Search
Search
About
Log in
Join
Experiences with
Acute leukaemia
Posts
Communities
2,770 public posts
Filter results
Watch & Wait -- Online Webinar Nov 28, 2018 - Patient Power - Dr. Philip Thompson & Dr. Jackie Broadway-Duren
Register now- https://www.patientpower.info/nov28#register Many CLL patients wonder: “What is watch and wait? Why am I not being treated immediately after my diagnosis?” On November 28 at 1 PM CT (2 PM ET, 11 AM PT), join Patient Power and CLL Global Research Foundation for a one-hour webinar, “Understanding
Register now- https://www.patientpower.info/nov28#register Many CLL patients wonder: “What is watch and wait? Why am I not being treated immediately after my diagnosis?” On November 28 at 1 PM CT (2 PM ET, 11 AM PT), join Patient Power and CLL Global Research Foundation for a one-hour webinar, “Understanding
lankisterguy
Volunteer
in
CLL Support
6 years ago
Rux and Hydroxy
I had my haematologist appointment this morning. Platelets are still high after 8 months on Ruxolitinib 20mg BD so I am to start Hydroxycarbamide 500mg each day as well as the Rux 😩 Anyone else taking both? Regards Graham
I had my haematologist appointment this morning. Platelets are still high after 8 months on Ruxolitinib 20mg BD so I am to start Hydroxycarbamide 500mg each day as well as the Rux 😩 Anyone else taking both? Regards Graham
Graham7694
in
MPN Voice
6 years ago
CLL and CFS
I was diagnosed with CLL just over a year ago about a month after another episode of CFS (Chronic Fatigue Syndrome) started. I went on holiday to France and spent two weeks lying on a bed and had to get a wheelchair to get to the plane for my flight home. A year later I started to improve and now, two
I was diagnosed with CLL just over a year ago about a month after another episode of CFS (Chronic Fatigue Syndrome) started. I went on holiday to France and spent two weeks lying on a bed and had to get a wheelchair to get to the plane for my flight home. A year later I started to improve and now, two
shornoff
in
CLL Support
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Breaking news form ASH conference: looks like Ibrutinib May be better than FCR for some patients
#ASH18 #LBA | A Randomized Phase III Study of Ibrutinib (PCI-32765)-Based Therapy Vs. Standard Fludarabine, Cyclophosphamide, and Rituximab (FCR) Chemoimmunotherapy in Untreated Younger Patients with Chronic Lymphocytic Leukemia (CLL) | #leusm ash.confex.com/ash/2018/webpr…
#ASH18 #LBA | A Randomized Phase III Study of Ibrutinib (PCI-32765)-Based Therapy Vs. Standard Fludarabine, Cyclophosphamide, and Rituximab (FCR) Chemoimmunotherapy in Untreated Younger Patients with Chronic Lymphocytic Leukemia (CLL) | #leusm ash.confex.com/ash/2018/webpr…
Newchallnge
in
CLL Support
6 years ago
Who Gives Care to the Caregiver - Online Free Educational Program by LLS.org The Leukemia & Lymphoma Society
Who Gives Care to the Caregiver - Online Free Educational Program by LLS.org The Leukemia & Lymphoma Society The latest information for patients and caregivers. Healthcare professionals are invited to participate. JOIN US FOR A FREE TELEPHONE/WEB EDUCATION PROGRAM WEDNESDAY November 28, 201812
Who Gives Care to the Caregiver - Online Free Educational Program by LLS.org The Leukemia & Lymphoma Society The latest information for patients and caregivers. Healthcare professionals are invited to participate. JOIN US FOR A FREE TELEPHONE/WEB EDUCATION PROGRAM WEDNESDAY November 28, 201812
lankisterguy
Volunteer
in
CLL Support
6 years ago
'Dulce et Decorum Est' by Wilfred Owen.
Arguably our greatest war poet Wilfred Owen wrote this poem focusing in particular on one moment in the First World War, when Owen and his platoon are attacked with poison gas. ‘Dulce et Decorum Est’ is a studied analysis of suffering and perhaps the most famous anti-war poem ever written. The full title
Arguably our greatest war poet Wilfred Owen wrote this poem focusing in particular on one moment in the First World War, when Owen and his platoon are attacked with poison gas. ‘Dulce et Decorum Est’ is a studied analysis of suffering and perhaps the most famous anti-war poem ever written. The full title
sufferer2
in
Lung Conditions Community Forum
6 years ago
Bpdcn
Hi there, I am new here. I am a carer for a family member. Does anyone know of, or has anyone heard of BPDCN? Blastic plasmacytoid dendritic cell neoplasm (BPDCN), previously known as natural killer (NK) cell leukemia/lymphoma,? My father is taking oral chemotherapy ...anyone know of this?
