium Lu 177
Questions Just got done with Gallium-68 showed limp nodes, spine, Arms and crown of head 1. Does Medicare approve Pluvicto (lutetium Lu 177? 2. I’ve had Radiation, And 24 months of Lupron and xtandi. And now my PSA is rising. Are you required to do Chemo before they approve? Thanks 👍
Questions Just got done with Gallium-68 showed limp nodes, spine, Arms and crown of head 1. Does Medicare approve Pluvicto (lutetium Lu 177? 2. I’ve had Radiation, And 24 months of Lupron and xtandi. And now my PSA is rising. Are you required to do Chemo before they approve? Thanks 👍
anonymoose2
in
Advanced Prostate Cancer
6 months ago
A big early
But still good news from my point of view: https://healthunlocked.com/advanced-prostate-cancer/posts/150003403/a-big-early
But still good news from my point of view: https://healthunlocked.com/advanced-prostate-cancer/posts/150003403/a-big-early
Nusch
in
Advanced Prostate Cancer
10 months ago
Surgery vs SBRT Cyberknife
Hubs diagnosed 11/15/23. 2 of 12 positive. Gleason 6 and 7. PSA 3.7-4.2. Met with Surgeon first, "slow growing, non aggressive" he believes is contained by looking at margins and pathology. Met with Radiology Oncologist, "favorable intermediate risk, non aggressive" he believes it is contained. Both
Hubs diagnosed 11/15/23. 2 of 12 positive. Gleason 6 and 7. PSA 3.7-4.2. Met with Surgeon first, "slow growing, non aggressive" he believes is contained by looking at margins and pathology. Met with Radiology Oncologist, "favorable intermediate risk, non aggressive" he believes it is contained. Both
Pride123
in
Advanced Prostate Cancer
6 months ago
Latest PSA! Undetectable
My latest (11/8) PSA was <0.1 ng/mL. This is my third in a row that was undetectable since finishing chemotherapy and radiation. All of my other labs look excellent and my Hemoglobin A1c was 5.4% Consistent exercise has contributed to that greatly and also how well I’m feeling I am feeling
My latest (11/8) PSA was <0.1 ng/mL. This is my third in a row that was undetectable since finishing chemotherapy and radiation. All of my other labs look excellent and my Hemoglobin A1c was 5.4% Consistent exercise has contributed to that greatly and also how well I’m feeling I am feeling
AlvinSD
in
Advanced Prostate Cancer
9 months ago
Orchidectomy vs ADT
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
tn12
in
Advanced Prostate Cancer
6 months ago
Did not see that coming.
Hello to all, Dx 11-1-23. Went in with urinary situations and came out with a Turp and stage 4. had a Psma pet scan ..Mets here and there . So high volume I guess. PSA was 139 ..MO says triplet therapy ....seems like I'm pretty far down the road... I know I gain by doing the therapy but on average are
Hello to all, Dx 11-1-23. Went in with urinary situations and came out with a Turp and stage 4. had a Psma pet scan ..Mets here and there . So high volume I guess. PSA was 139 ..MO says triplet therapy ....seems like I'm pretty far down the road... I know I gain by doing the therapy but on average are
APK3
in
Advanced Prostate Cancer
7 months ago
Scared, Uninspired looks Triple Negative Breast Cancer Aggressive Cancer, what’s next?
Went to Primary Physician after I found huge lump in right breast Waited 8 Weeks for Mammogram, MRI and Ultrasound I found out today Triple Negative Breast Cancer Invasive Ductal Carcinoma Breast Cancer grade 3 Stage 2 It’s Estrogen and Progesterone negative waiting on FISH TEST about HER
Went to Primary Physician after I found huge lump in right breast Waited 8 Weeks for Mammogram, MRI and Ultrasound I found out today Triple Negative Breast Cancer Invasive Ductal Carcinoma Breast Cancer grade 3 Stage 2 It’s Estrogen and Progesterone negative waiting on FISH TEST about HER
JaM6252005
in
SHARE Breast Cancer Support
6 months ago
Scared and Uninspired, Rare Aggressive Breast Cancer, What is Next?
