Experiences with

Acetazolamide

I have been prescribed Acetazolamide for Idiopathic Intracranial Hypertension. I took it once and it made me feel so tingly everywhere all day and I hated it! It was an awful feeling. The doctors says to take a smaller dose but I’m so scared of feeling that again!

Knowing there is no cure I have been prescribed Acetazolamide to try and help with the symptoms. Originally at Salford Manchester a locum neurologist diagnosed me with late onset cerebellar Ataxia and sent me home with no cure and discharged me.

Specific pharmacologic agents include acetazolamide is used for EA2, SCA 6 and varenicline (Chantix®) for SCA 3.7 Bile acid replacement may be tried for CTX.

Since then the hospital have been battling to keep the pressure down while the implant dissolves I had to be on acetazolamide tablets 4 times a day and two different types of drops numerous times a day.

I was wondering if anyone here has tried taking acetazolamide aka diamox for migraines? I was looking at a study where women who took between 125mg and 500mg found relief. A lot of people say it didn't help them, though.

has anyone been prescibed or had 'ACETAZOĹAMIDE'

Hi all I have just come off acetazolamide and spent six weeks going on topirimate.has anyone else been on this medication before? Not really enjoying the side effects ☹️

I am presently taking Synthroid 137mcg, Hydroxychloroquine 200mg twice daily, Acetazolamide 250mg twice daily, Jentodueto 2.5mg/850mg tabs twice daily, Amlodipine-Benazaprine 5/20mg once daily and Potassium Chloride.

I am still on the following meds - steroids, omeprazole, ranitidine, acetazolamide, folic acid and now inject methotrexate 15mg once weekly. I have just had my 3rd course of rutiximab on Tuesday and have been bed bound since with extreme fatigue, blinding headaches and a sore throat and ears.

She is now on a maximum dose of acetazolamide and for 2 weeks she had no episodes but she had an episode of ataxia today. Does anyone have a child with similar symptoms and no diagnosis? We just don't know what the future holds. Thanks everyone, Becs

Hi I have just been put on this for my ataxia. Currently having a very bad (long) episode with terrible dizziness as well as the wobbles. Please can anyone tell me what to expect..how will it help? Thanks!