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PAF to permanent AF
I was diagnosed with PAF some 10 years ago and for most of this time AF episodes have been brief and infrequent. In some cases only every few years and never lasting more than a few hours. However recently episodes have been more frequent and my latest ‘attack’ has now been going for 3 weeks. I take
I was diagnosed with PAF some 10 years ago and for most of this time AF episodes have been brief and infrequent. In some cases only every few years and never lasting more than a few hours. However recently episodes have been more frequent and my latest ‘attack’ has now been going for 3 weeks. I take
Mgal
in
AF Association
2 years ago
New to Site after Shock Diagnosis of AF
I would like advice from those on the forum with similar experiences of the AF journey. I am newly diagnosed and feeling pretty scared. In particular I'd like to know how long it took most people to get the right meds and dosages. I was started on Bisoprolol 2.5mg but because I was still symptomatic
I would like advice from those on the forum with similar experiences of the AF journey. I am newly diagnosed and feeling pretty scared. In particular I'd like to know how long it took most people to get the right meds and dosages. I was started on Bisoprolol 2.5mg but because I was still symptomatic
MKG50
in
AF Association
2 years ago
New to Afib - how to describe symptoms?
Hello. I'm new to Afib (diagnosed Paroxysmal AF November) and new to the forum. It's wonderful to read all the support, care and information here - what a find! I'm awaiting a 7 day monitoring in Feb. Meanwhile doing my research and still have so many questions! Main symptoms at the moment are raised
Hello. I'm new to Afib (diagnosed Paroxysmal AF November) and new to the forum. It's wonderful to read all the support, care and information here - what a find! I'm awaiting a 7 day monitoring in Feb. Meanwhile doing my research and still have so many questions! Main symptoms at the moment are raised
Rainfern
in
AF Association
2 years ago
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Cue1: £120k Innovate UK boost for Charco’s wearable Parkinson’s device
The 24-month project will focus on Charco’s CUE1 – a wearable device to alleviate the symptoms of Parkinson’s. The scope of the project includes testing the CUE1’s feasibility, assessing its tolerability and effect on clinical outcome measures, assessing optimal stimulation settings and positioning
The 24-month project will focus on Charco’s CUE1 – a wearable device to alleviate the symptoms of Parkinson’s. The scope of the project includes testing the CUE1’s feasibility, assessing its tolerability and effect on clinical outcome measures, assessing optimal stimulation settings and positioning
Farooqji
in
Cure Parkinson's
1 year ago
Ac-225 results and next steps
My husband traveled to Turkey mid-January to receive Ac-225 after Pluvicto failed. In spite of high PSMA uptake and no discordance, treatment failed as the widespread disease burden was too great. His liver mets in particular has grown exponentially since August when it was first seen immediately prior
My husband traveled to Turkey mid-January to receive Ac-225 after Pluvicto failed. In spite of high PSMA uptake and no discordance, treatment failed as the widespread disease burden was too great. His liver mets in particular has grown exponentially since August when it was first seen immediately prior
leebeth
in
Advanced Prostate Cancer
1 year ago
Something new for bank holiday
Suddenly felt heart going funny and thought I was about to go into Afib. Checked with kardia after a few minutes and it said tachycardia. Over the last 2 hours I’ve fluctuated between brief Afib attacks (about 4 times), all in the mid 80 hr for only a few minutes with tachycardia 112-120 the rest of
Suddenly felt heart going funny and thought I was about to go into Afib. Checked with kardia after a few minutes and it said tachycardia. Over the last 2 hours I’ve fluctuated between brief Afib attacks (about 4 times), all in the mid 80 hr for only a few minutes with tachycardia 112-120 the rest of
Frances123
in
AF Association
2 years ago
post ablation questions/reassurance
Hey all! Just had a catheter ablation for my SVT. It was AVNRT and very close to the av node. Had some palpitations post surgery but hoping that's part of recovery. Feeling anxious for sure and fatigued by the evening but hoping it feels all OK soon. It's been just a week
Hey all! Just had a catheter ablation for my SVT. It was AVNRT and very close to the av node. Had some palpitations post surgery but hoping that's part of recovery. Feeling anxious for sure and fatigued by the evening but hoping it feels all OK soon. It's been just a week
Jober
in
AF Association
2 years ago
clinical trial for gene therapy
my doctor ask me if I would be interested in going into phase 3 clinical trials for macular degeneration gene therapy. Has anyone on this forum been in a clinical trial or what is your opinion?
my doctor ask me if I would be interested in going into phase 3 clinical trials for macular degeneration gene therapy. Has anyone on this forum been in a clinical trial or what is your opinion?
Slattery
in
Macular Society
1 year ago
Human Betaretrovirus and PBC - can antiretrovirals fix us?
Hello all What do people think please about the research on PBC as an infectious disease and the potential of antiretroviral drugs? There was a flurry of reports back in 2015/6 identifying persistent betaretrovirus in people with PBC and then some small clinical trials of antiretroviral drugs.
Hello all What do people think please about the research on PBC as an infectious disease and the potential of antiretroviral drugs? There was a flurry of reports back in 2015/6 identifying persistent betaretrovirus in people with PBC and then some small clinical trials of antiretroviral drugs.
