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Anyone else on Actemra for PMR?
After two and a half years of trying to reduce pred doseage for PRM (I’m 72 and have osteoporosis) my rheumatologist got me approved for
Actemra
. Before adding
Actemra
, I couldn’t get below 10 mg pred daily (along with weekly methotrdxate) without a flare.
After two and a half years of trying to reduce pred doseage for PRM (I’m 72 and have osteoporosis) my rheumatologist got me approved for
Actemra
. Before adding
Actemra
, I couldn’t get below 10 mg pred daily (along with weekly methotrdxate) without a flare.
Terry615
in
PMRGCAuk
7 years ago
Cortisol and adrenals Pro where are you
Rheumatologist wants me to continue the
Actemra
and continue to reduce the prednisone. I no longer know what to do. HELP.
Rheumatologist wants me to continue the
Actemra
and continue to reduce the prednisone. I no longer know what to do. HELP.
Nap1
in
PMRGCAuk
7 years ago
23 with RA and osteoarthritis - help!
I've been on many medications over the years, methotrexate, sulphasalazine, humira, cimzia,
actemra
. More recently I have had significant joint damage to my knee, jaws, and elbow. my RA is now causing osteoarthritis but at only 23 this is very daunting.
I've been on many medications over the years, methotrexate, sulphasalazine, humira, cimzia,
actemra
. More recently I have had significant joint damage to my knee, jaws, and elbow. my RA is now causing osteoarthritis but at only 23 this is very daunting.
AmyDee207
in
NRAS
7 years ago
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side effects of actemra
I need to find out if others who have taken
Actemra
to reduce Prednisone dosage have had any side effects from this drug? I have read of some pretty significant side effects and am trying to determine is pros and cons of this drug. thanks, Pam
I need to find out if others who have taken
Actemra
to reduce Prednisone dosage have had any side effects from this drug? I have read of some pretty significant side effects and am trying to determine is pros and cons of this drug. thanks, Pam
phopmann
in
Pernicious Anaemia Society
7 years ago
Rising blood sugars
I have just begun, five weeks ago, on my second biologic having failed on all DMards and Benepali. Now on RoActemra. My latest HbA1C has risen considerably. I am a Type 2 Diabetic, well controlled on tablets for many years. As I have not changed diet or anything else I wonder if it is a side effect
I have just begun, five weeks ago, on my second biologic having failed on all DMards and Benepali. Now on RoActemra. My latest HbA1C has risen considerably. I am a Type 2 Diabetic, well controlled on tablets for many years. As I have not changed diet or anything else I wonder if it is a side effect
Pat9442
in
NRAS
6 years ago
GCA and Actemra
On prednisone and
Actemra
. Lots of questions
On prednisone and
Actemra
. Lots of questions
EA43
in
PMRGCAuk
7 years ago
PMR where are you?
She advised me to stay at my current dose of Rayos for 2 months along with
Actemra
. 2 days after the shot all the inflammation gone. As the days progressed I felt better and better. This is the first time I have absolutely no feeling of PMR. I feel 100% normal.
She advised me to stay at my current dose of Rayos for 2 months along with
Actemra
. 2 days after the shot all the inflammation gone. As the days progressed I felt better and better. This is the first time I have absolutely no feeling of PMR. I feel 100% normal.
Marie1479
in
PMRGCAuk
7 years ago
Low adrenal function at 6.5
It now gets confusing because I am still taking a shot of
Actemra
once a week.
It now gets confusing because I am still taking a shot of
Actemra
once a week.
Nap1
in
PMRGCAuk
7 years ago
Actemra
I wanted to report about my
Actemra
treatment and how I feel after three weeks. I took my first injection on December 21, 2017 for GCA and felt already much less fatigued the next morning. After six days my chronic cough disappeared.
I wanted to report about my
Actemra
treatment and how I feel after three weeks. I took my first injection on December 21, 2017 for GCA and felt already much less fatigued the next morning. After six days my chronic cough disappeared.
Akino
in
PMRGCAuk
7 years ago
Dosing Prednisone at end.
Still have PMR but also on
Actemra
. All that I eat has a slimy Vaseline taste from the thrush, went to infectious dis doc and he had me on 100 mgs Diflucan s day. A week of taking snd still no relief snd concerned that it might hurt my liver because of being on
Actemra
. Labs will show.
Still have PMR but also on
Actemra
. All that I eat has a slimy Vaseline taste from the thrush, went to infectious dis doc and he had me on 100 mgs Diflucan s day. A week of taking snd still no relief snd concerned that it might hurt my liver because of being on
Actemra
. Labs will show.
Leeleep
in
PMRGCAuk
7 years ago
Websites - useful stuff, articles, resources
Articles on Tocilizumab (
Actemra
) https://www.nice.org.uk/guidance/TA518 An Efficacy and Safety Study of Tocilizumab (RoActemra/
Actemra
) in Participants with Giant Cell Arteritis (GCA) https://clinicaltrials.gov/ct2/show/results/NCT01791153?
Articles on Tocilizumab (
Actemra
) https://www.nice.org.uk/guidance/TA518 An Efficacy and Safety Study of Tocilizumab (RoActemra/
Actemra
) in Participants with Giant Cell Arteritis (GCA) https://clinicaltrials.gov/ct2/show/results/NCT01791153?
