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Any advice about future treatment?
Good morning sisters, I am at yet another crossroads and hoping for some advice. Diagnosed stage 4 high grade serous Jan 2020, had two surgeries, three courses of chemo (in total), short lived Niraparib, failed clinical trial (PICCOLO). So now having the 6th and final chemo of this third course ( Carboplatin
Good morning sisters, I am at yet another crossroads and hoping for some advice. Diagnosed stage 4 high grade serous Jan 2020, had two surgeries, three courses of chemo (in total), short lived Niraparib, failed clinical trial (PICCOLO). So now having the 6th and final chemo of this third course ( Carboplatin
Riverflo
in
My Ovacome
1 year ago
To those who replied to my question on clinical trials
To those who replied to my question on joining clinical trials, I am overwhelmed by your kindness in sending me emails. I will answer your emails soon but I am currently recovering from a cataract operation and though my eyesight has improved a lot I still have difficulty reading and writing. Bear
To those who replied to my question on joining clinical trials, I am overwhelmed by your kindness in sending me emails. I will answer your emails soon but I am currently recovering from a cataract operation and though my eyesight has improved a lot I still have difficulty reading and writing. Bear
MyMiracle13
in
SHARE Metastatic Breast Cancer
1 year ago
Premature atrial contractions (PAC) and Premature ventricular contractions (PVC). Same triggers as Afib?
Just curious what causes PAC's and PVC's to vary so widely. Last night over an 8 hour period I had 2,608 PAC's and 1,237 PVC's, which was much higher then usual. My Afib burden is very low, each time only lasting 20 seconds and not as bothersome. The night before for the same period I only had 276
Just curious what causes PAC's and PVC's to vary so widely. Last night over an 8 hour period I had 2,608 PAC's and 1,237 PVC's, which was much higher then usual. My Afib burden is very low, each time only lasting 20 seconds and not as bothersome. The night before for the same period I only had 276
OzRob
in
AF Association
2 years ago
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Should I give up taking Amiodarone
I had a cardioversion last May and was delighted that it worked first time. I took 100mg Amiodarone daily until November when I slipped into AFib again. I did a 3 per day 200mg amiodarone for one week, 2 per day and then 1 per day and this hasn't sorted it. My resting pulse is 75-80 (whereas normally
I had a cardioversion last May and was delighted that it worked first time. I took 100mg Amiodarone daily until November when I slipped into AFib again. I did a 3 per day 200mg amiodarone for one week, 2 per day and then 1 per day and this hasn't sorted it. My resting pulse is 75-80 (whereas normally
JackyMac
in
Atrial Fibrillation Support
2 years ago
Eliquis and CBD gummy’s
I am taking 5 mg of Eliquis two times a day. I started taking 20 mg of CBD Gummies which has helped my mood and pain immensely. I did some research and read that you should not take CBD with Eliquis as it can be very dangerous causing an overdose of Eliquis. Has anyone here tried taking CBD with Eliquis
I am taking 5 mg of Eliquis two times a day. I started taking 20 mg of CBD Gummies which has helped my mood and pain immensely. I did some research and read that you should not take CBD with Eliquis as it can be very dangerous causing an overdose of Eliquis. Has anyone here tried taking CBD with Eliquis
Debjimmay
in
Atrial Fibrillation Support
2 years ago
Effect of Melatonin Administration on Mitochondrial Activity and Oxidative Stress Markers in Patients with Parkinson's Disease 2021
Effect of Melatonin Administration on Mitochondrial Activity and Oxidative Stress Markers in Patients with Parkinson's Disease 2021
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8545577/ Abstract Mitochondrial dysfunction and oxidative stress are extensively linked to Parkinson's disease (PD)
Effect of Melatonin Administration on Mitochondrial Activity and Oxidative Stress Markers in Patients with Parkinson's Disease 2021
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8545577/ Abstract Mitochondrial dysfunction and oxidative stress are extensively linked to Parkinson's disease (PD)
Bolt_Upright
in
Cure Parkinson's
1 year ago
IVIG after heart surgery and stopping IBRUTIMIB
12 months ago I was on an Ibrutinib clinical trial for my CLL. Ibrutinib worked great for me for years. I found out I needed a triple bypass due to 95% LAD artery blockage. Not good! A stent wasn’t an option in my case due to necessity for blood thinners. Can’t do blood thinners, aspirin and Irbutinib
12 months ago I was on an Ibrutinib clinical trial for my CLL. Ibrutinib worked great for me for years. I found out I needed a triple bypass due to 95% LAD artery blockage. Not good! A stent wasn’t an option in my case due to necessity for blood thinners. Can’t do blood thinners, aspirin and Irbutinib
