Benepali: Has anyone had a problem with Benepali being... - NRAS

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Benepali

Tiggerlkr profile image
7 Replies

Has anyone had a problem with Benepali being not available due to a manufactoring issue.

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Tiggerlkr
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7 Replies

No. In fact I'm pretty well stocked up on it atm. Healthcare at home have been excellent I must say. They always ring me!

Not good for you though. Are you totally without?

Tiggerlkr profile image
Tiggerlkr in reply to

Yes,next dose should be tomorrow. Have been waiting for hospital to phone back since 12.30. Will have to phone again tomorrow, still taking methotrexate though so not completely off drugs.

in reply toTiggerlkr

Oh no! Could you ring health care at home? Though not sure what they'd do. Which area are you approx? I live Oxfordshire, doesn't seem to be an issue here.

Tiggerlkr profile image
Tiggerlkr in reply to

In Wiltshire. Will phone rheumy nurses tomorrow if no joy from the hospital pharmacy people. Only been on it a few months but seems to work well for me. No relief with methotrexate just extreme nausea..

No problem with it here either, I had a delivery on Friday. I hope you get yours delivered soon.

Tabitha73 profile image
Tabitha73

To add insult to injury to your plight I have 2 full unopened cartons here that I have been told to dispose of as they changed my meds x

Tiggerlkr profile image
Tiggerlkr

Have managed to get some Benepali today,apparently all back to normal now. Just wished I'd been told before,as I rely on lifts to get to the pharmacy. Thank you for replying to my post.xxxx

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