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Now Undetectable PSA on BAT Regimen
Happy to share my latest progress report. Note that I am mHSPC, lymph nodes only to pelvis and abdomen. I have been on long-cycle modified BAT for 2.5 years now. 3 months of very high testosterone (400mg T-cypionate every 2 weeks), then one month of ADT using Orgovyx. My PSA has continued to decline
Happy to share my latest progress report. Note that I am mHSPC, lymph nodes only to pelvis and abdomen. I have been on long-cycle modified BAT for 2.5 years now. 3 months of very high testosterone (400mg T-cypionate every 2 weeks), then one month of ADT using Orgovyx. My PSA has continued to decline
MateoBeach
in
Advanced Prostate Cancer
1 year ago
Finally Undetectable PSA on BAT
Happy to share my latest progress report. Note that I am mHSPC, lymph nodes only to pelvis and abdomen. I have been on long-cycle modified BAT for 2.5 years now. 3 months of very high testosterone (400mg T-cypionate every 2 weeks), then one month of ADT using Orgovyx. My PSA has continued to decline
Happy to share my latest progress report. Note that I am mHSPC, lymph nodes only to pelvis and abdomen. I have been on long-cycle modified BAT for 2.5 years now. 3 months of very high testosterone (400mg T-cypionate every 2 weeks), then one month of ADT using Orgovyx. My PSA has continued to decline
MateoBeach
in
Fight Prostate Cancer
1 year ago
Atrial Tachycardia ablation coming up
I’m going in once again for another ablation. The 3rd one finally finished off the afib. But they couldn’t trigger the atrial tachycardia. Since it’s become even more frequent since the last ablation, I decided to give it another go. Dreading it even more than normal since our local hospital has stopped
I’m going in once again for another ablation. The 3rd one finally finished off the afib. But they couldn’t trigger the atrial tachycardia. Since it’s become even more frequent since the last ablation, I decided to give it another go. Dreading it even more than normal since our local hospital has stopped
lovetogarden
in
Atrial Fibrillation Support
1 year ago
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Some HOPE for faster drug treatment approvals with "AI" (artificial intelligence)
"Developing life-saving medicine takes a lot of time, money and testing. But one company's artificial intelligence-driven technology provides a way to slash all three while saving the lives of more humans and animals." "VeriSIM Life has developed[i]
"digital twins" of various human body types
"Developing life-saving medicine takes a lot of time, money and testing. But one company's artificial intelligence-driven technology provides a way to slash all three while saving the lives of more humans and animals." "VeriSIM Life has developed[i]
"digital twins" of various human body types
PDWarrior1900
in
Cure Parkinson's
1 year ago
artistry 7 clinical trial
I will begin the artistry 7 trial in the next few weeks. Standard chemo has stopped working after. 4 reoccurrences , 7 different chemo/combos . Last Scan still showed progression but as low volume of disease. I only qualify for this one trial . Has anyone been on it and had success or what to expect
I will begin the artistry 7 trial in the next few weeks. Standard chemo has stopped working after. 4 reoccurrences , 7 different chemo/combos . Last Scan still showed progression but as low volume of disease. I only qualify for this one trial . Has anyone been on it and had success or what to expect
Lovetodiscodance57
in
My Ovacome
1 year ago
clinical trial recommendations please
Good morning lovely ladies, I have just become platinum resistant and am meeting my onc later this morning to discuss scan results and possibly look at clinical trials. Does anyone know of a current trial for high grade serous plat. resistant? I have looked on line but it would be good to hear from
Good morning lovely ladies, I have just become platinum resistant and am meeting my onc later this morning to discuss scan results and possibly look at clinical trials. Does anyone know of a current trial for high grade serous plat. resistant? I have looked on line but it would be good to hear from
Riverflo
in
My Ovacome
1 year ago
Ablation Cardiologist London?
