Search
Search
About
Log in
Join
Experiences with
Acthar
Posts
Communities
340 public posts
Filter results
Dosing off prednisone.
I have not posted in years. My cortisol is low at 2.0 and the ACTH is low at 1.5. I am on 5 mgs prednisone and on actemra. I am having trouble getting off 4 yrs prednisone. Working with endo but she is too main stream. Gaia has an Adrenal supplement and I figure there are many ways to help get my numbers
I have not posted in years. My cortisol is low at 2.0 and the ACTH is low at 1.5. I am on 5 mgs prednisone and on actemra. I am having trouble getting off 4 yrs prednisone. Working with endo but she is too main stream. Gaia has an Adrenal supplement and I figure there are many ways to help get my numbers
Leeleep
in
PMRGCAuk
3 years ago
Blood tests are back! - Total confusion!!!
Some test results are back! - But I’m not sure if any are interesting at all! Before I start.. I am NOT on any Thyroid medication. Reference: ⬆️ = Has gone up since previous test ⬇️ = Has gone down since previous test ❗️ = outside of range [..] = previous results in Dec 2020 as requested (same reference
Some test results are back! - But I’m not sure if any are interesting at all! Before I start.. I am NOT on any Thyroid medication. Reference: ⬆️ = Has gone up since previous test ⬇️ = Has gone down since previous test ❗️ = outside of range [..] = previous results in Dec 2020 as requested (same reference
OudMood
in
Thyroid UK
3 years ago
Blood tests are back! - Total confusion!!!
Some test results are back! - But I’m not sure if any are interesting at all! Before I start.. I am NOT on any Thyroid medication. Reference: ⬆️ = Has gone up since previous test ⬇️ = Has gone down since previous test ❗️ = outside of range Vit D 71 (30-200) ⬆️- taking 4,000iu
Some test results are back! - But I’m not sure if any are interesting at all! Before I start.. I am NOT on any Thyroid medication. Reference: ⬆️ = Has gone up since previous test ⬇️ = Has gone down since previous test ❗️ = outside of range Vit D 71 (30-200) ⬆️- taking 4,000iu
OudMood
in
Thyroid UK
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Some blood tests are back!
Some test results are back! - But I’m not sure if any are interesting at all! Reference: ⬆️ = Has gone up since previous test ⬇️ = Has gone down since previous test ❗️ = outside of range No thyroid yet.. but some values are abnormal or in the higher range.. Vit D 71 (30-200
Some test results are back! - But I’m not sure if any are interesting at all! Reference: ⬆️ = Has gone up since previous test ⬇️ = Has gone down since previous test ❗️ = outside of range No thyroid yet.. but some values are abnormal or in the higher range.. Vit D 71 (30-200
OudMood
in
Thyroid UK
3 years ago
DHEA/Cortisol Ratio is Low
I recently had serum, saliva and urine tests to confirm an elevated cortisol diurnal. My ACTH has been elevated for the past 6 months and it has thrown me off w/thyroid meds (Synthroid). I was on 75, then on 50, now on 62.5 consistently for 8+ weeks. I really don't know what's happening with the ACTH
I recently had serum, saliva and urine tests to confirm an elevated cortisol diurnal. My ACTH has been elevated for the past 6 months and it has thrown me off w/thyroid meds (Synthroid). I was on 75, then on 50, now on 62.5 consistently for 8+ weeks. I really don't know what's happening with the ACTH
marvalrus
in
Thyroid UK
3 years ago
Starting investigation - Blood Test queries..