misterbee
in
CLL Support
1 year ago
More shocking news
Latest diagnosis. After been diagnosed with A fib after an emergency visit to hospital 6 weeks ago I was put on beta blockers and blood anticoagulant. After experiencing months of breathlessness. Thought I had a chest infection. No improvement! This appointment with the cardiologist I had an echocardiogram
Latest diagnosis. After been diagnosed with A fib after an emergency visit to hospital 6 weeks ago I was put on beta blockers and blood anticoagulant. After experiencing months of breathlessness. Thought I had a chest infection. No improvement! This appointment with the cardiologist I had an echocardiogram
Poorlizzie
in
AF Association
2 years ago
Volunteer Opportunity - Prostate Cancer Patient Advocate with SWOG for Genitourinary Cancer Committee
I have served as a volunteer Patient Advocate representing the LGBTQ+ Community with the Southwest Oncology Group (SWOG) for the past two years. As such I am serving as a member of the Patient Advocacy Committee (PAC) and the Diversity, Equality, and Inclusion Committee. I attend monthly zoom meetings
I have served as a volunteer Patient Advocate representing the LGBTQ+ Community with the Southwest Oncology Group (SWOG) for the past two years. As such I am serving as a member of the Patient Advocacy Committee (PAC) and the Diversity, Equality, and Inclusion Committee. I attend monthly zoom meetings
JRPnSD
in
Advanced Prostate Cancer
1 year ago
HAS ANYONE PARTICIPATED IN CLINICAL TRIALS
Hello everyone. Has anybody on this forum ever joined in a clinical trial? I have been invited to join a Phase 1 clinical trial for LOXO-783. The new drug is for those who have the PIK3CA mutation. At first I was very excited to join but when I was looking at the screening requirements, I don’t
Hello everyone. Has anybody on this forum ever joined in a clinical trial? I have been invited to join a Phase 1 clinical trial for LOXO-783. The new drug is for those who have the PIK3CA mutation. At first I was very excited to join but when I was looking at the screening requirements, I don’t
MyMiracle13
in
SHARE Metastatic Breast Cancer
1 year ago
response to clinical trial application?
A couple of months ago, I applied for a clinical trial that had just started recruiting. They are still recruiting and have begun administering the trial drug to participants. I never heard from trial staff. Has anyone applied for a trial and received notice whether they were rejected? Thank you. Sashay
A couple of months ago, I applied for a clinical trial that had just started recruiting. They are still recruiting and have begun administering the trial drug to participants. I never heard from trial staff. Has anyone applied for a trial and received notice whether they were rejected? Thank you. Sashay
Sashay2020
in
My Ovacome
1 year ago
AFib info
hi, I was diagnosed with paroxysmal AF two years ago and have recently undergone an ablation. I have become an avid reader of all things a fib related and feel that the more knowledge I have the easier it is to understand and try and cope with the stresses of this condition. On that note aside from the
hi, I was diagnosed with paroxysmal AF two years ago and have recently undergone an ablation. I have become an avid reader of all things a fib related and feel that the more knowledge I have the easier it is to understand and try and cope with the stresses of this condition. On that note aside from the
Jcvi
in
AF Association
2 years ago
ECHOCARDIOGRAM RESULTS
Hiya guys and gals, Now there are some very brainy peeps out there and so I’d like to invite comment on the following Echocardiogram results - in summary it says ...... 1 severe concentric left ventricular hypertrophy. Left Ventricle not dilated and has normal systolic and diastolic function. 2 the
Hiya guys and gals, Now there are some very brainy peeps out there and so I’d like to invite comment on the following Echocardiogram results - in summary it says ...... 1 severe concentric left ventricular hypertrophy. Left Ventricle not dilated and has normal systolic and diastolic function. 2 the
Hidden
in
AF Association
2 years ago
Vagus Nerve and Afib Questions
Folks, Can I test out a few elements of my understanding of the vagus nerve and vagally induced Afib with any of you that understand it better than I do please? 1. Vagally induced Afib is triggered by an over-active or over-stimulated vagus nerve, which in a sense means that you are too calm or relaxed
Folks, Can I test out a few elements of my understanding of the vagus nerve and vagally induced Afib with any of you that understand it better than I do please? 1. Vagally induced Afib is triggered by an over-active or over-stimulated vagus nerve, which in a sense means that you are too calm or relaxed
BigArnie
in
AF Association
2 years ago
Interesting video with active ongoing clinical trial. Maybe on option for some!!
