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adrenals not working
After getting down to 3 mg of prednisone (still doing Actemra injections) my endo switched me to hydrocortisone for a couple of months. I got down to two 5mg tablets in AM and one 5mg tab in PM, the PM dose kept my blood pressure from going too low. Last month my endo did ACTH testing and said my Adrenal
After getting down to 3 mg of prednisone (still doing Actemra injections) my endo switched me to hydrocortisone for a couple of months. I got down to two 5mg tablets in AM and one 5mg tab in PM, the PM dose kept my blood pressure from going too low. Last month my endo did ACTH testing and said my Adrenal
pmac22
in
PMRGCAuk
10 days ago
Endo recommendation Tunbridge Wells
Hi everyone. My first post for many years so I’m now very out of date on everything as I’ve been happily ticking along for ages taking a combination of thyroxine and T3 and keeping my TSH levels quite low. I’ve recently been referred back to endo to confirm the T3 prescription and for some adrenal
Hi everyone. My first post for many years so I’m now very out of date on everything as I’ve been happily ticking along for ages taking a combination of thyroxine and T3 and keeping my TSH levels quite low. I’ve recently been referred back to endo to confirm the T3 prescription and for some adrenal
Mifford
in
Thyroid UK
12 days ago
"Intetesting conversation with Endocrinologist!"
Got a phone call just now from endocrinology, my cortisol test at GP' surgery was 1 56, she said that's good, it shows things are working....I am on 4.5mg......I said this must be taken into account I suppose?....she said we will get you an ACTH test done, if it's 250, that's regarded as normal. ...
Got a phone call just now from endocrinology, my cortisol test at GP' surgery was 1 56, she said that's good, it shows things are working....I am on 4.5mg......I said this must be taken into account I suppose?....she said we will get you an ACTH test done, if it's 250, that's regarded as normal. ...
Longtimer
in
PMRGCAuk
16 days ago
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ACTH Stim test after stopping abiraterone & prednisone
Has anyone had an ACTH Stimulation test after stopping abiraterone and Prednisone to test for adrenal insufficiency? I ended 24 months of eligard, abiraterone, and Prednisone on June 4. My endocrinologist (who I had prior to prostate cancer) pushed me to have a cortisol test on June 6 even though I
Has anyone had an ACTH Stimulation test after stopping abiraterone and Prednisone to test for adrenal insufficiency? I ended 24 months of eligard, abiraterone, and Prednisone on June 4. My endocrinologist (who I had prior to prostate cancer) pushed me to have a cortisol test on June 6 even though I
Alturia
in
Advanced Prostate Cancer
1 month ago
Mood swings & burst of anger
This has happened a few times over the years, that I've been drinking nothing ott but 3-4 glasses of wine & suddenly out of nowhere I'm upset shouting at hubby for no apparent reason🤦 I've been very good of late not to drank too much. (Just recently back on 125mcg daily instead of eod as my moods were
This has happened a few times over the years, that I've been drinking nothing ott but 3-4 glasses of wine & suddenly out of nowhere I'm upset shouting at hubby for no apparent reason🤦 I've been very good of late not to drank too much. (Just recently back on 125mcg daily instead of eod as my moods were
Humphre
in
Thyroid UK
2 months ago
Low cortisol
Hello I wondered if anyone could help, I was referred to an endo for my thyroid as my TSH was 0.1 and ts3 was 6.4 (range 4-6) so they thought I could gave hyperthyroidism especially with my symptoms of fatigue, abdominal pain, weakness and graves in my family, etc however I did the tests and my TSH have
Hello I wondered if anyone could help, I was referred to an endo for my thyroid as my TSH was 0.1 and ts3 was 6.4 (range 4-6) so they thought I could gave hyperthyroidism especially with my symptoms of fatigue, abdominal pain, weakness and graves in my family, etc however I did the tests and my TSH have
Lollipop93
in
Thyroid UK
2 months ago
Who is confused? My surgery or me?
