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help!!! Kind of in limbo with a diagnosis!
I sent him all of my test results and told him all of my symptoms and he concluded that I definitely have pernicious
anaemia
and I need injections every other day along with folic acid daily and consuming potassium rich foods.
I sent him all of my test results and told him all of my symptoms and he concluded that I definitely have pernicious
anaemia
and I need injections every other day along with folic acid daily and consuming potassium rich foods.
Amyflood246
in
Pernicious Anaemia Society
2 years ago
Confusing iron panel results
Hi, guys, I'd like to ask for help interpreting my iron panel results. First of all, let me say that this is the first time ever that I have had these tests done, so I don't have anything to compare with. This is what the results look like: Hemoglobin: 155 g/l (reference range: 120 - 160 g/l) Serum
Hi, guys, I'd like to ask for help interpreting my iron panel results. First of all, let me say that this is the first time ever that I have had these tests done, so I don't have anything to compare with. This is what the results look like: Hemoglobin: 155 g/l (reference range: 120 - 160 g/l) Serum
Galadriel_BG
in
Thyroid UK
1 year ago
Buprenorphine and stomach pain
Over the past 2 mths I have developed severe stomach and bowel pain. I suspect I may be suffering from opioid induced bowel dysfunction?? Other more serious causes have been ruled out. Also have poor appetite. It has taken me 25years to find something that relieves my RLS, am terrified now regarding
Over the past 2 mths I have developed severe stomach and bowel pain. I suspect I may be suffering from opioid induced bowel dysfunction?? Other more serious causes have been ruled out. Also have poor appetite. It has taken me 25years to find something that relieves my RLS, am terrified now regarding
Nanpat
in
Restless Legs Syndrome
1 year ago
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Covid/MCAS experiences?
I’m very pale, weak and losing hair with neurological symptoms/ mental confusion and severe mood swings - I have pernicious
anaemia
and usually injections were keeping neuro symptoms at bay but im also now reacting very strongly to those.
I’m very pale, weak and losing hair with neurological symptoms/ mental confusion and severe mood swings - I have pernicious
anaemia
and usually injections were keeping neuro symptoms at bay but im also now reacting very strongly to those.
Littledancingtiger
in
Thyroid UK
2 months ago
Covid crash, dropping vitamin levels, MCAS?
I’m very pale, weak and losing hair with neurological symptoms/ mental confusion and severe mood swings - I have pernicious
anaemia
and usually injections were keeping neuro symptoms at bay but im also now reacting very strongly to those.
I’m very pale, weak and losing hair with neurological symptoms/ mental confusion and severe mood swings - I have pernicious
anaemia
and usually injections were keeping neuro symptoms at bay but im also now reacting very strongly to those.
Littledancingtiger
in
Pernicious Anaemia Society
2 months ago
Hello, looking for advice please
Hello everyone. I’m not sure if I’m in the right place?! But here goes. Bloods taken (BlueHorizon) in May. Results Iron 10.3 (5.8-34.5) Ferritin 93.6 (13-150) Transferrin Sat 17.6 (20-50) TIBC 58.2 (45-81) CRP hs 13.58 (0-5) Medichecks in Jan Iron 14.4 (5.8-34.5) TIBC 57.6 (45-81) UIBC 43.2 (24.2-70.1
Hello everyone. I’m not sure if I’m in the right place?! But here goes. Bloods taken (BlueHorizon) in May. Results Iron 10.3 (5.8-34.5) Ferritin 93.6 (13-150) Transferrin Sat 17.6 (20-50) TIBC 58.2 (45-81) CRP hs 13.58 (0-5) Medichecks in Jan Iron 14.4 (5.8-34.5) TIBC 57.6 (45-81) UIBC 43.2 (24.2-70.1
Auders
in
Pernicious Anaemia Society
1 year ago
Why don’t I notice an increase in energy? Have had three b12 injections.
Have very low b12 and iron. Had three injections of b12 and still don’t feel any better? Schedule is for 5 more shots then recheck levels. Taking iron supplements for 5 weeks now also. Thanks
Have very low b12 and iron. Had three injections of b12 and still don’t feel any better? Schedule is for 5 more shots then recheck levels. Taking iron supplements for 5 weeks now also. Thanks
84withb12d
in
Pernicious Anaemia Society
1 year ago
hematocrit 23 - blood transfusion
My husband’s mylofrobisis has progressed to high risk . He was just put on jakafi at 10mg twice a day for about a month now He feels much better after changing from droxia to Jakafi and his appetite is good and not as anemic.. however we just came in from seeing his MPN doctor and his hemoglobin
My husband’s mylofrobisis has progressed to high risk . He was just put on jakafi at 10mg twice a day for about a month now He feels much better after changing from droxia to Jakafi and his appetite is good and not as anemic.. however we just came in from seeing his MPN doctor and his hemoglobin
Bainbridge
in
MPN Voice
1 year ago
MMA result
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hi allJust got medichecks result which shows high lMMA level: 34.8ug/l (less than 32) Previous medichecks active B12 was 48.1 pmol/l (37.5-150) (they advised MMA test) Intrinsic factor antibodies negative (mum had PA) Does high MMA result indicate a functional b12 deficiency as opposed to dietary deficiency
Hollybushroad
in
Pernicious Anaemia Society
1 year ago
how long after beginning injections did you feel better?
