Biologics

[LadyJan]

Hi, I have just come off benepali after 10months as not working. I am also on MTX 12.5mg and predicting 5mg. Rheumy decided on tocilizumab as an alternative...anyone on this or been on it. The reading up of the drug is a bit scary. I did not have any side effects on benepali as far as I know. Lethargy plays such a big part off RD you don't know what's causing what. I am seriously negative after having PMR for 10yrs. Like everyone on forum good and bad days but I won't let it beat me. Went to London year and walked regent's park, down the canal to Camden lock...had lunch and came home...lovely day and weather but I am paying today...it was worth it tho...

Ladyjan

[oldtimer]

If you put tocilizumab in the search box you will find quite a lot of posts - including one about my sister who has been on it for some years now as part of a post-marketing trial which follows up people on the drug (it means she gets seen more often and has more tests than usually). It has been very successful for her and her disease is certainly better controlled than mine!

[Matt06]

About to start on tocilizumab with methotrexate hoping for good results as I have had a rotten time since coming off leflunomide. Wish I had gone for the washout as it took over 6 months to come out of my system. Never felt so ill in my life. Night sweats and fatigue were awful.

[Newhaven]

Hi there,

I started on roactemra ( tocilizumab) injections at the beginning of August. I had been on mtx (20 injection) and HCl. I had horrible nausea and headache from the mtx.

So far delighted with the roactemra. She's working well in terms of controlling the RD, and so far no side effects.

My mother has also been on roactemra infusions for about 8 years. She is doing very well on this

.

Good luck with this