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Lupus participants needed for a study with The University of Edinburgh!
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
michaellasmith
Administrator
in
LUPUS UK
5 months ago
Has anyone taken Perdnisone or Prednisolone with Warfarin ?
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
rosegardens
in
Hughes Syndrome APS Forum
5 months ago
new immune therapy phase 1-2 trial: targeting NK cells
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
Maxone73
in
Advanced Prostate Cancer
8 months ago
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Happy but not really
Hello.i was so excited when I found this post but not really after seeing that no one has really gotten over it. Apparently it's permanent for the most part.i just got my 6k bill from hospital because I couldn't take it I thought it was a serious lung or heart problem but I'm cleared.i have the same
Hello.i was so excited when I found this post but not really after seeing that no one has really gotten over it. Apparently it's permanent for the most part.i just got my 6k bill from hospital because I couldn't take it I thought it was a serious lung or heart problem but I'm cleared.i have the same
EliezerCan2
in
Pain Concern
4 months ago
Update On Eclipse Trial-another failure. Has LU-177 worked for anyone?
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years
SViking
in
Advanced Prostate Cancer
8 months ago
Fitbit versus Apple watch
Thank you to everyone who replied to my post re Apple watch and Kardia. I decided on the Kardia 6 as part of the kit mainly because cardiologists seem to think they are accurate. I am still not decided on the watch yet. I havnt been diag with AF yet as some may remember , Ectopics yes , and they are
Thank you to everyone who replied to my post re Apple watch and Kardia. I decided on the Kardia 6 as part of the kit mainly because cardiologists seem to think they are accurate. I am still not decided on the watch yet. I havnt been diag with AF yet as some may remember , Ectopics yes , and they are
ainslie
in
Atrial Fibrillation Support
4 months ago
Recent PSA test result no longer “undetectable.” What’s next?
After 5+ years of measuring “undetectable” with my PSA results I recently measured 0.24 NG/ML which I’m assuming my PCA is becoming active again. I see my oncologist on Monday, 8 Jan for a follow-up appt. Can anyone share with me what the likely next course of action will be?
After 5+ years of measuring “undetectable” with my PSA results I recently measured 0.24 NG/ML which I’m assuming my PCA is becoming active again. I see my oncologist on Monday, 8 Jan for a follow-up appt. Can anyone share with me what the likely next course of action will be?
Woodman33
in
Advanced Prostate Cancer
8 months ago
Rising PSA … Clear PSMA SCAN
My husband sees Dr. Rahul Aggarwal at UCSF. I’m surprised by his treatment plan. hubby has been on Lupron & NUBEQA since April. At first it brought PSA down but now it is up to 6.5 His last PSMA SCAN was in October when PSA was 4.3 Next PSMA scan is mid January. Aggarwal says PSA # is no longer of
My husband sees Dr. Rahul Aggarwal at UCSF. I’m surprised by his treatment plan. hubby has been on Lupron & NUBEQA since April. At first it brought PSA down but now it is up to 6.5 His last PSMA SCAN was in October when PSA was 4.3 Next PSMA scan is mid January. Aggarwal says PSA # is no longer of
JolleySprings
in
Advanced Prostate Cancer
8 months ago
Hi everyone
Hi, it’s been a while but I’m still getting on with it , just out of hospital yet again with pericarditis again! I’m now on anti inflammatory medication and another 2 weeks of antibiotics for a kleibsom infection they haven’t cleared since December, I can’t remember the spelling but it’s a nasty bug.
Hi, it’s been a while but I’m still getting on with it , just out of hospital yet again with pericarditis again! I’m now on anti inflammatory medication and another 2 weeks of antibiotics for a kleibsom infection they haven’t cleared since December, I can’t remember the spelling but it’s a nasty bug.
Numptybrain
in
Lung Conditions Community Forum
5 months ago
Morning all!
woke this morning achey and bit shake.. not great night sleep lolmy question is please on Saturday I reduce from 9 pred down to 6...still no rheumatoid apps. how will I know if 6 is enough...Will the headaches return and if so..how long b4 they come back ? feel like opthalmology did good job but have
woke this morning achey and bit shake.. not great night sleep lolmy question is please on Saturday I reduce from 9 pred down to 6...still no rheumatoid apps. how will I know if 6 is enough...Will the headaches return and if so..how long b4 they come back ? feel like opthalmology did good job but have
Alliekat65
in
PMRGCAuk
5 months ago
psoriatic arthritis
Has anyone with psoriatic arthritis had pain in their calves and swelling in both ankles above the heels???