Hi there, I am new here. I am a carer for a family member. Does anyone know of, or has anyone heard of BPDCN? Blastic plasmacytoid dendritic cell neoplasm (BPDCN), previously known as natural killer (NK) cell leukemia/lymphoma,? My father is taking oral chemotherapy ...anyone know of this?
StefHere
in
Leukaemia Support
6 years ago
Hi Bone Marrow lymphoma cancer
Hi my niece was diagnosed with tjus will Jakafi help her thanks
Hi my niece was diagnosed with tjus will Jakafi help her thanks
rkhabtec
in
MPN Voice
6 years ago
Tisomy 12
Dx 203 CLL in Feb 2013,male, living in India, watch and wait till last week. I am Ighv mutated and no Zap 70 and CD 38. My Fish test revealed no genetic deletion Like 17p, 13q, 11q. Due to gradual fall of Hb to 8 and lymphocytes around 100k, I was advised B R chemo immunotherapy and stated on November
Dx 203 CLL in Feb 2013,male, living in India, watch and wait till last week. I am Ighv mutated and no Zap 70 and CD 38. My Fish test revealed no genetic deletion Like 17p, 13q, 11q. Due to gradual fall of Hb to 8 and lymphocytes around 100k, I was advised B R chemo immunotherapy and stated on November
venk_46
in
CLL Support
6 years ago
Wife just diagnosed with CLL too!
I was diagnosed in 2006 and have been in clinical trial since 2016. My wife was just diagnosed. All sorts of questions: could it be an environmental exposure we shared at some point (married over 49 years)? Some sort of virus that predisposed us? Coincidence? Should our grown children worry? Other
I was diagnosed in 2006 and have been in clinical trial since 2016. My wife was just diagnosed. All sorts of questions: could it be an environmental exposure we shared at some point (married over 49 years)? Some sort of virus that predisposed us? Coincidence? Should our grown children worry? Other
Walt424
in
CLL Support
6 years ago
CAR-T Cell expert Dr. Utkarsh Acharya online; CAR-T Patient Dr. Brian Koffman at CLL Society Support Meetings- Philadelphia & New York City
This week there are several opportunities to learn more about CAR-T http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=8ae5639f-9cb3-476f-8278-85bec8eb87ec - Online we hear again from Dr. Utkarsh Acharya on his perspective of caring for CAR-T patients including our own Dr. Koffman. https
This week there are several opportunities to learn more about CAR-T http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=8ae5639f-9cb3-476f-8278-85bec8eb87ec - Online we hear again from Dr. Utkarsh Acharya on his perspective of caring for CAR-T patients including our own Dr. Koffman. https
lankisterguy
Volunteer
in
CLL Support
6 years ago
Anybody like this?
Platelets transfusion every 10 days. Black or red dots on your skin. Mostly hands and legs. Stool looks like tar when your platelets count gets less than 5. Please reply
Platelets transfusion every 10 days. Black or red dots on your skin. Mostly hands and legs. Stool looks like tar when your platelets count gets less than 5. Please reply
cier04
in
ITP Support Association
6 years ago
Does anyone else have another blood cancer as well as an MPN?
Hi. I’m now nearly two years post diagnosis with MF, and I also have CLL. Chronic lymph.. leukemia ( can never remember, spell or pronounce the L in the middle) CLL to its friends. That means that I get excluded from clinical trials, which is a big downside. I wondered how many other people who use
Hi. I’m now nearly two years post diagnosis with MF, and I also have CLL. Chronic lymph.. leukemia ( can never remember, spell or pronounce the L in the middle) CLL to its friends. That means that I get excluded from clinical trials, which is a big downside. I wondered how many other people who use
Rachelthepotter
in
MPN Voice
6 years ago
fluoride for teeth when on hydroxyurea?
My dentist has recommended that I start using fluoride gel trays for my teeth to protect them while taking the hydroxyurea. Has anyone heard about this? I have Essential Thrombocythemia (high platelets) & as I understand it I will be taking the hydroxyurea for the rest of my life.
