Search
Search
About
Log in
Join
Experiences with
Ataxic gait
Posts
Communities
221 public posts
Filter results
chest infection and ataxia
i was recently told i had ataxi though which type will test for in january i keep getting chest infections that dont respond to antibiotics my gp said my lungs temp and bp wers fine im also sweating alot and sometimmes my mouth dosnt want to open anyone else ever been like this
i was recently told i had ataxi though which type will test for in january i keep getting chest infections that dont respond to antibiotics my gp said my lungs temp and bp wers fine im also sweating alot and sometimmes my mouth dosnt want to open anyone else ever been like this
Guyb
in
Ataxia UK
8 years ago
What exercises can help?
Hello all, I have Premature Senile Decay of the Cerebellum, diagnosed about two years ago. I should be very interested to hear what exercises other ataxia sufferers have tried and found to help? I tell people I do it for the sympathy, I reckon laughter can only be a good thing! Regards Ant
Hello all, I have Premature Senile Decay of the Cerebellum, diagnosed about two years ago. I should be very interested to hear what exercises other ataxia sufferers have tried and found to help? I tell people I do it for the sympathy, I reckon laughter can only be a good thing! Regards Ant
Ant1
in
Ataxia UK
8 years ago
Cerebellar atrophy
Hi my husband has been diagnosed with cerebellar atrophy with a possibility of ataxia. The cause is yet unknown but he is being referred for genetic tests at our local hospital. Is it worth asking for a referral to ataxia uk at this stage? The neurologist we have seen is less than helpful and has underplayed
Hi my husband has been diagnosed with cerebellar atrophy with a possibility of ataxia. The cause is yet unknown but he is being referred for genetic tests at our local hospital. Is it worth asking for a referral to ataxia uk at this stage? The neurologist we have seen is less than helpful and has underplayed
Jenkinsaj
in
Ataxia UK
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Ataxia and Chiropractic
I wondered if anyone here has anything good or bad to say about chiropractic. Is it effective particularly for neck pain and general posture whilst seated in a wheelchair?
I wondered if anyone here has anything good or bad to say about chiropractic. Is it effective particularly for neck pain and general posture whilst seated in a wheelchair?
medea
in
Ataxia UK
8 years ago
Dizziness & ataxia
Hi new on here, I have cerebellar ataxia & have for the past 4 years but for the past 2 weeks have been having really bad dizziness, could this be associated with ataxia? I've never had or experienced this before & it's starting to drive me insane!
Hi new on here, I have cerebellar ataxia & have for the past 4 years but for the past 2 weeks have been having really bad dizziness, could this be associated with ataxia? I've never had or experienced this before & it's starting to drive me insane!
Legs-alive
in
Ataxia UK
8 years ago
Still having problems with work
Hi all.... for well over a month now I've been trying to get back to work with reduced hrs and some help with opening the disabled toilet door. Work have rung rings around me, firstly ignoring my GP, Neuro etc . They then demanded a letter from my GP which he has happily done. He was very honest with
Hi all.... for well over a month now I've been trying to get back to work with reduced hrs and some help with opening the disabled toilet door. Work have rung rings around me, firstly ignoring my GP, Neuro etc . They then demanded a letter from my GP which he has happily done. He was very honest with
kjtibby
in
Ataxia UK
8 years ago
Cerebella ataxia
My husband is 33 yrs of age and recently been diagnosed with cerebella ataxia. Within the last 3 months of being diagnosed and also having symptoms over the past 2 years. He's speech has really detiriated within 3 months. We are awaiting he's appointment for the London ataxia clinic which is due next
My husband is 33 yrs of age and recently been diagnosed with cerebella ataxia. Within the last 3 months of being diagnosed and also having symptoms over the past 2 years. He's speech has really detiriated within 3 months. We are awaiting he's appointment for the London ataxia clinic which is due next