I was diagnosed with pernicious anemia three weeks ago after feeling fatigued and experiencing digestive problems for around a year. I’ve since started weekly injections. I am just wondering how long it took for you, once you started getting injections, to stop having GI symptoms? I’m really looking
I was diagnosed with pernicious anemia three weeks ago after feeling fatigued and experiencing digestive problems for around a year. I’ve since started weekly injections. I am just wondering how long it took for you, once you started getting injections, to stop having GI symptoms? I’m really looking
Merlotponty
in
Pernicious Anaemia Society
1 year ago
cholesterol supplements and testing
Hi all Does anyone know if you should stop taking cholesterol supplements prior to a cholesterol test? Sorry it’s not a thyroid question but not sure who else to ask Thank you
Hi all Does anyone know if you should stop taking cholesterol supplements prior to a cholesterol test? Sorry it’s not a thyroid question but not sure who else to ask Thank you
Lindsayf
in
Thyroid UK
1 year ago
interesting find
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
Thrones12
in
Pernicious Anaemia Society
1 year ago
Pernicious Anaemia is the worst
Hi Newbie here. Was diagnosed with PA this Sept gone after years of weird symptoms . Have congenital heart disease too and after having complex heart surgery two years ago my health got critical. I have reduced kidney function too. Yikes. Anyone else got similar health issues. Am being treated for PA
Hi Newbie here. Was diagnosed with PA this Sept gone after years of weird symptoms . Have congenital heart disease too and after having complex heart surgery two years ago my health got critical. I have reduced kidney function too. Yikes. Anyone else got similar health issues. Am being treated for PA
Sea-blue
in
Pernicious Anaemia Society
2 years ago
Advice on latest ferritin, VitD, vitB12 please
Latest results, TDL 5.7.23 (in image)
• Vitamin B12 256 nmol/L (25.1 - 165) 165.0% HIGH • Vitamin D 96 nmol/L (50 - 200) 30.7% • Ferritin 241 ug/L (13 - 150) 166.4% HIGH
NHS iron panel 3.7.23
• Ferritin 133.2 ug/L (10 - 291) 43.8% • Serum Iron 16.6 umol/L (9 - 30.4) 35.5%
Medichecks
Latest results, TDL 5.7.23 (in image)
• Vitamin B12 256 nmol/L (25.1 - 165) 165.0% HIGH • Vitamin D 96 nmol/L (50 - 200) 30.7% • Ferritin 241 ug/L (13 - 150) 166.4% HIGH
NHS iron panel 3.7.23
• Ferritin 133.2 ug/L (10 - 291) 43.8% • Serum Iron 16.6 umol/L (9 - 30.4) 35.5%
Medichecks
Insomania
in
Thyroid UK
1 year ago
b12 and Anxiety
Why does b12 injections make my anxiety worse for a few days?I have anemia. Have had 3 injections and have 5 more to go.
Why does b12 injections make my anxiety worse for a few days?I have anemia. Have had 3 injections and have 5 more to go.
84withb12d
in
Pernicious Anaemia Society
1 year ago
Being gas-lit: NOT Hypothyroidism, it’s Silent Reflux says Consultant Thyroid/ENT – Advice requested.
I asked the GP if I could be tested for pernicious
anaemia
antibodies, and was blocked at every turn with the now mundane “your iron has been stable for years” and “you’ve not got hypothyroidism”.
I asked the GP if I could be tested for pernicious
anaemia
antibodies, and was blocked at every turn with the now mundane “your iron has been stable for years” and “you’ve not got hypothyroidism”.
TorcHouse
in
Thyroid UK
3 months ago
Help with iron results - follow up from 3 arrows nutra
Hi everyone, I did an iron panel and I’m quite amazed with my ferritin level. I have been lax with my iron supps since going to T3 only and thought I would definitely have ranked my previously low results. To my disbelief, my ferritin is the highest I’ve ever seen it! I was previously taking the 3 arrows
Hi everyone, I did an iron panel and I’m quite amazed with my ferritin level. I have been lax with my iron supps since going to T3 only and thought I would definitely have ranked my previously low results. To my disbelief, my ferritin is the highest I’ve ever seen it! I was previously taking the 3 arrows
Beau55
in
Thyroid UK
1 year ago
Weird blood results- more results
Do I still need test for Pernicious
anaemia
?
Do I still need test for Pernicious
anaemia
?
Stefcon1
in
Thyroid UK
2 years ago
Iron Level for RLS
It is proven that we sufferers r[i]equire over 100 when it comes to Iron . I have had RLS for 21'years and have a vast knowledge base. Now I am on 250 mg Pregabalin combined with 7.5 mg Targin.[/i][i]Symptoms are all over the place and waking me up during the night. [/i] [i]My recent Iron blood test
It is proven that we sufferers r[i]equire over 100 when it comes to Iron . I have had RLS for 21'years and have a vast knowledge base. Now I am on 250 mg Pregabalin combined with 7.5 mg Targin.[/i][i]Symptoms are all over the place and waking me up during the night. [/i] [i]My recent Iron blood test
Katyparis
in
Restless Legs Syndrome
1 year ago
My body did not get the memo.
I accept that a test had been done measuring the amount of Hydroxocobalamin and Cynocabalamin that can be measured in the urine at different times after the injection and that the numbers are likely repeatable. I do not know if any testing was done on a subject that was B12 deficient. I find it unlikely
I accept that a test had been done measuring the amount of Hydroxocobalamin and Cynocabalamin that can be measured in the urine at different times after the injection and that the numbers are likely repeatable. I do not know if any testing was done on a subject that was B12 deficient. I find it unlikely
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
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