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Benepali
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Shoes
more ZARA shop kind of girl I went in clarks shoe shop and marched back out but I'm crippled it's effecting my knees hips and back in fact I'm destroyed all over, my lovely nurse Paul says give it 6 more weeks before I go on the ivi mabs, no clue as to why 6 more weeks it's been almost 15 weeks on
benepali
more ZARA shop kind of girl I went in clarks shoe shop and marched back out but I'm crippled it's effecting my knees hips and back in fact I'm destroyed all over, my lovely nurse Paul says give it 6 more weeks before I go on the ivi mabs, no clue as to why 6 more weeks it's been almost 15 weeks on
benepali
Vonnie10
in
NRAS
7 years ago
Benepali not working..,
Hi, I have been on
Benepali
on & off for two months now. Zero side effects for a while, then suddenly it changed for the worse. RA definitely not any better, in fact, I'd say I'm a bit worse... Anyone else experienced this?
Hi, I have been on
Benepali
on & off for two months now. Zero side effects for a while, then suddenly it changed for the worse. RA definitely not any better, in fact, I'd say I'm a bit worse... Anyone else experienced this?
Roostermum
in
NRAS
7 years ago
Caught in a postcode lottery
I've only got one dose of
Benepali
left, and no guarantee any more will be around in a week, which means my doses may be interrupted. I've got forms I can't get filled out and a Blue Badge due to expire in a week, and no powerchair so I'm back to being housebound again.
I've only got one dose of
Benepali
left, and no guarantee any more will be around in a week, which means my doses may be interrupted. I've got forms I can't get filled out and a Blue Badge due to expire in a week, and no powerchair so I'm back to being housebound again.
Silvergilt
in
LUPUS UK
7 years ago
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Advice please! Not allowed Methotrexate...
I am on
Benepali
and have been on mtx, but gradually reducing it from 25 to 5 mg. Each time, even with reductions, my blood count has gone so low that I've had to come off it. My rheumy nurse rang me to say that I'm going to have to come off mtx altogether.
I am on
Benepali
and have been on mtx, but gradually reducing it from 25 to 5 mg. Each time, even with reductions, my blood count has gone so low that I've had to come off it. My rheumy nurse rang me to say that I'm going to have to come off mtx altogether.
LizzieR
in
NRAS
7 years ago
Flare up!!!
I waiting for end of Oct to start
Benepali
. I'm currently taking 7mg of pred, codeine and naproxen. I'm having such a bad flare up. I had a depo injection in July which helped for a few weeks but now the pain is worst than ever. The pain is particularly worse in my hands.
I waiting for end of Oct to start
Benepali
. I'm currently taking 7mg of pred, codeine and naproxen. I'm having such a bad flare up. I had a depo injection in July which helped for a few weeks but now the pain is worst than ever. The pain is particularly worse in my hands.
Ouchyjenna
in
NRAS
7 years ago
Numbness
Plus is it also normal for health care at home to leave me with just one
benepali
or should I have had a delivery by now I'm on my 12 week, my major concern is this numbness is waking me up of a night I read it could be a complication but there is that much info on the internet so I'm mot a 100 % sure
Plus is it also normal for health care at home to leave me with just one
benepali
or should I have had a delivery by now I'm on my 12 week, my major concern is this numbness is waking me up of a night I read it could be a complication but there is that much info on the internet so I'm mot a 100 % sure
Vonnie10
in
NRAS
7 years ago
Sweating buckets
Sweating buckets I've been on
benepali
for 8 weeks I'm literally sweating buckets tired fatigued feel generally rough, do you think I should stop ?
Sweating buckets I've been on
benepali
for 8 weeks I'm literally sweating buckets tired fatigued feel generally rough, do you think I should stop ?
Vonnie10
in
NRAS
7 years ago
Could I end up disabled ?
Hi, I haven't been doing to great on my
benepali
I'm not doing great at the minute not sleeping, so last night I was thinking back as to what as been said at clinic, two nurses who are CNS and know there job and have 50/60 years experience between them, I have the upmost respect for these two nurses
Hi, I haven't been doing to great on my
benepali
I'm not doing great at the minute not sleeping, so last night I was thinking back as to what as been said at clinic, two nurses who are CNS and know there job and have 50/60 years experience between them, I have the upmost respect for these two nurses
Vonnie10
in
NRAS
7 years ago
Bruising
Having being on MTX and
Benepali
for 2 years and having monthly blood tests, I have noticed bruising over the past 3 weeks, this does not seem normal for me as I have never bruised before. Anyone else with similar problems?
Having being on MTX and
Benepali
for 2 years and having monthly blood tests, I have noticed bruising over the past 3 weeks, this does not seem normal for me as I have never bruised before. Anyone else with similar problems?
Jackadoodle
in
NRAS
7 years ago
Hands up who has been happy with Healthcare at home/HAH?
After being switched to
Benepali
from Enbrel and having an awful time of it months ago. You can imagine I'm desperate to get back on to Enbrel and get my life back.
