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Old Guy Update
I was diagnosed in November 2020 with stage 4 Ductal adenocarcinoma of the prostate. I had EBRT and 24 months of ADT which was terminated in October of 2022. My PSA at that time was undetectable and my Testosterone was also undetectable. It’s now July 2024, and my PSA is 0.2 and my Testosterone is 10
I was diagnosed in November 2020 with stage 4 Ductal adenocarcinoma of the prostate. I had EBRT and 24 months of ADT which was terminated in October of 2022. My PSA at that time was undetectable and my Testosterone was also undetectable. It’s now July 2024, and my PSA is 0.2 and my Testosterone is 10
TottenhamMan
in
Advanced Prostate Cancer
2 months ago
Unexpected rise in PSA
Hi guys (and girls) My Husbands psa has been climbing steadily over the past year, got up to 47in Jan , hes six years in with MPC from the start . psa 310, five mets.Had Doxytaxel straight away, now on Abi/Pred/or the last 3 years, plus lupron from the beginning. I have been pushing our OC for spot
Hi guys (and girls) My Husbands psa has been climbing steadily over the past year, got up to 47in Jan , hes six years in with MPC from the start . psa 310, five mets.Had Doxytaxel straight away, now on Abi/Pred/or the last 3 years, plus lupron from the beginning. I have been pushing our OC for spot
16starsky
in
Advanced Prostate Cancer
2 months ago
PSA at 0.285
I had my RP last January but the cancers had sneaked out to my lymph node already (no other met) so my PSA was always detectable. I started hormonal therapy last April and my PSA went down right away. It had been that way till this week ( PSA was up and down, the lowest was 0.02, usually was 0.05.).
I had my RP last January but the cancers had sneaked out to my lymph node already (no other met) so my PSA was always detectable. I started hormonal therapy last April and my PSA went down right away. It had been that way till this week ( PSA was up and down, the lowest was 0.02, usually was 0.05.).
Formosan
in
Advanced Prostate Cancer
2 months ago
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Looking for Hope
My dad had his second Pluvicto treatment yesterday. His PSA is still rising. The doctor at University of Chicago is not happy with his bloodwork. He may try something else. Before Pluvicto he had Docetaxel and his PSA rose right after he stopped chemo. He also had target radiation that did nothing either
My dad had his second Pluvicto treatment yesterday. His PSA is still rising. The doctor at University of Chicago is not happy with his bloodwork. He may try something else. Before Pluvicto he had Docetaxel and his PSA rose right after he stopped chemo. He also had target radiation that did nothing either
Jshaw916
in
Advanced Prostate Cancer
2 months ago
Triple therapy?
My husband was diagnosed in Feb. 2018 with oligo metastatic - 2 spots on spine and local lymph node involvement. Had radiation to the lymph nodes and was on Lupron and Casodex for 5 years. Went off treatment a year and three months ago. Cancer returned to one lung only - no Mets to bone or lymph
My husband was diagnosed in Feb. 2018 with oligo metastatic - 2 spots on spine and local lymph node involvement. Had radiation to the lymph nodes and was on Lupron and Casodex for 5 years. Went off treatment a year and three months ago. Cancer returned to one lung only - no Mets to bone or lymph
Ljrwife
in
Advanced Prostate Cancer
2 months ago
Liver cancer
finally got to talk to a very knowledgeable liver specialist having been trying to get some answers for months. He understood why I wanted to know and given some idea how long I can expect too live. He went into a lot of detail fully explaining all the scenarios, which is exactly what my wife and I wanted
finally got to talk to a very knowledgeable liver specialist having been trying to get some answers for months. He understood why I wanted to know and given some idea how long I can expect too live. He went into a lot of detail fully explaining all the scenarios, which is exactly what my wife and I wanted
oap74
in
British Liver Trust
2 months ago
Hormone Therapy
.Hi..So my husband was diagnosed with Prostate Cancer via a routine check during a GPs appointment...It was 2020,and we went into lockdown for Covid not long after..He elected to have a Prostatectomy, but unfortunately his PSA never went to zero...Levels remained low, and he had a PET scan, which
.Hi..So my husband was diagnosed with Prostate Cancer via a routine check during a GPs appointment...It was 2020,and we went into lockdown for Covid not long after..He elected to have a Prostatectomy, but unfortunately his PSA never went to zero...Levels remained low, and he had a PET scan, which
debbiejayn
in
Advanced Prostate Cancer
2 months ago
The continuing saga of Scout and Coco, Not all change is welcome.
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
Scout4answers
in
Advanced Prostate Cancer
2 months ago
Xtandi did not work.
