second opinion made me feel worse!

[Dislancas69]

I went to see a nurse for my annual review to be told I had high blood pressure ..

I replied yes it was at my Drs appointment last week and abnormal pulse…

his reply ,no that’s not wrote on your notes

well that’s why I was I was sent for my ecg ..I’m thinking he may have then believed me

This was giving me worrying upsetting vibes thinking what else hasn’t been put on my notes ..

Moving forward I than decided to (first time in my life) have a second opinion

This was a nightmare as he was just talking about my previous Dr and when I’m goin to see him next I brought up I was struggling to move and fatigue too many other concerned about possible P.E as close family members have been diagnosed and that a few bloods results being abnormal or higher than expected …especially my intrinsic factor antibodies stating abnormal on patient access but that they had put satisfactory normal on NHS…totally confusing he went on to actually start arguing with me turning the screen to me …I never had glasses on and to be truthful was getting upset thinking he is actually arguing as if I’m lying I fumbled through my phone obviously mad with my self as I wasn’t going to find it with no glasses and being upset …felt like a huge waste of time …humiliating upsetting…he did go on to say I could go to a chemist and buy b12 tablets they maybe worth a try ….I felt awful and started staring at the ceiling like I can’t explain ..but it didn’t feel like the person i am …i had no answers

There was more to the tale of that day but that’s enough for now I’m trying to forget it

I’m going to set myself up next time I will bring screen shot and bring forward on my phone …lesson learned and this has pushed me to book private pernious anemia blood test (also my first time) it’s my only way forward ..even if this doesn’t come back with the results I need for b12 injections it’s a real positive as I need to step out of my comfort zone

[Nackapan]

Good Record keeping is failing. Too many places to record things.

Too many templates to tick with certain size boxes for text/comments.

The I.T systems seemingly not working the times I have to repeat everything verbally.

Good record keeping should be crystal clear the screen to anyone you see .

I'm going to point thus out to the G.p who wanted my b12 reviewed and wants to make a proper appropriate treatment plan.

I thought I had that for the last 6 years.

Just opposed time and time by nurses then taken to G.p .

All the nurses do is question prescriptions.

Is thus their role ??

With PDF in place they should at least discuss with the patient if they have 'concerns'

Sounds like you have been caused alot of upset and confusion.

Not your fault.

Showing you a screen in anger is not only unprofessional but aggressive. And intimidating.

You should be treated with care as often the doctors seem to make no allowances you are there as unwell !!

You have a right to see what's on your notes.

Even that I've found is selective though .

I went through 6 G.ps to get one to listen and treat me and my symptoms with respect and action to find out what's going on.

Others dismissed me and my symptoms as a woman of a certain age as hormonal or stress ect ect .

Yes the the above extra to illnesses we get .

I'd rather they say .

I don't know shall we take bloods and try and get yo see what's happening to you.

After 7 years of not needing a g.p i was hardly a 'time waster' or hyperchondriac

I've often quoted when told I'm depressed.

That I shoukd be dealing with the current system and awful symptoms.

Actually it shows mental / emotional strength that I'm not .

Wd are all pre disposed to different ailments when our bodies workings are under stress.

Put those consults behind you .....move on ......Next.

Put in writing your questions unanswered to the practice Manager.

Might make you feel more empowered.

Make another appointment.

Take someone with you .

Have your list of questions

I went for an IM b12 still awaiting my practice decision.

On text sent about phone appt. Booked with G.p i queried if they would give it as prescription removed from my notes .

G.p did reply say book as usual .

So when the nurse was scanning the 'screen' and saying she couldn't give it

Had I a B12 ampoule ?

I offered to show her the text on the NHS app saying to do it !!!

After alot of fluster I managed yo stay calm.

I wasnt leaving without having it .

It was painful .

Fist may have been clenched!

Which may release the day I'm told I might need 'anger management '

No . We all need to be listened to.

Also believed.

I was told it would be blatantly outlined what I have presently on the 'home page ' 8 months ago .

Take care

[Myoldcat]

So sorry to hear your awful experience. I agree with Nackapan about taking someone with you, it does moderate bad behaviour. It's shocking to be treated so rudely, especially when you're feeling unwell and vulnerable. Hopefully you can see a different nurse next time.

[FlipperTD]

Dear oh dear. Just remember that [some] nurses know EVERYTHING, and the patient can't possibly know ANYTHING, even if you've just been through the process. I've been told stuff by surgery staff [listed as 'Clinicians' meaning they work in a clinic. Not my definition of a clinician] and when I've questioned their interpretation, they become defensive and say 'you'll have to take that up with the doctor'. Knowing full well that the chance of that happening, given the state of appointments, is close to zero.

Finding that an original result is classed as 'abnormal' and then someone intervenes and classes it as 'satisfactory'? Good heavens... However, working in the NHS in the past I've seen similar things happen.

Is it any wonder when we visit the surgery, our blood pressure rises?!

[Oneash]

Big hugs. It's so bloody awful how uncaring some medics can be. Especially when you are slow at responding!! Duh symptom! I used to be in tears by the end of every appointment and it's interesting that I'm not, now I'm getting myself enough B12.

Short story about wandering notes. I had an ectopic pregnancy, nearly died, I have the scar across my tummy, yet because of a screw up in A&E my maiden name got put on my notes. So these notes of course went awol, despite my NHS number being the same. I then became a medical fantasist!! You see they are perfect and never admit to doing anything wrong.

More big hugs. All I can say is take control, get an injection at a beauticians, or some dentists do them. When you know you aren't going to react, get your own supplies and change your life. Cut out the idiots and the drama. 🩵

[Hockey_player]

The problem with a PA test is that it has a high false negative rate. If it is positive you know you have PA. If it is negative, you still could have PA. If you already have abnormal intrinsic factor anti-bodies, you probably have PA. Don't take any B12 before being tested. You should get your B12 measured as well. If your B12 is low, it is worthwhile to try every other day B12 injections even if your PA test is negative. If they make you feel more energetic, it would be wise to assume you have PA and keep getting injections for life.

[PlatypusProfit8077]

I’m so sorry this happened to you. It’s upsetting to not have support from professionals who are literal gatekeepers to medicine, diagnoses and other professionals. I often wonder if it will become like the legal world, where we need a representative to interpret and advocate for us.

“Don’t say anything, Mrs T, this doctor just wants you to admit you’re anxious. We’re not accepting that diagnosis, Doctor, until you’ve run xyz tests.”

If it didn’t cost a bomb, it would actually be amazing.

[Sleepybunny]

Hi,

I left info for those having difficult health experiences with B12 deficiency in these threads eg sources of support, organisations that help with complaints etc

healthunlocked.com/pasoc/po...

healthunlocked.com/pasoc/po....

Some of the info is applicable to other conditions besides PA and B12 deficiency.

I'm not a health professional.

[Dislancas69]

you may not be health professional but the time your are putting in is appreciated so much and is so caring …thank you

[wedgewood in reply to Dislancas69]

It’s SleepyBunnies we need , How much good have so-called “ Health Professionals “ ever done for B12D/Pernicious Anaemia patients ! 3 cheers for SleepyBunny .