After being switched to
Benepali
from Enbrel and having an awful time of it months ago. You can imagine I'm desperate to get back on to Enbrel and get my life back.
Deminem
in
NRAS
7 years ago
Reaction to biologic
I've been on
Benepali
for 6.5 months, the first 5 months no reaction. For the last 6 weeks, I have developed site reactions, getting worse week on week. They are about 6cm in diameter, red, hot and itchy. Is this a sign it's losing effectiveness?. I have AS, spinal pains are not too bad.
I've been on
Benepali
for 6.5 months, the first 5 months no reaction. For the last 6 weeks, I have developed site reactions, getting worse week on week. They are about 6cm in diameter, red, hot and itchy. Is this a sign it's losing effectiveness?. I have AS, spinal pains are not too bad.
Runrig01
in
NRAS
7 years ago
Benepali
Hi all I've not posted before..... but I'm just waiting for the hah Nurse to come to show me how to inject for the first time I've got high hopes I've had a dreadfully bad 18 months how are you lot getting on with it 🙏
Hi all I've not posted before..... but I'm just waiting for the hah Nurse to come to show me how to inject for the first time I've got high hopes I've had a dreadfully bad 18 months how are you lot getting on with it 🙏
Skinhead1969
in
NRAS
7 years ago
Benepali, nocebo, or plain no-good?
Re my situ, I have stopped taking my
Benepali
(not with any doc's advice)it'll be 2 weeks on Wednesday and I feel great. I was having a lot of undesirable side effects on it after 5 months taking it. Now is the first time in 7 years that I am on no meds, yikes!
Re my situ, I have stopped taking my
Benepali
(not with any doc's advice)it'll be 2 weeks on Wednesday and I feel great. I was having a lot of undesirable side effects on it after 5 months taking it. Now is the first time in 7 years that I am on no meds, yikes!
Deminem
in
NRAS
7 years ago
Blue badge advice
Hi everyone I have now been taking
Benepali
for over three months and my inflammation is worse than ever. I'm due to see the rheumatologist in two weeks, she. I expect they will change my medication....don't know what to though...
Hi everyone I have now been taking
Benepali
for over three months and my inflammation is worse than ever. I'm due to see the rheumatologist in two weeks, she. I expect they will change my medication....don't know what to though...
Californiadreamer
in
NRAS
7 years ago
Benepali,,,not been my pal(i)
I like many, was switched to
Benepali
in Feb 2017, after almost 4 years on Enbrel for my AS condition(I'm a 50yr female btw). I was shifted just via a letter saying this is happening, end of!
I like many, was switched to
Benepali
in Feb 2017, after almost 4 years on Enbrel for my AS condition(I'm a 50yr female btw). I was shifted just via a letter saying this is happening, end of!
Deminem
in
NRAS
7 years ago
In light of helixhelix post..can anyone offer insight on how to take better control of our future health within the NHS?
It said your being switched to
Benepali
, and without any further ado it came to pass. Needless to say I have had issue with this bio similar, its messed me up good and taken so far six months of my life and turned it into crap. Cut to the chase you say!
It said your being switched to
Benepali
, and without any further ado it came to pass. Needless to say I have had issue with this bio similar, its messed me up good and taken so far six months of my life and turned it into crap. Cut to the chase you say!
Deminem
in
NRAS
7 years ago
Etanercept / benepali
After reading posts on here over the last couple of days about methotrexate advice, drinking plenty, avoiding folic acid on methotrexate day, splitting doses all things I was never told I have even more concerns about starting the
Benepali
, does anyone have any advise or do's or dont's about
Benepali
After reading posts on here over the last couple of days about methotrexate advice, drinking plenty, avoiding folic acid on methotrexate day, splitting doses all things I was never told I have even more concerns about starting the
Benepali
, does anyone have any advise or do's or dont's about
Benepali
Kerry-78
in
NRAS
7 years ago
Benepali
Hi advice please, I have been on
benepali
for six weeks, I'm suffering with chronic headache feeling sickly ear ache jaw ache , how long before its subsides thank her ou .
Hi advice please, I have been on
benepali
for six weeks, I'm suffering with chronic headache feeling sickly ear ache jaw ache , how long before its subsides thank her ou .
Vonnie10
in
NRAS
7 years ago
Sore throat and Benepali
Was meant to inject my
Benepali
on Monday but I've held off because of my sore throat, hoping that it would get better after a couple of days. But if anything it's getting worse.
Was meant to inject my
Benepali
on Monday but I've held off because of my sore throat, hoping that it would get better after a couple of days. But if anything it's getting worse.
Mhairi54
in
NRAS
7 years ago
Spondyloarthritis, Benepali, and pregnancy
Had to go back on the meds but consultant has changed me over to
Benepali
as it's safe to have when pregnant. This is such a positive for me and this morning I had my first dose of
Benepali
so the change over has started.
Had to go back on the meds but consultant has changed me over to
Benepali
as it's safe to have when pregnant. This is such a positive for me and this morning I had my first dose of
Benepali
so the change over has started.
kerryhannah
in
NRAS
7 years ago
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