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HOW CAN I REDUCE MY DYSKINESIA?
I am desperate for suggestions on reducing dyskinesia. I have had gate and balance dominant PD for 11 years now and have always struggled with dyskinesia. Recently I had a fractured femur and am attempting to resume walking with the the help of a walker. However, the dyskinesia is so strong I cannot
I am desperate for suggestions on reducing dyskinesia. I have had gate and balance dominant PD for 11 years now and have always struggled with dyskinesia. Recently I had a fractured femur and am attempting to resume walking with the the help of a walker. However, the dyskinesia is so strong I cannot
Joanne_Joyce
in
Cure Parkinson's
3 years ago
Treatment with amantadine delays L-dopa-induced dyskinesia onset more than treatment with other symptomatic agents
Could early treatment with amantadine delay L-dopa-induced dyskinesia onset more than treatment with other symptomatic agents (anticholinergics or MAO-B inhibitors)? New data from a hospital-based retrospective cohort study from Taiwan suggests 'yes' https://onlinelibrary.wiley.com/doi/10.1111/ene.15234
Could early treatment with amantadine delay L-dopa-induced dyskinesia onset more than treatment with other symptomatic agents (anticholinergics or MAO-B inhibitors)? New data from a hospital-based retrospective cohort study from Taiwan suggests 'yes' https://onlinelibrary.wiley.com/doi/10.1111/ene.15234
Hidden
in
Cure Parkinson's
3 years ago
Oral Molecule PD13R Safely Eases Dyskinesia Tied to Levodopa in Primate Model
A newly discovered oral molecule, called PD13R, significantly lessened levodopa-induced dyskinesia, its involuntary and jerky movements, while maintaining the therapy’s benefits in a non-human primate model of Parkinson’s disease. Notably, in contrast to Gocovri (amantadine) — an approved therapy to
A newly discovered oral molecule, called PD13R, significantly lessened levodopa-induced dyskinesia, its involuntary and jerky movements, while maintaining the therapy’s benefits in a non-human primate model of Parkinson’s disease. Notably, in contrast to Gocovri (amantadine) — an approved therapy to
Hidden
in
Cure Parkinson's
3 years ago
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Amantadine?
Hello. Does anyone have experience with Amantadine? I was prescribed it but have concerns.
Hello. Does anyone have experience with Amantadine? I was prescribed it but have concerns.
septimus7
in
Cure Parkinson's
3 years ago
Overview of the Ataxias
🙂 This is lengthy, but it does have useful, interesting information. Overview of Adult Onset Cerebellar Ataxia Pravin Khemani, MD The ataxias are clinically heterogenous disorders caused by pathological processes affecting the cerebellum and cerebellar pathways resulting in impaired coordination. The
🙂 This is lengthy, but it does have useful, interesting information. Overview of Adult Onset Cerebellar Ataxia Pravin Khemani, MD The ataxias are clinically heterogenous disorders caused by pathological processes affecting the cerebellum and cerebellar pathways resulting in impaired coordination. The
wobblybee
in
Ataxia UK
3 years ago
MRigFUS in Switzerland - 9 months update
If i wrote this post 3 days ago, i probably wouldn’t be so positive about it, it was an hard day, with difficult controlling tremor most of the day. But it was a bad day among very good days. Today was a virtually no tremor day. I got used to this roller coaster now, but i had a quite pleasant but also
If i wrote this post 3 days ago, i probably wouldn’t be so positive about it, it was an hard day, with difficult controlling tremor most of the day. But it was a bad day among very good days. Today was a virtually no tremor day. I got used to this roller coaster now, but i had a quite pleasant but also
Markbit
in
Cure Parkinson's
3 years ago
I am newly diagnosed and on amantadine 2x daily. I notice I feel much more tired on a daily basis than I used to. I take 1 -2 naps a day.
Is this a symptom of PD, the medication, both or neither?
Is this a symptom of PD, the medication, both or neither?
faybo39495
in
Cure Parkinson's
3 years ago
Has anyone had any experience with Amantadine just been prescribed by my neurologist to help with moderate tremor.
Amantadine
Amantadine
Bramma
in
Cure Parkinson's
3 years ago
AMANTADINE FOR DYSKINESIA. HAVE YOU AN EXPERIENCE WITH THIS DRUG? PLEASE HELP.
Hi, I might consider this drug for Dyskinesia, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your dyskinesia? How long before it started working for you? My doctor said it could take 4 to 8 weeks.
Hi, I might consider this drug for Dyskinesia, if it gets too severe. My MDS is a little reluctant to prescribe it, because he says it may cause insomnia. Nevertheless, is this drug working for your dyskinesia? How long before it started working for you? My doctor said it could take 4 to 8 weeks.
OREOLU
in
Cure Parkinson's
3 years ago
What I have learned from 1 year with Early Onset PD - "Glass Half Full"
I decided to keep a journal of my journey - it has been quite a year but I have learned a lot. some of which maybe relevant for new and older PD people. I am not a doctor and this is not a medical opinion but there is lots available to make a stand against PD https://fightparkinsonsdisease.files.wordpress.com
I decided to keep a journal of my journey - it has been quite a year but I have learned a lot. some of which maybe relevant for new and older PD people. I am not a doctor and this is not a medical opinion but there is lots available to make a stand against PD https://fightparkinsonsdisease.files.wordpress.com
blazyb
in
Cure Parkinson's
3 years ago
Eyes closing after medication
Hi, it is 18 months since my wife's first visit to a neurologist, initially they suspected Parkinson's or Parkinson's plus; PSP was mentioned quite early on and now her diagnosis is suspected PSP. Her main symptoms are eyes closing involuntarily (eyelid opening apraxia) and very quite speech (profound
Hi, it is 18 months since my wife's first visit to a neurologist, initially they suspected Parkinson's or Parkinson's plus; PSP was mentioned quite early on and now her diagnosis is suspected PSP. Her main symptoms are eyes closing involuntarily (eyelid opening apraxia) and very quite speech (profound
Zerachiel
in
PSP Association
3 years ago
ARE YOU A NON TREMOR DOMINANT PD PATIENT WITH DYSKINESIA? IF SO, PLEASE HELP.
