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High platelets essential thrombocytosis
So been to see haematologist today Pointless exercise- all bloods normal but jak2 mutation still outstanding. He said if its essential thrombocytosis I will need aspirin and not to worry? I honestly am so upset
So been to see haematologist today Pointless exercise- all bloods normal but jak2 mutation still outstanding. He said if its essential thrombocytosis I will need aspirin and not to worry? I honestly am so upset
Irishgal12
in
MPN Voice
5 years ago
Why Is the Immunoglobulin Heavy Chain Gene Mutation Status a Prognostic Indicator in CLL? - Dr Keating
A complex but interesting read Acta Haematol August 2018;140:51–54 The immunoglobulin heavy chain gene (IgHV) mutation status correlates with the clinical outcome of patients with CLL treated with chemoimmunotherapy. Why the survival rate of patients with unmutated IgHV is worse than that of patients
A complex but interesting read Acta Haematol August 2018;140:51–54 The immunoglobulin heavy chain gene (IgHV) mutation status correlates with the clinical outcome of patients with CLL treated with chemoimmunotherapy. Why the survival rate of patients with unmutated IgHV is worse than that of patients
Jm954
Administrator
in
CLL Support
5 years ago
going downhill
My husband has CLL dx in 2013. Ok until this last year. Now has gone downhill. He is not to computer friendly so I am doing this. He was started on VENETOCLAX and is on week 3 of the ramping up. Extremely fatigued. Poor appetite. Sleeps a lot. The doc thinks this is a combo of the CLL and the s/e of
My husband has CLL dx in 2013. Ok until this last year. Now has gone downhill. He is not to computer friendly so I am doing this. He was started on VENETOCLAX and is on week 3 of the ramping up. Extremely fatigued. Poor appetite. Sleeps a lot. The doc thinks this is a combo of the CLL and the s/e of
Gogldn
in
CLL Support
5 years ago
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New Need Advice please
Hello, I am new here and so confused. I saw a hematologist in October due to swollen lymph nodes and high eosinophils he ordered bone marrow biopsy. Which came back showing MPN he stated, but nothing to do but wait no further testing recommend. My grandfather had myelofibrosis. I am not comfortable just
Hello, I am new here and so confused. I saw a hematologist in October due to swollen lymph nodes and high eosinophils he ordered bone marrow biopsy. Which came back showing MPN he stated, but nothing to do but wait no further testing recommend. My grandfather had myelofibrosis. I am not comfortable just
chefwife8
in
MPN Voice
5 years ago
Winter blues
Hi I've got hypersensitivity pneumonitis with fibrosis. I've been diagnosed for 3 years now. But have suffered in the winter for a long time. Does anyone know of any tips to help me manage when I am outside? Almaz65
Hi I've got hypersensitivity pneumonitis with fibrosis. I've been diagnosed for 3 years now. But have suffered in the winter for a long time. Does anyone know of any tips to help me manage when I am outside? Almaz65
Almaz65
in
Lung Conditions Community Forum
5 years ago
Hair transplant and CLL
Has anyone here with CLL had a hair transplant (after early stage diagnosis?) Is that safe or crazy? I'm relatively young to have it and I guess a bit vain but am not sure if the CLL makes no difference or the trauma encourages it.....
Has anyone here with CLL had a hair transplant (after early stage diagnosis?) Is that safe or crazy? I'm relatively young to have it and I guess a bit vain but am not sure if the CLL makes no difference or the trauma encourages it.....
Research123
in
CLL Support
5 years ago
1 week update into Imbruvica
My first 7 days of Imbruvica 420 mg haven't been as bad as expected. No fatigue to speak of. The only side effects are temporary stomachs which I can remedy with yogurt or digestive enzymes, and temporary intestinal cramps.
My first 7 days of Imbruvica 420 mg haven't been as bad as expected. No fatigue to speak of. The only side effects are temporary stomachs which I can remedy with yogurt or digestive enzymes, and temporary intestinal cramps.
12Caine12
in
CLL Support
5 years ago
Remission
So the PETSCAN and the bone marrow biopsy say no leukemia or lymphoma for me. That means total remission but they still want me to have a transplant waiting for an appointment from MD Anderson in Texas.
So the PETSCAN and the bone marrow biopsy say no leukemia or lymphoma for me. That means total remission but they still want me to have a transplant waiting for an appointment from MD Anderson in Texas.
SwiftT
in
CLL Support
5 years ago
Need some info please.
