Search
Search
About
Log in
Join
Experiences with
Atimos Modulite
Posts
Communities
739 public posts
Filter results
Testosterone Replacement Therapy
Testosterone level seems to have plateaued at 250 post 2018-19 IMRT, ADT and brachyboost; was never more than 270 pre-treatment. Criteria for starting/stopping TRT? What are its pros and cons? Responses to it from men here? Many thanks, EdinBaltimore
Testosterone level seems to have plateaued at 250 post 2018-19 IMRT, ADT and brachyboost; was never more than 270 pre-treatment. Criteria for starting/stopping TRT? What are its pros and cons? Responses to it from men here? Many thanks, EdinBaltimore
EdinBmore
in
Prostate Cancer And Gay Men
1 year ago
Testosterone Replacement Therapy
Testosterone level seems to have plateaued at 250 post 2018-19 IMRT, ADT and brachyboost; was never more than 270 pre-treatment. Criteria for starting/stopping TRT? What are its pros and cons? Responses to it from men here? Many thanks, EdinBaltimore
Testosterone level seems to have plateaued at 250 post 2018-19 IMRT, ADT and brachyboost; was never more than 270 pre-treatment. Criteria for starting/stopping TRT? What are its pros and cons? Responses to it from men here? Many thanks, EdinBaltimore
EdinBmore
in
Advanced Prostate Cancer
1 year ago
Can you really end all ADT?
Hello all warriors! My husband is on 23 of 44 IG/IMRT treatments. Radiology Oncologist has suggested he stop all Elligard & Zytiga ehen he finishes his radiation treatments His 2nd opinion radiologist determined that bone Mets at dx were likely” over called “ What’s your opinion? He hates how he
Hello all warriors! My husband is on 23 of 44 IG/IMRT treatments. Radiology Oncologist has suggested he stop all Elligard & Zytiga ehen he finishes his radiation treatments His 2nd opinion radiologist determined that bone Mets at dx were likely” over called “ What’s your opinion? He hates how he
Keeper70
in
Advanced Prostate Cancer
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
How to monitor intraductal PCa that has low PSA production?
My aggressive intraductal PCa (0.88 Decipher) does not express PSA/PSMA very well (see my bio). Dx in June,2022. I've been getting 3 month Eligard injections for the last 7 mos., to continue for possibly 11 more mos. Just completed 28 sessions of IMRT.Since PSA testing may not be very helpful for my
My aggressive intraductal PCa (0.88 Decipher) does not express PSA/PSMA very well (see my bio). Dx in June,2022. I've been getting 3 month Eligard injections for the last 7 mos., to continue for possibly 11 more mos. Just completed 28 sessions of IMRT.Since PSA testing may not be very helpful for my
Danskor
in
Advanced Prostate Cancer
1 year ago
Mr. Spouse 21 is on rewind: Stable again!
The prompt says: "Tell Your Story." Well, it's my husband's story almost identical to 5 months ago, 3 months before that, and multiple months before that, so I'm repeating the posting from 5 months ago below. He's stable again with nearly identical numbers. ALP 38, PSA 0.10. He was a Gleason 9 now in
The prompt says: "Tell Your Story." Well, it's my husband's story almost identical to 5 months ago, 3 months before that, and multiple months before that, so I'm repeating the posting from 5 months ago below. He's stable again with nearly identical numbers. ALP 38, PSA 0.10. He was a Gleason 9 now in
spouse21
in
Advanced Prostate Cancer
1 year ago
ED Results after 20 IMRT Treatments ?????
I am g7 (4-3). 68 psa 8.
I just finished 20 IMRT treatments at UCLA .
Please advise me again the ED side effects with radiation and timelines.
I remember from my research that with radiation you should have the same baseline "good" erections for the first 2 -3 years.
[
I am g7 (4-3). 68 psa 8.
I just finished 20 IMRT treatments at UCLA .
Please advise me again the ED side effects with radiation and timelines.
I remember from my research that with radiation you should have the same baseline "good" erections for the first 2 -3 years.
[
JWS13
in
Prostate Cancer Network
1 year ago
Pattern Tertiary 5 PC
Does anyone have Pattern Tertiary 5 PC? What have been your experiences with it? My 50 year old son was recently diagnosed with 4+3=7 tertiary pattern 5. From what I’ve read it’s more difficult than just 4+3 = 7. I would appreciate any feedback you can give me as he’s only about seven months into
Does anyone have Pattern Tertiary 5 PC? What have been your experiences with it? My 50 year old son was recently diagnosed with 4+3=7 tertiary pattern 5. From what I’ve read it’s more difficult than just 4+3 = 7. I would appreciate any feedback you can give me as he’s only about seven months into
Cactus297
in
Prostate Cancer Under 60
1 year ago
Low blood pressure and pulse -Orgovyx and flomax -AND CIALIS?
