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Benepali
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Off topic diary of my RA and benepali
I keep a day to day diary now when on a new drug to keep track of what is going on. Sat 9/1/21 Slept through almost but no cocodomol for headache at 3am. Woke 7am very dry sicca eyes and mouth eye drops in. Joints not too bad for me today so able to do stairs quite well. Low fatigue today managed
I keep a day to day diary now when on a new drug to keep track of what is going on. Sat 9/1/21 Slept through almost but no cocodomol for headache at 3am. Woke 7am very dry sicca eyes and mouth eye drops in. Joints not too bad for me today so able to do stairs quite well. Low fatigue today managed
Hidden
in
NRAS
4 years ago
MTX and Benepali and Covid-19
Have been thinking of stopping mtx and
benepali
for a while to increase my immune system due to the rise in cases. I’m staying at home, but I’m much more worried now than I was back in the summer. Has anyone else had similar thoughts.
Have been thinking of stopping mtx and
benepali
for a while to increase my immune system due to the rise in cases. I’m staying at home, but I’m much more worried now than I was back in the summer. Has anyone else had similar thoughts.
teresa2711
in
NRAS
4 years ago
Covid Vaccine
Has anybody on
Benepali
and prednisolone had the COVID vaccine yet x
Has anybody on
Benepali
and prednisolone had the COVID vaccine yet x
Lilahloo
in
NRAS
4 years ago
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Consultant 25 Jan... what to do in the meantime?
The only route forward for me is biologics again, but having suffered problems with both Amgevita and
Benepali
the field is narrowing.
The only route forward for me is biologics again, but having suffered problems with both Amgevita and
Benepali
the field is narrowing.
Brushwork
in
NRAS
4 years ago
Benepali and Covid
Hi, is there anyone who’s tested positive for Covid and is currently on
Benepali
? Just interested to know of anyone’s experience? Did you have mild or severe symptoms. I’m on this bio and obviously like everyone else concerned. Any feedback would be appreciated. Thanks
Hi, is there anyone who’s tested positive for Covid and is currently on
Benepali
? Just interested to know of anyone’s experience? Did you have mild or severe symptoms. I’m on this bio and obviously like everyone else concerned. Any feedback would be appreciated. Thanks
Hidden
in
NRAS
4 years ago
Biologic not working after a 2 week break
Hi all, I started on
Benepali
in March after 2 years of non-biologic medication not working. After just 1 week it had started to reduce my swelling and by just 4 more weeks it’s like my joints had no inflammation. In September my consultant confirmed I was in remission.
Hi all, I started on
Benepali
in March after 2 years of non-biologic medication not working. After just 1 week it had started to reduce my swelling and by just 4 more weeks it’s like my joints had no inflammation. In September my consultant confirmed I was in remission.
Aperson99
in
NRAS
4 years ago
Advice - neck pain?
♥️ I've been on Cimzia for a few months after being changed from
Benepali
due the fact it stopped working, however have been having awful neck pain for the past few weeks/a month or so - it's almost as if it feels like I need to roll my neck but it's so stiff that I can't/almost feels like there's wall
♥️ I've been on Cimzia for a few months after being changed from
Benepali
due the fact it stopped working, however have been having awful neck pain for the past few weeks/a month or so - it's almost as if it feels like I need to roll my neck but it's so stiff that I can't/almost feels like there's wall
CharlotteLucyx
in
NRAS
4 years ago
Steroid injection
I’ve been told I can’t have steroid injection into my foot because of taking
Benepali
Methotrexate and Hydroxychloroquine. I was due to have it in March but it was cancelled because of Covid. Anyone had a similar experience?
I’ve been told I can’t have steroid injection into my foot because of taking
Benepali
Methotrexate and Hydroxychloroquine. I was due to have it in March but it was cancelled because of Covid. Anyone had a similar experience?
mmb50
in
NRAS
4 years ago
Cimzia tips (switch from Benepali)
I’ve been on
Benepali
for a few years so know that taking it out of the fridge hours in advance can help with the injections stinging etc. Any tips for Cimzia?
I’ve been on
Benepali
for a few years so know that taking it out of the fridge hours in advance can help with the injections stinging etc. Any tips for Cimzia?
kerryhannah
in
NRAS
4 years ago
Rheumatologist wants mum to start Baricitinib.
My mum’s RA was very well controlled on Enbrel but things started to deteriorate after she was switched to
Benepali
. I understand that Baricitinib is an oral medication but my mum was also given a choice of another injection. Really don’t know which to choose.
My mum’s RA was very well controlled on Enbrel but things started to deteriorate after she was switched to
Benepali
. I understand that Baricitinib is an oral medication but my mum was also given a choice of another injection. Really don’t know which to choose.
RApatient2020
in
NRAS
4 years ago
Why do we get a whammy of conditions all at once?