Hi! After my first post I managed to speak to a GP and mentioned to them that my most recent TSH was elevated (5.63) along with other stuff and he agreed that at the least I have subclinical hypothyroidism and agreed to do more bloods including a cortisol test to check for Cushings due to my symptoms
Hi! After my first post I managed to speak to a GP and mentioned to them that my most recent TSH was elevated (5.63) along with other stuff and he agreed that at the least I have subclinical hypothyroidism and agreed to do more bloods including a cortisol test to check for Cushings due to my symptoms
OudMood
in
Thyroid UK
3 years ago
Adrenal Fatigue,
Hi, Can anybody tell me any other sources of medication for Adrenal Fatigue?" - My Cortisol and ACTH were very low. Are there any other medications; apart from Adrenavive 11 that would support my Adrenal glands? I do have underactive Thyroid- I take NDT (Natural Desiccated Thyroid ) - readings are
Hi, Can anybody tell me any other sources of medication for Adrenal Fatigue?" - My Cortisol and ACTH were very low. Are there any other medications; apart from Adrenavive 11 that would support my Adrenal glands? I do have underactive Thyroid- I take NDT (Natural Desiccated Thyroid ) - readings are
Booblet
in
Thyroid UK
3 years ago
SST SYNACHTEN TEST
Hi all, I feel bad for many years, got a bit improvement with my thyroid after hearing for years “it’s all in my head”. Now I know my adrenals respond unwel to t3 treatment which I know I need. I was rejected by all endocrinologists in the Netherlands, and went to Ukraine to try here. They have checked
Hi all, I feel bad for many years, got a bit improvement with my thyroid after hearing for years “it’s all in my head”. Now I know my adrenals respond unwel to t3 treatment which I know I need. I was rejected by all endocrinologists in the Netherlands, and went to Ukraine to try here. They have checked
Viv123
in
Thyroid UK
3 years ago
Cortisol tests
Hi everyone! Haven't done yet cortisol saliva this year. But made others at first. Are there optimal levels for morning blood cortisol? My test came back 16,2 mcg/dl with range 4,30-22,40 (8am). And 24-hour urine test 149,4 (58-403). Other tests of ACTH and aldosterone are still to come.
Hi everyone! Haven't done yet cortisol saliva this year. But made others at first. Are there optimal levels for morning blood cortisol? My test came back 16,2 mcg/dl with range 4,30-22,40 (8am). And 24-hour urine test 149,4 (58-403). Other tests of ACTH and aldosterone are still to come.
Viv123
in
Thyroid UK
3 years ago
Acth and cortisol test advice please
Hi My Lady Gp has now requested Acth and cortisol test I have no instructions only to be done 8 to10am and it's taken to the lab immediately...this seems a different procedure to when a private Endo requested a short baseline synachthen acth test which was taken over the course of 60 mins
Hi My Lady Gp has now requested Acth and cortisol test I have no instructions only to be done 8 to10am and it's taken to the lab immediately...this seems a different procedure to when a private Endo requested a short baseline synachthen acth test which was taken over the course of 60 mins
Hidden
in
Thyroid UK
3 years ago
Where can I get a ACTH blood test?
Hi all my quest to sort my thyroid issues out goes on and on. Hence, does anyone know where I can get a ACTH blood test done privately in the UK. Really would appreciate some feedback Thank you in advance
Hi all my quest to sort my thyroid issues out goes on and on. Hence, does anyone know where I can get a ACTH blood test done privately in the UK. Really would appreciate some feedback Thank you in advance
DizzyD
in
Thyroid UK
3 years ago
Update on my post: Hashimoto's in range, switch to Armour
Hi...I'm on NDT now. 9 days. I had to switch to an old Armour script I tried 16 mo ago. The Levoxyl T4 I took, 16 days. (did wait until I couldn't stand reactions anymore, could not function at all last few days) Felt better on this second try of Armour. I got a newer prescription, the 5th day. I have
Hi...I'm on NDT now. 9 days. I had to switch to an old Armour script I tried 16 mo ago. The Levoxyl T4 I took, 16 days. (did wait until I couldn't stand reactions anymore, could not function at all last few days) Felt better on this second try of Armour. I got a newer prescription, the 5th day. I have
Allie323
in
Thyroid UK
3 years ago
Adrenals weak?
