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8 months into OHSU drug trial (Obinituzumab, Ublituximab, Bendamustine) doing well!
I've been on TGR-1101 (Ublituximab or U2 as TG Therapeutics' calls it, I call it the Tiger), TGR-1202 (Obinituzumab or Gazyva), and some
Bendamustine
snuck in here and there as far as my nurses can tell. It's been referred to as the Unity-CLL trial.
I've been on TGR-1101 (Ublituximab or U2 as TG Therapeutics' calls it, I call it the Tiger), TGR-1202 (Obinituzumab or Gazyva), and some
Bendamustine
snuck in here and there as far as my nurses can tell. It's been referred to as the Unity-CLL trial.
ChrisLovesLife
in
CLL Support
6 years ago
Fungus
Hello again, on Monday our 2nd session will begin (Rituximab,
Bendamustine
therapy) but my husband has white spots on his face. I asked the doctor and he said it can be some kind of a fungus because his neutrophil counts are low.(0.56) Has anyone had the same experience? Thanks again Aylin
Hello again, on Monday our 2nd session will begin (Rituximab,
Bendamustine
therapy) but my husband has white spots on his face. I asked the doctor and he said it can be some kind of a fungus because his neutrophil counts are low.(0.56) Has anyone had the same experience? Thanks again Aylin
aylinozel
in
CLL Support
7 years ago
Venetoclax Plus Rituximab Is Superior to Bendamustine Plus Rituximab (Murano Study)
Today on the ASH 2017 Meeting, the results of the Murano Study were published: https://ash.confex.com/ash/2017/webprogram/Paper109076.html I was one of the 389 participants in this trial and off course I am very happy with the conclusion, demonstrating that treatment with VR resulted in outcomes superior
Today on the ASH 2017 Meeting, the results of the Murano Study were published: https://ash.confex.com/ash/2017/webprogram/Paper109076.html I was one of the 389 participants in this trial and off course I am very happy with the conclusion, demonstrating that treatment with VR resulted in outcomes superior
Korstiaan
in
CLL Support
7 years ago
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Venetoclax CLL 11q, Trisomy 12, MDS
He then only received 3 cycles of
Bendamustine
and Rutuxon stopped due to platelets hovering around 10k. Platelet transfusion didn’t help. Then he started Ibrutinib for 3 months no response.
He then only received 3 cycles of
Bendamustine
and Rutuxon stopped due to platelets hovering around 10k. Platelet transfusion didn’t help. Then he started Ibrutinib for 3 months no response.
Midgey_
in
CLL Support
7 years ago
bendamustine
has anyone ever been treated with just
Bendamustine
alone without a monoclonal antibody?
has anyone ever been treated with just
Bendamustine
alone without a monoclonal antibody?
greygirl
in
CLL Support
7 years ago
Apparently time for treatment
My liver is enlarged and treatment is on the horizon I will be starting
Bendamustine
/Rituximab after Christmas. My question has anyone experienced MRSA in their lungs and then diagnosed with my diagnosis followed with the chemo described above. Any response greatly appreciated.
My liver is enlarged and treatment is on the horizon I will be starting
Bendamustine
/Rituximab after Christmas. My question has anyone experienced MRSA in their lungs and then diagnosed with my diagnosis followed with the chemo described above. Any response greatly appreciated.
Sallyurnotal
in
CLL Support
7 years ago
Lenolidamide
Recently finished 5 months of
Bendamustine
/Rituximab infusions followed by 18 days of radiation. Oncologist is starting me on Lenalidamide (Revlamid) regimen in a week. Any information on side effects experienced with Lenalidamide would be very much appreciated.
Recently finished 5 months of
Bendamustine
/Rituximab infusions followed by 18 days of radiation. Oncologist is starting me on Lenalidamide (Revlamid) regimen in a week. Any information on side effects experienced with Lenalidamide would be very much appreciated.
Howie40
in
Lymphoma Canada
7 years ago
Elevated Lymphocyte Count 4 Months After Bendamustine/Rituxin
Hello Members: In mid-June I finished 6 months of
Bendamustine
/Rituxin. I saw my onc today and my lymph nodes are elevated (5.7) saw her last month and they were also elevated(5.0) She is suggesting that I may want to have FCR or Imbruvica when I need treatment again.
Hello Members: In mid-June I finished 6 months of
Bendamustine
/Rituxin. I saw my onc today and my lymph nodes are elevated (5.7) saw her last month and they were also elevated(5.0) She is suggesting that I may want to have FCR or Imbruvica when I need treatment again.
SueVG
in
CLL Support
7 years ago
Posting on CAR-T, BLAM, WLADand improved PFS with Venetoclax =R versus Bendamustine +R
Hi, I have been little too busy and way too sick with a slowly resolving chest infection to stay well engaged with the list, but I have been posting almost twice a week on our website in honor of Blood Cancer Awareness Month (#BCAM) and World Lymphoma Awareness Day (#WLAD). I am trying to rest but
Hi, I have been little too busy and way too sick with a slowly resolving chest infection to stay well engaged with the list, but I have been posting almost twice a week on our website in honor of Blood Cancer Awareness Month (#BCAM) and World Lymphoma Awareness Day (#WLAD). I am trying to rest but
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Just starting Ibrutinib
A repeat of R + CVP (two sessions) was unsuccessful as was R +
Bendamustine
(4). My oncologist has just started me now Ibrutinib. I would appreciate any comments on Ibrutinib usage from fellow Waldenstrom's or Splenic Marginal Zone patients. Steve
A repeat of R + CVP (two sessions) was unsuccessful as was R +
Bendamustine
(4). My oncologist has just started me now Ibrutinib. I would appreciate any comments on Ibrutinib usage from fellow Waldenstrom's or Splenic Marginal Zone patients. Steve
Steve41
in
CLL Support
7 years ago
New member....new to NHL...new to chemo...so many questions ???
