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Rusfertide...
I haven't come across any dialog about this drug on this website. It popped up on my many searches for additional info about treatment for Polycythemia Vera. It is currently in phase 2 of a clinical trial at Stanford University and so far, results with patients have been good. It sounds like
I haven't come across any dialog about this drug on this website. It popped up on my many searches for additional info about treatment for Polycythemia Vera. It is currently in phase 2 of a clinical trial at Stanford University and so far, results with patients have been good. It sounds like
K-itty
in
MPN Voice
1 year ago
Celebrating International Clinical Trials Day.
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
Richard-Allen
in
British Liver Trust
1 year ago
Estetrol for bone density? What estrogen test so I need, anything specific?
Found this interesting article on estetrol and wondering if anyone out there has taken this form of estrogen? I see a lot of posts relating to estradiol patches but the E4 estrogen form appears to be much better at least on first look. The clinical trials were done in the Netherlands so it may be something
Found this interesting article on estetrol and wondering if anyone out there has taken this form of estrogen? I see a lot of posts relating to estradiol patches but the E4 estrogen form appears to be much better at least on first look. The clinical trials were done in the Netherlands so it may be something
watertender
in
Advanced Prostate Cancer
1 year ago
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Three weeks post ablation - slipped beats
Hi all. Had an ablation on Feb 9th. First two weeks were a breeze. Zero symptoms. On days 15 started getting skipped beats. Felt normal rhythm but the delay was hicupp/gurgling. Felt like frog was in my throat too. They don’t last long, usually less than 4 min. Goes back to normal sinus rhythm. Sometime
Hi all. Had an ablation on Feb 9th. First two weeks were a breeze. Zero symptoms. On days 15 started getting skipped beats. Felt normal rhythm but the delay was hicupp/gurgling. Felt like frog was in my throat too. They don’t last long, usually less than 4 min. Goes back to normal sinus rhythm. Sometime
Jcaskey
in
AF Association
1 year ago
Lung Cancer Research
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
Are you interested in being part of research but there is no clinical trial open to you at present? By using Your Health Companion, you will be part of a long-term research project designed to improve your experience and open the door to new and better cancer medicines for all. Many research projects
YourHealthCompanion
in
The Roy Castle Lung Cancer Foundation
1 year ago
Hyperbaric Oxjen Chamber/ Portable unit
Hi, My partner of 26 years has stage 4 metastatic prostate cancer. He has been fighting it for 10 years He is 74. He had it removed immediately, 10yrs ago - Gleason was a 9. He did low dose chemo following that and so many drugs on and off over the years as well as Lupron which has left him without
Hi, My partner of 26 years has stage 4 metastatic prostate cancer. He has been fighting it for 10 years He is 74. He had it removed immediately, 10yrs ago - Gleason was a 9. He did low dose chemo following that and so many drugs on and off over the years as well as Lupron which has left him without
Peanutdog123
in
Advanced Prostate Cancer
1 year ago
Atrial Fibulation from cancer treatment not standard Afib. Update post EP Consultation
Hello Everyone so as promised an update. I saw my EP on Friday. He explained that Afib usually occurs around certain sites in the left Atrium (? Is that the correct term) and these are the sites they target when doing an Ablation. He said when we do cryo we can't see where the electrical impulses are