I was asked by the GP to remind him, when I reached 3mg in my tapering, that I should have a synacthen test. I have now done so. However, I am being sent for an ACTH blood test Is this the same thing (I don't think so as I have not been asked to miss the steroid dose and there is no indication that
I was asked by the GP to remind him, when I reached 3mg in my tapering, that I should have a synacthen test. I have now done so. However, I am being sent for an ACTH blood test Is this the same thing (I don't think so as I have not been asked to miss the steroid dose and there is no indication that
ChinaWuntoo
in
PMRGCAuk
3 months ago
A few Things ….
1. I had an ACTH test yesterday as my recent cortisol level was low. I was told my TSH would be tested but not T4 and T3. However when I got there, it was a full thyroid profile being done. I had breakfast in the morning but no caffeine. I had a small bowl of plain porridge and nothing else, except water
1. I had an ACTH test yesterday as my recent cortisol level was low. I was told my TSH would be tested but not T4 and T3. However when I got there, it was a full thyroid profile being done. I had breakfast in the morning but no caffeine. I had a small bowl of plain porridge and nothing else, except water
AppleOrchard
in
Thyroid UK
4 months ago
Looking for help :(
Diagnosed with hashimotos. I’ve had a few ongoing issues and symptoms and they’re getting worse. My endo didn’t believe it was thyroid related or pcos related but arranged for other tests like ACTH, RF etc. He also stated at this point they were discharging me as there’s nothing more they can help with
Diagnosed with hashimotos. I’ve had a few ongoing issues and symptoms and they’re getting worse. My endo didn’t believe it was thyroid related or pcos related but arranged for other tests like ACTH, RF etc. He also stated at this point they were discharging me as there’s nothing more they can help with
Shymxo
in
Thyroid UK
4 months ago
Adrenal tumour - anyone here with experience with it?
Hey everyone, My aldosterone levels are very elevated at 409 (range up to 190). I'm waiting for the adrenal MRI. My endo said he's suspecting adrenal adenoma since my ACTH was low, blood cortisol high, unable to raise thyroid meds or raising and having symptoms. Anyone here diagnosed with it or know
Hey everyone, My aldosterone levels are very elevated at 409 (range up to 190). I'm waiting for the adrenal MRI. My endo said he's suspecting adrenal adenoma since my ACTH was low, blood cortisol high, unable to raise thyroid meds or raising and having symptoms. Anyone here diagnosed with it or know
Incoguto
in
Thyroid UK
6 months ago
Need encouragement :(
Hey all, I'm in a pit 🙃 since November haven't been able to go to the shop, I manage some walks around the block and do my kettlebells in the morning. My main issue is fatigue, dizziness, dehydration (lowish sodium). I also get hypo symptoms like water retention, I'm 9 kgs overweight, my hair is
Hey all, I'm in a pit 🙃 since November haven't been able to go to the shop, I manage some walks around the block and do my kettlebells in the morning. My main issue is fatigue, dizziness, dehydration (lowish sodium). I also get hypo symptoms like water retention, I'm 9 kgs overweight, my hair is
Incoguto
in
Thyroid UK
6 months ago
Another update on potential meds intolerance
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Incoguto
in
Thyroid UK
7 months ago
Androstenedione & Frailty
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
New study from Spain [1]. For many years, I used a product that probably contained DES (diethylstilbestrol) - perhaps 1 mg? My QoL was very good. When I eventually migrated to 3 mg DES - plus a shot of testosterone cypionate every 3 months - I began to feel frail. The new study associates high
pca2004
in
Fight Prostate Cancer
9 months ago
Hashimoto treatment
Hi everyone! First of all, sorry for the long post. I just got diagnosed with Hashimoto. I'm having most of hypothyroid symptoms but doctor will not give me medication as my recent blood test showed everything is still in the normal ranges. It's frustrating cause I don't know how to cope with my
