Light at the end of a long tunnel: I feel like I'm a... - NRAS

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Light at the end of a long tunnel

HappykindaGal profile image
5 Replies

I feel like I'm a lucky one. Was diagnosed almost three years ago now and along with many of us, went through every drug known to man with little effect. Social life - what social life? Having to plan ahead for a trip around the corner. Not being able to do stuff we did and people thinking we are lazy. (I run a business and got the 'look' a lot!).

Finally! Lovely Dr Gaffney said this couldn't continue and here I am now, 5 weeks with Benepali. What a difference! I feel like me again (almost). Meeting friends, back in my biz at 7am and feeling like I can do things again. I'm still taking mtx and Sulfa and yes, still have twinges. The main thing for me is that the fatigue has gone.

It's brutal that we have to go through trying all the meds before biologics, particularly as they transform many peoples' lives.

This is for people that haven't had RA for long - there is hopefully light at the end of the tunnel for you although that tunnel may be longer than you had hoped. And people on this forum are lovely and will help you too. ❤️❤️💕

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HappykindaGal profile image
HappykindaGal
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5 Replies
keeta profile image
keeta

Good for you Cwendyn so happy for you but don.t do too much hugs xxkathyxx

HappykindaGal profile image
HappykindaGal in reply to keeta

Thank you! I'm a bit of a workaholic usually and realise that I need to temper it a bit. My nature is to go at everything at 100 miles an hour 😆😁

keeta profile image
keeta in reply to HappykindaGal

Still be carefull hugs xx

Doughnut61 profile image
Doughnut61

Good for you x and thank you for giving hope to us all 😄 I cannot take MTX it made me so ill, and affected my liver x been ok for ish for 6 months on Hydrox and Sulpha x now liver readings are rising again and have been for the last 3 months x so tired of it all and scared too x I have a liver scan booked for 27th x so scared the damage is already done ☹️ Are there any drugs that don’t effect the liver? And no haven’t touched alcohol 😩

Gnarli profile image
Gnarli

Thank you, Cwendyn. Your lovely, uplifting and positive post gives us all hope. Wishing you well

J

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