I just finished 20 IMRT at UCLA. I am also on Orgovyx for a month.( 3 months to go) I am also taking flomax . I am supposed to start taking Cialis .5 mg per day to keep the muscle strong. I am now starting to have major fatigue from the ADT and Low BP 96/49 , and low pulse 48. (having headaches, and
I just finished 20 IMRT at UCLA. I am also on Orgovyx for a month.( 3 months to go) I am also taking flomax . I am supposed to start taking Cialis .5 mg per day to keep the muscle strong. I am now starting to have major fatigue from the ADT and Low BP 96/49 , and low pulse 48. (having headaches, and
JWS13
in
Prostate Cancer Network
1 year ago
Question on Genetic Testing, how much is too much?
This is wife. He has PC with mets to bones. Orch done July of 21. MO had genetic testing (DNA thru blood) done about 1 1/2 yrs ago, nothing significant according to a genetic counselor. Then a liquid biopsy was done with Foundation One on blood Oct. 22 because of new met to Sacrum. It showed cdk12
This is wife. He has PC with mets to bones. Orch done July of 21. MO had genetic testing (DNA thru blood) done about 1 1/2 yrs ago, nothing significant according to a genetic counselor. Then a liquid biopsy was done with Foundation One on blood Oct. 22 because of new met to Sacrum. It showed cdk12
Pops78
in
Advanced Prostate Cancer
1 year ago
Are there a nomograms or similar tools that would predict recurrence after IMRT/IGRT (without ADT).
In 2015, I underwent 45 sessions of radiation (no ADT) for a small amount of 3+3 and even smaller amout of 3+4, with a pre-radiation PSA of 1.7. My PSA has stabilized at .2 for the past two years. Can't find any post radiation predictive models or tools.
In 2015, I underwent 45 sessions of radiation (no ADT) for a small amount of 3+3 and even smaller amout of 3+4, with a pre-radiation PSA of 1.7. My PSA has stabilized at .2 for the past two years. Can't find any post radiation predictive models or tools.
gary3308
in
Prostate Cancer Network
1 year ago
SBRT or IMRT
trying to make big decision Any insight, thoughts or experiences appreciated. My husband has denovo oliogometastic pc. Diagnosed may 22 Psa 155 Lymph nodes and one hip bone spot Triplet therapy began june 22 - Zytiga, prednisone, firmagon and taxatere for six cycles - responded well - still
trying to make big decision Any insight, thoughts or experiences appreciated. My husband has denovo oliogometastic pc. Diagnosed may 22 Psa 155 Lymph nodes and one hip bone spot Triplet therapy began june 22 - Zytiga, prednisone, firmagon and taxatere for six cycles - responded well - still
Klunacat
in
Advanced Prostate Cancer
1 year ago
New G10 to the group
I was diagnosed in 2017 as a G10, details are in my profile, the diagnosis after scans was there was no mets detected. Did 3 weeks of IMRT, LDR Brachy and 2 years of ADT. PSA was always undetectable after first Lupron shot. In Jan 2020 went off ADT and remained undetectable for ~12 months, by Jan
I was diagnosed in 2017 as a G10, details are in my profile, the diagnosis after scans was there was no mets detected. Did 3 weeks of IMRT, LDR Brachy and 2 years of ADT. PSA was always undetectable after first Lupron shot. In Jan 2020 went off ADT and remained undetectable for ~12 months, by Jan
daysbetween
in
Advanced Prostate Cancer
1 year ago
Newly diagnosed Prostate Cancer
71 years old in Canada. I was just diagnosed Gleason 8 (10 cores out of12 pos. with 5- Grade group 1, 3 -GG4 and 2 -GG3). Mostly on the left side and shallow. CT was normal, no enlarged lymph nodes or any other problems. Bone scan to come in 2 days. My PSA was initially 16 (5 years after my
71 years old in Canada. I was just diagnosed Gleason 8 (10 cores out of12 pos. with 5- Grade group 1, 3 -GG4 and 2 -GG3). Mostly on the left side and shallow. CT was normal, no enlarged lymph nodes or any other problems. Bone scan to come in 2 days. My PSA was initially 16 (5 years after my
Wicker12
in
Advanced Prostate Cancer
1 year ago
Undetectable PSA but new bone uptake
I had my 3 month scans and blood work as part of arasec trial (Lupron + darolutamide). The good news - PSA is <0.01. Previously diagnosed M1b. The bone scan however picked up “new focus of uptake in lateral left 11th rib”. Radiologist labeled it indeterminate, doc believes it to be false positive
I had my 3 month scans and blood work as part of arasec trial (Lupron + darolutamide). The good news - PSA is <0.01. Previously diagnosed M1b. The bone scan however picked up “new focus of uptake in lateral left 11th rib”. Radiologist labeled it indeterminate, doc believes it to be false positive
Heykm01
in
Advanced Prostate Cancer
2 years ago
Comfortable Bladder Solution for IMRT & SBRT Figured Out- Hope it is Useful!
