please I read 2 other ladies had this
I have had this and it’s now beyond comprehension
This is what I find is t3 is metabolically better than before could my body be compensating with extreme fat storage . Makes no sense
My face has completely changed shape to round and puffy too
ACTH was on the low side but cortisol was normal
I’m beside myself
Thank you
You need to get some tests done - and share them here if you want good advice. You may not have found your proper "optimal" balance of hormones. Rapid weight gain leading to swollen fat legs or face, if you are hypothyroid, may not be fat but is MUCIN. I had terrible swollen painful legs and feet for years until I got better medicated . Then the "fat" - actually trapped fluid - fell off. Still not perfect but at times I can see the bones of my feet and ankles again.
I have copied this from another website
Hypothyroidism was originally referred to as myxoedema or myxedema — myx meaning “mucus” or “slimy substance” and edema meaning “swelling.” We commonly refer to swelling of the legs, feet, arms, or hands peripheral edema. High thyroid TSH levels were found to be significantly associated with painless bilateral limb swelling. Peripheral edema is the technical term that refers to swelling of your legs and feet, but also swelling of your arms and hands.
Myxoedema is primarily the result of a buildup of mucin (also called glycosaminoglycans or GAGs), which form the extracellular matrix that fills the spaces between tissues in the body. Mucin is a spongelike jelly that holds our organs and tissues in place and protects them against compression.
Hypothyroidism causes a rapid accumulation of mucin, which causes the swelling, stiffness, weakness, and pain. This swelling may occur in the legs and feet, arms and hands, belly, or face. It results in thick, rubbery skin that you can’t pinch and lift like normal skin. And it doesn’t push in easily when you poke it with your finger. Left untreated, hypothyroidism leads to systemic swelling, and the entire body can become waxy, pale, cold, and doughy with thick, dry, swollen skin.
Swelling that affects the nerves results in numbness, tingling, and impaired reflexes.
The weight gain associated with hypothyroidism is a combination of slowed metabolism and water retention due to the buildup of mucin. Eating less and exercising more may help with the weight gain from a slower metabolism, but it will do little or nothing for the weight gain associated with mucin buildup. In fact, most of the weight loss that patients experience after being successfully treated for hypothyroidism is due to the excretion of excess water stored in mucin.
Thank you . But the point is I didn’t have this bad over a year ago before T3 . My whole body is swollen . Legs are trunks so makes no sense if my t3 was 2.1 then and now 5 . But I am bigger now.
Thank you for the information.
Sorry to bother you.
It's the balance of everything that needs to be right for you. T4, T3, vitamins, iron status, gluten, absorption - whichever, there are many factors. It's taken me years to get functioning and then improved. If your T3 number is good, what about everything else?But legs like trunks? sounds like mine were - mucin! And when it went it was quick (I didn't understand why I was going to the toilet constantly) and within a couple of weeks people commented "what's happened to your legs?"
My suggestion: don't just focus on the T3 number, try to look at everything, and get into balance. You will get some real wisdom from experience on this forum.
But start with a fresh set of full blood tests.
Do you have recent test results
Only test at least 6-8 weeks after being on constant unchanging dose and brand levothyroxine/T3
Which brand levothyroxine and which brand T3
What dose
What time do you take your levothyroxine
What times do you take T3
What vitamin supplements are you taking
Add vitamin D, folate, ferritin and B12 results
Do you have Hashimoto’s
Are you strictly gluten free and/or dairy free
And soya free
Have you see lipodema specialist
30% of lipodema patients are hypothyroid
Thank you
I still don’t understand why my TSH was 0.02 and t3 2.1 (4.1 to 6.8) - If inwas hypo wouldn’t the tsh be higher? That’s why no one ever tested t3 .
Could I have leptin resistance? Endo refused to test leptin as I was 48 kilos before . Leg fat has dramatically increased - iam 2 people like bones at the top .
Last test
T3 5 (4.1 to 6.8)
T4 19.2 at 6am and 10t3 then t3 spaced through the day . Teva t4 -and Roma
On 30t3 and 125 mcg t4
Weight 50kg but body composition changed completely
Vitamin D 70 - dropped
B12 1272
Ferritin 60
Gluten free was diary free for years until a month ago and started yogurt but given that up again.
No hashimoto tested 2022
Walk about 6,000 steps a day and in bed most of the day - BUT the weight gain has been dramatic on legs as didn’t have this before xx even with doing much less before
Thank you
Seeing gastro tomorrow
Liver ALP is very very high suggesting high bone turnover which is thyroid . Makes no sense
lastly - after I take t3 - I have energy to move and do stuff. Just where is this energy coming from?
Also I have lost a lot of muscle but got fatter.
Doesn’t the body do something to compensate like save fat as I have got tons more energy than I used to ( I use be in bed 23.5 hours a day. I just walked to kitxhen back and crawled to bathroom when t3 was 2.1 . (For years )
Mercury results waiting - but head toxicologist said it doesn’t down regulate thyroid
Leg fat has dramatically increased - iam 2 people like bones at the top .
Look at getting assessed for lipodema
50 kilo is only 7st 12lbs
You could be on too high a dose of levothyroxine and T3
Being over medicated can cause hypo type symptoms
That’s what I thought .
My results on t4 ONLY
T3 2.1 TSH 0.02 and T4 20.2
adding the t3 at 25mcg t3 it came back at 4.6 so I don’t know.
The results are what they are . I am so confused .
I am not sure the evening doses are absorbed properly .
Thank you again
I
so doesn’t look like over medicated
Perhaps looks like poor absorption in gut
Your soya free as well?
Have you been assessed for SIBO and/or H Pylori
comprehensive article on malabsorption
academic.oup.com/edrv/artic...
How long have you been taking Roma T3
Roma Doesn’t suit some people
Could try Teva T3 20mcg tablets
Sounds like it may be lipedema. You need to find a specialist who understands this disease.
Good luck
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