Search
Search
About
Log in
Join
Experiences with
Autologous stem cell transplant
Posts
Communities
3,362 public posts
Filter results
Levo doses and side effects
Hi everyone, I've had hypothyroidism (Hashimotos) for several years now and never felt 'well' that whole time, but at times have been able to cope and others (like now) absolutely can't. It seems to be constant and I wanted some advice/thoughts from what seems to be a very knowledgeable group who can
Hi everyone, I've had hypothyroidism (Hashimotos) for several years now and never felt 'well' that whole time, but at times have been able to cope and others (like now) absolutely can't. It seems to be constant and I wanted some advice/thoughts from what seems to be a very knowledgeable group who can
Stevensnj87
in
Thyroid UK
1 year ago
Severe gastric problems- MMF?
I had my kidney transplant in June of 2021 and am currently taking 500mg cell-cept bid. I started to have stomach issues around the 4 month mark, and they have progressed to the point where my daily activities, sleep, and quality of life is impacted. Up until this point, I have felt terrific! I
I had my kidney transplant in June of 2021 and am currently taking 500mg cell-cept bid. I started to have stomach issues around the 4 month mark, and they have progressed to the point where my daily activities, sleep, and quality of life is impacted. Up until this point, I have felt terrific! I
6821green
in
Kidney Transplant
2 years ago
Allogenic Stem Cell Transplant
I [i]received a Stem cell transplant six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia. As of today I’m still in remission, showing 97% chimerism
I [i]received a Stem cell transplant six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia. As of today I’m still in remission, showing 97% chimerism
GarciaB
in
MPN Voice
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Bone marrow transplant
Hi, I am being offered a bone marrow transplant and wonder if anyone can offer me positive advice. Obviously the process is quite scary, but would like to think I'm doing the right thing. Thank you George
Hi, I am being offered a bone marrow transplant and wonder if anyone can offer me positive advice. Obviously the process is quite scary, but would like to think I'm doing the right thing. Thank you George
Georgehb
in
MPN Voice
2 years ago
Transplant Surgeon
Well this Monday will take me closer to knowing if I’m to be accepted for transplant. Transplant was discussed with me by my specialist in November 2021 after a scheduled lung reduction was no longer viable. I had a few meetings at wythenshawe hospital, which is my nearest lung unit. I was given a
Well this Monday will take me closer to knowing if I’m to be accepted for transplant. Transplant was discussed with me by my specialist in November 2021 after a scheduled lung reduction was no longer viable. I had a few meetings at wythenshawe hospital, which is my nearest lung unit. I was given a
Northernsaul
in
Lung Conditions Community Forum
2 years ago
Antivirals o
Still not doing a lot , mainly outside as I have RA among other things on Methotrexate etc, but mainly because of husband is a Kidney transplant patient with Diabetes etc and his hospital checked the vaccines have not worked and still fighting for Evusheld ! Anyone with RA etc how did yiu go on with
Still not doing a lot , mainly outside as I have RA among other things on Methotrexate etc, but mainly because of husband is a Kidney transplant patient with Diabetes etc and his hospital checked the vaccines have not worked and still fighting for Evusheld ! Anyone with RA etc how did yiu go on with
trace58
in
NRAS
2 years ago
Check out the new After Transplant program on the Kidney Learning Center!
Want to know more about life after a kidney transplant? Check out NKF’s free online, self-paced After Transplant program on the Kidney Learning Center! Learn about what to expect after receiving a transplant, including medications, rejection, mental health, and practical considerations for recipients
Want to know more about life after a kidney transplant? Check out NKF’s free online, self-paced After Transplant program on the Kidney Learning Center! Learn about what to expect after receiving a transplant, including medications, rejection, mental health, and practical considerations for recipients
KateyC_NKF
Partner
in
Parents of Children with Kidney Disease
2 years ago
liver transplant
i might be getting referred to the QE hopspital soon for transplant review my brother come to see me yesterday and offered 1/2 of his liver which was quite a shock he said he would take no for a answer but he got young kids and would not to live with myself if some thing went wrong with him how successful
i might be getting referred to the QE hopspital soon for transplant review my brother come to see me yesterday and offered 1/2 of his liver which was quite a shock he said he would take no for a answer but he got young kids and would not to live with myself if some thing went wrong with him how successful
lonmallin50
in
British Liver Trust
2 years ago
chronic fatigue after transplant?
hi there, New to the group and new liver just under 4 months ago. Generally all is well with the bloods and new liver but experiencing severe fatigue for the last month or so. Had cortisone test and apparently was fine. Litterally want to go back to bed for the day when I wake up and doesn’t improve
hi there, New to the group and new liver just under 4 months ago. Generally all is well with the bloods and new liver but experiencing severe fatigue for the last month or so. Had cortisone test and apparently was fine. Litterally want to go back to bed for the day when I wake up and doesn’t improve
Cw25
in
British Liver Trust
2 years ago
Who else has Myelodysplastic Syndromes (MDS) in addition to their PCa?
Dx a month ago as having trilineage MDS with Ring Sideroblasts(MDS-RS), somewhere between low and intermediate. Described as bone marrow cancers and a bone marrow biopsy is required for dx. It morphs into Acute Myloid Leukemia in 30-40% of the cases. Know that my shit is weak and am searching for
Dx a month ago as having trilineage MDS with Ring Sideroblasts(MDS-RS), somewhere between low and intermediate. Described as bone marrow cancers and a bone marrow biopsy is required for dx. It morphs into Acute Myloid Leukemia in 30-40% of the cases. Know that my shit is weak and am searching for
SpencerBoy11
in
Advanced Prostate Cancer
2 years ago
October 15th - 23 years later
Today is a special day for me...23 years ago today I had my kidney transplant! It was all because my donor, Ryan, said "yes" to organ donation. He was 16 years old and was killed in a horrible car accident. As a result, - I saw both of my daughters marry and I now have 2 buddies, my grandsons.
