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Dr Amir Khan post about Pernicious Anaemia
It might be of interest that Dr Amir Khan has done one of his (usually excellent) "Let's talk about....." posts about Pernicious
Anaemia
on his Instagram account.
It might be of interest that Dr Amir Khan has done one of his (usually excellent) "Let's talk about....." posts about Pernicious
Anaemia
on his Instagram account.
eclilley
in
Pernicious Anaemia Society
11 months ago
Blood tests
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Doris11
in
Thyroid UK
11 months ago
Blood test tomorrow
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Morning all! I’m getting some blood tests tomorrow.. intrinsic factor IF (low B12 & folate) FBC and celiac? Questioning forPA? I have got my own B12 ampoules! Do I start my B12 complex at the same time as I start injecting? My folate is awful 3.8ug/L (<2.9) I have been taking my B12 complex sporadically
Doris11
in
Pernicious Anaemia Society
11 months ago
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Low iron, supplementing with 3 Arrows
Hi everyone, I posted about a week ago after having iron studies done through the NHS, it came back that I wasn’t iron deficient enough to be treated by a doctor, but my levels were definitely low enough to start treatment since I’m already experiencing symptoms and don’t want to get worse….. Latest
Hi everyone, I posted about a week ago after having iron studies done through the NHS, it came back that I wasn’t iron deficient enough to be treated by a doctor, but my levels were definitely low enough to start treatment since I’m already experiencing symptoms and don’t want to get worse….. Latest
MarvelDC
in
Thyroid UK
6 months ago
positive then negative intrinsic factor
hi guys, I had a positive intrinsic factor blood test back in April and this was before any b-12 injections. Since then, the doctors have wanted to do two other intrinsic factor blood tests and both came back negative and the doctors are confused why is this? Thanks, Ella (:
hi guys, I had a positive intrinsic factor blood test back in April and this was before any b-12 injections. Since then, the doctors have wanted to do two other intrinsic factor blood tests and both came back negative and the doctors are confused why is this? Thanks, Ella (:
Ellamae2
in
Pernicious Anaemia Society
11 months ago
Help with Symptoms
I’m thinking it’s down to my
anaemia
as well but not sure. I am already taking indigestion tablets everyday but seems to not work. I always feel lightheaded, tired all the time, gets incontinent with urine. When I was younger I tend to get red spots on my skin.
I’m thinking it’s down to my
anaemia
as well but not sure. I am already taking indigestion tablets everyday but seems to not work. I always feel lightheaded, tired all the time, gets incontinent with urine. When I was younger I tend to get red spots on my skin.
Belle_17
in
Scleroderma & Raynaud's UK (SRUK)
9 months ago
How quickly would B12 Levels drop post injection?
No evidence of
anaemia
on blood results. No IF antibody but positive for Gastric Parietal Cell antibodies. All of the symptoms improved by a month or so post loading doses. In November Dr re tested B12 level. It was 720ng/L Dr was reluctant to prescribe the 3 monthly maintenance injections.
No evidence of
anaemia
on blood results. No IF antibody but positive for Gastric Parietal Cell antibodies. All of the symptoms improved by a month or so post loading doses. In November Dr re tested B12 level. It was 720ng/L Dr was reluctant to prescribe the 3 monthly maintenance injections.
Sparkleros
in
Pernicious Anaemia Society
8 months ago
B12 deficiency or Carpal Tunnel Syndrome?
I have been diagnosed with mild
anaemia
and mild gastritis. My B12 level was 264 ng/L in May, but has risen recently to 500 as I have been taking 1000 ug of Methylcoblamin by tablets for a month.
I have been diagnosed with mild
anaemia
and mild gastritis. My B12 level was 264 ng/L in May, but has risen recently to 500 as I have been taking 1000 ug of Methylcoblamin by tablets for a month.
Dance_queen
in
Pernicious Anaemia Society
25 days ago
blood test results
can I please have your help in interpreting my blood test results below: Serum iron levels 17.8 umol/L range 11-36 Total iron binding capacity 51.8 range 53-85 serum ferritin 127 range 40-250 B12 630 range 160-925 Serum folate 11.6 range 2.90-50 Vitamin D 107 range 51-250 Thyroid serum TSH level
can I please have your help in interpreting my blood test results below: Serum iron levels 17.8 umol/L range 11-36 Total iron binding capacity 51.8 range 53-85 serum ferritin 127 range 40-250 B12 630 range 160-925 Serum folate 11.6 range 2.90-50 Vitamin D 107 range 51-250 Thyroid serum TSH level
Munp
in
Thyroid UK
11 months ago
Why do I have a high pulse?