I have had now 11 IMRT treatments at UCLA with Dr. KIshan and they have been terrific EXCEPT for the "comfortable full bladder issue" which was like waterboarding for the first couple of treatments... Here is the formula I developed for the "full bladder " issue and it has worked every time. (no urgency
I have had now 11 IMRT treatments at UCLA with Dr. KIshan and they have been terrific EXCEPT for the "comfortable full bladder issue" which was like waterboarding for the first couple of treatments... Here is the formula I developed for the "full bladder " issue and it has worked every time. (no urgency
JWS13
in
Prostate Cancer Network
2 years ago
IPP Inflatable Penile Implant after PCa Treatment; When to Move on Implant Surgery
Well, as with all things in life, hindsight is 20-20. So it is with my experience with my IPP (inflatable penile prosthesis) after 2 1/2 years of PCa treatment. I was operated on in June, 2020, had IMRT RT Radiation treatment ending May, 2021 and finished a total of 21 months on ADT this past December
Well, as with all things in life, hindsight is 20-20. So it is with my experience with my IPP (inflatable penile prosthesis) after 2 1/2 years of PCa treatment. I was operated on in June, 2020, had IMRT RT Radiation treatment ending May, 2021 and finished a total of 21 months on ADT this past December
RMontana
in
Active Surveillance - Prostate Cancer
2 years ago
Tomotherapy side effects?
Hello, we saw a RO today and based on the 2nd opinion here in AZ, and his interpretation of his PSMA scan; my husband decided to start Radiation via TomoTherapy. Have any of you experienced this; IMRT (targeted ) using CT and targeted to just tumors! Our understanding is that he would have better outcome
Hello, we saw a RO today and based on the 2nd opinion here in AZ, and his interpretation of his PSMA scan; my husband decided to start Radiation via TomoTherapy. Have any of you experienced this; IMRT (targeted ) using CT and targeted to just tumors! Our understanding is that he would have better outcome
Keeper70
in
Advanced Prostate Cancer
2 years ago
Having real tought time with the "Comfortable Bladder Requirement of IMRT (same as SBRT -bladder wise)
I am having a real tough time with the "comfortable bladder" thing with IMRT (same as SBRT w regards the bladder). I have very small bladder and they want it 90% full (they'll take 75-80) . I start drinking 45 minutes before the appointment and some days it's fine but some days it's only 50% and I have
I am having a real tough time with the "comfortable bladder" thing with IMRT (same as SBRT w regards the bladder). I have very small bladder and they want it 90% full (they'll take 75-80) . I start drinking 45 minutes before the appointment and some days it's fine but some days it's only 50% and I have
JWS13
in
Prostate Cancer Network
2 years ago
Will IMRT give some relief to very painful bone mets?
My husband is in excruciating pain from the numerous pca bone mets on the spine, shoulder, chest and is now doing 20 IMRT sessions for palliative pain relief. We have done several chemo combination over the past 5yrs but cancer just kept progressing. This is his first ever radiation since diagnosis
My husband is in excruciating pain from the numerous pca bone mets on the spine, shoulder, chest and is now doing 20 IMRT sessions for palliative pain relief. We have done several chemo combination over the past 5yrs but cancer just kept progressing. This is his first ever radiation since diagnosis
dvcarola2
in
Advanced Prostate Cancer
2 years ago
Comfortable Full Bladder for IMRT 20 Treatments
I am having 20 TX of IMRT at UCLA with Dr. Kishan at UCLA Had 2 tx. M y problem as is most is in guessing the comfortable bladder limit. The first treatment went off fine . Drank 12 oz . one hour before TX and after voiding . The second TX , I had to get off the table an release some urine but still
I am having 20 TX of IMRT at UCLA with Dr. Kishan at UCLA Had 2 tx. M y problem as is most is in guessing the comfortable bladder limit. The first treatment went off fine . Drank 12 oz . one hour before TX and after voiding . The second TX , I had to get off the table an release some urine but still
JWS13
in
Prostate Cancer Network
2 years ago
1
...
8
9
10
...
37
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
417 results
Asthma Community Forum
149 results
Prostate Cancer Network
86 results
View top 10 communities
Sort by
Most Relevant
Newest