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He lived a wonderful life
My father passed away on Sunday, 10/15/2023, at the age of 91. We initially learned of his very high PSA level on 10/14/2021 (two years prior), with the diagnosis of Stage 4 metastatic prostate cancer soon thereafter. In addition to advanced prostate cancer, he had dementia that progressed significantly
My father passed away on Sunday, 10/15/2023, at the age of 91. We initially learned of his very high PSA level on 10/14/2021 (two years prior), with the diagnosis of Stage 4 metastatic prostate cancer soon thereafter. In addition to advanced prostate cancer, he had dementia that progressed significantly
Merlot1
in
Advanced Prostate Cancer
9 months ago
ADT and bone health
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
Stevegr
in
Advanced Prostate Cancer
9 months ago
Full Pelvic Radiation
My doc stopped the orgovyx I was taking because after just 2 weeks my PSA started to rise 10 points, then the second month it had risen another 10 points.. So now I just got my first Lupron injection. I chose once a month injections to see how well it works. If it works I'll increase it to 3 month injections
My doc stopped the orgovyx I was taking because after just 2 weeks my PSA started to rise 10 points, then the second month it had risen another 10 points.. So now I just got my first Lupron injection. I chose once a month injections to see how well it works. If it works I'll increase it to 3 month injections
woppaginny
in
Advanced Prostate Cancer
9 months ago
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Abiraterone
Prostrate removed 2015, Savage radiation 2018, PSA went from 1.9 to 7.9 in 3 months in 2023 and bone scan and all tests show bone cancer including some lymph glands. Presently on Abiraterone and prendisone for the last 2 weeks and wonder if it works or not and looking for any comments or advise?
Prostrate removed 2015, Savage radiation 2018, PSA went from 1.9 to 7.9 in 3 months in 2023 and bone scan and all tests show bone cancer including some lymph glands. Presently on Abiraterone and prendisone for the last 2 weeks and wonder if it works or not and looking for any comments or advise?
RayKo
in
Men's Health Forum
9 months ago
looking for reassurance or advice
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Bspouse
in
Advanced Prostate Cancer
9 months ago
PSA spiked from .6 to 8.0 in 3 months
The blood test corroborates the MRI that shows spread. I am talking with Dr Goodman in the AM. Am I doomed? My PSA has never been 8. before
The blood test corroborates the MRI that shows spread. I am talking with Dr Goodman in the AM. Am I doomed? My PSA has never been 8. before
crony
in
Advanced Prostate Cancer
4 months ago
CT and Bone Scan 2 weeks after PSMA PET?
Note:
for reference, my dad lives in BC, Canada. I believe the system here is a bit different than the US - we have a urologist who refers us to the RO when needed. Therefore, there is no relationship between the urologist and RO - the RO is part of the cancer institute, but the urologist is not
Note:
for reference, my dad lives in BC, Canada. I believe the system here is a bit different than the US - we have a urologist who refers us to the RO when needed. Therefore, there is no relationship between the urologist and RO - the RO is part of the cancer institute, but the urologist is not
sixmongoos
in
Advanced Prostate Cancer
9 months ago
My son’s PSA rose a bit today.
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to continue to test every three months, stay on current meds Lupron, Abiraterone/prednisone for another year and two months then stop meds and wait
Cactus297
in
Advanced Prostate Cancer
9 months ago
Rising PSA
I'm Poollover, Just got the results of a blood test and my PSA went up from 0.67 to 0.77. I'm on Orgovyx and Zytiga. I'm 86 years old. How concerned should I be? 8 months ago it was about 12. That was before medication. Also slightly anemic. What are my options? Terry
I'm Poollover, Just got the results of a blood test and my PSA went up from 0.67 to 0.77. I'm on Orgovyx and Zytiga. I'm 86 years old. How concerned should I be? 8 months ago it was about 12. That was before medication. Also slightly anemic. What are my options? Terry
Poollover
in
Advanced Prostate Cancer
4 months ago
Avodart added to my treatment regimen. I am Leary of it.
My MO prescribed bicalutamide and avodart after my 20 rounds of SBRT. My PSA went up to 21 after the SBRT. The bicalutamide I understand. I am leary of the avodart. I am concerned that it will mask PSA rise from cancer. Any thoughts on this?
My MO prescribed bicalutamide and avodart after my 20 rounds of SBRT. My PSA went up to 21 after the SBRT. The bicalutamide I understand. I am leary of the avodart. I am concerned that it will mask PSA rise from cancer. Any thoughts on this?
Pianodude
in
Advanced Prostate Cancer
9 months ago
When's the "best" time to do the scan?