Kirsty34
in
Ataxia UK
8 years ago
Information needed from people with Friedreich’s ataxia (and families and carers) – please help
Ataxia UK is again working with Genetic Alliance UK to provide information to the Human Fertilisation and Embryology Authority (HFEA). The HFEA has received an application to licence preimplantation genetic diagnosis (PGD) for Friedreich ataxia. This means that a couple in the UK, with a family history
Ataxia UK is again working with Genetic Alliance UK to provide information to the Human Fertilisation and Embryology Authority (HFEA). The HFEA has received an application to licence preimplantation genetic diagnosis (PGD) for Friedreich ataxia. This means that a couple in the UK, with a family history
Jonathan_Evans
in
Ataxia UK
8 years ago
Regarding ataxia and memory
Does any one her with ataxia suffer from forgetfulness or memory loss? My mum and big sister have both been confirmed to have episodic ataxia type 2 and both of them seem to be getting a bit forgetful. My sister asked the genetic doctor at her recent appointment however he said as far as he was aware
Does any one her with ataxia suffer from forgetfulness or memory loss? My mum and big sister have both been confirmed to have episodic ataxia type 2 and both of them seem to be getting a bit forgetful. My sister asked the genetic doctor at her recent appointment however he said as far as he was aware
Junie1984
in
Ataxia UK
8 years ago
SCA7
Hi I was diagnosed with SCA7 almost 20 years ago. I retired from work 16 years ago. My condition has deteriorated, and I am now in a wheelchair, and blind. My speech is very slurred, and communication can be difficult. My dexterity is very poor, and I have tremors. I go to the gym every weekday for
Hi I was diagnosed with SCA7 almost 20 years ago. I retired from work 16 years ago. My condition has deteriorated, and I am now in a wheelchair, and blind. My speech is very slurred, and communication can be difficult. My dexterity is very poor, and I have tremors. I go to the gym every weekday for
patriciagrant
in
Ataxia UK
8 years ago
Cerebella Ataxia
Hello, this is my first post. My husband has been suffering with Ataxia for about 20 years now. He is also registered blind and has prostrate cancer as well. He is falling over quite a lot now, I am unable to help him up as his muscles in his arms and legs has gone. I am looking for help when he
Hello, this is my first post. My husband has been suffering with Ataxia for about 20 years now. He is also registered blind and has prostrate cancer as well. He is falling over quite a lot now, I am unable to help him up as his muscles in his arms and legs has gone. I am looking for help when he
Kazkaz
in
Ataxia UK
8 years ago
Coughing and ataxia
Someone wrote about coughing - I just can't remember who, so am starting this post. I too get coughs and luckily the coughing bout started when I was with the Speech and Language therapist. She noticed that my swallowing was not proper. She wants me to do Videofluoroscopy. After this she can give me
Someone wrote about coughing - I just can't remember who, so am starting this post. I too get coughs and luckily the coughing bout started when I was with the Speech and Language therapist. She noticed that my swallowing was not proper. She wants me to do Videofluoroscopy. After this she can give me
Amynah
in
Ataxia UK
8 years ago
Step daughter has just been diagnosed with Friedreichs ataxia....
Hi all, Meg is 13 and has been struggling with balance and falling since about 2013. Initially we were told that she may have HSP and after a referral to Oswestry and a lot of blood tests she has just been diagnosed last Friday.... It's kind of a relief to know what we're facing but a big learning curve
Hi all, Meg is 13 and has been struggling with balance and falling since about 2013. Initially we were told that she may have HSP and after a referral to Oswestry and a lot of blood tests she has just been diagnosed last Friday.... It's kind of a relief to know what we're facing but a big learning curve
Hidden
in
Ataxia UK
8 years ago
ataxia and love? how does it work?
