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Experiences with
Actemra
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temporal arteritis for two years now
I started weekly
Actemra
injections and they seem to be helping, but they give me such sores in my mouth, toungue, and throat. They also destroy my stomach and intestines. I'm at my whit's end now. My insides are shaking on 40 mg prednisone and I will reduce to 35 tomorrow.
I started weekly
Actemra
injections and they seem to be helping, but they give me such sores in my mouth, toungue, and throat. They also destroy my stomach and intestines. I'm at my whit's end now. My insides are shaking on 40 mg prednisone and I will reduce to 35 tomorrow.
lcove
in
PMRGCAuk
6 years ago
Actemra
Actemra
has been really keeping my pain tolerable, however I needed a crown and was advised to discontinue my weekly shot two weeks prior to procedure. That was on February 26. I’m still off because the crown is not back from lab. I’m struggling severely with pain the last two days.
Actemra
has been really keeping my pain tolerable, however I needed a crown and was advised to discontinue my weekly shot two weeks prior to procedure. That was on February 26. I’m still off because the crown is not back from lab. I’m struggling severely with pain the last two days.
Leeleep
in
PMRGCAuk
6 years ago
Salumibab
He then was looking at the plan to put me on
Actemra
, and said that this other new drug called Salumibab was actually having better results than
Actemra
, and he would be putting me on it shortly. Has anyone any experience with thus drug?
He then was looking at the plan to put me on
Actemra
, and said that this other new drug called Salumibab was actually having better results than
Actemra
, and he would be putting me on it shortly. Has anyone any experience with thus drug?
venezia1
in
PMRGCAuk
6 years ago
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Actemra Update
Things were going so well with the
Actemra
. A headache one day a week I was handling. Why have things gone so wrong????? I have been back on preds for the last week. No
Actemra
until next week and I come off preds again. My body was itching all over and I came out in a rash.
Things were going so well with the
Actemra
. A headache one day a week I was handling. Why have things gone so wrong????? I have been back on preds for the last week. No
Actemra
until next week and I come off preds again. My body was itching all over and I came out in a rash.
shazstep
in
PMRGCAuk
6 years ago
PolyBursitis Rheumatica & Bacon Sandwiches
The
Actemra
is probably the culprit, I can't imagine such a low dose of RAYOS is effecting me? What is interesting is my glucose is not affected like it was in the early days of PMR and higher doses of RAYOS. I am not sure, waiting to hear from my doctor to see what she has to say.
The
Actemra
is probably the culprit, I can't imagine such a low dose of RAYOS is effecting me? What is interesting is my glucose is not affected like it was in the early days of PMR and higher doses of RAYOS. I am not sure, waiting to hear from my doctor to see what she has to say.
Marie1479
in
PMRGCAuk
6 years ago
Things are looking up
Actemra
was also given as an option. again I don't know. Any thoughts? I so appreciate every post and you good humor.
Actemra
was also given as an option. again I don't know. Any thoughts? I so appreciate every post and you good humor.
mngirl
in
PMRGCAuk
6 years ago
I'll Have What She's Having...
ACTEMRA
for GCA - https://www.actemra.com/content/dam/gene/
actemra
/gca/pdfs/
actemra
-gca-awareness_brochure.pdf
ACTEMRA
for GCA - https://www.actemra.com/content/dam/gene/
actemra
/gca/pdfs/
actemra
-gca-awareness_brochure.pdf
Hidden
in
PMRGCAuk
6 years ago
Actemra side effects
Not sure if I am suffering side effects from
Actemra
. The last few days I have been itchy all over the body, also had symptoms similar to coming down with the flu. I saw a gp this morning and he said it was an allergy and no injection until I feel better.
Not sure if I am suffering side effects from
Actemra
. The last few days I have been itchy all over the body, also had symptoms similar to coming down with the flu. I saw a gp this morning and he said it was an allergy and no injection until I feel better.
shazstep
in
PMRGCAuk
6 years ago
Actemra Update
I have noticed just one side effect with the
Actemra
. I have my injections Tuesday lunch time and each Thursday I am having a bad headache. I can cope with feeling unwell one day out of 7. I might end up penniless but at least I feel so much better. My blood test last week was my best one yet.
