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Request for advice looking for possible new diagnosis
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia and Lupus communities.I don't want to write too long a post so will try and keep the background brief. Basically
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia and Lupus communities.I don't want to write too long a post so will try and keep the background brief. Basically
Wispymisty
in
NRAS
5 months ago
Request for advice looking for possible new diagnosis
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia/Rheumatoid Arthritis communities.I don't want to write too long a post so will try and keep the background brief
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia/Rheumatoid Arthritis communities.I don't want to write too long a post so will try and keep the background brief
Wispymisty
in
LUPUS UK
5 months ago
weight loss wehovy and AF medication
Started to post and it’s got very long and I mentioned this in that post but I thought I’d make a separate post. I am in atrial fibrillation in the other post. I talk about my age of my weight but this is a specific thing I’m back in atrial fibrillation after 12 weeks of being in normal rhythm. After
Started to post and it’s got very long and I mentioned this in that post but I thought I’d make a separate post. I am in atrial fibrillation in the other post. I talk about my age of my weight but this is a specific thing I’m back in atrial fibrillation after 12 weeks of being in normal rhythm. After
Mightnot
in
Atrial Fibrillation Support
5 months ago
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GCA - kidney problem
Hi All warriors. Diagnosed with GCA July, 2023. Put on 60 mg now tapered down to l7mg (Dec. 2023). All symptoms under control at this time. My last blood work showed my Creatinine at 104 and GFR at 45. This showed a mild to moderate decrease in kidney function. As a result I had a kidney/bladder
Hi All warriors. Diagnosed with GCA July, 2023. Put on 60 mg now tapered down to l7mg (Dec. 2023). All symptoms under control at this time. My last blood work showed my Creatinine at 104 and GFR at 45. This showed a mild to moderate decrease in kidney function. As a result I had a kidney/bladder
Groda
in
PMRGCAuk
8 months ago
Some good news
I was told on the fifth of December that my ultrasound scan had picked up three small suspicious lesions, and that what they saw was suggestive of cirrhosis, portal vein hypertension and varices. I immediately quit alcohol, eating cannabis and otc sleeping remedies. I radically changed my diet and began
I was told on the fifth of December that my ultrasound scan had picked up three small suspicious lesions, and that what they saw was suggestive of cirrhosis, portal vein hypertension and varices. I immediately quit alcohol, eating cannabis and otc sleeping remedies. I radically changed my diet and began
Ruthless247
in
British Liver Trust
8 months ago
Prolactin high
Been seeing an Endocrinologist privately as after 45 week wait still no appointment on the nhs. After a couple of blood test was tested for prolactin and it came up high Serum prolactin level 1117 mIU/L. Does anyone else make have this issue is it connected to thyroxine? Now back with GP as can’t afford
Been seeing an Endocrinologist privately as after 45 week wait still no appointment on the nhs. After a couple of blood test was tested for prolactin and it came up high Serum prolactin level 1117 mIU/L. Does anyone else make have this issue is it connected to thyroxine? Now back with GP as can’t afford
Jimmy69
in
Thyroid UK
8 months ago
Updated diagnosis of autoimmune thyroid disorder
Just an update. Unsurprisingly with elevated thyroid antibodies I have been diagnosed with an autoimmune thyroid disorder. As I currently have some hyper symptoms as well as hypo ones, the private GO who’s diagnosed me very sensibly, imo, wants to test again to ensure she gets the diagnosis and treatment
Just an update. Unsurprisingly with elevated thyroid antibodies I have been diagnosed with an autoimmune thyroid disorder. As I currently have some hyper symptoms as well as hypo ones, the private GO who’s diagnosed me very sensibly, imo, wants to test again to ensure she gets the diagnosis and treatment
Fizzwhizz
in
Thyroid UK
5 months ago
Gut analysis
I recently provided a sample for analysis and received the results last week. I had a follow up appointment with Gemma my Funtional Health Practitioner (in training) yesterday. I wanted to share some of the info I have learned here. I have Helicobacter Pylori, unsurprising as around 50% of the population
I recently provided a sample for analysis and received the results last week. I had a follow up appointment with Gemma my Funtional Health Practitioner (in training) yesterday. I wanted to share some of the info I have learned here. I have Helicobacter Pylori, unsurprising as around 50% of the population
IdasMum
in
PMRGCAuk
5 months ago
⁹Newbie: can anybody help with local support to me? Surrey/Sussex/South London
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Gm131987
in
LUPUS UK
5 months ago
Lopressor
After unsuccessful Cardioversion to convert back into NSR was diagnosed with permanent afib taken off of Multaq. Lopressor increased from 25 to 100 am and 50 pm. Also on Eliquis. Vision is blurred and very unsteady gait. Hr around 100-115 (was 60 when in NSR) Can I cut back on Lopressor and see
After unsuccessful Cardioversion to convert back into NSR was diagnosed with permanent afib taken off of Multaq. Lopressor increased from 25 to 100 am and 50 pm. Also on Eliquis. Vision is blurred and very unsteady gait. Hr around 100-115 (was 60 when in NSR) Can I cut back on Lopressor and see
