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Experiences with
Benepali
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Irritated!
I was booked in for a phone consultation to start a new drug because
Benepali
was causing drug induced Lupus. They were over an hour late calling me, so I was on the phone to the hospital to find out if the call was still going ahead when I missed the call I was waiting for...
I was booked in for a phone consultation to start a new drug because
Benepali
was causing drug induced Lupus. They were over an hour late calling me, so I was on the phone to the hospital to find out if the call was still going ahead when I missed the call I was waiting for...
SarahJane926
in
NRAS
4 years ago
Benepali pain worse than Cimzia?
Just as the
Benepali
was so bad and I know I will have to do two injections tomorrow straight after each other so don't want to whimp out! Charlotte x
Just as the
Benepali
was so bad and I know I will have to do two injections tomorrow straight after each other so don't want to whimp out! Charlotte x
CharlotteLucyx
in
NRAS
4 years ago
Anyone worried about rise in cases?
Im seeing rheumy Tuesday to discuss my biologic as
Benepali
stopped working 9 weeks into treatment and ive been on it for almost 25 weeks now. Oh well. Other than that im smiling through the pain x
Im seeing rheumy Tuesday to discuss my biologic as
Benepali
stopped working 9 weeks into treatment and ive been on it for almost 25 weeks now. Oh well. Other than that im smiling through the pain x
Ms-D
in
NRAS
4 years ago
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Update on f2f appointment
It is hard for her as I am seronegative so it is harder to switch but I said that when I started
Benepali
on 20th April for 9-10 weeks I was pain free and then the pain started creep in.
It is hard for her as I am seronegative so it is harder to switch but I said that when I started
Benepali
on 20th April for 9-10 weeks I was pain free and then the pain started creep in.
Ms-D
in
NRAS
4 years ago
How can we be sure that benepali is working?
If
benepali
is working, then why is she so tired (all other bloods to identify other causes I’ve been normal) and why are her finger joints swollen, tender and deforming? Can your finger joints continue to deform while on
benepali
? Surely it should make the disease quiescent?
If
benepali
is working, then why is she so tired (all other bloods to identify other causes I’ve been normal) and why are her finger joints swollen, tender and deforming? Can your finger joints continue to deform while on
benepali
? Surely it should make the disease quiescent?
RApatient2020
in
NRAS
4 years ago
Leaking pen Benepali
Does anybody have problems with
Benepali
pen injection leaking doesn’t all go in x
Does anybody have problems with
Benepali
pen injection leaking doesn’t all go in x
Lilahloo
in
NRAS
4 years ago
happy sunday thoughts....
Benepali
day so waiting till 6pm when the explicit words come out of me then its all smiles again like nothing happened. Lol. Thank you for the love and support lately its helped knowing im not alone xxx
Benepali
day so waiting till 6pm when the explicit words come out of me then its all smiles again like nothing happened. Lol. Thank you for the love and support lately its helped knowing im not alone xxx
Ms-D
in
NRAS
4 years ago
Anyone had their biologic therapy changed from Benepali to something else?
If
Benepali
isnt working whats the next option? Its all so frustrating as i was so happy it was working as i was pain free except for bursitis pain lol. X
If
Benepali
isnt working whats the next option? Its all so frustrating as i was so happy it was working as i was pain free except for bursitis pain lol. X
Ms-D
in
NRAS
4 years ago
Advice Please
I’ve RA and been started on
Benepali
for last 3 weeks. OMG the injections are awful and for 2 days following I feel terrible. Fatigue, hot sweats, upset tummy, Headaches. Been in touch with RA team and they may switch to Enbrel ? What’s that like ? Any advice ?
I’ve RA and been started on
Benepali
for last 3 weeks. OMG the injections are awful and for 2 days following I feel terrible. Fatigue, hot sweats, upset tummy, Headaches. Been in touch with RA team and they may switch to Enbrel ? What’s that like ? Any advice ?
Chuggie
in
NRAS
4 years ago
Starting new treatment
Am having to come off
Benepali
as it's not working for me ..am going on Tocilizumab is anyone on it or know anything about it xx
Am having to come off
Benepali
as it's not working for me ..am going on Tocilizumab is anyone on it or know anything about it xx
Swimming20
in
NRAS
4 years ago
Query re return to work in education
I am on
benepali
and methotrexate and get steroid injections. I am thinking of wearing a visor. What are your guys thoughts?
I am on
benepali
and methotrexate and get steroid injections. I am thinking of wearing a visor. What are your guys thoughts?
