Experiences with

Angioedema

I have been through two 6 month treatments with FCR, the first because the CLL had reached the treatment stage and the second mainly to try and control the acquired angioedema attacks. I am currently on 280mg of Imbruvica daily and Orladeyo for the AAE. I am 68 years old. Thanks

Increased frequency of angioedema attacks, been having one this weekend. Difficulty sleeping. Medics not helping, anyone else having post cove issues. Had COVID on Feb last year. Regards Paul

My GP thinks it might be Angioedema which amongst other things is caused by an allergic reaction including to various blood pressure tablets.

Has anyone experienced angioedema on meds and found a drug to replace them safely, Also has anyone had weight gain on losartan?

It’s not for my asthma but is for cholinergic urticaria (hives/angioedema). If so I would like to know of your experience as I am scared to take it due to the side effects which sound awful!! Also worried as it’s an immunosuppressant and I might be vulnerable because I am severely asthmatic.

Unable to sleep for a few weeks and had to stop zopiclone because I developed angioedema, swollen ankles and feet, problems with diminished urine and gut problems. Had been slow tapering for four weeks and was immediately advised to return to7.5 mgs pred.

In addition, I’m now getting bouts of angioedema (swollen eyes, lips and tongue) and hives (mainly hands and feet) which are treated within a day with antihistamine, but will return again. So we have now swapped out the Ticagrelor for clopidogrel to see if there is an improvement.

*waves* this may be a long story, but I'll try to keep it as short as possible! Diagnosed with Autoimmune hepatitis in 2006 aged 15. Plodded along on azathioprine and prednisolone, with a few periods of non compliance and ups and downs with flare ups. Generally though in good health. Around April 20

For the past 3 days I have been suffering from severe hives and angioedema that I believe may be related to covid-19 since I also was coughing and had a fever. I didn't get tested because I just was too sick to leave the house.

I have been told to have bronchoscopy but since My reaction to ramipril causing Angioedema of airways my throat is very sensitive causing me to cough.

Angioedema/muscle joint pain and swelling has resulted in spikes from my lowest dose of 9.5 to 75mg. Early March I was on 17.5 and I gradually dropped to 12mg.

Two months after the eyeliner I had a surprise outbreak of angioedema on my face, flaming red, very sore & huge fluid bags under my eyes, and urticaria (hives) on my neck that itched like blazes.

Ive been reading a lot recently about selenium and using it for thyroid function. Has anyone had any issues while taking it? I purchased some and took one for the first time tonight but have since come out in hives. Has anyone had this or similar problems?

I’ve had two episodes of angioedema during the month, and ceased Xarelto last Saturday on advice of GP. Cardiologist appointment today, will keep you posted!

My GP was sure it was angioedema/urticaria, never mentioned lupus at all. The photo here is how I look today (no, I don't like it either but what can you expect at nearly 69!)

I also have angioedema.

I also have Angioedema. I reckon they are connected. For me Sweet Syndrome seems to be an auto immune problem. I would like to ask, is it unusual to have on face and hands only. Was it a one off, or will it return? If anyone can answer, I'd be grateful, Regards, John.

Hello, new here :') After suffering with hives and angioedema since November 2018 and seeing a couple GPs and a dermatologist and having multiple blood tests and taking what feels like so many tablets a day (to no avail sometimes) I finally feel like I'm onto something.

hi im 40 year old male with under active thyroid recently i went to my GP concerned about a rash or hives that seemed to be spreading everywhere all over my body my arm pits/groin/chest/back backside are worst hit it looks like i took a brillo pad to them and im getting a painful pin and needles head

Been diagnosed with angioedema because of horrible swelling around my face , started having skin rashes like hives and sitting in the sun makes my skin go mad.