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Experiences with
Benepali
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4 Strikes (Biologics) and You're Out
When I asked my rheumatologist he said he has to follow the drug pathways the CCG decide so has no choice. 1 out of my 4 chances wasted on top of the move from Enbrel to
Benepali
.
When I asked my rheumatologist he said he has to follow the drug pathways the CCG decide so has no choice. 1 out of my 4 chances wasted on top of the move from Enbrel to
Benepali
.
Dingaan
in
NRAS
6 years ago
Benepali injection
I can’t remember the last time I had pain in my hands It makes you appreciate how effective the
Benepali
is Keep well
I can’t remember the last time I had pain in my hands It makes you appreciate how effective the
Benepali
is Keep well
Brikel
in
NRAS
6 years ago
What does remission mean (to you?)
I've been on NSAIDS, steroids, DMARDS, failed, so now also on
benepali
. Being on so many meds has made me think about whether any of these will eventually work and how that will look. I'm just curious about what the outcome has been for you all in general.
I've been on NSAIDS, steroids, DMARDS, failed, so now also on
benepali
. Being on so many meds has made me think about whether any of these will eventually work and how that will look. I'm just curious about what the outcome has been for you all in general.
heyitsmee
in
NRAS
6 years ago
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Helter Skelter of drugs
I saw the rheumatologist last week and after 5 months of
Benepali
she says it's not working and stop taking it immediately. For about 10 weeks
Benepali
was really good and I felt a lot better but for the last 2 months have increasingly been going back to as bad as it's ever been.
I saw the rheumatologist last week and after 5 months of
Benepali
she says it's not working and stop taking it immediately. For about 10 weeks
Benepali
was really good and I felt a lot better but for the last 2 months have increasingly been going back to as bad as it's ever been.
roseyx
in
NRAS
6 years ago
Has anyone mastered painless benepali injections?
Been on
benepali
for 3 months now. Sometimes the injection is sweet and easy and doesn't hurt much at all (normally on left leg). Other times it stings like hell and I shout the house down. Any tips and tricks for making it more painless?
Been on
benepali
for 3 months now. Sometimes the injection is sweet and easy and doesn't hurt much at all (normally on left leg). Other times it stings like hell and I shout the house down. Any tips and tricks for making it more painless?
heyitsmee
in
NRAS
6 years ago
Light at the end of a long tunnel
Lovely Dr Gaffney said this couldn't continue and here I am now, 5 weeks with
Benepali
. What a difference! I feel like me again (almost). Meeting friends, back in my biz at 7am and feeling like I can do things again. I'm still taking mtx and Sulfa and yes, still have twinges.
Lovely Dr Gaffney said this couldn't continue and here I am now, 5 weeks with
Benepali
. What a difference! I feel like me again (almost). Meeting friends, back in my biz at 7am and feeling like I can do things again. I'm still taking mtx and Sulfa and yes, still have twinges.
HappykindaGal
in
NRAS
6 years ago
Light at the end of a long tunnel
Lovely Dr Gaffney said this couldn't continue and here I am now, 5 weeks with
Benepali
. What a difference! I feel like me again (almost). Meeting friends, back in my biz at 7am and feeling like I can do things again. I'm still taking mtx and Sulfa and yes, still have twinges.
Lovely Dr Gaffney said this couldn't continue and here I am now, 5 weeks with
Benepali
. What a difference! I feel like me again (almost). Meeting friends, back in my biz at 7am and feeling like I can do things again. I'm still taking mtx and Sulfa and yes, still have twinges.
HappykindaGal
in
NRAS
6 years ago
Etanercept and Headaches
Has anyone had trouble with headaches for several days after taking etanercept injections (I’m taking
Benepali
). I’m a long-term migraine sufferer but these headaches are milder and won’t respond to normal migraine drugs, ibuprofen, etc.
Has anyone had trouble with headaches for several days after taking etanercept injections (I’m taking
Benepali
). I’m a long-term migraine sufferer but these headaches are milder and won’t respond to normal migraine drugs, ibuprofen, etc.
b7000
in
NRAS
6 years ago
Children’s flu vaccine and contact as immunosuppressed
I have been on
Benepali
for a year and therefore classed as “ immunosuppressed”. I had my flu jab 3 weeks ago. Will this pose a problem?
I have been on
Benepali
for a year and therefore classed as “ immunosuppressed”. I had my flu jab 3 weeks ago. Will this pose a problem?
Deniseelk
in
NRAS
6 years ago
Travelling with injections
I need to take one of my
benepali
injections with me. Am I able to travel with this on the flight? Do I need to advise anyone that I am travelling with injection pens, and finally does anyone have a suggestion on a cooler case? The flight is 8 hours. Thank you in advance.
I need to take one of my
benepali
injections with me. Am I able to travel with this on the flight? Do I need to advise anyone that I am travelling with injection pens, and finally does anyone have a suggestion on a cooler case? The flight is 8 hours. Thank you in advance.
