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Experiences with
Amyotrophic lateral sclerosis (ALS)
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Heart rate over 100. Should I lower or up my Levo??
Hi I was wondering if someone had any advice on whether or not I should lower or up my Levo dose? I had upped from 100mg to 112.5 mg beginning of June, but my heart-rate just keeps going over 100bpm when I’m not doing anything. I’m still tired and feel as if I just can’t be bothered. I’ve been sitting
Hi I was wondering if someone had any advice on whether or not I should lower or up my Levo dose? I had upped from 100mg to 112.5 mg beginning of June, but my heart-rate just keeps going over 100bpm when I’m not doing anything. I’m still tired and feel as if I just can’t be bothered. I’ve been sitting
HappyBadger
in
Thyroid UK
2 years ago
TSH high end, B12 deficiency, perimenopausal starting HRT soon.. what's what with all the bloods please?
Hi, to give the full picture I posted this on the b12 site but looking for your thoughts on the thyroid part of it please ... Prior to having covid in Dec 2020, I was physically fit and healthy. Started Sertraline in Nov 2017 for severe pmt. Gave birth in Oct 2018, was induced with hormones and given
Hi, to give the full picture I posted this on the b12 site but looking for your thoughts on the thyroid part of it please ... Prior to having covid in Dec 2020, I was physically fit and healthy. Started Sertraline in Nov 2017 for severe pmt. Gave birth in Oct 2018, was induced with hormones and given
B12-118
in
Thyroid UK
2 years ago
Advice on latest lab please?
Just wondering if you could give advice on my last bloods? I feel ok, not swelling, but can not loose weight at all. I stop feel always cold, but my heart rate increase to 85/min I used NDT 3 years, was great, but the factory was closed, and I can not buy anymore lacto free NDT (without prescription)
Just wondering if you could give advice on my last bloods? I feel ok, not swelling, but can not loose weight at all. I stop feel always cold, but my heart rate increase to 85/min I used NDT 3 years, was great, but the factory was closed, and I can not buy anymore lacto free NDT (without prescription)
BC99
in
Thyroid UK
2 years ago
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GABA astrocytes and glutamate : researching your understand how these contribute to PD.
Higher levels of glutamate are said to contribute to PD,
ALS
, and ALZ. Here I intend on collecting data and notes in an effort to understand the many years of scientific research on the relationship of glutamate, GABA and PD.
Higher levels of glutamate are said to contribute to PD,
ALS
, and ALZ. Here I intend on collecting data and notes in an effort to understand the many years of scientific research on the relationship of glutamate, GABA and PD.
Hidden
in
Cure Parkinson's
2 years ago
A phase 3 clinical trial found ultra-high dose methylcobalamin slowed functional decline in patients with early-stage ALS
A phase 3 clinical trial found ultra-high dose methylcobalamin slowed functional decline in patients with early-stage amyotrophic lateral sclerosis. https://ja.ma/3L1hd6C
Question
Does twice-weekly intramuscular injection of 50-mg ultrahigh-dose methylcobalamin slow clinical progression in
A phase 3 clinical trial found ultra-high dose methylcobalamin slowed functional decline in patients with early-stage amyotrophic lateral sclerosis. https://ja.ma/3L1hd6C
Question
Does twice-weekly intramuscular injection of 50-mg ultrahigh-dose methylcobalamin slow clinical progression in
Hidden
in
Cure Parkinson's
2 years ago
Factors Associated with Falls During Hospitalization for Coronavirus Disease 2019 (COVID-19)
Having today written on another post, lamenting the ignoring of thyroid issues, I find this paper which shows commendable inquisitiveness and interesting observations. Although the population investigated was small, I find the difference in TSH between the fallers and the non-fallers very interesting
Having today written on another post, lamenting the ignoring of thyroid issues, I find this paper which shows commendable inquisitiveness and interesting observations. Although the population investigated was small, I find the difference in TSH between the fallers and the non-fallers very interesting
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Some Questions
Hello all. My husband (GL 9, PSA 77, 3-4 bone mets-diagnosed 8/19 - Casodex, Eligard, Zytiga/prednisone, plus radiation) had a CT and bone scan yesterday. Nothing of consequence on the CT. Bone scan showed “Focus of minimally increased uptake in T7 decreased conspicuity. No other significant interval
Hello all. My husband (GL 9, PSA 77, 3-4 bone mets-diagnosed 8/19 - Casodex, Eligard, Zytiga/prednisone, plus radiation) had a CT and bone scan yesterday. Nothing of consequence on the CT. Bone scan showed “Focus of minimally increased uptake in T7 decreased conspicuity. No other significant interval
Dett
in
Advanced Prostate Cancer
2 years ago
Trials coming from Zhittya
Topic #1) Intranasal Delivery of FGF-1 for the Treatment of Parkinson’s Disease and
ALS
(Motor Neuron Disease or Lou Gehrig’s disease) Dr.