https://www.urotoday.com/video-lectures/asco-2022/video/2853-the-future-of-radiopharmaceuticals-in-the-treatment-of-prostate-cancer-philip-kantoff.html
https://www.urotoday.com/video-lectures/asco-2022/video/2853-the-future-of-radiopharmaceuticals-in-the-treatment-of-prostate-cancer-philip-kantoff.html
Bkraus1
in
Advanced Prostate Cancer
1 year ago
More on the biomarker NFL
The identification of disease-modifying therapies is the Holy Grail of PD research, but to date no drug has been approved as such a therapy.1 There are numerous disease-modifying therapies currently in the pipeline attempting to modify the underlying pathomechanisms. In recent years, the results of
The identification of disease-modifying therapies is the Holy Grail of PD research, but to date no drug has been approved as such a therapy.1 There are numerous disease-modifying therapies currently in the pipeline attempting to modify the underlying pathomechanisms. In recent years, the results of
House2
in
Cure Parkinson's
1 year ago
Annovis Bio Announces Approval for EU Clinical Trial Sites for the Phase 3 Study of Buntanetap for the Treatment of Parkinson's Disease
This trial is already open in the United States, and I believe some on this forum are participating. This announcemment indicates that the company is also opening clinical trial sites across the EU. I checked clnicaltrials.gov but they have not listed the EU sites yet. https://www.prnewswire.com/news-releases
This trial is already open in the United States, and I believe some on this forum are participating. This announcemment indicates that the company is also opening clinical trial sites across the EU. I checked clnicaltrials.gov but they have not listed the EU sites yet. https://www.prnewswire.com/news-releases
Canddy
in
Cure Parkinson's
1 year ago
Neuron23 Announces First-in-Human Dose in Phase 1 Clinical Trial of its Best-in-Class Brain-Penetrant LRRK2 Inhibitor for Parkinsons Disease
NEU-723 has been shown in preclinical studies to have strong disease-modifying potential with a higher therapeutic index than other candidates in development https://www.prnewswire.com/news-releases/neuron23-announces-first-in-human-dose-in-phase-1-clinical-trial-of-its-best-in-class-brain-penetrant-lrrk2
NEU-723 has been shown in preclinical studies to have strong disease-modifying potential with a higher therapeutic index than other candidates in development https://www.prnewswire.com/news-releases/neuron23-announces-first-in-human-dose-in-phase-1-clinical-trial-of-its-best-in-class-brain-penetrant-lrrk2
Farooqji
in
Cure Parkinson's
1 year ago
Athira announces clinical trials for Alzheimer’s, Parkinson’s, ALS treatments in 2023
https://www.healio.com/news/neurology/20230207/athira-announces-clinical-trials-for-alzheimers-parkinsons-als-treatments-in-2023
https://www.healio.com/news/neurology/20230207/athira-announces-clinical-trials-for-alzheimers-parkinsons-als-treatments-in-2023
Farooqji
in
Cure Parkinson's
1 year ago
4 weeks after Pfizer Biotech vaccine
Up until 4 weeks ago I was in control of my afib with life style changes and Flecainide, then I had a COVID booster vaccine and it's all gone out of the window. For a few days immediately after the vaccine I was a little poorly and my heart readings were all over the shop. Since then I have had periods
Up until 4 weeks ago I was in control of my afib with life style changes and Flecainide, then I had a COVID booster vaccine and it's all gone out of the window. For a few days immediately after the vaccine I was a little poorly and my heart readings were all over the shop. Since then I have had periods
MisterMagoo
in
AF Association
2 years ago
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