Hi everyone! First of all, sorry for the long post. I just got diagnosed with Hashimoto. I'm having most of hypothyroid symptoms but doctor will not give me medication as my recent blood test showed everything is still in the normal ranges. It's frustrating cause I don't know how to cope with my
Littlemitten
in
Thyroid UK
9 months ago
Endocrinologist wants me to taper faster
Hi everyone, I just had my first appointment with an endo, and she agrees with my two rheumies in that I do *not* have PMR. When I described my intermittent muscle aches and tenderness to her (thighs and shoulders), she insisted this was the result of being on pred for so long. She said it was steroid
Hi everyone, I just had my first appointment with an endo, and she agrees with my two rheumies in that I do *not* have PMR. When I described my intermittent muscle aches and tenderness to her (thighs and shoulders), she insisted this was the result of being on pred for so long. She said it was steroid
sferios
in
PMRGCAuk
10 months ago
My first endocrinologist visit
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
Hi everyone, On the 27th I have my first appointment with an endo. He ordered blood tests for me before he even spoke to me or knew what dose of pred I was taking. (I'm taking 7 mg a day now. Was doing 6.5 for a week but decided better to go back to 7 and stay for a while as I was feeling so bad with
sferios
in
PMRGCAuk
10 months ago
symptomatic bm’s
Hi, I was diagnosed with secondary hypoadrenalism in 2018 by an endo. The ACTH was borderline and there was a flat response to the glucagon test. In the same year I paid for a saliva test which showed the level of cortisol to be ok. So I only have to take oral hydrocortisone if I’m having surgery, in
Hi, I was diagnosed with secondary hypoadrenalism in 2018 by an endo. The ACTH was borderline and there was a flat response to the glucagon test. In the same year I paid for a saliva test which showed the level of cortisol to be ok. So I only have to take oral hydrocortisone if I’m having surgery, in
19aglow49
in
Thyroid UK
11 months ago
Low Estradiol and low Iron - is it Thyroid?
Hi all, I have been on 2.375 grains of Armour and 2.5 T3 since May and my results are: Ft4 33% Ft3 75% 24 hours after meds since Armour is slower release. I don't tolerate Armour in its own, tried everything from 3 to 2.25 grains. Iron 49 (50-180) Estradiol 12 (21-280) checked 4th day of cycle FSH
Hi all, I have been on 2.375 grains of Armour and 2.5 T3 since May and my results are: Ft4 33% Ft3 75% 24 hours after meds since Armour is slower release. I don't tolerate Armour in its own, tried everything from 3 to 2.25 grains. Iron 49 (50-180) Estradiol 12 (21-280) checked 4th day of cycle FSH
Incoguto
in
Thyroid UK
11 months ago
please help . Severe extreme weight gain fat on legs since t3
please I read 2 other ladies had this I have had this and it’s now beyond comprehension This is what I find is t3 is metabolically better than before could my body be compensating with extreme fat storage . Makes no sense My face has completely changed shape to round and puffy too ACTH was on
please I read 2 other ladies had this I have had this and it’s now beyond comprehension This is what I find is t3 is metabolically better than before could my body be compensating with extreme fat storage . Makes no sense My face has completely changed shape to round and puffy too ACTH was on
Chouchou1234
in
Thyroid UK
11 months ago
Cortisol testing
Morning team :) I have very low cortisol. Had the saliva test last year and the 9am blood test. Wondering this year which is the best all round test to do. Is the urine test the most accurate in peoples opinions and experiences? I have according to Medichecks, adrenal gland dysfunction. I have had
Morning team :) I have very low cortisol. Had the saliva test last year and the 9am blood test. Wondering this year which is the best all round test to do. Is the urine test the most accurate in peoples opinions and experiences? I have according to Medichecks, adrenal gland dysfunction. I have had
smilingjane
in
Thyroid UK
1 year ago
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