My dentist has recommended that I start using fluoride gel trays for my teeth to protect them while taking the hydroxyurea. Has anyone heard about this? I have Essential Thrombocythemia (high platelets) & as I understand it I will be taking the hydroxyurea for the rest of my life.
h2ogal
in
MPN Voice
6 years ago
I got soaked through in the rain today
Had to take one of my dogs to the vet for her yearly injections, not much fun she hates it and barks as soon as we get through the door! I am surprised they haven't asboed us! On the way back (1/2hour walk at least), it poured down, terribly so. I got drenched, hair, trousers everything. Got home towel
Had to take one of my dogs to the vet for her yearly injections, not much fun she hates it and barks as soon as we get through the door! I am surprised they haven't asboed us! On the way back (1/2hour walk at least), it poured down, terribly so. I got drenched, hair, trousers everything. Got home towel
Shancock
in
Lung Conditions Community Forum
6 years ago
Is Green Tea and Matcha powder same, similar?
Hello All, I've always experienced a benefit from simply drinking green. Over the course of my life, when I was a green tea drinker I had far fewer colds/sinus infections etc than those times when I was a coffee drinker. Anyway, as a W&W CLL person since 2015 I've been increasingly going alternative
Hello All, I've always experienced a benefit from simply drinking green. Over the course of my life, when I was a green tea drinker I had far fewer colds/sinus infections etc than those times when I was a coffee drinker. Anyway, as a W&W CLL person since 2015 I've been increasingly going alternative
jawdfs
in
CLL Support
6 years ago
CLL is gone!!!!
After living with CLL for 5 years. We have decided to divorce after she MRDed negative on my blood and bone marrow. Yes, I just got the best news of my life. I'm free again :-) I am still shocked with the results. I am on the 2nd cohort of the Imbruvica/Venetoclax trial for treatment naive patients
After living with CLL for 5 years. We have decided to divorce after she MRDed negative on my blood and bone marrow. Yes, I just got the best news of my life. I'm free again :-) I am still shocked with the results. I am on the 2nd cohort of the Imbruvica/Venetoclax trial for treatment naive patients
lamboman
in
CLL Support
6 years ago
Cancer Care Education Workshops Online 1 hour free sessions
Cancer Care Education Workshops Online 1 hour free sessions https://www.cancercare.org/connect_workshops/tagged/chronic_lymphocytic_leukemia - Upcoming Workshops Managing Chronic Lymphocytic Leukemia and Its Complications Part I of Life with Chronic Lymphocytic Leukemia (CLL) https://www.cancercare.org
Cancer Care Education Workshops Online 1 hour free sessions https://www.cancercare.org/connect_workshops/tagged/chronic_lymphocytic_leukemia - Upcoming Workshops Managing Chronic Lymphocytic Leukemia and Its Complications Part I of Life with Chronic Lymphocytic Leukemia (CLL) https://www.cancercare.org
lankisterguy
Volunteer
in
CLL Support
6 years ago
Acute Myeloid Leukaemia
Hi. I my husband has Myelofibrosis-hgb 100, wcc just below 25. When I asked about immature cells, his consultant said they were less than 0.5%. I asked what type and he said the blasts were myeloid, ‘It’s not going in the right direction but it’s slow’. I guess this means he’s slowly progressing to AML
Hi. I my husband has Myelofibrosis-hgb 100, wcc just below 25. When I asked about immature cells, his consultant said they were less than 0.5%. I asked what type and he said the blasts were myeloid, ‘It’s not going in the right direction but it’s slow’. I guess this means he’s slowly progressing to AML
Fika500
in
MPN Voice
6 years ago
Is Idiopathic Myelofibrosis cancer?
I’ve read a lot about this disease myelofibrosis which I’ve been diagnosed with but I’m unclear if the idiopathic before it changes the disease in any way. I can’t find a lot of information when I research “idiopathic myelofibrosis” and im wondering if it is considered cancer or not.
I’ve read a lot about this disease myelofibrosis which I’ve been diagnosed with but I’m unclear if the idiopathic before it changes the disease in any way. I can’t find a lot of information when I research “idiopathic myelofibrosis” and im wondering if it is considered cancer or not.
Actuallyclaire
in
MPN Voice
6 years ago
1
...
77
78
79
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1634 results
MPN Voice
795 results
Leukaemia Support
171 results
View top 10 communities
Sort by
Most Relevant
Newest