farewelltoarms
in
Atrial Fibrillation Support
5 months ago
Thyroid blood test results
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
SusieR68
in
Thyroid UK
5 months ago
Dr. Jones' Knowledge
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Post Ablation complications
Had persistent fast AFib since Nov 23, decided to go private route as my health was deteriorating. Echocardiogram Jan 24 showers severe mitral regurgitation, and ejection fraction 28%. Lots more drugs added to the cocktail and now under the care of both a cardiologist and an Electrophysiologist. Drugs
Had persistent fast AFib since Nov 23, decided to go private route as my health was deteriorating. Echocardiogram Jan 24 showers severe mitral regurgitation, and ejection fraction 28%. Lots more drugs added to the cocktail and now under the care of both a cardiologist and an Electrophysiologist. Drugs
AmandaLouise77
in
Atrial Fibrillation Support
5 months ago
What is my status
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
Please could someone clarify this for me as had an overactive thyroid which was knocked out with RAI. I am Thyroxine which, thank goodness, has stabilised me so that I am Euthyridic (sp) however there are the occasional flareups of eye problems associated with Throid Eye Disease. What I am really confused
JennyWrenn4
in
Thyroid UK
7 months ago
IBD symptoms with no diagnosis
I was just diagnosed with IBS 6 months ago, before my 40th birthday. It started with persistent constipation, bloating and cramping that led to a colonoscopy. Since my mother has Crohn's, I expected the same diagnoses, but instead I got an all clear from the GI doctors. The months that followed put my
I was just diagnosed with IBS 6 months ago, before my 40th birthday. It started with persistent constipation, bloating and cramping that led to a colonoscopy. Since my mother has Crohn's, I expected the same diagnoses, but instead I got an all clear from the GI doctors. The months that followed put my
JQLA
in
IBS Network
8 months ago
Darolutamide failing after 2 years. Any success if I switch to Xandi or Zytiga or do I need to move to Pluvicto.
Dx 2018. PSA 16. Been on Orgovyx. Started Second line (Darolutamide) two years ago when PSA started to rise. PSA rose over the [u]last 5 months[/u] from 0.021 (August) to 0.48 I had a few bone mets and several lymph nodes when dx. Trying to find other treatments since I'm running out of Standard
Dx 2018. PSA 16. Been on Orgovyx. Started Second line (Darolutamide) two years ago when PSA started to rise. PSA rose over the [u]last 5 months[/u] from 0.021 (August) to 0.48 I had a few bone mets and several lymph nodes when dx. Trying to find other treatments since I'm running out of Standard
Longterm101
in
Advanced Prostate Cancer
8 months ago
Overall Survival With [177]Lu-PSMA-617 vs Cabazitaxel in Metastatic Castration-Resistant Prostate Cancer
The Lancet Oncology TAKE-HOME MESSAGE TheraP was a phase II trial that compared the efficacy of radioligand therapy with 177Lu-PSMA-617 with that of cabazitaxel in patients with metastatic castration-resistant prostate cancer who had previously received docetaxel. After a median follow-up of 35.7 months
The Lancet Oncology TAKE-HOME MESSAGE TheraP was a phase II trial that compared the efficacy of radioligand therapy with 177Lu-PSMA-617 with that of cabazitaxel in patients with metastatic castration-resistant prostate cancer who had previously received docetaxel. After a median follow-up of 35.7 months
Magnus1964
in
Advanced Prostate Cancer
8 months ago
natural and helpful?
[i]**Moderator comment: please be reminded of the guidance round natural remedies on the forum when replying to this post, and bear in mind what helps you may be a trigger for someone else, even if it seems harmless and natural: https://healthunlocked.com/asthmalunguk-asthma/posts/150694111/update-on-alternative-complimentary-therapies-posts
[i]**Moderator comment: please be reminded of the guidance round natural remedies on the forum when replying to this post, and bear in mind what helps you may be a trigger for someone else, even if it seems harmless and natural: https://healthunlocked.com/asthmalunguk-asthma/posts/150694111/update-on-alternative-complimentary-therapies-posts
Mrteddycat
in
Asthma Community Forum
5 months ago
Criteria for "my ADT has stopped working and we have to move to another"
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
Hello - So my third post ADT initiation (Lupron+Abi) PSA test is coming up and since it was <.1 six weeks ago, I asked how the criteria of “has stopped working” works -to my Hopkins MO and I got this - “We want to declare a therapy no longer effective when PSA is clearly going up. We look for 0.3
jackwfrench
in
Advanced Prostate Cancer
8 months ago
How to get out of AF advice please
I’ve undergone two cardioversions, and each time, about 10-11 weeks later, I’ve reverted back into atrial fibrillation (AF), despite initially being in normal sinus rhythm post-procedure. Following the first cardioversion, I remained in normal rhythm for 12 weeks before slipping back into AF, which
I’ve undergone two cardioversions, and each time, about 10-11 weeks later, I’ve reverted back into atrial fibrillation (AF), despite initially being in normal sinus rhythm post-procedure. Following the first cardioversion, I remained in normal rhythm for 12 weeks before slipping back into AF, which
Mightnot
in
Atrial Fibrillation Support
5 months ago
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