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Benign prostatic hyperplasia
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Thunking of getting an orchiectomy insted od radiation
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
woppaginny
in
Advanced Prostate Cancer
9 months ago
Reporting results from Eclipse Trial
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
SViking
in
Advanced Prostate Cancer
9 months ago
UCLA RO says that since it's been only 4 mo since stop of 4 ms RT & 4ms orgo and my T is 80 - more t than baseline (286) may trigger cancer
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
I thought that you could take TRT of 100 ml and you would be safe from reoccurrence.
Oncologist today at UCLA says he wants me to work with a specialist in TRT and he would only feel comfortable then giving his OK if ONLY if the testosterone specialist takes my testosterone back to ONLY my baseline
JWS13
in
Advanced Prostate Cancer
9 months ago
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PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I won’t see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
Has xtandi failed?
I had my lupron injection Tuesday and PSA checked. PSA 0.09, three months ago PSA was 0.06. I asked my doctor if xtandi has failed, he told me not necessarily. He told me once your PSA reached its lowest point it fluctuates up and down until it stabilized. I will have PSA checked again in 6 weeks
I had my lupron injection Tuesday and PSA checked. PSA 0.09, three months ago PSA was 0.06. I asked my doctor if xtandi has failed, he told me not necessarily. He told me once your PSA reached its lowest point it fluctuates up and down until it stabilized. I will have PSA checked again in 6 weeks
Echotango51
in
Advanced Prostate Cancer
9 months ago
protein supplements: yes or no?
Since I just finished Viewray Tx at UCLA, I’m moving on to the diet & exercise research zone. I’d like input on what the latest research, if any, is RE protein supplements. Whey isolate vs. vegan protein supp? Does either one promote or suppress PCa after Tx? Also, what’s the latest on eggs? It seems
Since I just finished Viewray Tx at UCLA, I’m moving on to the diet & exercise research zone. I’d like input on what the latest research, if any, is RE protein supplements. Whey isolate vs. vegan protein supp? Does either one promote or suppress PCa after Tx? Also, what’s the latest on eggs? It seems
BL2023
in
Advanced Prostate Cancer
10 months ago
He lived a wonderful life
My father passed away on Sunday, 10/15/2023, at the age of 91. We initially learned of his very high PSA level on 10/14/2021 (two years prior), with the diagnosis of Stage 4 metastatic prostate cancer soon thereafter. In addition to advanced prostate cancer, he had dementia that progressed significantly
My father passed away on Sunday, 10/15/2023, at the age of 91. We initially learned of his very high PSA level on 10/14/2021 (two years prior), with the diagnosis of Stage 4 metastatic prostate cancer soon thereafter. In addition to advanced prostate cancer, he had dementia that progressed significantly
Merlot1
in
Advanced Prostate Cancer
9 months ago
PSA after SBRT
what should psa be 3 months after SBRT? Thank you!
what should psa be 3 months after SBRT? Thank you!
Silosix
in
Advanced Prostate Cancer
6 months ago
Intermediate favorable vs. unfavorable Gleason 7 acc.to 2 doctors + CLEAN PSMA, do we need third opinion +where? (Green Bay/Milwaukee areas)
Hello all~ I am writing as spokesperson and chief researcher for my husband, Steve. He is 75 and was dx'ed w/prostate cancer on 11/27 by his urologist after some months following a bad UTI and subsequent catheterization to "rest his bladder" by initial NP (whom we saw upon referral but subsequently
Hello all~ I am writing as spokesperson and chief researcher for my husband, Steve. He is 75 and was dx'ed w/prostate cancer on 11/27 by his urologist after some months following a bad UTI and subsequent catheterization to "rest his bladder" by initial NP (whom we saw upon referral but subsequently
AliceinW57
in
Prostate Cancer Network
6 months ago
FYI: from the VA research information on Veterans
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
➤ Prostate cancer Prostate cancer is the most common malignancy affecting men in the United States. It is also the most commonly diagnosed solid tumor in VA. In 2016, VA and the Prostate Cancer Foundation established a partnership to promote prevention, screening, and research to find new treatments
MouseAddams
in
Advanced Prostate Cancer
9 months ago
Back in permanent AF and warfarin dose decrease
Hi All, I used to have paroxysmal AF which was ablated by Prof Schilling back in 2010. I had been in NSR. However I was diagnosed with prostate cancer back in the summer. I had huge delays and postponements before I had a biopsy. I eventually got the results 5 weeks later (rather than the two weeks promised
Hi All, I used to have paroxysmal AF which was ablated by Prof Schilling back in 2010. I had been in NSR. However I was diagnosed with prostate cancer back in the summer. I had huge delays and postponements before I had a biopsy. I eventually got the results 5 weeks later (rather than the two weeks promised
MarkS
in
AF Association
6 months ago
early concerns/ paranoia