Topic #1) Intranasal Delivery of FGF-1 for the Treatment of Parkinson’s Disease and
ALS
(Motor Neuron Disease or Lou Gehrig’s disease) Dr.
EnterTheDragon
in
Cure Parkinson's
2 years ago
Still more questions than answers.
I will be getting my second dose of Lu 177. So far sooooo...... painful although fentanyl is my friend, pain has been managed as of late, My labs are good except one my Alk phos is 1598, I was told by a oncologist this is just a number and dont lose sleep over it, given the treatment I am involved in
I will be getting my second dose of Lu 177. So far sooooo...... painful although fentanyl is my friend, pain has been managed as of late, My labs are good except one my Alk phos is 1598, I was told by a oncologist this is just a number and dont lose sleep over it, given the treatment I am involved in
Costarica1961
in
Advanced Prostate Cancer
2 years ago
Who knows about ferritin/ iron tests? Confused here! Do I need to do something? Help please!
I get confused with ferritin and iron results, as I can't remember how they work together. Ferritin is low, but haemoglobin is ok? My GP marked everything 'normal'. I'd be grateful for some explanation and advice on what to do please! I have felt more tired. In fact absolutely exhausted a couple of
I get confused with ferritin and iron results, as I can't remember how they work together. Ferritin is low, but haemoglobin is ok? My GP marked everything 'normal'. I'd be grateful for some explanation and advice on what to do please! I have felt more tired. In fact absolutely exhausted a couple of
TaraJR
in
Thyroid UK
2 years ago
Green Tea Polyphenols Attenuated Glutamate Excitotoxicity via Antioxidative and Antiapoptotic Pathways
These disorders include Alzheimer’s disease (AD), Parkinson’s disease (PD), Huntington’s disease (HD), and amyotrophic lateral sclerosis (
ALS
) which are caused by a combination of genetic and environmental factors.
These disorders include Alzheimer’s disease (AD), Parkinson’s disease (PD), Huntington’s disease (HD), and amyotrophic lateral sclerosis (
ALS
) which are caused by a combination of genetic and environmental factors.
SilentEchoes
in
Cure Parkinson's
2 years ago
Not all The lu 177 side effects noted, that I have experienced were in the Broschüre.
I had my first dose on feb 23rd and the first few days after treatment with no real issues, until, about day 4. I experienced nausea , vomiting, and lower back pain as well as rib and thigh pains accompanied by neck and cranium discomfort. My stomach is cramping some of these side effects are normal
I had my first dose on feb 23rd and the first few days after treatment with no real issues, until, about day 4. I experienced nausea , vomiting, and lower back pain as well as rib and thigh pains accompanied by neck and cranium discomfort. My stomach is cramping some of these side effects are normal
Costarica1961
in
Advanced Prostate Cancer
2 years ago
Update and first time referral to a neph...
Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Bananas2007
in
Kidney Disease
2 years ago
7 months since last post
Hi, It's been 7 months since I made my last community post on
ALS
. I was diagnosed with
ALS
IN Jan. 2021. I also survived a bout of Covid in April 2021 only because my Doctor was able to get me treated with the monoclonal infusion.
Hi, It's been 7 months since I made my last community post on
ALS
. I was diagnosed with
ALS
IN Jan. 2021. I also survived a bout of Covid in April 2021 only because my Doctor was able to get me treated with the monoclonal infusion.
SOBALSO
in
Neuro Support
2 years ago
What now, coach? (PCa has spread to liver within 3 months of starting Eligard.)
Hello all, I have a dilemma, and I would definitely appreciate any ideas that you might have. The dilemma is, will it be safe for me to start my initial Docetaxel treatments on Monday, 2-28-22, considering the new information I now have showing my PCa has rather dramatically spread to my liver. Below
Hello all, I have a dilemma, and I would definitely appreciate any ideas that you might have. The dilemma is, will it be safe for me to start my initial Docetaxel treatments on Monday, 2-28-22, considering the new information I now have showing my PCa has rather dramatically spread to my liver. Below
Skipper238
in
Advanced Prostate Cancer
2 years ago
Health Anxiety and Somatic Symptom Disorder
Eventually that fear turned into a fear of having kidney failure, then came a fear of internal bleeding, followed by a fear of the C word and now I have a fear of having
ALS
.
Eventually that fear turned into a fear of having kidney failure, then came a fear of internal bleeding, followed by a fear of the C word and now I have a fear of having
ALS
.
Alwxysscared
in
Anxiety and Depression Support
2 years ago
CD19 CAR-T cell therapy for B-ALL achieved remarkable efficacy with a complete remission of 70–90%
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
Scout4answers
in
Advanced Prostate Cancer
2 years ago
L-Serine, safe & shows promise in reducing PD, ALS, ALZ. PD trial. Will be culminating research below.
Paul Cox, renegade thinker, finds link between neurodegeneration and an algae toxin that can be mitigated or at least reduced with L-Serine. https://fortune.com/longform/alzheimers-disease-cure-breakthrough/amp/
Paul Cox, renegade thinker, finds link between neurodegeneration and an algae toxin that can be mitigated or at least reduced with L-Serine. https://fortune.com/longform/alzheimers-disease-cure-breakthrough/amp/
Hidden
in
Cure Parkinson's
2 years ago
Liver enzyme question.
I know there are lots of posts about the alt/ast ratio. I have spent more time than I care to admit reading about that damn ratio! I just wondered if anyone had any experience or educated opinions on an inverted ratio alongside low alk phos levels? I recently had bloodwork done and my AST was 21, ALT
I know there are lots of posts about the alt/ast ratio. I have spent more time than I care to admit reading about that damn ratio! I just wondered if anyone had any experience or educated opinions on an inverted ratio alongside low alk phos levels? I recently had bloodwork done and my AST was 21, ALT
Badger12345
in
British Liver Trust
2 years ago
Metabolic Panel ?
Hello Friends , Im on 6 mo.Eligard . Feb. 1st I started Zytiga , 250mg with 5mg of prednisone taken on a light breakfast . Also started on Feb. 1st are 25 days of IMRT. 1 month earlier I had 1 hot lymph Node radiated with SBRT . So now how often should Albumin , Alk Phos , AST , ALT, PSA , or any other
Hello Friends , Im on 6 mo.Eligard . Feb. 1st I started Zytiga , 250mg with 5mg of prednisone taken on a light breakfast . Also started on Feb. 1st are 25 days of IMRT. 1 month earlier I had 1 hot lymph Node radiated with SBRT . So now how often should Albumin , Alk Phos , AST , ALT, PSA , or any other
reconjj
in
Advanced Prostate Cancer
2 years ago
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