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Experiences with
Benepali
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Cimzia...next on the list
Already tried and reacted badly to
Benepali
& Abatacept. I know I need to try others, depo injections are only easing pain for 6-8weeks, but I am so nervous I will react the same way that I'm not sure if any symptoms then all are just in my head ITMS.
Already tried and reacted badly to
Benepali
& Abatacept. I know I need to try others, depo injections are only easing pain for 6-8weeks, but I am so nervous I will react the same way that I'm not sure if any symptoms then all are just in my head ITMS.
Tabitha73
in
NRAS
5 years ago
Benepali
Has anyone had a problem with
Benepali
being not available due to a manufactoring issue.
Has anyone had a problem with
Benepali
being not available due to a manufactoring issue.
Tiggerlkr
in
NRAS
5 years ago
Humira
I have , two weeks ago started on Humira, having tried
Benepali
for 3 months. Hoping for success, as like many it really gets you down. Is there any guidance on how long it might be before I see any benefits.. hoping for a miracle. Many thanks Best wishes to all!
I have , two weeks ago started on Humira, having tried
Benepali
for 3 months. Hoping for success, as like many it really gets you down. Is there any guidance on how long it might be before I see any benefits.. hoping for a miracle. Many thanks Best wishes to all!
Pudding26
in
NRAS
5 years ago
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Benepali and tiredness
I have never missed a weekly
Benepali
injection. My husband agrees he can see the routine. I wondered if anybody else has experienced this. Have you raised it with medics to see if there is a sensible reason for the regular peaks and troughs?
I have never missed a weekly
Benepali
injection. My husband agrees he can see the routine. I wondered if anybody else has experienced this. Have you raised it with medics to see if there is a sensible reason for the regular peaks and troughs?
Deniseelk
in
NRAS
6 years ago
Dilemma?
I've been taking etanercept (enbrel/
benepali
/enbrel) for about 15 years as well as mtx. Since the change to
benepali
last year I've struggled to get back in control of my RA despite going back on enbrel in March. I've only managed through a raft of steroid injections.
I've been taking etanercept (enbrel/
benepali
/enbrel) for about 15 years as well as mtx. Since the change to
benepali
last year I've struggled to get back in control of my RA despite going back on enbrel in March. I've only managed through a raft of steroid injections.
Maggsie
in
NRAS
6 years ago
Humira
I did on
benepali
but now lost that as not on any biologic at mo. Ladyjan
I did on
benepali
but now lost that as not on any biologic at mo. Ladyjan
LadyJan
in
NRAS
6 years ago
Benepali left out of fridge ...is it safe
I had a delivery of
Benepali
injections a month ago , and my son left them on the worktop all afternoon. Yikes ! When I got home I phoned healthcare at home and their pharmacist said to put one box of four injections in a cupboard and use them.
I had a delivery of
Benepali
injections a month ago , and my son left them on the worktop all afternoon. Yikes ! When I got home I phoned healthcare at home and their pharmacist said to put one box of four injections in a cupboard and use them.
Stars27
in
NRAS
6 years ago
4 Strikes (Biologics) and You're Out
When I asked my rheumatologist he said he has to follow the drug pathways the CCG decide so has no choice. 1 out of my 4 chances wasted on top of the move from Enbrel to
Benepali
.
When I asked my rheumatologist he said he has to follow the drug pathways the CCG decide so has no choice. 1 out of my 4 chances wasted on top of the move from Enbrel to
Benepali
.
Dingaan
in
NRAS
6 years ago
Benepali injection
I can’t remember the last time I had pain in my hands It makes you appreciate how effective the
Benepali
is Keep well
I can’t remember the last time I had pain in my hands It makes you appreciate how effective the
Benepali
is Keep well
Brikel
in
NRAS
6 years ago
What does remission mean (to you?)
I've been on NSAIDS, steroids, DMARDS, failed, so now also on
benepali
. Being on so many meds has made me think about whether any of these will eventually work and how that will look. I'm just curious about what the outcome has been for you all in general.
I've been on NSAIDS, steroids, DMARDS, failed, so now also on
benepali
. Being on so many meds has made me think about whether any of these will eventually work and how that will look. I'm just curious about what the outcome has been for you all in general.
heyitsmee
in
NRAS
6 years ago
Helter Skelter of drugs
I saw the rheumatologist last week and after 5 months of
Benepali
she says it's not working and stop taking it immediately. For about 10 weeks
Benepali
was really good and I felt a lot better but for the last 2 months have increasingly been going back to as bad as it's ever been.