Feeling a bit guilty taking up space here before I have any real diagnosis. I’m 72 years old and my annual physical in November saw my PSA numbers double from 3.2 to 6.4 and then retested a month later they were 7. Sounds scary to me. My urologist ordered an in-home EXODX urine test 14 days ago which
Feeling a bit guilty taking up space here before I have any real diagnosis. I’m 72 years old and my annual physical in November saw my PSA numbers double from 3.2 to 6.4 and then retested a month later they were 7. Sounds scary to me. My urologist ordered an in-home EXODX urine test 14 days ago which
Willie51
in
Prostate Cancer And Gay Men
6 months ago
My 73 year old dads stage 4 mastitic prostate cancer
Hi all My dad was diagnoised 3 years ago stage 4 with bone cancer lesions. He is on hormorne injections, and was taking chemo tablets until 18 months ago, then had to have 10 rounds of chemo which ended in septmeber 2023, since then his lost weight and his struggling to walk etc due to his lower back
Hi all My dad was diagnoised 3 years ago stage 4 with bone cancer lesions. He is on hormorne injections, and was taking chemo tablets until 18 months ago, then had to have 10 rounds of chemo which ended in septmeber 2023, since then his lost weight and his struggling to walk etc due to his lower back
Hidden
in
Advanced Prostate Cancer
6 months ago
Radiation and diarrhea/ GI issues/ please help
looking for other experiences with radiation. My dad just went through -4.5 weeks of radiation. I believe it was standard radiation EBRT or IMRT not sure which. It was fine at first, no side effects. By week 4 the side effects started - diarrhea, constipation, abdominal discomfort, gas. He is so uncomfortable
looking for other experiences with radiation. My dad just went through -4.5 weeks of radiation. I believe it was standard radiation EBRT or IMRT not sure which. It was fine at first, no side effects. By week 4 the side effects started - diarrhea, constipation, abdominal discomfort, gas. He is so uncomfortable
alysona828
in
Advanced Prostate Cancer
6 months ago
My son’s PSA rose a bit today.
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
Cactus297
in
Advanced Prostate Cancer
9 months ago
so discouraged after the fibromyalgia workshop that I just participated in.
I didn't advocate for myself enough and should have gotten more help for my fibromyalgia. I still can't tell the difference between it and my PSA. I may have been exercising too much and thus keeping the pain cycle going. So discouraged. I probably needed some help four years ago to systematically
I didn't advocate for myself enough and should have gotten more help for my fibromyalgia. I still can't tell the difference between it and my PSA. I may have been exercising too much and thus keeping the pain cycle going. So discouraged. I probably needed some help four years ago to systematically
smilelines
in
NRAS
6 months ago
When's the "best" time to do the scan?
Well, it appears the salvage radiation done in January '23 (RP in 2019) may have been unsuccessful, as my latest PSA came back at 0.06, 3 months prior was 0.02. Obviously not yet actionable and not yet definitive for failure, but the indication that the barbarian hordes might be regrouping is apparent
Well, it appears the salvage radiation done in January '23 (RP in 2019) may have been unsuccessful, as my latest PSA came back at 0.06, 3 months prior was 0.02. Obviously not yet actionable and not yet definitive for failure, but the indication that the barbarian hordes might be regrouping is apparent
Cackalacky_cyclist
in
Advanced Prostate Cancer
9 months ago
QoL got Sunshine on a cloudy day, PSA update, and added two to the Memorial List :-(
Hey y'all, Sad news - a pt, the G'Pa of a lady who's a pt/ex worker, passed from PCa and so did a gent from HU 🙏. Both passed in Dec and I'm attending my pt's Service this Sat. Sat am did 7 miles up here (Doing the 28 mile Make a Wish event in May) and there were cool maybe Lenticular clouds? Then
Hey y'all, Sad news - a pt, the G'Pa of a lady who's a pt/ex worker, passed from PCa and so did a gent from HU 🙏. Both passed in Dec and I'm attending my pt's Service this Sat. Sat am did 7 miles up here (Doing the 28 mile Make a Wish event in May) and there were cool maybe Lenticular clouds? Then
dockam
in
Advanced Prostate Cancer
6 months ago
Still true that using same scan type is preferable to changing scan type?
Mr. Spouse 21, ten years since dx with Gleason 9 in 80% of cores, has only had bone and CT scans to track progression. That's how it was done in 2014. He's been stable since chemo with his current Eligard & Xgeva treatment--see full Profile for his record of Lupron, radiation, Zytiga (failed), Docetaxel
Mr. Spouse 21, ten years since dx with Gleason 9 in 80% of cores, has only had bone and CT scans to track progression. That's how it was done in 2014. He's been stable since chemo with his current Eligard & Xgeva treatment--see full Profile for his record of Lupron, radiation, Zytiga (failed), Docetaxel
spouse21
in
Advanced Prostate Cancer
9 months ago
Provenge Underway
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Morning folks, Well I completed my first cycle of Provenge yesterday and all seems well so far. I also met with MO to review recent genetic testing results and have confirmed a mutation BRiP1 which is associated with autosomal dominant hereditary ovarian cancer, autosomal recessive Fanconia anemia,
Pmann
in
Advanced Prostate Cancer
9 months ago
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