Has anyone with psoriatic arthritis had pain in their calves and swelling in both ankles above the heels???
Beata0102
in
NRAS
5 months ago
Is atrial enlargement serious.
hi guys and girls. Just had a phone appointment over the phone with cardiologist. I think it went well.? But it seemed to be a rushed appointment and I didn’t have time to ask him all the questions i wanted to unfortunately.! but the main thing im worried about is that he mentioned my ECHO in December
hi guys and girls. Just had a phone appointment over the phone with cardiologist. I think it went well.? But it seemed to be a rushed appointment and I didn’t have time to ask him all the questions i wanted to unfortunately.! but the main thing im worried about is that he mentioned my ECHO in December
Jetcat
in
Atrial Fibrillation Support
4 months ago
GGT Marker
When i was first diagnosed with PBC, my GGT was very elevated, at 570 U/L . Would this go back to normal with URSO? They did not test for it last time, but next bloods it is Marked to be tested
When i was first diagnosed with PBC, my GGT was very elevated, at 570 U/L . Would this go back to normal with URSO? They did not test for it last time, but next bloods it is Marked to be tested
Gaspereaux
in
British Liver Trust
2 months ago
Rythm changed
hi I was diagnosed with AF three months ago was put on apixoban and bisoperol however bisoperol has been changed to verapamil after a four day stay in hospital where due to them using a nebuliser my heart rate went to 210 nebuliser was used for an asthma attack told never let anyone use a nebuliser
hi I was diagnosed with AF three months ago was put on apixoban and bisoperol however bisoperol has been changed to verapamil after a four day stay in hospital where due to them using a nebuliser my heart rate went to 210 nebuliser was used for an asthma attack told never let anyone use a nebuliser
KelliEAnniE
in
Atrial Fibrillation Support
4 months ago
Is this a lupus rash?
this is a rash on my leg it is appearing everywhere!
this is a rash on my leg it is appearing everywhere!
Jolevans
in
LUPUS UK
5 months ago
Dr Guptas video
Has anyone seen the video re cardiac anxiety? I'm trying to figure out what comes first the anxiety or the list of symptoms ie palpitations chest pain etc. Has anyone dived into this research?
Has anyone seen the video re cardiac anxiety? I'm trying to figure out what comes first the anxiety or the list of symptoms ie palpitations chest pain etc. Has anyone dived into this research?
TillyBoss
in
Atrial Fibrillation Support
4 months ago
HRT anyone?
Hi all, I was diagnosed with Lupus last June. Luckily my symptoms are mild - and my rhumatologist agreed that i didn't need to start hydroxyholorquine if I didn't want to. I'm definitely peri-menopausal and a lot of "symptoms" of lupus overlap with perimenopause and my rhumatologist agreed it's
Hi all, I was diagnosed with Lupus last June. Luckily my symptoms are mild - and my rhumatologist agreed that i didn't need to start hydroxyholorquine if I didn't want to. I'm definitely peri-menopausal and a lot of "symptoms" of lupus overlap with perimenopause and my rhumatologist agreed it's
NewLupusdiag
in
LUPUS UK
5 months ago
Oxygen therapy
I am helping to look after my 88 year old sister at present. She has been prescribed ambulatory oxygen therapy following a diagnosis of pulmonary hypertension, I think related to her Protein S Deficiency. She is frail and even the small oxygen cylinders are heavy and difficult for her to use but oxygen
I am helping to look after my 88 year old sister at present. She has been prescribed ambulatory oxygen therapy following a diagnosis of pulmonary hypertension, I think related to her Protein S Deficiency. She is frail and even the small oxygen cylinders are heavy and difficult for her to use but oxygen
mozart27
in
Lung Conditions Community Forum
4 months ago
B12 result after 6 months…
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Nikkim236
in
Pernicious Anaemia Society
5 months ago
Anticoagulant for AF
I've seen some helpful posts on this site and I hope someone can help me further. I was recently diagnosed with AF but I don't have a fast heart rate. My pulse rarely gets to 59. My doctor has prescribed an anticoagulant (Eliquis) but I'm scared of taking it because of the side effects. I had two bleeding
I've seen some helpful posts on this site and I hope someone can help me further. I was recently diagnosed with AF but I don't have a fast heart rate. My pulse rarely gets to 59. My doctor has prescribed an anticoagulant (Eliquis) but I'm scared of taking it because of the side effects. I had two bleeding
Calypso76
in
Atrial Fibrillation Support
4 months ago
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