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My husband, 78 was diagonosed with vasculitis and positive ANKA in December 1917 he had plasma exchange and steriod treatment what now?
My husband, 78 was diagonosed with vasculitis and positive ANKA in December 1917 he had plasma exchange and steriod treatment what now?
My husband, 78 was diagonosed with vasculitis and positive ANKA in December 1917 he had plasma exchange and steriod treatment what now?
doreljoanne
in
Vasculitis UK
6 years ago
What about the AQP4 antibody? Just another twist in this sordid tale to diagnosis...
Welcome friends to the latest episode of "As the Stomach Turns". I've been to see Dr. P, my #1 sleuth and he surprised me with a rare disease and I am firmly planted in zebra territory now! I don't know whether to say, "I told you so" or cry for good measure. (I think I'll keep my stiff upper lip for
Welcome friends to the latest episode of "As the Stomach Turns". I've been to see Dr. P, my #1 sleuth and he surprised me with a rare disease and I am firmly planted in zebra territory now! I don't know whether to say, "I told you so" or cry for good measure. (I think I'll keep my stiff upper lip for
DRunnerchick
in
LUPUS UK
6 years ago
itchy help. PBC diagnose questions- where do we go now
hello all, hoping to get some help as I seem to be running out of treatment options and coming to a dead end with suggestions from my doctors. I was diagnosed with PBC 3 years ago at the age of 25. I presented with extremely itchy skin and low energy and was found to have Stage 2/3 PBC. I was prescribed
hello all, hoping to get some help as I seem to be running out of treatment options and coming to a dead end with suggestions from my doctors. I was diagnosed with PBC 3 years ago at the age of 25. I presented with extremely itchy skin and low energy and was found to have Stage 2/3 PBC. I was prescribed
ead0724
in
PBC Foundation
6 years ago
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Vasculitis
Hi I just got vasculitis in may 2017 initially I thought it was pneumonia but later on i got admitted doctors told I have avelour heomarroge in which u get bleeding headaches joint paints etc I have a got 7 session plasma exchange for ten days n m now on immunosuppressant drugs ,,is this disease dangerous
Hi I just got vasculitis in may 2017 initially I thought it was pneumonia but later on i got admitted doctors told I have avelour heomarroge in which u get bleeding headaches joint paints etc I have a got 7 session plasma exchange for ten days n m now on immunosuppressant drugs ,,is this disease dangerous
Dineshbothra123
in
Vasculitis UK
6 years ago
P-ANCA & ANTI GBM (GOODPASTURE S)
P-ANCA AND ANTI-GBM (GOODPASTURES) I got sick end of March 2017, 2 days after my first XOLAIR shot. Docs thought i had pneumonia for 4 months, 100% right lung-75% left lung, no hospital ir bloodwork, just meds and nebulizer. Another Doc finally did bloodwork, I ended up in ICU for 15 days: eGFR 10,
P-ANCA AND ANTI-GBM (GOODPASTURES) I got sick end of March 2017, 2 days after my first XOLAIR shot. Docs thought i had pneumonia for 4 months, 100% right lung-75% left lung, no hospital ir bloodwork, just meds and nebulizer. Another Doc finally did bloodwork, I ended up in ICU for 15 days: eGFR 10,
macarena1
in
Kidney Disease
6 years ago
ANCA AND GOODPASTURE VASCULITIS
I got sick end of March 2017, 2 days after my first XOLAIR shot. Docs thought i had pneumonia for 4 months, 100% right lung-75% left lung, no hospital ir bloodwork, just meds and nebulizer. Another Doc finally did bloodwork, I ended up in ICU for 15 days: eGFR 10, Creatinine 4.75. Lungs and kidneys
I got sick end of March 2017, 2 days after my first XOLAIR shot. Docs thought i had pneumonia for 4 months, 100% right lung-75% left lung, no hospital ir bloodwork, just meds and nebulizer. Another Doc finally did bloodwork, I ended up in ICU for 15 days: eGFR 10, Creatinine 4.75. Lungs and kidneys
macarena1
in
Thyroid UK
6 years ago
Has anyone got good pastures ?