I have addressed this issue before. I find that sadly that my husband's way of dealing with my ataxia is to make believe its not happening. For example, now he's away for 1 month. He harrumphs when I say I cant accompany him somewhere. He has developed his own medical condition which is minor (in my
I have addressed this issue before. I find that sadly that my husband's way of dealing with my ataxia is to make believe its not happening. For example, now he's away for 1 month. He harrumphs when I say I cant accompany him somewhere. He has developed his own medical condition which is minor (in my
neta
in
Ataxia UK
8 years ago
Forgetting things
Hi I'm just after some advise please I've had cerebral ataxia since I was 19 am now 34. Just recently my partner had noticed I'm getting more forgetful as in asking the same questions repeatedly n forgetting I've already asked them and forgetting where I've put things. But the other day I was wiping
Hi I'm just after some advise please I've had cerebral ataxia since I was 19 am now 34. Just recently my partner had noticed I'm getting more forgetful as in asking the same questions repeatedly n forgetting I've already asked them and forgetting where I've put things. But the other day I was wiping
Loubie82
in
Ataxia UK
8 years ago
Ataxia and Driving
I was diagnosed with Idiopathic Late Onset Cerebellar Ataxia in March of this year. It is deemed, by the neurologist, to be mild, and my next appointment is at the local Ataxia UK clinic in Newcastle in mid July. On registering with Ataxia UK I was informed that I should inform the DVLA of my diagnosis
I was diagnosed with Idiopathic Late Onset Cerebellar Ataxia in March of this year. It is deemed, by the neurologist, to be mild, and my next appointment is at the local Ataxia UK clinic in Newcastle in mid July. On registering with Ataxia UK I was informed that I should inform the DVLA of my diagnosis
JillJ
in
Ataxia UK
8 years ago
Any advice regarding alarm pendants?
My ataxia is mild according to the Ataxia Clinic in Queens Square in London, but when combined with the degeneration of part of my spine, the pain (sometimes quite severe) aggravates my lack of balance and so I fall, often. On holiday recently visiting my family I tried to walk when I could and only
My ataxia is mild according to the Ataxia Clinic in Queens Square in London, but when combined with the degeneration of part of my spine, the pain (sometimes quite severe) aggravates my lack of balance and so I fall, often. On holiday recently visiting my family I tried to walk when I could and only
Wyndham
in
Ataxia UK
8 years ago
Gabapentin problems
I was prescribed to start taking Gabepentin at the end of January as I had increased pain in my legs to the point I wasn't sleeping even though I was already taking other drugs to help. Anyway, to cut a long story short, the side effects of this drug got so bad that by the beginning of last week I saw
I was prescribed to start taking Gabepentin at the end of January as I had increased pain in my legs to the point I wasn't sleeping even though I was already taking other drugs to help. Anyway, to cut a long story short, the side effects of this drug got so bad that by the beginning of last week I saw
Tiggywinkles
in
Ataxia UK
8 years ago
Alcohol and Ataxia
Hi My name is Stuart i live in Glasgow, and i have recently been diagnosed with Cerebellar Atrophy Ataxia, no body in my family seem to have any of the symptoms or Ataxia. I on here cause I'm really new to this and want to know more especially late onset Ataxia. The problem I'm getting is very bad balance
Hi My name is Stuart i live in Glasgow, and i have recently been diagnosed with Cerebellar Atrophy Ataxia, no body in my family seem to have any of the symptoms or Ataxia. I on here cause I'm really new to this and want to know more especially late onset Ataxia. The problem I'm getting is very bad balance
Stu46
in
Ataxia UK
8 years ago
Non Genetic Cerebellar Ataxia
Hello all, My name is Margaret and I am reaching out to people who have non genetic Cerebellar Ataxia. I would like to know does anyone have the same problems as I do? I am unable to use a walking stick or crutch to help with my balance. I also have face paralysis. About 12 years ago I started to have
Hello all, My name is Margaret and I am reaching out to people who have non genetic Cerebellar Ataxia. I would like to know does anyone have the same problems as I do? I am unable to use a walking stick or crutch to help with my balance. I also have face paralysis. About 12 years ago I started to have
maggsataxia
in
Ataxia UK
8 years ago
1
...
8
9
10
...
12
Next page
10
Filter results
Clear filters
Posted in
All communities
Ataxia UK
219 results
Functional Neurological Disorder - FND Hope
1 result
Pernicious Anaemia Society
1 result
Sort by
Most Relevant
Newest