Hi all, I'm new to this board but would love some feedback. My father, 80, has been dealing with prostate cancer for a few years. He had initially had radiation plus Lupron injections. His PSA started rising again a few years ago and he wound up on Lupron regularly. His PSA has been slowly rising
Hi all, I'm new to this board but would love some feedback. My father, 80, has been dealing with prostate cancer for a few years. He had initially had radiation plus Lupron injections. His PSA started rising again a few years ago and he wound up on Lupron regularly. His PSA has been slowly rising
Estivez71
in
Advanced Prostate Cancer
2 months ago
Dad’s blood reports. PSA and testosterone down but ALP up
Did some blood tests for day today The last blood tests were done on 2nd May - PSA 18 Alk Phos 180 which led to the prostate cancer diagnosis. Was diagnosed with bone mets to a few bones. Initially the plan was to do lupron and he was started on bicalutamide which he took for 3 weeks uptil 7th
Did some blood tests for day today The last blood tests were done on 2nd May - PSA 18 Alk Phos 180 which led to the prostate cancer diagnosis. Was diagnosed with bone mets to a few bones. Initially the plan was to do lupron and he was started on bicalutamide which he took for 3 weeks uptil 7th
Tinkudi
in
Advanced Prostate Cancer
2 months ago
Gleason 9 prostate cancer
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
69HumptyDumpty
in
Prostate Cancer Network
2 months ago
Advanced Prostate Cancer to bone and liver
My Dad was diagnosed with Prostate Cancer back in 2011. Here is his history (sorry if this is too much information). PROBLEM LIST Prostate cancer, status post prostatectomy, Gleason 4 + 5 = 9, March 2011. Pathology: ypT3b pN1 cM0, stage IV with positive obturator node. Adjuvant Lupron for 2 years
My Dad was diagnosed with Prostate Cancer back in 2011. Here is his history (sorry if this is too much information). PROBLEM LIST Prostate cancer, status post prostatectomy, Gleason 4 + 5 = 9, March 2011. Pathology: ypT3b pN1 cM0, stage IV with positive obturator node. Adjuvant Lupron for 2 years
swelnetz
in
Advanced Prostate Cancer
2 months ago
UC San Fran
So we are tossing around the idea of moving to Nevada from California due to high cost of living. I contacted UCSF and told them we can be in California for Zoom calls and of course treatment. But could Jim get his Lupron and bloodwork out of state. We were told you have to be a permanent California
So we are tossing around the idea of moving to Nevada from California due to high cost of living. I contacted UCSF and told them we can be in California for Zoom calls and of course treatment. But could Jim get his Lupron and bloodwork out of state. We were told you have to be a permanent California
JWPMP
in
Advanced Prostate Cancer
2 months ago
Trust in Healthcare - View Sessions Now!
Links now open Opening remarks by Dr. Elster and Darryl Mitteldorf, LCSW https://youtu.be/zFRCXKByqH0 https://youtu.be/atjTsMIkV2Q Dr. Callen Baker discusses the importance of creating inclusive healthcare environments for LGBTQ+ patients. https://youtu.be/6k0JNFofwUs Tom shares his personal journey
Links now open Opening remarks by Dr. Elster and Darryl Mitteldorf, LCSW https://youtu.be/zFRCXKByqH0 https://youtu.be/atjTsMIkV2Q Dr. Callen Baker discusses the importance of creating inclusive healthcare environments for LGBTQ+ patients. https://youtu.be/6k0JNFofwUs Tom shares his personal journey
Darryl
Partner
in
Prostate Cancer Network
2 months ago
PSA still undetectable and testosterone doubles to 1.6
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Brysonal
in
Fight Prostate Cancer
2 months ago
Docetaxel
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
JolleySprings
in
Advanced Prostate Cancer
2 months ago
Rising PSA
I turned 87 just 3 days' ago. My QOL is still good: no pain, and a lot of physical activity. Fatigue is mostly annoying, but I generally can work through it. The issue is my concern with a slowly rising PSA. Today's blood test showed a PSA of 1.5. How concerned should I be, and are there steps to
I turned 87 just 3 days' ago. My QOL is still good: no pain, and a lot of physical activity. Fatigue is mostly annoying, but I generally can work through it. The issue is my concern with a slowly rising PSA. Today's blood test showed a PSA of 1.5. How concerned should I be, and are there steps to
Poollover
in
Advanced Prostate Cancer
2 months ago
Trust in Healthcare session links for Wednesday June 26
Links now open Opening remarks by Dr. Elster and Darryl Mitteldorf, LCSW https://youtu.be/zFRCXKByqH0 https://youtu.be/atjTsMIkV2Q Dr. Callen Baker discusses the importance of creating inclusive healthcare environments for LGBTQ+ patients. https://youtu.be/6k0JNFofwUs Tom shares his personal journey
Links now open Opening remarks by Dr. Elster and Darryl Mitteldorf, LCSW https://youtu.be/zFRCXKByqH0 https://youtu.be/atjTsMIkV2Q Dr. Callen Baker discusses the importance of creating inclusive healthcare environments for LGBTQ+ patients. https://youtu.be/6k0JNFofwUs Tom shares his personal journey
Darryl
Partner
in
Advanced Prostate Cancer
2 months ago
Is PSMA PET Scan worth it when PSA<0.2
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
Maxi54
in
Advanced Prostate Cancer
2 months ago
Bisoporol instead of Tildiem
Hoping for some advice. My wife has HCM and has had an ablation a few years ago. Her Afib seemed to calm down but recently it has increased dramatically. The ablation was carried out in London and appointments were not too difficult to obtain. We now live in Gloucestershire and it seems that getting
Hoping for some advice. My wife has HCM and has had an ablation a few years ago. Her Afib seemed to calm down but recently it has increased dramatically. The ablation was carried out in London and appointments were not too difficult to obtain. We now live in Gloucestershire and it seems that getting
sharpedge
in
Atrial Fibrillation Support
2 months ago
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