I have noticed just one side effect with the
Actemra
. I have my injections Tuesday lunch time and each Thursday I am having a bad headache. I can cope with feeling unwell one day out of 7. I might end up penniless but at least I feel so much better. My blood test last week was my best one yet.
shazstep
in
PMRGCAuk
6 years ago
3rd injection of ACTEMRA
So far I don’t see any difference in pain level. Noticed small sores in my mouth a lip feels a little swollen has anyone else Experienced this?
So far I don’t see any difference in pain level. Noticed small sores in my mouth a lip feels a little swollen has anyone else Experienced this?
mpl615
in
PMRGCAuk
6 years ago
For the moment, Prednisone free!
Mom continues to receive the
Actemra
infusions every month, and at this point we are all unsure as to when those will be discontinued, if at all. All of Moms blood work is normal at this point. It is still so early only being 7 days away from the Prednisone, but she seems to be doing very well.
Mom continues to receive the
Actemra
infusions every month, and at this point we are all unsure as to when those will be discontinued, if at all. All of Moms blood work is normal at this point. It is still so early only being 7 days away from the Prednisone, but she seems to be doing very well.
Joyismami
in
PMRGCAuk
6 years ago
New to GCA at age 50
-or the
Actemra
bills will ruin me first.
-or the
Actemra
bills will ruin me first.
Hidden
in
PMRGCAuk
6 years ago
Update to 2:00 AM inflammation and new rheumy
“Your bloods are fine, reduce to 20, there are other drugs if this doesn’t work,
Actemra
).” I SO don’t want to have to fight about symptoms, reducing, being heard and listened to again!
“Your bloods are fine, reduce to 20, there are other drugs if this doesn’t work,
Actemra
).” I SO don’t want to have to fight about symptoms, reducing, being heard and listened to again!
Mstiles
in
PMRGCAuk
6 years ago
NEW to this site
Started
Actemra
injection last Friday is any else on this drug for the treatment of PMR? How is it working for you? any side effects? I also suffer from IBS and had a flair up a couple of days after taking the drug.
Started
Actemra
injection last Friday is any else on this drug for the treatment of PMR? How is it working for you? any side effects? I also suffer from IBS and had a flair up a couple of days after taking the drug.
mpl615
in
PMRGCAuk
6 years ago
Severe muscle pain strains sprains and weakness
I could also try going to
Actemra
Every two weeks. I need to do something fast I am becoming crippled. Thank you. Marilyn
I could also try going to
Actemra
Every two weeks. I need to do something fast I am becoming crippled. Thank you. Marilyn
Nap1
in
PMRGCAuk
7 years ago
The beauty of the right treatment
I just wanted to share a picture of my Easter cake. I made this at my sugarcraft class last night. The reason I'm sharing isn't just because I'm proud but because 6 months ago I couldn't even walk,dress or wash myself. After starting treatment with RoActemra I now have the use of my hands back. Loving
I just wanted to share a picture of my Easter cake. I made this at my sugarcraft class last night. The reason I'm sharing isn't just because I'm proud but because 6 months ago I couldn't even walk,dress or wash myself. After starting treatment with RoActemra I now have the use of my hands back. Loving
Hidden
in
NRAS
6 years ago
Biologics Differ in Safety Risks - Infection risks higher for Tocilizumab (aka Actemra)
Hmmmmmmm? https://www.medpagetoday.com/rheumatology/arthritis/72107
Hmmmmmmm? https://www.medpagetoday.com/rheumatology/arthritis/72107
Hidden
in
PMRGCAuk
6 years ago
Methotrexate for GCA
Maybe I should have tried the
actemra
.
Maybe I should have tried the
actemra
.
bonnielm1
in
PMRGCAuk
7 years ago
Another detour
By the way
Actemra
is going well. No side effects, feel better (aside from the thyroid!) and tapering.
By the way
Actemra
is going well. No side effects, feel better (aside from the thyroid!) and tapering.
PMR2011
in
PMRGCAuk
7 years ago
Weight gain on Tocilizumab / Actemra
I'm also on Tocilizumab (
actemra
) and I've saw a few people complain about the weight gain. Has anyone got any tips at all? P.s. as you will see from my profile photo I am not overweight.. maybe according to the BMI chart but im not carrying much extra weight at all.
I'm also on Tocilizumab (
actemra
) and I've saw a few people complain about the weight gain. Has anyone got any tips at all? P.s. as you will see from my profile photo I am not overweight.. maybe according to the BMI chart but im not carrying much extra weight at all.
AmyDee207
in
NRAS
7 years ago
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