Hi all, I have been told I should have an ablation asap. Likely within three or so weeks. I have had Atrial Fibrillation and Flutter. If anyone is willing to share who they saw and outcome that would be much appreciated! I am still trying to absorb it all. I developed the afib and flutter
Hi all, I have been told I should have an ablation asap. Likely within three or so weeks. I have had Atrial Fibrillation and Flutter. If anyone is willing to share who they saw and outcome that would be much appreciated! I am still trying to absorb it all. I developed the afib and flutter
Jacquisp
in
AF Association
1 year ago
PBCer with sudden Fatigue/Exhaustion
I am a 59 yo female in the US, stage 1-2 PBC. I was diagnosed in 2006 after invests. Into my horrible bout of heartburn. I’m in pretty good health and taking Urso. I’ve done clinical trials and tried additional meds thru the years as well, in doing so I was found to have Gilbert’s? syndrome where
I am a 59 yo female in the US, stage 1-2 PBC. I was diagnosed in 2006 after invests. Into my horrible bout of heartburn. I’m in pretty good health and taking Urso. I’ve done clinical trials and tried additional meds thru the years as well, in doing so I was found to have Gilbert’s? syndrome where
Joycie193
in
PBC Foundation
1 year ago
Phase 1 trial testing CAR T-cell therapy GC012F in SLE
Gracell Biotechnologies announced the launch of a Phase 1 clinical trial in China testing GC012F, its experimental dual FastCAR T-cell therapy, for hard-to-treat systemic lupus erythematosus (SLE). The investigator-initiated trial (NCT05846347), underway at The First Affiliated Hospital of the Zhejiang
Gracell Biotechnologies announced the launch of a Phase 1 clinical trial in China testing GC012F, its experimental dual FastCAR T-cell therapy, for hard-to-treat systemic lupus erythematosus (SLE). The investigator-initiated trial (NCT05846347), underway at The First Affiliated Hospital of the Zhejiang
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Dr. John Seymour on IgHV Mutational Status
IgHV is one of the biomarkers used to predict prognosis and how an individual with CLL/SLL will respond to different treatment options. Watch our interview with Dr. John Seymour to learn more about how recent clinical trials have changed our understanding of IgHV. https://youtu.be/354hNsHsSlc
IgHV is one of the biomarkers used to predict prognosis and how an individual with CLL/SLL will respond to different treatment options. Watch our interview with Dr. John Seymour to learn more about how recent clinical trials have changed our understanding of IgHV. https://youtu.be/354hNsHsSlc
Edalv
in
CLL Support
1 year ago
Prophylactics
Hi I have been on Acalabrutinib for two weeks now along with prophylactics, one being Co trimoxazole , which I seemed to react to. I have now been offered Pentamidine, which I have read up on and don’t like the sound of plus it does not sound as if it protects as well. Is anyone else on these drugs
Hi I have been on Acalabrutinib for two weeks now along with prophylactics, one being Co trimoxazole , which I seemed to react to. I have now been offered Pentamidine, which I have read up on and don’t like the sound of plus it does not sound as if it protects as well. Is anyone else on these drugs
Sunshine2422
in
CLL Support
1 year ago
Digoxin vs Pace & Ablate?
As some already know I’ve had a hard recovery since ablation on 23/11/22. HR was on the rise again slowly from then and the severe respiratory episode went on & on. Just coming to the end of what I think is maybe the 5th antibiotic course! I’ve now been on digoxin 125mcg since 28/2/22 and following
As some already know I’ve had a hard recovery since ablation on 23/11/22. HR was on the rise again slowly from then and the severe respiratory episode went on & on. Just coming to the end of what I think is maybe the 5th antibiotic course! I’ve now been on digoxin 125mcg since 28/2/22 and following
Afibflipper
in
AF Association
1 year ago
Please share your experiences with Provenge. What’s it like getting the injections and what are your results?