Wilderswimmer
in
PBC Foundation
1 year ago
Clinical Trials for Mushrooms
I have been taking mushroom supplements for years based on my own research (with my oncologist's knowledge) and I think it has helped me continue to remain hormone sensitive, though I really can't know. [u]Study published by International Journal of Cancer:[/u] https://www.ncbi.nlm.nih.gov/pmc/articles
I have been taking mushroom supplements for years based on my own research (with my oncologist's knowledge) and I think it has helped me continue to remain hormone sensitive, though I really can't know. [u]Study published by International Journal of Cancer:[/u] https://www.ncbi.nlm.nih.gov/pmc/articles
dmt1121
in
Advanced Prostate Cancer
1 year ago
Sulforaphane, Acrolein, and Parkinson's
I spend a fair amount of time re-researching things I have researched previously. With my bad memory, frequently I think I am finding something new when I am not. I just came across (again) an article on Acrolein and Parkinson's and remembered that a Broccoli Sprout beverage can clear Acrolein and
I spend a fair amount of time re-researching things I have researched previously. With my bad memory, frequently I think I am finding something new when I am not. I just came across (again) an article on Acrolein and Parkinson's and remembered that a Broccoli Sprout beverage can clear Acrolein and
Bolt_Upright
in
Cure Parkinson's
1 year ago
📚 Research 101: What do I have to do in a clinical trial?
The activities involved in a clinical trial are different for each trial. Before a trial starts, an independent regulatory body looks at the benefits and risks to make sure they are appropriate and makes sure that there is no unnecessary harm or discomfort for participants before it starts. Once the
The activities involved in a clinical trial are different for each trial. Before a trial starts, an independent regulatory body looks at the benefits and risks to make sure they are appropriate and makes sure that there is no unnecessary harm or discomfort for participants before it starts. Once the
AnnaHU
HealthUnlocked
in
Research Opportunities
1 year ago
Solgar Hawthorn Berry Capsules ? Has anybody taken these ?
Does anybody take any of these capsules? I would really like to hear from people, as to how the capsules helped them and how they got on with them ? I recently started to take the Solgar 484mg Berry Powder . They stopped my symptoms immediately. Ie:- Palpitations, (mostly in the night), occasional fast
Does anybody take any of these capsules? I would really like to hear from people, as to how the capsules helped them and how they got on with them ? I recently started to take the Solgar 484mg Berry Powder . They stopped my symptoms immediately. Ie:- Palpitations, (mostly in the night), occasional fast
C70rol
in
Thyroid UK
2 years ago
Information on clinical trial of large doses of B12?
Someone wrote on this site about a clinical trial of B12 being given in large doses and that it was promising. I can not find the post nor can I find a report from the study. If someone happens to be able to point me toward it that would be appreciated.
Someone wrote on this site about a clinical trial of B12 being given in large doses and that it was promising. I can not find the post nor can I find a report from the study. If someone happens to be able to point me toward it that would be appreciated.
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Flecainide and Digoxin
My first post after lurking a good while and sorry if it is over long, I am very confused at present, being diagnosed has been such a shock. In feb 2022 I spent 3 days in hospital with Afib and high blood pressure (180/104) no symptoms or pain etc, discharged with bisoprolol, ramipril and rivaroxaban
My first post after lurking a good while and sorry if it is over long, I am very confused at present, being diagnosed has been such a shock. In feb 2022 I spent 3 days in hospital with Afib and high blood pressure (180/104) no symptoms or pain etc, discharged with bisoprolol, ramipril and rivaroxaban
Ddob
in
AF Association
2 years ago
Post Partial Thyroidectomy Symptoms
Hi all! I had a partial thyroidectomy back in July as I had a benign cyst on the left side and I’ve been feeling worse and worse as of late. Terrible brain fog, tiredness, losing my hair, gaining weight, mood swings, awful skin problems, puffiness in my hands, fingers and eyes and horrific lower back
Hi all! I had a partial thyroidectomy back in July as I had a benign cyst on the left side and I’ve been feeling worse and worse as of late. Terrible brain fog, tiredness, losing my hair, gaining weight, mood swings, awful skin problems, puffiness in my hands, fingers and eyes and horrific lower back
NiaJayne
in
Thyroid UK
1 year ago
clinical trial RBN-2397-19-001
Any thoughts on RBN 2397 an oral PARP7 inhibitor? Husband is out of options so considering this trial. Thank you for your input.
Any thoughts on RBN 2397 an oral PARP7 inhibitor? Husband is out of options so considering this trial. Thank you for your input.
Cynthgob
in
Advanced Prostate Cancer
1 year ago
Amyloidosis
Has anyone been diagnosed with Amyloidosis of the heart which is causing Afib permanently? How are they being treated, etc?
Has anyone been diagnosed with Amyloidosis of the heart which is causing Afib permanently? How are they being treated, etc?
Flimmeri
in
AF Association
2 years ago
BAT in Argentina
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
pjoshea13
in
Fight Prostate Cancer
1 year ago
A shared story of SCA3
Bill Moore & his daughter Jessica Oberlin, two members of NAF, recently shared their stories of living with SCA3 as part of a feature for the Critical Path to Therapeutics for the Ataxias (CPTA). The CPTA aims to optimize clinical trials for inherited Ataxias. Impact stories like theirs can help researchers
Bill Moore & his daughter Jessica Oberlin, two members of NAF, recently shared their stories of living with SCA3 as part of a feature for the Critical Path to Therapeutics for the Ataxias (CPTA). The CPTA aims to optimize clinical trials for inherited Ataxias. Impact stories like theirs can help researchers
wobblybee
in
Ataxia UK
1 year ago
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