Experiences with

Amiloride

The sour and salty taste receptors work in a similar way, both being channel receptors sensitive to amiloride.

Take ARBs, epleronone, bisoprolol, furosemide, amlodipine, amiloride. BP fantastically well controlled now for past 16 years. It was under medicated for years by my GP who said it was only white coat hypertension (which it wasnt).

I'm on a low dose of amiloride and I haven't suffered with ascites since starting the water tablets. I also haven't suffered with hepatic encephalopathy or any confusion for that matter.

My nephrologist wants me to take 5mg of this potassium-sparing prescription. I have googled but would like your input. Anything ??? Thanks :)

I’m already on two other meds and this took the place of Amiloride. I’ve been taking it, but my feet have been swollen every since. So he prescribed furosemide one and a half tablet every day. I’m taking it and my feet haven’t gone down yet.

I have been given 40mg furosemide and 5mg Amiloride the furosemide to be increased to 80mg if needed. Although this has improved the outcome I am still quite breathless. do I accept this or pursue things further? I have to return to my EP on 22nd of March or cancel if I am happy.

Anyway fast forward a little bit he put me on amiloride and metoprolol succinate (excuse my spelling). Now let’s fast forward a bit more they worked okay at first brought my blood pressure down to 150/90, 140/95. However, a few months after it creeped back up again!

Different nephrologist saw me and after examining me, reviewing my medical records and discussing family health history diagnosed me with Liddles Syndrome and put me on amiloride. So far, so good. I see my nephrologist again in early September.

Hi, Anyone out there on this. I started taking it but it made me wee so much I stopped - I don't really know whether i need it or not as not sure I need a diuretic but thought I would ask here as it is going to take me a month to get back to see my GP for a routine appointment.

I have no previous experience of taking Amiloride but nevertheless am thinking of asking my liver specialist who I am due to see again in about two weeks time if it can be prescibed for me instead of Spironolactone.

I cannot get any in the UK now ( manufacturers) Life or death for me Nothing else suitable. Please if any one knows where I can safely buy it abroad would you send me PM.? Many thanks, Jackie

I picked up the above from a MS Booklet and wonder if anyone had heard of the drug amiloride and phenytoin and if it has been looked at for ALD/AMN treatment?