Hello Everyone so as promised an update. I saw my EP on Friday. He explained that Afib usually occurs around certain sites in the left Atrium (? Is that the correct term) and these are the sites they target when doing an Ablation. He said when we do cryo we can't see where the electrical impulses are
waveylines
in
Atrial Fibrillation Support
1 year ago
Pacemaker implanted AV node ablated
Monday I had the rest of my surgery finished, and my pacemaker connected and AV node ablated. I have a new and different pacemaker if you did not see my previous posts. It is called.Azure by Medtronics and only approved in October by the FDA here in the states. According to my doctor prior to this,
Monday I had the rest of my surgery finished, and my pacemaker connected and AV node ablated. I have a new and different pacemaker if you did not see my previous posts. It is called.Azure by Medtronics and only approved in October by the FDA here in the states. According to my doctor prior to this,
DawnTX
in
AF Association
1 year ago
New evidence on the early treatment of low-risk PV patients (using IFN)
I saw this article: Final results from the Low PV study now published in the NEJM Evidence https://fondazionefrom.it/fondazione-from/la-fondazione/news/final-results-from-the-low-pv-study-now-published-in-the-nejm-evidence "The results of the randomized, controlled phase II trial Low PV clearly demonstrated
I saw this article: Final results from the Low PV study now published in the NEJM Evidence https://fondazionefrom.it/fondazione-from/la-fondazione/news/final-results-from-the-low-pv-study-now-published-in-the-nejm-evidence "The results of the randomized, controlled phase II trial Low PV clearly demonstrated
Joey1025
in
MPN Voice
1 year ago
testosterone
listened to a very interesting podcast by Dr Geo Espinosa who featured Dr Mohit Khera a renowned urologist/scientist at Baylor college of medicine whom Dr Geo refers to as the Lebron James of Testosterone. Very interesting discussion regarding TRT (testosterone replacement therapy) and the BAT (Bipolar
listened to a very interesting podcast by Dr Geo Espinosa who featured Dr Mohit Khera a renowned urologist/scientist at Baylor college of medicine whom Dr Geo refers to as the Lebron James of Testosterone. Very interesting discussion regarding TRT (testosterone replacement therapy) and the BAT (Bipolar
Appraiser
in
Advanced Prostate Cancer
1 year ago
Heart Rate 72 to 120 and back to 72. Has anyone had sporadic fluctuating rates like this? I’m in a dire straits 😕
This is new for me! I get an extreme headache when this happens and it also subsides also causes my BP to rise Last ablation successful I felt- watchman install- no anticoagulant- but 81 gram aspirin - used 30mg Ditalzam during blanking period- no problem No meds needed till NOW: tried 30mg Diltiazam
This is new for me! I get an extreme headache when this happens and it also subsides also causes my BP to rise Last ablation successful I felt- watchman install- no anticoagulant- but 81 gram aspirin - used 30mg Ditalzam during blanking period- no problem No meds needed till NOW: tried 30mg Diltiazam
Tantaanna
in
AF Association
1 year ago
Heavy arms and legs…
First time posting. Hello everyone. I was diagnosed with AF in October. It is present all the time - heart rate in 80’s and 90’s. I was aware my heart was racing & I felt tired & uncomfortable. I was immediately put on Apixaban & Bisoprolol. Having started medication my arms & legs became very heavy
First time posting. Hello everyone. I was diagnosed with AF in October. It is present all the time - heart rate in 80’s and 90’s. I was aware my heart was racing & I felt tired & uncomfortable. I was immediately put on Apixaban & Bisoprolol. Having started medication my arms & legs became very heavy
Heartening
in
Atrial Fibrillation Support
1 year ago
Palpitations versus Atrial Fibrillation ?
