Experiences with

Aclasta

I had an ACLASTA infusion for osteoporosis on the advice of my rheumatologist on 24th January & now have a flare affecting my intercostal muscles & buttocks & am unable to walk or cough.

I have osteoporosis, had a dexa scan going on for two years ago, and because I am rather uncertain if I should agree to another yearly dose of aclasta, (Have had one), I would like to know how my bones are doing.

I have had one infusion of Aclasta, due to have another one but feeling dubious about it. In Professor Dasgupta's webinar last year , I have written down that he said there is no need to take supplements, and he encourages a good intake of calcium naturally, i.e. through dairy etc.

He has arranged for an infusion of Aclasta and an infusion nurse will call me on the 11th May to explain the procedure further.

I was diagnosed with atypical PMR in April 2019, a couple of months after symptoms first appeared, which was a few weeks after getting an infusion of Aclasta (zolodronic acid) for osteoporosis .

Neither of the GPs I've seen thinks Aclasta is a good idea due to the bad allergic reaction I had to Prolia after the 4th injection as the Aclasta infusion would be in my system for a year and there would be nothing I could do to control side effects if they occurred.

This is my 4th day following zolendronic acid infusion and I thought I would share how this has been for me. I was very resistant to having further treatment having stopped taking alendronic acid due to side effects. However, after recent DEXA scan showed fracture in T9 and after much discussion I

The suggestion for treatment are Prolia or Aclasta because of my acid reflux, has anyone any experience with the products. I’m a seventy five year old male. This is a great forum and proved essential with information when reducing prednisone and Coping with flares

I suffered a vertebral crush fracture in 2016 and I was on Forteo for a year, and have received once yearly IV infusions of Aclasta for the past two years. My bone density has improved.

All the medicines (prolia/teriparatide/ Aclasta) works works magically to increase bone density in AP spine but not the hips. Can Biphosphonates like Reclast or Aclasta be taken for more than 3 years?

Which is the better option for biphosphonates treatment 1) Alendronae (Fosammax) or Zolendronic Acid (Aclasta)? Is the effects of Prolia (denosumab) leave the body quickly and generally disappear after one stops taking them?

Which is the best treatment for post menopausal woman of 78 years : a) Prolia (denosumab injection) or b) Aclasta (zolendronic acid) ? smtkrgsl (son)

I have been using bisphosphonates orally every 4 years ( that would be 5-6 times during 20 years) and after that 5 years ago I had one Aclasta infusion. Can the body get used to them so they lose their efficiency? So in total I would say 7 times in 27 years.

My dentist would not extract it due to the aclasta infusion. The Consultants, nurses etc all quite happy to prescribe these biphosphonates but they don’t inform you of the possible problems with teeth. I was in agony and very depressed waiting for the extraction.

I know this is a different drug but I had a very bad reaction to Aclasta some years ago and am reluctant to put drugs in my body that are there for months. I currently take Vit K2 (MK7 from natto extract) 100mcg daily, Hidroferol (calcifediol) monthly and magnesium.

I have side effects of raised ocular pressure, osteopaenia, cararacts and jaw bone loss due to 1 Aclasta infusion. I am presently on 5 mg prednisone and am experiencing symptoms relating to low cortisone levels.

Having been diagnosed with PMR at the end of 2014, my Rheumatologist prescribed an Aclasta infusion (bone protection) a year ago. The reaction I had to it was horrendous and lasted two days, far worse than the "flu-like" symptoms that had been mentioned.

and I would be interested to hear if anyone has experience of another good drug, I don't want oral bisphosphenates, and was looking at Prolia or Aclasta. Thank you for listening.

I was given intravenous Aclasta 2 years ago without being given full information about side effects (language problem!) and it took me a month to get over it. I am now taking Ideos Unidia - calcium 1000 mg and Vit D 800 Ui - daily.

I'd be very interested how others have got on with IV bisphosphonates...i understand only ibandronate ((bonviva), disodium pamidronate (aredia) & zoledronic acid (aclasta) are given by IV My other issue is chronic osteomyelitis of the upper jaw, which is a long standing antibiotic responsive condition