I’m stage four on Orgovyx and recently went castrate resistant with three small bone mets on my upper spine so we added Zytiga. I started the Eclipse clinical trial three weeks ago with PSA of 3.3 and am authorized for up to four treatments. My plan is to start Provenge after the trial is over. What
I’m stage four on Orgovyx and recently went castrate resistant with three small bone mets on my upper spine so we added Zytiga. I started the Eclipse clinical trial three weeks ago with PSA of 3.3 and am authorized for up to four treatments. My plan is to start Provenge after the trial is over. What
SViking
in
Advanced Prostate Cancer
1 year ago
Bisoprolol to Sotalol
Hi everyone. I’ve been on 10 mgs of Bisoprolol for a year, having had the dose gradually increased since my diagnosis in 2017. This drug has served me well in lowering my heart rate when it has gone into Tachycardia territory. My cardiologist has said that if my Afib bothers me me more, then as I am
Hi everyone. I’ve been on 10 mgs of Bisoprolol for a year, having had the dose gradually increased since my diagnosis in 2017. This drug has served me well in lowering my heart rate when it has gone into Tachycardia territory. My cardiologist has said that if my Afib bothers me me more, then as I am
Tellingfibs
in
Atrial Fibrillation Support
1 year ago
Diltiazem and side effects
hello, my heart has been quite upset lately and I’ve been told to up my bisoprolol but am finding it hard going with feeling breathless so my arrhythmia nurse suggested she might put me on Diltiazem and am just wondering what’s it like as a pill and what are the common side effects on it.for people
hello, my heart has been quite upset lately and I’ve been told to up my bisoprolol but am finding it hard going with feeling breathless so my arrhythmia nurse suggested she might put me on Diltiazem and am just wondering what’s it like as a pill and what are the common side effects on it.for people
Electricblue1
in
Atrial Fibrillation Support
1 year ago
Shockwave Therapy By Chiropractor
I just went to a Chiropractor for treatment of agonizing pain in my upper back. He wants to treat me with shockwave therapy but I have concerns of this affecting my atrial fibrillation. I am presently only taking an anticoagulant, and no other meds for my AF. Has anyone had this type of treatment
I just went to a Chiropractor for treatment of agonizing pain in my upper back. He wants to treat me with shockwave therapy but I have concerns of this affecting my atrial fibrillation. I am presently only taking an anticoagulant, and no other meds for my AF. Has anyone had this type of treatment
SnoopyJ
in
Atrial Fibrillation Support
1 year ago
Af at first but now also atrial tachycardia….
Hi everyone 🦋 Hope you are all doing well x Just wanted to ask I have had Af for over 3 years now and had two ablations that have been somewhat successful as my Af is better but not we’re I wish I was but I am feeling greatful for the work they have done to help me improve my life ❤️ as I was very
Hi everyone 🦋 Hope you are all doing well x Just wanted to ask I have had Af for over 3 years now and had two ablations that have been somewhat successful as my Af is better but not we’re I wish I was but I am feeling greatful for the work they have done to help me improve my life ❤️ as I was very
Sigi1
in
AF Association
1 year ago
My 40 day post-ablation update
I've replied to a few posts here but think this might be my first post. 40 days ago I a cryoballoon ablation for paroxysmal AFib. Afterwards the EP told me I had 5 pulmonary veins and he estimated 80% chance of remission with first procedure. Since then: - I've only had AFib for 1 hour about 10 days
I've replied to a few posts here but think this might be my first post. 40 days ago I a cryoballoon ablation for paroxysmal AFib. Afterwards the EP told me I had 5 pulmonary veins and he estimated 80% chance of remission with first procedure. Since then: - I've only had AFib for 1 hour about 10 days
estesbubba
in
AF Association
1 year ago
Rusfertide...
I haven't come across any dialog about this drug on this website. It popped up on my many searches for additional info about treatment for Polycythemia Vera. It is currently in phase 2 of a clinical trial at Stanford University and so far, results with patients have been good. It sounds like
I haven't come across any dialog about this drug on this website. It popped up on my many searches for additional info about treatment for Polycythemia Vera. It is currently in phase 2 of a clinical trial at Stanford University and so far, results with patients have been good. It sounds like
K-itty
in
MPN Voice
1 year ago
Vagal Afib
So I was diagnosed with Vagal Afib after several ED visits and having 4 cardioversions. My EP put me on Tikosyn which seemed to shorten the episodes. I am still in the paroxysmal Afib level. I do not drink alcohol or caffeine. Cut out sugar, eating late and stress. My doctor also told me he is suspecting
So I was diagnosed with Vagal Afib after several ED visits and having 4 cardioversions. My EP put me on Tikosyn which seemed to shorten the episodes. I am still in the paroxysmal Afib level. I do not drink alcohol or caffeine. Cut out sugar, eating late and stress. My doctor also told me he is suspecting
MarAF
in
Atrial Fibrillation Support
1 year ago
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