I was diagnosed with pernicious
anaemia
after asking to be tested. It turned out my Vitamin B12 level was 117 pmol/l. I was given cyancobalamine injections every 3 months. No loading doses. Later SI weekly with methylcobalamine I order from Germany.
I was diagnosed with pernicious
anaemia
after asking to be tested. It turned out my Vitamin B12 level was 117 pmol/l. I was given cyancobalamine injections every 3 months. No loading doses. Later SI weekly with methylcobalamine I order from Germany.
Bluemuffin
in
Pernicious Anaemia Society
1 year ago
Blood Test Results
Would someone please be able to tell me what these blood test results mean please? I did add them on to a previous thread but I don't think they were showing up. I was told by my GP back in July that my TSH levels were low . I admitted that I did sometimes forget to take Levo so she wanted me to go
Would someone please be able to tell me what these blood test results mean please? I did add them on to a previous thread but I don't think they were showing up. I was told by my GP back in July that my TSH levels were low . I admitted that I did sometimes forget to take Levo so she wanted me to go
Crazy_Diamond
in
Thyroid UK
11 months ago
Finally
Morning I actually got to see my GP last night! Thankfully she listened ( borderline B12 and very low folate) this is after speaking to two other Gps in the surgery who didn’t believe me ☹️ Anyway she suggest Pernicious Anemia! Woohoo! So have some blood tests to follow ❤️
Morning I actually got to see my GP last night! Thankfully she listened ( borderline B12 and very low folate) this is after speaking to two other Gps in the surgery who didn’t believe me ☹️ Anyway she suggest Pernicious Anemia! Woohoo! So have some blood tests to follow ❤️
Doris11
in
Thyroid UK
11 months ago
GIFFGAFF community support
The Pernicious
Anaemia
Society has been kindly nominated by two of our members in the GiffGaff Community Support Charity Nominations for 2023. If you use GiffGaff you are entitled to vote for one of the nominated charities.
The Pernicious
Anaemia
Society has been kindly nominated by two of our members in the GiffGaff Community Support Charity Nominations for 2023. If you use GiffGaff you are entitled to vote for one of the nominated charities.
PAScomms
in
Pernicious Anaemia Society
11 months ago
body giving up on me after Covid… the saga continues!
I’ve had pernicious
anaemia
for many, many years but never experienced anything like this. My B12 definitely isn’t working properly and neither is my stomach! First came the tanking ferritin, now my folate is deficient and my thyroid levels are bouncing around.
I’ve had pernicious
anaemia
for many, many years but never experienced anything like this. My B12 definitely isn’t working properly and neither is my stomach! First came the tanking ferritin, now my folate is deficient and my thyroid levels are bouncing around.
Littledancingtiger
in
Pernicious Anaemia Society
2 months ago
Fatigue
Good Day Everyone My question is, should I be feeling fatigued with lymphocytes around 43 and haemoglobin at 12.1 g/dl or could the fatigue be caused by some other blood deficiency such as iron or vitamin B12. Thanks very much Ken
Good Day Everyone My question is, should I be feeling fatigued with lymphocytes around 43 and haemoglobin at 12.1 g/dl or could the fatigue be caused by some other blood deficiency such as iron or vitamin B12. Thanks very much Ken
Buttons42
in
CLL Support
11 months ago
Iron and ferritin advice requested
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
MrVimes
in
Restless Legs Syndrome
6 months ago
Ferritin
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
Hidden
in
Thyroid UK
6 months ago
Time for you all to take another bow.
I have been working with someone for three years who is suffering and may be suffering from B12 deficiency. I do not give advice and certainly not medical advice. I have been sharing my experiences and information that I have. That is hard as the person is smart enough but does not have great reading
I have been working with someone for three years who is suffering and may be suffering from B12 deficiency. I do not give advice and certainly not medical advice. I have been sharing my experiences and information that I have. That is hard as the person is smart enough but does not have great reading
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Ongoing anemia
Hello, I am thinking if my wife has ongoing anemia due to a bleed the Drs can't or won't find. Why wait for four months to give her red blood cells when she last had RBC transfusion 4 months ago it brought her Hgb up to 115, then three months ago had iron infusion. Which didn't really increase her Hgb
Hello, I am thinking if my wife has ongoing anemia due to a bleed the Drs can't or won't find. Why wait for four months to give her red blood cells when she last had RBC transfusion 4 months ago it brought her Hgb up to 115, then three months ago had iron infusion. Which didn't really increase her Hgb
jointpain
in
MPN Voice
11 months ago
stomach acid
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
lifegems
in
Pernicious Anaemia Society
9 months ago
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