Hi ive been diagonised with vasculitis with positive anti gbm last july. I have veen on pred starting on 60mg and now down to 5mg, had 10 plasma exchanges and then 9 rounds of chemo. My kidney function dropped to 9% and has regained to 40% but the last three wks it hasnt moved. Im just wondering if anyone
Hi ive been diagonised with vasculitis with positive anti gbm last july. I have veen on pred starting on 60mg and now down to 5mg, had 10 plasma exchanges and then 9 rounds of chemo. My kidney function dropped to 9% and has regained to 40% but the last three wks it hasnt moved. Im just wondering if anyone
jolittle93
in
Vasculitis UK
6 years ago
Need help with results please
I am new to the Health unlocked for Thyroid information, so hello. I have been on 125mcg Levothyroxine happily for 10 years. Last year became ill with another autoimmune disease called granulomatosis with polyangiitis (GPA) which affected my kidneys (kidneys dropped to 6% functioning and now back
I am new to the Health unlocked for Thyroid information, so hello. I have been on 125mcg Levothyroxine happily for 10 years. Last year became ill with another autoimmune disease called granulomatosis with polyangiitis (GPA) which affected my kidneys (kidneys dropped to 6% functioning and now back
Hidden
in
Thyroid UK
6 years ago
Vasculitis – GPA
On March 18, 2017, at 50 years of age, I was diagnosed with vasculitis – GPA. I am a white female. I was hospitalized until April 15, 2017. During my stay I had numerous blood tests, CAT scans, Ultrasounds, Endoscopy, Port put in my neck and then chest for dialysis, blood clots, 2 intestinal blockages
On March 18, 2017, at 50 years of age, I was diagnosed with vasculitis – GPA. I am a white female. I was hospitalized until April 15, 2017. During my stay I had numerous blood tests, CAT scans, Ultrasounds, Endoscopy, Port put in my neck and then chest for dialysis, blood clots, 2 intestinal blockages
cpierce1016
in
Vasculitis UK
6 years ago
Professor Graham Hughes' Blog January 2018
Professor Graham Hughes' Blog January 2018
BLOG : January 2018 January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave
Professor Graham Hughes' Blog January 2018
BLOG : January 2018 January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Professor Graham Hughes' Blog January 2018
[u]BLOG : January 2018[/u]
January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave a lecture to colleagues in Cambridge.
[u]BLOG : January 2018[/u]
January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave a lecture to colleagues in Cambridge.
MaryF
Administrator
in
Hughes Syndrome APS Forum
6 years ago
Lost in the world of Vasculitis
I’m a newbie on here and to be honest to the whole world of Vasculitis. My dad has diagnosed with Vasculitis back in October when he was admitted to hospital with kidney failure, we embarked on the most horrendous journey of our lives, dad was given dialysis and then started on plasma exchange. He seemed
I’m a newbie on here and to be honest to the whole world of Vasculitis. My dad has diagnosed with Vasculitis back in October when he was admitted to hospital with kidney failure, we embarked on the most horrendous journey of our lives, dad was given dialysis and then started on plasma exchange. He seemed
Louloulou40
in
Vasculitis UK
7 years ago
Would plasmapheresis be an option?