Insight329
in
PMRGCAuk
7 years ago
Depo Medrol shot for Flare
Hi everyone, I am on
Actemra
for PMR. I am also currently on 4mg of Rayos (time released Prednisone). I recently had a flare because I reduced too quickly. Completely my fault as I was feeling so great. The drop to 3mg was too fast and against Dr orders (and the Aunties).
Hi everyone, I am on
Actemra
for PMR. I am also currently on 4mg of Rayos (time released Prednisone). I recently had a flare because I reduced too quickly. Completely my fault as I was feeling so great. The drop to 3mg was too fast and against Dr orders (and the Aunties).
Marie1479
in
PMRGCAuk
7 years ago
Swollen glands
Hi Have been on roactemra for 18 months no side effects besides can't lose weight. I have swollen neck glands with 4 months and now swollen gland by collar bone.Has anyone gotten this as a side effect?thanks
Hi Have been on roactemra for 18 months no side effects besides can't lose weight. I have swollen neck glands with 4 months and now swollen gland by collar bone.Has anyone gotten this as a side effect?thanks
Trace1974
in
NRAS
7 years ago
Stopping infusions
I totally realize that there aren’t many of you with GCA that are on
actemra
infusions. But I will ask anyhow .... in April it will be two years since I was diagnosed. I began on 60 prednisone and went down to 0 when starting the infusions. I am doing soooo much better.
I totally realize that there aren’t many of you with GCA that are on
actemra
infusions. But I will ask anyhow .... in April it will be two years since I was diagnosed. I began on 60 prednisone and went down to 0 when starting the infusions. I am doing soooo much better.
Buddyk
in
PMRGCAuk
7 years ago
blong
The Dr. has now put me on
Actemra
. I am only on my 2nd shot, so we will see if it works. I suffer from extreme head pressure at times, elevated
BP. I haven't been sleeping very well even with sleeping pills. And the list goes on. I am a Disable Veteran from the Vietnam era.
The Dr. has now put me on
Actemra
. I am only on my 2nd shot, so we will see if it works. I suffer from extreme head pressure at times, elevated
BP. I haven't been sleeping very well even with sleeping pills. And the list goes on. I am a Disable Veteran from the Vietnam era.
blong
in
PMRGCAuk
7 years ago
Actemra (Tocilizumab) tummy problems
My question is for those who are taking
Actemra
...I don't think there are many of us here. I started this a couple of months ago and have found I get bad stomach pains after injecting. Also over the Christmas period I didn't have much appetite.
My question is for those who are taking
Actemra
...I don't think there are many of us here. I started this a couple of months ago and have found I get bad stomach pains after injecting. Also over the Christmas period I didn't have much appetite.
Hidden
in
NRAS
7 years ago
Actemra
I do have a question: Did anyone ever used
Actemra
as the one and only drug for GCA and if so, how were the results? And still I'd like to know if anyone in Canada got
Actemra
financed by Pharmacare? Thank you and I hope you have a great time with the people who are most important to you!
I do have a question: Did anyone ever used
Actemra
as the one and only drug for GCA and if so, how were the results? And still I'd like to know if anyone in Canada got
Actemra
financed by Pharmacare? Thank you and I hope you have a great time with the people who are most important to you!
Akino
in
PMRGCAuk
7 years ago
Actemra Adrenals Fatigue at 7 . 5
Some advice please I am finally down to 7.5,after 13 weeks of
Actemra
, very tired entire body hurts. Some reactions from
Actemra
are very high cholesterol and strange blood pressure readings. I have had muscle weakness for a very long time but this fatigue is not just muscles.
Some advice please I am finally down to 7.5,after 13 weeks of
Actemra
, very tired entire body hurts. Some reactions from
Actemra
are very high cholesterol and strange blood pressure readings. I have had muscle weakness for a very long time but this fatigue is not just muscles.
Nap1
in
PMRGCAuk
7 years ago
Sharing...
token=AWx4s9yn-DXD0c87b36w9Pmw7TjXQDrRFrq6vTkdjd7MCqpyQ0H_YVtq7IYriqyYZjjaN2C7rngsjlKKpjF- On another note, I made the decision today to start
Actemra
. After 3 flares and unable to get below 20mg Pred I decided it was time.
token=AWx4s9yn-DXD0c87b36w9Pmw7TjXQDrRFrq6vTkdjd7MCqpyQ0H_YVtq7IYriqyYZjjaN2C7rngsjlKKpjF- On another note, I made the decision today to start
Actemra
. After 3 flares and unable to get below 20mg Pred I decided it was time.
PMR2011
in
PMRGCAuk
7 years ago
Club zero getting closer - My Actemra story continues
I’m currently flip flopping between 3mg and 4mg of Rayos (time released Prednisone) and my weekly
Actemra
shots. The day before my shot I used to feel horrible now that has passed. I see my doctor in 3 weeks in which I should be flipping between 2mg & 3mg.
I’m currently flip flopping between 3mg and 4mg of Rayos (time released Prednisone) and my weekly
Actemra
shots. The day before my shot I used to feel horrible now that has passed. I see my doctor in 3 weeks in which I should be flipping between 2mg & 3mg.
Marie1479
in
PMRGCAuk
7 years ago
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