My Dr. said "I think it's time".....and with that I started my first round of chemo this past week using Obinutuzumab /
Bendamustine
. Just getting thru this first 2 days, kicked my butt for about 3 days. Crazy fatigue paired with nausea.
My Dr. said "I think it's time".....and with that I started my first round of chemo this past week using Obinutuzumab /
Bendamustine
. Just getting thru this first 2 days, kicked my butt for about 3 days. Crazy fatigue paired with nausea.
Ralbright89
in
Non Hodgkin's Lymphoma Friends
7 years ago
Tooth decay
I will get my third infusion of Rituxan and
bendamustine
next week. Went to the dentist yesterday for a clean and a checkup. He found five cavities! My teeth are normally good and usually have nothing to report after a dental visit.
I will get my third infusion of Rituxan and
bendamustine
next week. Went to the dentist yesterday for a clean and a checkup. He found five cavities! My teeth are normally good and usually have nothing to report after a dental visit.
Rhetler
in
CLL Support
7 years ago
Hiccups: Day Five
I developed hiccups after an infusion of
bendamustine
and ritiximab, using dexamethesone as an anti nausea drug. Turns out the the dex can cause hiccups. I am now at day five. My oncologist prescribed baclofen which am giving a try. Any sage advise from CLL hiccup survivors?
I developed hiccups after an infusion of
bendamustine
and ritiximab, using dexamethesone as an anti nausea drug. Turns out the the dex can cause hiccups. I am now at day five. My oncologist prescribed baclofen which am giving a try. Any sage advise from CLL hiccup survivors?
Rhetler
in
CLL Support
7 years ago
Bendamustine-Rituximab - When do cytopenias disappear? During treatment? Post-treatment?
Has anyone here done BR (
Bendamustine
-Rituximab) and actually felt great/normal afterwards? I.e., gotten their life back as a result of this treatment?
Has anyone here done BR (
Bendamustine
-Rituximab) and actually felt great/normal afterwards? I.e., gotten their life back as a result of this treatment?
PlanetaryKim
in
CLL Support
7 years ago
Last cycle of chemo!
I'm getting my last cycle of Bendamustin and Rituxin today and possibly tomorrow. I'll need to check how I'm doing in 7 weeks with a PET scan...
I'm getting my last cycle of Bendamustin and Rituxin today and possibly tomorrow. I'll need to check how I'm doing in 7 weeks with a PET scan...
Calipewings_2016
in
Non Hodgkin's Lymphoma Friends
7 years ago
Bendamustine/Rituximab fatigue
Hi all: I'm at the 6th day following my 4th infusion and now fatigue sets in all day. Wasn't like this following first 3 infusions, and have have 2 more after this. Any advice on how to overcome this would be welcome. Does the fatigue accelerate with each subsequent infusion? Thanks, and stay strong
Hi all: I'm at the 6th day following my 4th infusion and now fatigue sets in all day. Wasn't like this following first 3 infusions, and have have 2 more after this. Any advice on how to overcome this would be welcome. Does the fatigue accelerate with each subsequent infusion? Thanks, and stay strong
Howie40
in
Lymphoma Canada
7 years ago
CAR-T Clinical Trial
In 3 years she progressed after R-CHOP (6 cycles),
bendamustine
/rituximab (6 cycles), and Ibrutinib (12 months). Then she took Idelalisib/rituximab as her fourth treatment. It worked great for 14 months then a PET scan showed she progressed again.
In 3 years she progressed after R-CHOP (6 cycles),
bendamustine
/rituximab (6 cycles), and Ibrutinib (12 months). Then she took Idelalisib/rituximab as her fourth treatment. It worked great for 14 months then a PET scan showed she progressed again.
wmay13241
in
Understanding Clinical Trials
7 years ago
Bendamustine/Rituxan
My oncologist is sending me to get a PET scan next week and believes I will have to start a regime of
Bendamustine
and Rituxan for six months in the near future. (two consecutive days a month) Being single and living far from family has me a little concerned as to how I will deal with this chemo.
My oncologist is sending me to get a PET scan next week and believes I will have to start a regime of
Bendamustine
and Rituxan for six months in the near future. (two consecutive days a month) Being single and living far from family has me a little concerned as to how I will deal with this chemo.
mejiae
in
CLL Support
7 years ago
Hi! I'm new.
I had R-CHOP in the beginning,
Bendamustine
and VinChristine 8 years ago, and am on a Rituxan regiment every three months now. I continue to feel fatigue. Does anyone else feel this way in a similar situation as mine? I would appreciate your feedback. Thanks!
I had R-CHOP in the beginning,
Bendamustine
and VinChristine 8 years ago, and am on a Rituxan regiment every three months now. I continue to feel fatigue. Does anyone else feel this way in a similar situation as mine? I would appreciate your feedback. Thanks!
MsMindy
in
Non Hodgkin's Lymphoma Friends
7 years ago
Secondary BR Treatment
Disease progression has been gradual but my Oncologist says further treatment with Retuxin/
Bendamustine
is very likely soon (he has been saying this for some six months but disease progression has been very slow) What does this secondary treatment hold for me and is there likelihood of another remission
Disease progression has been gradual but my Oncologist says further treatment with Retuxin/
Bendamustine
is very likely soon (he has been saying this for some six months but disease progression has been very slow) What does this secondary treatment hold for me and is there likelihood of another remission
plett1234
in
CLL Support
7 years ago
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