Well, it appears the salvage radiation done in January '23 (RP in 2019) may have been unsuccessful, as my latest PSA came back at 0.06, 3 months prior was 0.02. Obviously not yet actionable and not yet definitive for failure, but the indication that the barbarian hordes might be regrouping is apparent
Well, it appears the salvage radiation done in January '23 (RP in 2019) may have been unsuccessful, as my latest PSA came back at 0.06, 3 months prior was 0.02. Obviously not yet actionable and not yet definitive for failure, but the indication that the barbarian hordes might be regrouping is apparent
Cackalacky_cyclist
in
Advanced Prostate Cancer
9 months ago
Clinical Trial Considerations??
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
CubFan
in
Prostate Cancer Network
9 months ago
Estradiol, QoL and inflammation
Although I have been following the exchanges of this group for several months, this my first posting. I have (at 79) learned a lot from the pooled knowledge and experience of the group members. My inquiry ties in with posts regarding estradiol and the PATCH trial that have appeared the last couple
Although I have been following the exchanges of this group for several months, this my first posting. I have (at 79) learned a lot from the pooled knowledge and experience of the group members. My inquiry ties in with posts regarding estradiol and the PATCH trial that have appeared the last couple
Cliff-hanger
in
Advanced Prostate Cancer
4 months ago
ARX517: mCRPC treatment, if you want to know about it live via a webcast
22 october...if weather forecast says it will rain, if you are done painting the fence, if you think the Browns are will lose anyway, if you really have nothing better to do: https://lifescievents.com/event/ambrx/ results from arx517 will be presented, it looks promising, it had basically a 100% success
22 october...if weather forecast says it will rain, if you are done painting the fence, if you think the Browns are will lose anyway, if you really have nothing better to do: https://lifescievents.com/event/ambrx/ results from arx517 will be presented, it looks promising, it had basically a 100% success
Maxone73
in
Advanced Prostate Cancer
9 months ago
Very promising trial!
Con't know if it's good for metastatic but still...CRPC is good enough Molecule name: AZD5069 “This is tremendously exciting and it suggests we have an entirely new way to treat prostate cancer on the horizon,” said Johann de Bono, a professor of experimental cancer medicine at the Institute of Cancer
Con't know if it's good for metastatic but still...CRPC is good enough Molecule name: AZD5069 “This is tremendously exciting and it suggests we have an entirely new way to treat prostate cancer on the horizon,” said Johann de Bono, a professor of experimental cancer medicine at the Institute of Cancer
Maxone73
in
Advanced Prostate Cancer
9 months ago
Experiances with Kaiser SF?
Hi All, I completed my radiation therapy 15 months ago at Kaiser SF with Dr. Mohan. Without Flomax, I have terrible pain when I urinate - urinary strictures I believe. My libido is shot and so are my erections...None of my doctors have addressed these issues except to say something akin to ****happens
Hi All, I completed my radiation therapy 15 months ago at Kaiser SF with Dr. Mohan. Without Flomax, I have terrible pain when I urinate - urinary strictures I believe. My libido is shot and so are my erections...None of my doctors have addressed these issues except to say something akin to ****happens
trregan
in
Prostate Cancer Network
9 months ago
Testosterone Vs. Testosterone Replacement Therapy
Need Feedback please RE: Natural Testosterone & TRT
Just spoke to my MO (a very well known Oncologist -here in LA) about my Testosterone.
Have been off Orgovyx now for 4 & half Months.
Latest Blood labs are Testosterone 79.
Oncologist says T probably will come back
Need Feedback please RE: Natural Testosterone & TRT
Just spoke to my MO (a very well known Oncologist -here in LA) about my Testosterone.
Have been off Orgovyx now for 4 & half Months.
Latest Blood labs are Testosterone 79.
Oncologist says T probably will come back
JWS13
in
Advanced Prostate Cancer
9 months ago
QOL - Keep Going
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
PabloK
in
Advanced Prostate Cancer
9 months ago
Still true that using same scan type is preferable to changing scan type?
Mr. Spouse 21, ten years since dx with Gleason 9 in 80% of cores, has only had bone and CT scans to track progression. That's how it was done in 2014. He's been stable since chemo with his current Eligard & Xgeva treatment--see full Profile for his record of Lupron, radiation, Zytiga (failed), Docetaxel
Mr. Spouse 21, ten years since dx with Gleason 9 in 80% of cores, has only had bone and CT scans to track progression. That's how it was done in 2014. He's been stable since chemo with his current Eligard & Xgeva treatment--see full Profile for his record of Lupron, radiation, Zytiga (failed), Docetaxel
spouse21
in
Advanced Prostate Cancer
9 months ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
9 months ago
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