I'm currently titrating T3-only (first 3 weeks, currently at 30-40µg) and i'm not sure if i should do something about my adrenals. Some details (all tests before any thyroid medication): - Morning cortisol blood tests are high (near upper range) - Saliva tests shows high morning cortisol, but low midnight
I'm currently titrating T3-only (first 3 weeks, currently at 30-40µg) and i'm not sure if i should do something about my adrenals. Some details (all tests before any thyroid medication): - Morning cortisol blood tests are high (near upper range) - Saliva tests shows high morning cortisol, but low midnight
zbs5
in
Thyroid UK
3 years ago
Short synathcen test with baseline Acth
Good Morning hope some one can advise please I'm due to have the above test soon does biotin interfere with this test ? If so how long do I leave my Ingennes super b complex off does anything else interfere with this test
Good Morning hope some one can advise please I'm due to have the above test soon does biotin interfere with this test ? If so how long do I leave my Ingennes super b complex off does anything else interfere with this test
Hidden
in
Thyroid UK
3 years ago
Fatigue with adrenal insufficiency
I have secondary adrenal insufficiency, and a few months ago in February due to my low cortisol level my Endo decided to change my Meds from Prednisolone to Hydrocortisone 10mgs waking, then 5mgs 1pm and 5mgs 5pm, however I am still feeling very lethargic . As it's only approx 3 months
I have secondary adrenal insufficiency, and a few months ago in February due to my low cortisol level my Endo decided to change my Meds from Prednisolone to Hydrocortisone 10mgs waking, then 5mgs 1pm and 5mgs 5pm, however I am still feeling very lethargic . As it's only approx 3 months
bowler
in
Thyroid UK
3 years ago
Thyroxine brands
Having terrible trouble since Actavis became Accord. Had to stop Accord got severe symptoms. I was taking 50mg Accord and half a 25mg of Wockeharte. I tried taking all my dosage 62.5mg with Wockeharte that made me ill, blurred vision, bloated, weight gain, aches and pains, breathless, palpartations,
Having terrible trouble since Actavis became Accord. Had to stop Accord got severe symptoms. I was taking 50mg Accord and half a 25mg of Wockeharte. I tried taking all my dosage 62.5mg with Wockeharte that made me ill, blurred vision, bloated, weight gain, aches and pains, breathless, palpartations,
Odinil
in
Thyroid UK
3 years ago
ACTH and cortisol
Guys who have high ACTH with normal cortisol? What's going on with our adrenal glands? Why does ACTH grow up, and cortisol does not collapse, because in nature it is conceived differently?
Guys who have high ACTH with normal cortisol? What's going on with our adrenal glands? Why does ACTH grow up, and cortisol does not collapse, because in nature it is conceived differently?
Intensor
in
AMN EASIER
3 years ago
Results of short synachten test in. Can anyone shed any light on them?
I am told the results are normal. The test was done at 1.45pm and I had had a couple of coffees to get me out of bed and to the hospital.... Basal 516 At 60 mins 663 I don't know what the ranges are I'm afraid. It was hard enough to get the test results. The basal looks good but was it fuelled by
I am told the results are normal. The test was done at 1.45pm and I had had a couple of coffees to get me out of bed and to the hospital.... Basal 516 At 60 mins 663 I don't know what the ranges are I'm afraid. It was hard enough to get the test results. The basal looks good but was it fuelled by
OllyTojo
in
Thyroid UK
3 years ago
Cortisol test results.
I was sent to endocrinologist to evaluate frequent low blood sugar readings. I add my sister and I have this many years but tapering prednisone seems to aggravate the problem. I was ordered tests for pancreatic function as well. I was instructed to avoid prednisone for 48 hours but only lasted 31 hours
I was sent to endocrinologist to evaluate frequent low blood sugar readings. I add my sister and I have this many years but tapering prednisone seems to aggravate the problem. I was ordered tests for pancreatic function as well. I was instructed to avoid prednisone for 48 hours but only lasted 31 hours
Karenjaninaz
in
PMRGCAuk
3 years ago
Low serum cortisol 9am 75nmol
I had 9am serum cortisol few weeks ago and was quite low at 75 nmol 1st Dr I called at surgery said its ok, which I know it isnt so got my normal GP to call me she said she will send me on urgent appointment to get further testing, Because Covid the refferels services sent me to a useless Endo and had
I had 9am serum cortisol few weeks ago and was quite low at 75 nmol 1st Dr I called at surgery said its ok, which I know it isnt so got my normal GP to call me she said she will send me on urgent appointment to get further testing, Because Covid the refferels services sent me to a useless Endo and had
Pascha1
in
Thyroid UK
3 years ago
1
...
3
4
5
...
17
Next page
10
Filter results
Clear filters
Posted in
All communities
Thyroid UK
249 results
PMRGCAuk
28 results
My MSAA Community
13 results
View top 10 communities
Sort by
Most Relevant
Newest