Search
Search
About
Log in
Join
Experiences with
Atimos Modulite
Posts
Communities
731 public posts
Filter results
Book recommendation
I’ve been living with a cancer diagnosis since November 19, 2008. What a journey! Recently, the nurse for my oncologist at the Proton Center in Jacksonville, Fla., where I had 19 proton beam treatments, 18 IMRT radiation treatments, and 7 taxotere treatments from March -May 2009, called me. She said
I’ve been living with a cancer diagnosis since November 19, 2008. What a journey! Recently, the nurse for my oncologist at the Proton Center in Jacksonville, Fla., where I had 19 proton beam treatments, 18 IMRT radiation treatments, and 7 taxotere treatments from March -May 2009, called me. She said
Hidden
in
Advanced Prostate Cancer
6 years ago
Suspected asthma but no wheeze
I have been suffering with a cough for 2 months. It is worst at night, waking me from sleep and when I exercise. I saw a nurse about 5weeks ago and she suspected asthma. My peak flow was only 220, about half of what it should be. I was given a blue inhaler to relieve symptoms. I used this frequently
I have been suffering with a cough for 2 months. It is worst at night, waking me from sleep and when I exercise. I saw a nurse about 5weeks ago and she suspected asthma. My peak flow was only 220, about half of what it should be. I was given a blue inhaler to relieve symptoms. I used this frequently
Mas1
in
Asthma Community Forum
6 years ago
Words, Abbreviations & Acronyms
As I read the posts here I am often overwhelmed by the acronyms, abbreviations, and drug names. I rarely know what they refer to. So I'm offering to compile a list of them not only for my own edification and understanding, but for others who might come here and be as confused as I am. So...here are
As I read the posts here I am often overwhelmed by the acronyms, abbreviations, and drug names. I rarely know what they refer to. So I'm offering to compile a list of them not only for my own edification and understanding, but for others who might come here and be as confused as I am. So...here are
DrWrite
in
Advanced Prostate Cancer
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
New Member - Hoping to be able to contribute to the rich knowledge base here!
As a follower and benefactor of the many knowledgeable posters here, I am now joining the community to share my experience with PC (& an indolent blood cancer, CLL). I was diagnosed with CLL 12 years ago. I have never needed treatment and am very stable Phase One at this time. I had robotic NSRP in
As a follower and benefactor of the many knowledgeable posters here, I am now joining the community to share my experience with PC (& an indolent blood cancer, CLL). I was diagnosed with CLL 12 years ago. I have never needed treatment and am very stable Phase One at this time. I had robotic NSRP in
cujoe
in
Advanced Prostate Cancer
6 years ago
Correlation between start of Lupron and start of RT
in my case Eligard. RO seems adamant about starting IMRT right at the 2 month mark from my 6 month Eligard injection. I am not getting the reasoning. (plan on asking him next week) common sense would make one wonder, why not start RT at 4 months? 3months? Is PC more radio sensitive at 2 months than 4
in my case Eligard. RO seems adamant about starting IMRT right at the 2 month mark from my 6 month Eligard injection. I am not getting the reasoning. (plan on asking him next week) common sense would make one wonder, why not start RT at 4 months? 3months? Is PC more radio sensitive at 2 months than 4
ezhoe
in
Advanced Prostate Cancer
6 years ago
My dad got IMRT today!!!!!!
Thanks to SO many wonderful people who helped fight Florida Blue, my dad received a phone call today while we were on our way for his first standard radiation appt and they overturned the 5 denials!!!!! This would NOT have happened without those who fought for my dad and LCSM AND Denzie!!!!!! To all
Thanks to SO many wonderful people who helped fight Florida Blue, my dad received a phone call today while we were on our way for his first standard radiation appt and they overturned the 5 denials!!!!! This would NOT have happened without those who fought for my dad and LCSM AND Denzie!!!!!! To all
Lisam81
in
Lung Cancer Support
6 years ago
Recurrence after lymph node dissection / How best to stall PSA progression
Hi, I am new to this forum and looking for Tall Allen's (thanks for your past help Allen) or anybody else's thoughts. I have been treated since 2011 when I got diagnosed with a PSA of 65, Gleason 4+3=7 and seminal vesicle involvement. I had brachytherapy, IMRT and 2 years of hormone therapy done at
Hi, I am new to this forum and looking for Tall Allen's (thanks for your past help Allen) or anybody else's thoughts. I have been treated since 2011 when I got diagnosed with a PSA of 65, Gleason 4+3=7 and seminal vesicle involvement. I had brachytherapy, IMRT and 2 years of hormone therapy done at
Yarbo3
in
Advanced Prostate Cancer
6 years ago
Update. Let’s take John English’s fight for best treatment viral.