I saw the rheumatologist last week and after 5 months of
Benepali
she says it's not working and stop taking it immediately. For about 10 weeks
Benepali
was really good and I felt a lot better but for the last 2 months have increasingly been going back to as bad as it's ever been.
roseyx
in
NRAS
6 years ago
Has anyone mastered painless benepali injections?
Been on
benepali
for 3 months now. Sometimes the injection is sweet and easy and doesn't hurt much at all (normally on left leg). Other times it stings like hell and I shout the house down. Any tips and tricks for making it more painless?
Been on
benepali
for 3 months now. Sometimes the injection is sweet and easy and doesn't hurt much at all (normally on left leg). Other times it stings like hell and I shout the house down. Any tips and tricks for making it more painless?
heyitsmee
in
NRAS
6 years ago
Light at the end of a long tunnel
Lovely Dr Gaffney said this couldn't continue and here I am now, 5 weeks with
Benepali
. What a difference! I feel like me again (almost). Meeting friends, back in my biz at 7am and feeling like I can do things again. I'm still taking mtx and Sulfa and yes, still have twinges.
Lovely Dr Gaffney said this couldn't continue and here I am now, 5 weeks with
Benepali
. What a difference! I feel like me again (almost). Meeting friends, back in my biz at 7am and feeling like I can do things again. I'm still taking mtx and Sulfa and yes, still have twinges.
HappykindaGal
in
NRAS
6 years ago
Light at the end of a long tunnel
Lovely Dr Gaffney said this couldn't continue and here I am now, 5 weeks with
Benepali
. What a difference! I feel like me again (almost). Meeting friends, back in my biz at 7am and feeling like I can do things again. I'm still taking mtx and Sulfa and yes, still have twinges.
Lovely Dr Gaffney said this couldn't continue and here I am now, 5 weeks with
Benepali
. What a difference! I feel like me again (almost). Meeting friends, back in my biz at 7am and feeling like I can do things again. I'm still taking mtx and Sulfa and yes, still have twinges.
HappykindaGal
in
NRAS
6 years ago
Etanercept and Headaches
Has anyone had trouble with headaches for several days after taking etanercept injections (I’m taking
Benepali
). I’m a long-term migraine sufferer but these headaches are milder and won’t respond to normal migraine drugs, ibuprofen, etc.
Has anyone had trouble with headaches for several days after taking etanercept injections (I’m taking
Benepali
). I’m a long-term migraine sufferer but these headaches are milder and won’t respond to normal migraine drugs, ibuprofen, etc.
b7000
in
NRAS
6 years ago
Children’s flu vaccine and contact as immunosuppressed
I have been on
Benepali
for a year and therefore classed as “ immunosuppressed”. I had my flu jab 3 weeks ago. Will this pose a problem?
I have been on
Benepali
for a year and therefore classed as “ immunosuppressed”. I had my flu jab 3 weeks ago. Will this pose a problem?
Deniseelk
in
NRAS
6 years ago
Travelling with injections
I need to take one of my
benepali
injections with me. Am I able to travel with this on the flight? Do I need to advise anyone that I am travelling with injection pens, and finally does anyone have a suggestion on a cooler case? The flight is 8 hours. Thank you in advance.
I need to take one of my
benepali
injections with me. Am I able to travel with this on the flight? Do I need to advise anyone that I am travelling with injection pens, and finally does anyone have a suggestion on a cooler case? The flight is 8 hours. Thank you in advance.
Ouchyjenna
in
NRAS
6 years ago
Benepali storage without fridge 15 hours
How can I keep
benepali
pens cool for 15 hours? Any idea on online products I could purchase? Thanks :-)
How can I keep
benepali
pens cool for 15 hours? Any idea on online products I could purchase? Thanks :-)
Benepalitraveler
in
NRAS
6 years ago
Benepali injections and side effects getting worse
I have been taking
Benepali
for 6 wks now. The first 2 wks I had no pain whilst injecting and no site reaction. For the past 4 wks each injection has got more painful and I have started to get a reaction on my skin where I inject.
I have been taking
Benepali
for 6 wks now. The first 2 wks I had no pain whilst injecting and no site reaction. For the past 4 wks each injection has got more painful and I have started to get a reaction on my skin where I inject.
Kelmcg
in
NRAS
6 years ago
itchy scalp and benepali??
Me again wondering if anyone else on
benepali
is experiencing an itchy scalp at all as I am; particularly after injecting and for the first 48hrs; want to really scratch but am trying not too.
Me again wondering if anyone else on
benepali
is experiencing an itchy scalp at all as I am; particularly after injecting and for the first 48hrs; want to really scratch but am trying not too.
TPaine
in
NRAS
6 years ago
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