Hi there, I am a 75 year old female. From Adelaide in South Australia. I have still managed to manage all my everyday life,drive and I volunteer 20 hours a week for a goodwill shop. I was diagnosed with cll just over 2 years ago. I saw a haematologist twice and put on watch and wait. I opted to see
Hi there, I am a 75 year old female. From Adelaide in South Australia. I have still managed to manage all my everyday life,drive and I volunteer 20 hours a week for a goodwill shop. I was diagnosed with cll just over 2 years ago. I saw a haematologist twice and put on watch and wait. I opted to see
JanEyre
in
CLL Support
5 years ago
Generosity
I’m doing the worlds greatest shave here in Australia for my husband and all you CLLers. The generosity of people- especially in light of the drought and bushfire appeals - is astounding. $4,000 in 2 weeks. The Leukaemia Foundation is aiming for zero deaths from blood cancer by 2035. It sure feels achievable
I’m doing the worlds greatest shave here in Australia for my husband and all you CLLers. The generosity of people- especially in light of the drought and bushfire appeals - is astounding. $4,000 in 2 weeks. The Leukaemia Foundation is aiming for zero deaths from blood cancer by 2035. It sure feels achievable
catnapcrew
in
CLL Support
5 years ago
Survey for CLL patients having taken Venetoclax or Acalabrutinib
CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies, you can help by completing our survey: Venetoclax (Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) with or without obinutuzumab (Gazyva) for first-line
CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies, you can help by completing our survey: Venetoclax (Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) with or without obinutuzumab (Gazyva) for first-line
cllpag_canada
in
CLL Support
5 years ago
ASH 2019 CLL highlights and 'hot' topics - Drs Nicole Lamanna & Florence Cymbalista
Prof Nicole Lamanna - ASH 2019 - Maturing CLL clinical trial data Dr. Nicole Lamanna, Associate Clinical Professor of haematological malignancies at Columbia University Medical Centre discusses the maturing CLL clinical trial data presented at ASH 2019. Phenomenal 3 and 4 year results from trials
Prof Nicole Lamanna - ASH 2019 - Maturing CLL clinical trial data Dr. Nicole Lamanna, Associate Clinical Professor of haematological malignancies at Columbia University Medical Centre discusses the maturing CLL clinical trial data presented at ASH 2019. Phenomenal 3 and 4 year results from trials
HAIRBEAR_UK
Administrator
in
CLL Support
5 years ago
Managing Side Effects and More
The following site is Cleveland Clinic's presentation. Please do not get hung up on the name Chemocare. Here is the statement regarding the name of the site: [i]'Chemotherapy, or "chemical treatment," has been around since the days of the ancient Greeks. However, chemotherapy for the treatment of cancer
The following site is Cleveland Clinic's presentation. Please do not get hung up on the name Chemocare. Here is the statement regarding the name of the site: [i]'Chemotherapy, or "chemical treatment," has been around since the days of the ancient Greeks. However, chemotherapy for the treatment of cancer
cllady01
Volunteer
in
CLL Support
5 years ago
Life with ET
I am the person flying through the air. At 39 I discovered I had ET (CALR). I also started Brazilian Jiu Jitsu. Almost 4 years later I still have ET and I take 2 pills of Hydroxyurea 5 days per week. Today I received my purple belt. The test was two hours of nonstop movement and grappling. My point
I am the person flying through the air. At 39 I discovered I had ET (CALR). I also started Brazilian Jiu Jitsu. Almost 4 years later I still have ET and I take 2 pills of Hydroxyurea 5 days per week. Today I received my purple belt. The test was two hours of nonstop movement and grappling. My point
MJL1977
in
MPN Voice
5 years ago
Blood tests high platelets
So me again I have now received blood work to get done prior to my haematologist app and one of them is a test for cml which has set me off of is this normal
So me again I have now received blood work to get done prior to my haematologist app and one of them is a test for cml which has set me off of is this normal
Irishgal12
in
MPN Voice
5 years ago
Hello, I'm transitioning from hydroxyurea to jakafi and would like here from others who are on jakafi. What should I expect?
Should I be worried? Are the side effects bad?
Should I be worried? Are the side effects bad?
Cbreeze0182
in
MPN Voice
5 years ago
the YUK Factor & Controversy Over Gene Editing for Cancer & Other Cures???
Post by MPN-MATE Admin » Thu Dec 26, 2019 11:43 pm Hey everyone... :-) Trusting that you have all enjoyed some happy times with family & friends over Christmas etc... As many oy you might be aware, I am always scouring through research hoping to find that illusive 'Silver Bullet Cure' where perhaps
Post by MPN-MATE Admin » Thu Dec 26, 2019 11:43 pm Hey everyone... :-) Trusting that you have all enjoyed some happy times with family & friends over Christmas etc... As many oy you might be aware, I am always scouring through research hoping to find that illusive 'Silver Bullet Cure' where perhaps
socrates_8
in
MPN Voice
5 years ago
Losing weight with Viagra.
A woman asks her husband at breakfast time, "Would you like some bacon and eggs, a slice of toast and maybe some grapefruit juice and coffee?" He declines. "Thanks for asking but I'm not hungry right now. It's this Viagra," he says. "It's really taken the edge off my appetite." At lunchtime, she asks
A woman asks her husband at breakfast time, "Would you like some bacon and eggs, a slice of toast and maybe some grapefruit juice and coffee?" He declines. "Thanks for asking but I'm not hungry right now. It's this Viagra," he says. "It's really taken the edge off my appetite." At lunchtime, she asks
Johnem
in
Lung Conditions Community Forum
5 years ago
Trabectedin Targets Leukemic Cells and Restores Immune Cell Function in Models of Chronic Lymphocytic Leukemia
The marine-derived compound trabectedin depletes both human primary leukemic cells and myeloid-derived suppressor cells, according to a new study published in Cancer Immunology Research.1 The researchers think their findings could lead to a new therapy that targets both leukemic cells and the protumor
The marine-derived compound trabectedin depletes both human primary leukemic cells and myeloid-derived suppressor cells, according to a new study published in Cancer Immunology Research.1 The researchers think their findings could lead to a new therapy that targets both leukemic cells and the protumor
wmay13241
in
CLL Support
5 years ago
Negative for CLL and lymphoma panel
Hi. I just received my bmb negative for CLL or lymphoma panel. My dr stated he believes I do have some form of leukemia but the final diagnosis is not in. The flow cytometry was inconclusive as well. He said my prognosis should be could and certain life style changes should help me possibly
Hi. I just received my bmb negative for CLL or lymphoma panel. My dr stated he believes I do have some form of leukemia but the final diagnosis is not in. The flow cytometry was inconclusive as well. He said my prognosis should be could and certain life style changes should help me possibly
Jenny2020
in
CLL Support
5 years ago
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