This will s the info you need to contact the CEO. PLEASE take a moment and send him an email. —————— Please help this patient get the treatment he needs. His name is John W. English. He has lung cancer with SVC. His doctor ordered proton therapy because it’s safest. Florida Blue refused saying
This will s the info you need to contact the CEO. PLEASE take a moment and send him an email. —————— Please help this patient get the treatment he needs. His name is John W. English. He has lung cancer with SVC. His doctor ordered proton therapy because it’s safest. Florida Blue refused saying
Denzie
Volunteer
in
Lung Cancer Support
6 years ago
Stress
Morning everyone. I’ve just read Lisa’s post about her Dads IMRT being denied for the final time and I tried to assure her that standard rads are good as well ...but while I was writing to her I kept thinking about her father sitting around waiting for a bunch of strangers to make decisions about HIS
Morning everyone. I’ve just read Lisa’s post about her Dads IMRT being denied for the final time and I tried to assure her that standard rads are good as well ...but while I was writing to her I kept thinking about her father sitting around waiting for a bunch of strangers to make decisions about HIS
ynkefan08753
in
Lung Cancer Support
6 years ago
IMRT denied final time today + Abraxane, Carboplatin, Keytruda question
I figured I would do a brand new update post in one spot. To update on my dad’s insurance denial, the external review for IMRT on his chest tumor that is wrapped around the SVC of his heart was denied today as well. This was the final appeal we had and now have no more. To say I feel defeated is an understatement
I figured I would do a brand new update post in one spot. To update on my dad’s insurance denial, the external review for IMRT on his chest tumor that is wrapped around the SVC of his heart was denied today as well. This was the final appeal we had and now have no more. To say I feel defeated is an understatement
Lisam81
in
Lung Cancer Support
6 years ago
Oligorecurrent Nodal Prostate Cancer
New study below. -Patrick https://www.ncbi.nlm.nih.gov/pubmed/?term=29315174 Am J Clin Oncol. 2018 Oct;41(10):960-962. doi: 10.1097/COC.0000000000000419. Oligorecurrent Nodal Prostate Cancer: Long-term Results of an Elective Nodal Irradiation Approach. Tran S1, Jorcano S2, Falco T1, Lamanna G1, Miralbell
New study below. -Patrick https://www.ncbi.nlm.nih.gov/pubmed/?term=29315174 Am J Clin Oncol. 2018 Oct;41(10):960-962. doi: 10.1097/COC.0000000000000419. Oligorecurrent Nodal Prostate Cancer: Long-term Results of an Elective Nodal Irradiation Approach. Tran S1, Jorcano S2, Falco T1, Lamanna G1, Miralbell
pjoshea13
in
Advanced Prostate Cancer
6 years ago
IMRT appeal denied for a SECOND time - case closed now
Update from my previous post - the patient appeal I did for my dad with the 4 page letter and 28 pages of his medical records plus the letter of medical necessity has gone before the Florida Blue Cross medical board where IMRT has been denied for a second and final time today. First appeal denied. Peer
Update from my previous post - the patient appeal I did for my dad with the 4 page letter and 28 pages of his medical records plus the letter of medical necessity has gone before the Florida Blue Cross medical board where IMRT has been denied for a second and final time today. First appeal denied. Peer
Lisam81
in
Lung Cancer Support
6 years ago
Insurance denied IMRT!