HamHammy
in
NRAS
4 years ago
Benepali and HRT
I am currently taking
benepali
weekly injections and I'm wondering if anyone else on
benepali
has tried hrt successfully and which type of hrt you are using please. Thankyou in advance 🙂
I am currently taking
benepali
weekly injections and I'm wondering if anyone else on
benepali
has tried hrt successfully and which type of hrt you are using please. Thankyou in advance 🙂
Flossie-M
in
NRAS
4 years ago
Anyone with RA tried CBD oil or rub?
I am now thinking of trying CBD oil as I’m sure I read on here someone on
Benepali
was taking it with great success. I’d be interested in your experiences before I speak to my rheummie about it.
I am now thinking of trying CBD oil as I’m sure I read on here someone on
Benepali
was taking it with great success. I’d be interested in your experiences before I speak to my rheummie about it.
Knit12
in
NRAS
4 years ago
What to do????
Hi I was initially on
Benepali
biologic for a year, it proved bery beneficial, changing my life really, however, stopped reaching therapeutic effect. Then px Adalimumab , which didnt seem to work. It took me a long time to recieve biologics, so i am reluctant to change to other meds.
Hi I was initially on
Benepali
biologic for a year, it proved bery beneficial, changing my life really, however, stopped reaching therapeutic effect. Then px Adalimumab , which didnt seem to work. It took me a long time to recieve biologics, so i am reluctant to change to other meds.
Cheryl20
in
NRAS
4 years ago
Moving to a new area
My main concern is I’ve not long started
Benepali
- does anyone know whether I would be automatically eligible for biologics if I move to another area? Any advice or recommendations either about Rheumy services in N Norfolk or how to find a good GP clinic would be much appreciated. Thank you x
My main concern is I’ve not long started
Benepali
- does anyone know whether I would be automatically eligible for biologics if I move to another area? Any advice or recommendations either about Rheumy services in N Norfolk or how to find a good GP clinic would be much appreciated. Thank you x
JEM95
in
NRAS
4 years ago
Sero-negative arthritis
I have tried the 3 most common dmards to no effect due to side effects so I started
Benepali
in April, however in the past 3 weeks my hand, knees, elbows and ankle are so painful that I find it so painful to pick up a cup or even brush my hair.
I have tried the 3 most common dmards to no effect due to side effects so I started
Benepali
in April, however in the past 3 weeks my hand, knees, elbows and ankle are so painful that I find it so painful to pick up a cup or even brush my hair.
Ms-D
in
NRAS
4 years ago
Benepali injections
Hi, I’ve been on
Benepali
injections for a couple of months now with great success 😀 I feel almost normal. I’m getting in a bit of a pickle as I find the actual injection hurts - I have to give myself a pep talk beforehand (and a chocolatey reward afterwards!). I’m no wimp.
Hi, I’ve been on
Benepali
injections for a couple of months now with great success 😀 I feel almost normal. I’m getting in a bit of a pickle as I find the actual injection hurts - I have to give myself a pep talk beforehand (and a chocolatey reward afterwards!). I’m no wimp.
JEM95
in
NRAS
4 years ago
My excellent Rheumatologist
On Monday I had a call from a rheummy nurse asking how I was getting on (I was on week 10 of
Benepali
, had to have a steroid injection 3 weeks before). I explained I was struggling, particularly in my hands and wrists. Not great as I am full time carer to my 86 year old mum.
On Monday I had a call from a rheummy nurse asking how I was getting on (I was on week 10 of
Benepali
, had to have a steroid injection 3 weeks before). I explained I was struggling, particularly in my hands and wrists. Not great as I am full time carer to my 86 year old mum.
Knit12
in
NRAS
4 years ago
Short term relief with Benepali?
I started
Benepali
11 weeks ago and it has been a life saver. However, the past week or two the pain in my joints has started to come back and I am not sure if its the
Benepali
not working or something else. I also have bursitis and that is excruciating.
I started
Benepali
11 weeks ago and it has been a life saver. However, the past week or two the pain in my joints has started to come back and I am not sure if its the
Benepali
not working or something else. I also have bursitis and that is excruciating.
Ms-D
in
NRAS
4 years ago
I'm getting my benepali stopped to go on humera
Hi my rheumatologist is changing my
benepali
injection to the biosimiler of humera can I ask people if they have gone on this and what your thoughts are does it work iv been in a lot of pain so the
benepali
isn't working he said so have to go for chest xray & have bloods done
Hi my rheumatologist is changing my
benepali
injection to the biosimiler of humera can I ask people if they have gone on this and what your thoughts are does it work iv been in a lot of pain so the
benepali
isn't working he said so have to go for chest xray & have bloods done
mbw159
in
NRAS
4 years ago
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