Went to Primary Physician after I found huge lump in right breast Waited 8 Weeks for Mammogram, MRI and Ultrasound I found out today January 22, 2024 through Mychart of course, Biopsy physician did call today that I have Stage 2 Triple Negative Breast Cancer Invasive Ductal Carcinoma Breast
Went to Primary Physician after I found huge lump in right breast Waited 8 Weeks for Mammogram, MRI and Ultrasound I found out today January 22, 2024 through Mychart of course, Biopsy physician did call today that I have Stage 2 Triple Negative Breast Cancer Invasive Ductal Carcinoma Breast
JaM6252005
in
My Breast Cancer Community
6 months ago
PSA & T is up
We started this journey in June 2022 and hit this PC with triple therapy to stop the cancer that had already attacked his whole skeleton. My husband has now developed a cancerous tumor in his head in the sinus cavity and behind his eye which has caused him double vision and pain. It’s wrapped around
We started this journey in June 2022 and hit this PC with triple therapy to stop the cancer that had already attacked his whole skeleton. My husband has now developed a cancerous tumor in his head in the sinus cavity and behind his eye which has caused him double vision and pain. It’s wrapped around
Izzygirl1
in
Advanced Prostate Cancer
9 months ago
Rising PSA and looking to change doctors
As previously posted here: https://healthunlocked.com/prostate-cancer-community/posts/150367923/rising-psa-1-year-after-ralp ...One year past my RALP it's becoming possible that I may need additional treatment. I've decided I would like to seek another opinion and also probably go ahead and switch
As previously posted here: https://healthunlocked.com/prostate-cancer-community/posts/150367923/rising-psa-1-year-after-ralp ...One year past my RALP it's becoming possible that I may need additional treatment. I've decided I would like to seek another opinion and also probably go ahead and switch
SmasherOfAjumma
in
Prostate Cancer Network
6 months ago
Radio sensitizers and Microbiome
I'm about to start a slightly novel radiotherapy - we will add in distant retroperitoneal nodes. 28 treatments = 70gy. I have a two part question: 1. Has anyone an opinion or experience with using supplements as radiosensitizers. Google "radiosensitizers and prostate cancer - NIH". Lots of studies
I'm about to start a slightly novel radiotherapy - we will add in distant retroperitoneal nodes. 28 treatments = 70gy. I have a two part question: 1. Has anyone an opinion or experience with using supplements as radiosensitizers. Google "radiosensitizers and prostate cancer - NIH". Lots of studies
pj1121
in
Advanced Prostate Cancer
10 months ago
Treatment options
Hi- I have posted a few times about my brother who was diagnosed in March 2021. For 18 months he did really well on Abiterone. His PSA went from his initial diagnosis of 52 to under 0.03 for several months. He has Kaiser HMO and unfortunately his oncologist retired at the time his PSA starting trending
Hi- I have posted a few times about my brother who was diagnosed in March 2021. For 18 months he did really well on Abiterone. His PSA went from his initial diagnosis of 52 to under 0.03 for several months. He has Kaiser HMO and unfortunately his oncologist retired at the time his PSA starting trending
TerryR123
in
Advanced Prostate Cancer
9 months ago
Prostate Cancer Costs More than your Life
https://youtu.be/dM95DmzZ1Us Tanya Dorff, MD City of Hope
https://youtu.be/dM95DmzZ1Us Tanya Dorff, MD City of Hope
Darryl
Partner
in
Advanced Prostate Cancer
10 months ago
New diagnosis
Hi I'm Neil, 62, I had my prostate cancer diagnosis in late December 2023. Live in England. My Gleason score 4 + 3 =7. Initial PSA test was a staggering 15.6. I'm average height, normal weight, 75 kg. A non smoker and generally fit and well with no other conditions, nor do I take any medication
Hi I'm Neil, 62, I had my prostate cancer diagnosis in late December 2023. Live in England. My Gleason score 4 + 3 =7. Initial PSA test was a staggering 15.6. I'm average height, normal weight, 75 kg. A non smoker and generally fit and well with no other conditions, nor do I take any medication
Wakeyguy63
in
Prostate Cancer And Gay Men
6 months ago
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