Has anyone ever been denied IMRT by insurance?! It has now been several weeks since we found out my dad’s tumor pressing on his heart is no longer stable and is slowly enlarging. So far from 4.2 to 4.9 cm but that was several weeks ago and could be changed by now. He has a 5 inch blood clot because
Has anyone ever been denied IMRT by insurance?! It has now been several weeks since we found out my dad’s tumor pressing on his heart is no longer stable and is slowly enlarging. So far from 4.2 to 4.9 cm but that was several weeks ago and could be changed by now. He has a 5 inch blood clot because
Lisam81
in
Lung Cancer Support
6 years ago
SBRT for low/intermediate risk prostate cancer has excellent 5-year outcomes
I updated this to reflect some extra detail that is now available. The clinical trial covered 309 patients at 21 institutions. The 5 year progression-free survival was: • low risk- 97% • favorable intermediate risk- 100% • unfavorable intermediate risk - 93% These excellent results were achieved without
I updated this to reflect some extra detail that is now available. The clinical trial covered 309 patients at 21 institutions. The 5 year progression-free survival was: • low risk- 97% • favorable intermediate risk- 100% • unfavorable intermediate risk - 93% These excellent results were achieved without
Tall_Allen
in
Advanced Prostate Cancer
6 years ago
Radiation dilemma! IMRT vs Proton
Hi, I have another radiation question if anyone has any opinions or help that would be greatly appreciated! The mapping is complete now for my dad and the tumor next to his heart causing the SVC syndrome. The verdict came back that on paper it shows IMRT would be slightly less radiation to the heart
Hi, I have another radiation question if anyone has any opinions or help that would be greatly appreciated! The mapping is complete now for my dad and the tumor next to his heart causing the SVC syndrome. The verdict came back that on paper it shows IMRT would be slightly less radiation to the heart
Lisam81
in
Lung Cancer Support
6 years ago
IMRT feedback
Curious about this treatment option. Appreciate your comments/experiences about this radiation approach.
Curious about this treatment option. Appreciate your comments/experiences about this radiation approach.
Lesion13
in
Advanced Prostate Cancer
6 years ago
Proton therapy
With the help of several people on here (you all are great!!) I urged my dad to push for proton therapy over the IMRT that was suggested for chest tumor. We did last week and tomorrow he is set to begin mapping for proton therapy to the chest tumor (4.9 cm) by his heart! I anticipated this would move
With the help of several people on here (you all are great!!) I urged my dad to push for proton therapy over the IMRT that was suggested for chest tumor. We did last week and tomorrow he is set to begin mapping for proton therapy to the chest tumor (4.9 cm) by his heart! I anticipated this would move
Lisam81
in
Lung Cancer Support
6 years ago
Metastatic Lymph Node, Recurrent PCa
Recently did the 18F PSMA1 007 PET/CT scan as result of rising PSA after prostatectomy in April 2016. PSA at 0.91 now and doubling every 5 months. Scan showed one small 4 mm avid right internal iliac lymph node that favors metastatic. Consultations with 3 urologists, 3 radiation oncologists all have
Recently did the 18F PSMA1 007 PET/CT scan as result of rising PSA after prostatectomy in April 2016. PSA at 0.91 now and doubling every 5 months. Scan showed one small 4 mm avid right internal iliac lymph node that favors metastatic. Consultations with 3 urologists, 3 radiation oncologists all have
Mooserj
in
Advanced Prostate Cancer
6 years ago
Struggling - any advice?
Hi all, I've had a constantly tight chest (to varying degrees) for six weeks now. I've been off work for most of that time and struggle with basic daily tasks. I'm due to see a specialist on 31 July so am hoping they have some answers but in the meantime I'm really struggling, especially at night, and
Hi all, I've had a constantly tight chest (to varying degrees) for six weeks now. I've been off work for most of that time and struggle with basic daily tasks. I'm due to see a specialist on 31 July so am hoping they have some answers but in the meantime I'm really struggling, especially at night, and
Mogget
in
Asthma Community Forum
6 years ago
Adding radiation to chemo or not?
Hi everyone, I’m hoping someone could offer some insight or even their own thoughts into my dad’s latest dilemma as I think it’s possibly a rare situation. You all have been so helpful in previous posts, thank you so much! I couldn’t do this alongside my dad without this forum. I can’t find much info
Hi everyone, I’m hoping someone could offer some insight or even their own thoughts into my dad’s latest dilemma as I think it’s possibly a rare situation. You all have been so helpful in previous posts, thank you so much! I couldn’t do this alongside my dad without this forum. I can’t find much info
Lisam81
in
Lung Cancer Support
6 years ago
1
...
27
28
29
...
37
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
412 results
Asthma Community Forum
149 results
Prostate Cancer Network
85 results
View top 10 communities
Sort by
Most Relevant
Newest