Ouchyjenna
in
NRAS
6 years ago
Benepali storage without fridge 15 hours
How can I keep
benepali
pens cool for 15 hours? Any idea on online products I could purchase? Thanks :-)
How can I keep
benepali
pens cool for 15 hours? Any idea on online products I could purchase? Thanks :-)
Benepalitraveler
in
NRAS
6 years ago
Benepali injections and side effects getting worse
I have been taking
Benepali
for 6 wks now. The first 2 wks I had no pain whilst injecting and no site reaction. For the past 4 wks each injection has got more painful and I have started to get a reaction on my skin where I inject.
I have been taking
Benepali
for 6 wks now. The first 2 wks I had no pain whilst injecting and no site reaction. For the past 4 wks each injection has got more painful and I have started to get a reaction on my skin where I inject.
Kelmcg
in
NRAS
6 years ago
itchy scalp and benepali??
Me again wondering if anyone else on
benepali
is experiencing an itchy scalp at all as I am; particularly after injecting and for the first 48hrs; want to really scratch but am trying not too.
Me again wondering if anyone else on
benepali
is experiencing an itchy scalp at all as I am; particularly after injecting and for the first 48hrs; want to really scratch but am trying not too.
TPaine
in
NRAS
6 years ago
Benepali is not my pali
Two months into
benepali
, with a stinking cold thats had me in bed for a week, a fluid filled knee and an unhappy brain. If anyone has any positive
benepali
stories id love to hear them! So i can imagine some light at the end of this sewage filled tunnel.
Two months into
benepali
, with a stinking cold thats had me in bed for a week, a fluid filled knee and an unhappy brain. If anyone has any positive
benepali
stories id love to hear them! So i can imagine some light at the end of this sewage filled tunnel.
Amylau
in
NRAS
6 years ago
Anyone got any ideas about what I should do now?
At the beginning of the year I was so bad I could hardly move, I was put on 4 months of Prednisone, and started on 50mg
Benepali
- which I was fine with. No problems with side affects, no problems at injection site.
At the beginning of the year I was so bad I could hardly move, I was put on 4 months of Prednisone, and started on 50mg
Benepali
- which I was fine with. No problems with side affects, no problems at injection site.
annie0261
in
NRAS
6 years ago
Benepali and erythromycin.
Just wondering if anyone knows,can we take erythromycin whilst on
benepali
. I ring my rhuemy advice line today,am awaiting a call back. But i have an ear infection and need to take this antibiotic. So have started it. But tomorrow is my injection day. May leave it for this week.
Just wondering if anyone knows,can we take erythromycin whilst on
benepali
. I ring my rhuemy advice line today,am awaiting a call back. But i have an ear infection and need to take this antibiotic. So have started it. But tomorrow is my injection day. May leave it for this week.
Treza42
in
NRAS
6 years ago
Switching to Benepali
Hi, Despite being told by my rheumatology Nurse that they have definitely no plans to switch patients from enbrel to
benepali
I received a letter in this mornings post telling me that is exactly what is happening.
Hi, Despite being told by my rheumatology Nurse that they have definitely no plans to switch patients from enbrel to
benepali
I received a letter in this mornings post telling me that is exactly what is happening.
Taffsmum
in
NRAS
6 years ago
Is this a flare ?
I started on
Benepali
in mid June ,14 wks ago & very soon felt a real improvement but for the last 3 wks my right wrist has been very swollen & painful.
I started on
Benepali
in mid June ,14 wks ago & very soon felt a real improvement but for the last 3 wks my right wrist has been very swollen & painful.
roseyx
in
NRAS
6 years ago
Etanercept switch research. Paid research
Study Criteria •Must be currently be taking
Benepali
or Erelzi having switched from Enbrel Study Info •Completely confidential, anonymous telephone discussion •60 minutes in length •You will receive £60 for your time via BACS, cheque or Amazon voucher If interested, contact Tom at parkinson
Study Criteria •Must be currently be taking
Benepali
or Erelzi having switched from Enbrel Study Info •Completely confidential, anonymous telephone discussion •60 minutes in length •You will receive £60 for your time via BACS, cheque or Amazon voucher If interested, contact Tom at parkinson
Hidden
in
NRAS
6 years ago
Biologics
Hi, I have just come off
benepali
after 10months as not working. I am also on MTX 12.5mg and predicting 5mg. Rheumy decided on tocilizumab as an alternative...anyone on this or been on it. The reading up of the drug is a bit scary. I did not have any side effects on
benepali
as far as I know.
Hi, I have just come off
benepali
after 10months as not working. I am also on MTX 12.5mg and predicting 5mg. Rheumy decided on tocilizumab as an alternative...anyone on this or been on it. The reading up of the drug is a bit scary. I did not have any side effects on
benepali
as far as I know.
LadyJan
in
NRAS
6 years ago
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