Over the years, I have had a number of Palpitations, which sometimes they keep me awake, and constant every few seconds. I recently bought myself a Kardia 6 lead ECG Monitor, so I could keep a watch on my heart rhythms, and if this would show up any problems needing looked at Over a few days, there
Over the years, I have had a number of Palpitations, which sometimes they keep me awake, and constant every few seconds. I recently bought myself a Kardia 6 lead ECG Monitor, so I could keep a watch on my heart rhythms, and if this would show up any problems needing looked at Over a few days, there
Fitbit-Joe
in
AF Association
1 year ago
Cardioversion
I was diagnosed with afib in December last year in A/E since then had ecg ,and ecocardiogram, waiting to see a cardiologist. Got results from G.P saying leaky valves.But today got a surprise phone call from cardiology department saying a cardiologist had referred me for cardioversion in April .Does anyone
I was diagnosed with afib in December last year in A/E since then had ecg ,and ecocardiogram, waiting to see a cardiologist. Got results from G.P saying leaky valves.But today got a surprise phone call from cardiology department saying a cardiologist had referred me for cardioversion in April .Does anyone
TheGrinch2
in
AF Association
1 year ago
Lived Health Parkinson's
This channel on [i]YouTube.com [/i]has some up to date info, such as this video below featuring Roger Barker talking about stem cell treatment and when we might expect some results from the current batch of clinical trials happening world wide. https://www.youtube.com/watch?v=n20yPPRheSw https://www.youtube.com
This channel on [i]YouTube.com [/i]has some up to date info, such as this video below featuring Roger Barker talking about stem cell treatment and when we might expect some results from the current batch of clinical trials happening world wide. https://www.youtube.com/watch?v=n20yPPRheSw https://www.youtube.com
Zardoz
in
Cure Parkinson's
1 year ago
Mini-Maze Discussion
For all who are interested in the keyhole mini-maze (thoracoscopic) technique, Dr Wolf and Dr Ohtsuka are hosting a live Zoom discussion. For the record, I was a UK resident until I relocated to Greece. For the last five years, I suffered with AFib which became progressively worse and in the last
For all who are interested in the keyhole mini-maze (thoracoscopic) technique, Dr Wolf and Dr Ohtsuka are hosting a live Zoom discussion. For the record, I was a UK resident until I relocated to Greece. For the last five years, I suffered with AFib which became progressively worse and in the last
saulger
in
AF Association
1 year ago
Why continue taking Orgovyx while also on Zytiga? I just started a clinical trial with LU–177 I&T.
I had my first of up to four treatments last week in the Eclipse clinical trial for LU 177 I&T and I’m wondering why I should continue taking Orgovyx . I’ve heard that production of testosterone is even more efficiently reduced on Zytiga. The less meds, the better for me. Every time we add a new substance
I had my first of up to four treatments last week in the Eclipse clinical trial for LU 177 I&T and I’m wondering why I should continue taking Orgovyx . I’ve heard that production of testosterone is even more efficiently reduced on Zytiga. The less meds, the better for me. Every time we add a new substance
SViking
in
Advanced Prostate Cancer
1 year ago
hope is the thing…
from another cancer blog…another potential cancer drug is in the works and going to clinical trials . https://www.etirarx.com/ Fingers crossed, people. There needs to be a breakthrough for this cancer terror. I’ve lost too many friends and feel like I’m swimming up stream.
from another cancer blog…another potential cancer drug is in the works and going to clinical trials . https://www.etirarx.com/ Fingers crossed, people. There needs to be a breakthrough for this cancer terror. I’ve lost too many friends and feel like I’m swimming up stream.
Dragonfly2
in
SHARE Metastatic Breast Cancer
1 year ago
GREAT YouTube Health Channel by Stanford University M.D. specializing in: "HUMAN LONGEVITY"
i recently discovered a new health channel on YouTube Dr. Peter Attia, M.D. (degree from Stanford University) He specializes in "human longevity." He is also the first person to make the round-trip swim from Maui and Lanai. [u]
He personally fasts
[/u] ... 3 days straight every month (formerly
i recently discovered a new health channel on YouTube Dr. Peter Attia, M.D. (degree from Stanford University) He specializes in "human longevity." He is also the first person to make the round-trip swim from Maui and Lanai. [u]
He personally fasts
[/u] ... 3 days straight every month (formerly
PDWarrior1900
in
Cure Parkinson's
1 year ago
Cardiovascular Protections from Omega 3 supplements now Doubtful
I have been taking a combined Omega3 supplement (EPA and DHA fish oil)to improve my cardiovascular risk profile along with a statin, baby ASA and careful BP management. I am a carnivore/omnivore but only eat fish twice per week usually. (Please don’t beat me up over my diet PBWF folks!) I am not diabetic
I have been taking a combined Omega3 supplement (EPA and DHA fish oil)to improve my cardiovascular risk profile along with a statin, baby ASA and careful BP management. I am a carnivore/omnivore but only eat fish twice per week usually. (Please don’t beat me up over my diet PBWF folks!) I am not diabetic
MateoBeach
in
Fight Prostate Cancer
1 year ago
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