KellyInTexas there is an article “ plasmapheresis for the Antiphospholipid patient.” Google this I nformation. Maybe clear out the Antiphospholipids reeking havoc to get things under control and start over? With maybe new less effective Antiphospholipids if this is even possible since yours seem so aggressive
KellyInTexas there is an article “ plasmapheresis for the Antiphospholipid patient.” Google this I nformation. Maybe clear out the Antiphospholipids reeking havoc to get things under control and start over? With maybe new less effective Antiphospholipids if this is even possible since yours seem so aggressive
Wittycjt
in
Hughes Syndrome APS Forum
7 years ago
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults:
Executive Summary
Caroline Gordon Maame-Boatemaa Amissah-Arthur Mary Gayed Sue Brown Ian N. Bruce David D’Cruz Benjamin Empson Bridget Griffiths David Jayne Munther Khamashta
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults:
Executive Summary
Caroline Gordon Maame-Boatemaa Amissah-Arthur Mary Gayed Sue Brown Ian N. Bruce David D’Cruz Benjamin Empson Bridget Griffiths David Jayne Munther Khamashta
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
AOSD - Read what it did to my wife
Hi, where do I start. My wife for a long time has had recurrent Lung Infections, Pneumonia, Pleurisy etc. In 2013 she was unable to work for 6 months due to Pleurisy and that is where this story begins. Investigations began as to how a young woman (39 at the time) kept getting chest infections. My
Hi, where do I start. My wife for a long time has had recurrent Lung Infections, Pneumonia, Pleurisy etc. In 2013 she was unable to work for 6 months due to Pleurisy and that is where this story begins. Investigations began as to how a young woman (39 at the time) kept getting chest infections. My
AOSD
in
NRAS
7 years ago
Even with Lupus, the world is still your oyster.
Hello all you beautiful people I'm new here and would like to share a little story. I'm a male with SLE, and lots of other conditions. So many that when I walk into a room to see a new consultant, we usually end up laughing about the fact my conditions take up a single page of a letter. Although I can
Hello all you beautiful people I'm new here and would like to share a little story. I'm a male with SLE, and lots of other conditions. So many that when I walk into a room to see a new consultant, we usually end up laughing about the fact my conditions take up a single page of a letter. Although I can
HODL
in
LUPUS UK
7 years ago
Iatrogenic thyrotoxicosis and the role of therapeutic plasma exchange
It is interesting that plasma exchange can be a sensible treatment for thyrotoxicosis. It is good to know the treatment was successful. The reason for choosing to post the abstract, though, is the sentence that is emphasised by bold and underlining. Just what was the pharmacy doing? Quite how high
It is interesting that plasma exchange can be a sensible treatment for thyrotoxicosis. It is good to know the treatment was successful. The reason for choosing to post the abstract, though, is the sentence that is emphasised by bold and underlining. Just what was the pharmacy doing? Quite how high
helvella
Thyroid UK
in
Thyroid UK
7 years ago
Advice on prevention of pneumonia having recently lost our father (wegeners)
Hi all. We lost our father in October and I'm basically looking for some information and knowledge. We feel with better care he would still be here. He had gone to see his consultant for results of blood test and a test which they check your lungs(not sure what its called)These results were given over
Hi all. We lost our father in October and I'm basically looking for some information and knowledge. We feel with better care he would still be here. He had gone to see his consultant for results of blood test and a test which they check your lungs(not sure what its called)These results were given over
Chelle24-09
in
Vasculitis UK
8 years ago
New member
Hi my name is KEITH and I am 66 years old and was diagnosed with Vasculitis Wenegers 12 months ago.Spent 2 weeks in St James Leeds having plasma exchange and then 5 months of cyclphos.Then on azothiprine and steroids but recently kidney function dropped dramaticaly so I start rituximab tomorrow with
Hi my name is KEITH and I am 66 years old and was diagnosed with Vasculitis Wenegers 12 months ago.Spent 2 weeks in St James Leeds having plasma exchange and then 5 months of cyclphos.Then on azothiprine and steroids but recently kidney function dropped dramaticaly so I start rituximab tomorrow with
Keithtim10
in
Vasculitis UK
8 years ago
Plasma therapy for neuropathy
Hi, has anyone tried plasmapheresis for peripheral neuropathy induced by lack of B12? Any success on it? Thanks!
Hi, has anyone tried plasmapheresis for peripheral neuropathy induced by lack of B12? Any success on it? Thanks!
Caro44
in
Pernicious Anaemia Society
8 years ago
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