I stopped my
Benepali
. Then third day Shingles! Phoned 111 and the service was fabulous, call back from an out of hours medical adviser and a prescription for anti virals was sent to my chosen pharmacy immediately. Husband drove me straight there and medication started!
I stopped my
Benepali
. Then third day Shingles! Phoned 111 and the service was fabulous, call back from an out of hours medical adviser and a prescription for anti virals was sent to my chosen pharmacy immediately. Husband drove me straight there and medication started!
Deniseelk
in
NRAS
4 years ago
Total Reverse Shoulder Replacement from a Rheumatoid's Viewpoint - Part 2
The problem I am now having is being a rheumatoid and not being allowed to inject my
Benepali
. I will have now been off it for a month today so all my joints are becoming sore.
The problem I am now having is being a rheumatoid and not being allowed to inject my
Benepali
. I will have now been off it for a month today so all my joints are becoming sore.
LindaLegs
in
NRAS
4 years ago
How long do you keep the injectapen pressed for Adalimumab?
With
Benepali
it was 15 seconds and after 22 weeks I was finally not freaking out whilst taking it lol. My pain threshold is not the best despite so many injections over the past year. Any advise would be great x
With
Benepali
it was 15 seconds and after 22 weeks I was finally not freaking out whilst taking it lol. My pain threshold is not the best despite so many injections over the past year. Any advise would be great x
Ms-D
in
NRAS
4 years ago
Should we take Vitamin D?
I feel very fortunate to be well controlled on both Methotrexate and
Benepali
injections. But my question is to all you well read people is the new advise from Health Secretary Matt Hancock that we should take Vitamin D as a line of defence against the corona virus.
I feel very fortunate to be well controlled on both Methotrexate and
Benepali
injections. But my question is to all you well read people is the new advise from Health Secretary Matt Hancock that we should take Vitamin D as a line of defence against the corona virus.
Pythagorus
in
NRAS
4 years ago
Total Reverse Shoulder Replacement from a Rheumatoid's View - Final Part
I have been off my
Benepali
for nearly 5 weeks now but as this week progressed my arthritis is starting to flare with each day being worse than the one before. I have been doing my best to manage the pain but, today, I decided enough was enough and I have started the injections again.
I have been off my
Benepali
for nearly 5 weeks now but as this week progressed my arthritis is starting to flare with each day being worse than the one before. I have been doing my best to manage the pain but, today, I decided enough was enough and I have started the injections again.
LindaLegs
in
NRAS
4 years ago
Irritated!
I was booked in for a phone consultation to start a new drug because
Benepali
was causing drug induced Lupus. They were over an hour late calling me, so I was on the phone to the hospital to find out if the call was still going ahead when I missed the call I was waiting for...
I was booked in for a phone consultation to start a new drug because
Benepali
was causing drug induced Lupus. They were over an hour late calling me, so I was on the phone to the hospital to find out if the call was still going ahead when I missed the call I was waiting for...
SarahJane926
in
NRAS
4 years ago
Benepali pain worse than Cimzia?
Just as the
Benepali
was so bad and I know I will have to do two injections tomorrow straight after each other so don't want to whimp out! Charlotte x
Just as the
Benepali
was so bad and I know I will have to do two injections tomorrow straight after each other so don't want to whimp out! Charlotte x
CharlotteLucyx
in
NRAS
4 years ago
Anyone worried about rise in cases?
Im seeing rheumy Tuesday to discuss my biologic as
Benepali
stopped working 9 weeks into treatment and ive been on it for almost 25 weeks now. Oh well. Other than that im smiling through the pain x
Im seeing rheumy Tuesday to discuss my biologic as
Benepali
stopped working 9 weeks into treatment and ive been on it for almost 25 weeks now. Oh well. Other than that im smiling through the pain x
Ms-D
in
NRAS
4 years ago
Update on f2f appointment
It is hard for her as I am seronegative so it is harder to switch but I said that when I started
Benepali
on 20th April for 9-10 weeks I was pain free and then the pain started creep in.
It is hard for her as I am seronegative so it is harder to switch but I said that when I started
Benepali
on 20th April for 9-10 weeks I was pain free and then the pain started creep in.
Ms-D
in
NRAS
4 years ago
How can we be sure that benepali is working?
If
benepali
is working, then why is she so tired (all other bloods to identify other causes I’ve been normal) and why are her finger joints swollen, tender and deforming? Can your finger joints continue to deform while on
benepali
? Surely it should make the disease quiescent?
If
benepali
is working, then why is she so tired (all other bloods to identify other causes I’ve been normal) and why are her finger joints swollen, tender and deforming? Can your finger joints continue to deform while on
benepali
? Surely it should make the disease quiescent?
RApatient2020
in
NRAS
4 years ago
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