Hi, your suggestions would help a lot. I am beginning to have dyskinesia more frequently. Mostly worse at night. I take Rytary 3pills 145mg, (8am,12noon,4pm and 8pm). My MDS thinks it is motor fluctuations, caused by uneven plasma level of Levodopa. He suggested that I should add two more pills,
Hi, your suggestions would help a lot. I am beginning to have dyskinesia more frequently. Mostly worse at night. I take Rytary 3pills 145mg, (8am,12noon,4pm and 8pm). My MDS thinks it is motor fluctuations, caused by uneven plasma level of Levodopa. He suggested that I should add two more pills,
OREOLU
in
Cure Parkinson's
3 years ago
Amantadine for tremor?
I've needed to write a long post (or a few separate posts) for weeks now, but I'm just too busy. I'm going to try to make time to do some thorough updates on my situation soon, but I have an immediate question: I can't tolerate Sinemet (tried it from Jan. 16-Mar. 10, 2021), so my neuro (MDS) wants me
I've needed to write a long post (or a few separate posts) for weeks now, but I'm just too busy. I'm going to try to make time to do some thorough updates on my situation soon, but I have an immediate question: I can't tolerate Sinemet (tried it from Jan. 16-Mar. 10, 2021), so my neuro (MDS) wants me
1LittleWillow
in
Cure Parkinson's
3 years ago
FUS PTT Surgery. 6 months update
After 6 months things look bit more stable. I still have some issues, and sometimes it is still hard to accept that i still have Parkinson’s. 6 months gone, and gone all my dyskinesia. Still have some tremor, 90% solved on my treated side, about 80% on my untreated side, slowness it is still one of the
After 6 months things look bit more stable. I still have some issues, and sometimes it is still hard to accept that i still have Parkinson’s. 6 months gone, and gone all my dyskinesia. Still have some tremor, 90% solved on my treated side, about 80% on my untreated side, slowness it is still one of the
Markbit
in
Cure Parkinson's
3 years ago
Getting Amantadine from the country that does not zvailable
Good morning everyone Greeting from Myanmar. I am 43 , from Myanmar. I have PD for 10 years. I found dyskinesia appeared after 9 years of PD .After reading many PD group understand Amantadine can help for dyskinesia. But the problem is Amantadine is not available in our country. Can someone give me
Good morning everyone Greeting from Myanmar. I am 43 , from Myanmar. I have PD for 10 years. I found dyskinesia appeared after 9 years of PD .After reading many PD group understand Amantadine can help for dyskinesia. But the problem is Amantadine is not available in our country. Can someone give me
nlaung
in
Cure Parkinson's
3 years ago
Amantadine
Anyone taking this and how are the side affects? Does it help? Thanks
Anyone taking this and how are the side affects? Does it help? Thanks
Kt088
in
Cure Parkinson's
3 years ago
Unbalance when starting moving forward again after stopping : One more symptom of PSP?
by middle of November 2020 I was diagnosed with a Parkinsonism suggestive of PSP . My only claim was “freezing of gait” only when rotating (no problem when walking forward). Recently I noticed someting new: I feel myself unbalanced when restarting walking whenever after making a stop (no problem when
by middle of November 2020 I was diagnosed with a Parkinsonism suggestive of PSP . My only claim was “freezing of gait” only when rotating (no problem when walking forward). Recently I noticed someting new: I feel myself unbalanced when restarting walking whenever after making a stop (no problem when
BluesHealer
in
PSP Association
3 years ago
PTT FUS 4 months later
I had today my 3 months phone consultation with Prof. J. (one month later). He saw my videos, with and without levodopa e said that i was "very close to normal". Indeed, sometimes i feel close to normal, not everyday, not every hour, but especially in the morning i feel like that. I am able to run again
I had today my 3 months phone consultation with Prof. J. (one month later). He saw my videos, with and without levodopa e said that i was "very close to normal". Indeed, sometimes i feel close to normal, not everyday, not every hour, but especially in the morning i feel like that. I am able to run again
Markbit
in
Cure Parkinson's
3 years ago
My husbands face to face visit with his Neuro!
My husband had a face to face visit to his Neuro yesterday, not seen him since before the lockdown, October 2019 although he has had one telephone appointment. The Neuro asked him how he was what dosage of meds he was on, watched him walking, tested his hands said he was fine for driving, as that is
My husband had a face to face visit to his Neuro yesterday, not seen him since before the lockdown, October 2019 although he has had one telephone appointment. The Neuro asked him how he was what dosage of meds he was on, watched him walking, tested his hands said he was fine for driving, as that is
Zella23
in
Cure Parkinson's
3 years ago
B1 Testimony
COPY from today, May7, 2021: “Diagnosed Nov2014. I admit I was dubious, but after some time on B1 I have to concur with Roy; it did improve many symptoms. I can speak more loudly and clearly; swallowing is easier; I simply can do more than before I started taking this supplement. Buttons, turning over
COPY from today, May7, 2021: “Diagnosed Nov2014. I admit I was dubious, but after some time on B1 I have to concur with Roy; it did improve many symptoms. I can speak more loudly and clearly; swallowing is easier; I simply can do more than before I started taking this supplement. Buttons, turning over
Hidden
in
Cure Parkinson's
3 years ago
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