Today is a special day for me...23 years ago today I had my kidney transplant! It was all because my donor, Ryan, said "yes" to organ donation. He was 16 years old and was killed in a horrible car accident. As a result, - I saw both of my daughters marry and I now have 2 buddies, my grandsons.
WYOAnne
NKF Ambassador
in
Kidney Disease
2 years ago
recurring aceties
my son has decompensated cirrhosis and goes to a hospice once a week to get fluid drained - he has a permanent drain fitted . He is getting worried as the last three weeks they’ve drained 5. 7. Then 8 litres. Does this mean his liver is getting worse ? I’ve read that a TIPS procedure could help -
my son has decompensated cirrhosis and goes to a hospice once a week to get fluid drained - he has a permanent drain fitted . He is getting worried as the last three weeks they’ve drained 5. 7. Then 8 litres. Does this mean his liver is getting worse ? I’ve read that a TIPS procedure could help -
Mango5cm
in
British Liver Trust
2 years ago
Bone Marrow Transplant
A wonderful uplifting post to read first thing in the morning. You've made my day!
A wonderful uplifting post to read first thing in the morning. You've made my day!
Sivasi
in
MPN Voice
2 years ago
BONE MARROW TRANSPLANT
Good evening to you , I hope you are all well. I would like to share my special news with you all , today I completed day 2 of my conditioning ahead of my BMT on Thursday 2nd February 2023. I am both privileged and excited about my journey and have no fear or doubts. Special thanks to all of you,
Good evening to you , I hope you are all well. I would like to share my special news with you all , today I completed day 2 of my conditioning ahead of my BMT on Thursday 2nd February 2023. I am both privileged and excited about my journey and have no fear or doubts. Special thanks to all of you,
kevinbros
in
MPN Voice
2 years ago
Desperate for answers
Husband still have mental issues after 6 months from having a kidney transplant. His personality go from one extreme to the next and he makes a strange humming noise and he says he cannot stop it and does not have any control over his moods and believe me he can be very unbearable at times. He has
Husband still have mental issues after 6 months from having a kidney transplant. His personality go from one extreme to the next and he makes a strange humming noise and he says he cannot stop it and does not have any control over his moods and believe me he can be very unbearable at times. He has
Hairme
in
Kidney Transplant
2 years ago
4th shots of Pfizer, Moderna vaccines provide near equal protection — Israeli study
Sheba-led research team says that 6 months after boosters, ‘antibody levels and cumulative vaccine efficacy do not differ between the two vaccines’
NATHAN JEFFAY Booster shots developed by Pfizer and Moderna provide near equal protection against COVID-19, according to Israeli research.
Sheba-led research team says that 6 months after boosters, ‘antibody levels and cumulative vaccine efficacy do not differ between the two vaccines’
NATHAN JEFFAY Booster shots developed by Pfizer and Moderna provide near equal protection against COVID-19, according to Israeli research.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
CLL Society interview - Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
Dr. Shahzad Mustafa on What it Means to be Immunocompromised for Patients with CLL/SLL January 13, 2023 https://cllsociety.org/2023/01/dr-shahzad-mustafa-on-what-it-means-to-be-immunocompromised-for-patients-with-cll-sll/ https://youtu.be/DSOKTmffc-s - In this interview, Dr. Brian Koffman spoke
lankisterguy
Volunteer
in
CLL Support
2 years ago
Liver Transplant consent letter & liver types
hi, my partner has just been accepted onto the transplant list with a UKELD of 56 and blood group A (this is relevant as have been told the wait for this group is shorter). He has just had the consent form and agonised for ages over which boxes to tick in terms of what livers to accept. It seems so ungrateful
hi, my partner has just been accepted onto the transplant list with a UKELD of 56 and blood group A (this is relevant as have been told the wait for this group is shorter). He has just had the consent form and agonised for ages over which boxes to tick in terms of what livers to accept. It seems so ungrateful
Rshc
in
British Liver Trust
2 years ago
Advice needed
I had kidney transplant 3 months ago and it has been a living hell.I have ibs to begin with and for three months my intestines have been getting destroyed from meds.I have chronic watery diarrhea to the point that i cant leave my home for more then 2 hours and if i do i need to have a bathroom close
I had kidney transplant 3 months ago and it has been a living hell.I have ibs to begin with and for three months my intestines have been getting destroyed from meds.I have chronic watery diarrhea to the point that i cant leave my home for more then 2 hours and if i do i need to have a bathroom close
Parkerbarker
in
Kidney Transplant
2 years ago
MRI QUESTION
I had a kidney transplant in 1978 and it failed in 32 days. I was put on hemo with fistula access and mesh graft access. I also was on peritoneal dialysis first and for a short time while hospitalized. In 1982 I had another kidney transplant. At the time of discharge from the hospital I was given a
I had a kidney transplant in 1978 and it failed in 32 days. I was put on hemo with fistula access and mesh graft access. I also was on peritoneal dialysis first and for a short time while hospitalized. In 1982 I had another kidney transplant. At the time of discharge from the hospital I was given a
Hidden
in
Kidney Transplant
2 years ago
1
...
21
22
23
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
706 results
Lung Conditions Community Forum
458 results
Kidney Transplant
437 results
View top 10 communities
Sort by
Most Relevant
Newest