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Requesting Help to Develop Bespoke BAT
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Fight Prostate Cancer
11 months ago
Requesting Help to Develop Bespoke BAT Protocol
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Advanced Prostate Cancer
11 months ago
Webinar: Charles Bonnet Syndrome
Dr Jasleen K Jolly, from the Vision and Eye Research Institute at Anglia Ruskin University, joins us tonight for our next My Macular and Me webinar to discuss her latest research on Charles Bonnet syndrome. The research has been split into two studies, the first uses an MRI to observe the activity levels
Dr Jasleen K Jolly, from the Vision and Eye Research Institute at Anglia Ruskin University, joins us tonight for our next My Macular and Me webinar to discuss her latest research on Charles Bonnet syndrome. The research has been split into two studies, the first uses an MRI to observe the activity levels
Carol_MacularSociety
Partner
in
Macular Society
9 months ago
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has anyone been told they are unsuitable for transplant ?
I have cirrhosis and was last June diagnosed with liver cancer, HCC , fortunately I have received TACE treatment which is as I’ve been told , a treatment not a cure, fortunately I have so far been responding well to treatment, at the beginning I saw an oncologist in Harley Street who said if
I have cirrhosis and was last June diagnosed with liver cancer, HCC , fortunately I have received TACE treatment which is as I’ve been told , a treatment not a cure, fortunately I have so far been responding well to treatment, at the beginning I saw an oncologist in Harley Street who said if
Willow1950
in
British Liver Trust
1 year ago
Need an Advise and Info on Very Experienced Doctors and Centers to do Proton Treatment of the Prostate in Oligometastatic Setting
I have oligometastatic prostate cancer (I have very detailed profile if someone has time). PSA picked in 2020 at 13,000+ ng/mL and recent on the 1st of May 2023 it was 0.07 ng/mL. I have some of the cancer that is FDG+ and PSMA-. I'm hormone sensitive. After the treatments that you can see listed
I have oligometastatic prostate cancer (I have very detailed profile if someone has time). PSA picked in 2020 at 13,000+ ng/mL and recent on the 1st of May 2023 it was 0.07 ng/mL. I have some of the cancer that is FDG+ and PSMA-. I'm hormone sensitive. After the treatments that you can see listed
CurrentSEO
in
Advanced Prostate Cancer
1 year ago
#1: The Start
Following the example of Clarebear I've decided to document my thyroid-adrenal journey on here in hopes it'll keep me accountable, and also may serve some after me. After a long, complicated history of no diagnosis, followed by lithium treatment, then prolonged time spent on T4 with no improvement,
Following the example of Clarebear I've decided to document my thyroid-adrenal journey on here in hopes it'll keep me accountable, and also may serve some after me. After a long, complicated history of no diagnosis, followed by lithium treatment, then prolonged time spent on T4 with no improvement,
Hidden
in
Thyroid UK
1 year ago
preservatives in B12
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
I have been reacting to subcutaneous SI and looking at what is in Panpharma B12 there is acetic acid sodium chloride sodium acetate. This is hydro. I have bought a lot of these and worry first if I can’t use them and secondly if all have this in them. Any advice please?
smg1950
in
Pernicious Anaemia Society
11 months ago
Astaxanthin
Apologies for the offtopic but I thought this was an interesting anti-oxidant supplement although only preliminary research has been carried out on it as yet. It seems to have potential as a very powerful antioxidant but too much anti-oxidants can also be a bad thing (based on vitamin E and beta-carotene
Apologies for the offtopic but I thought this was an interesting anti-oxidant supplement although only preliminary research has been carried out on it as yet. It seems to have potential as a very powerful antioxidant but too much anti-oxidants can also be a bad thing (based on vitamin E and beta-carotene
Technoid
in
Pernicious Anaemia Society
11 months ago
acne from anemia
hi everyone I’ve just been diagnosed with pernicious anemia, I’ve just had the first 6 injections over two weeks and ever since my last one I’ve developed acne which I’ve never had. Any help would be appreciated Thanks
hi everyone I’ve just been diagnosed with pernicious anemia, I’ve just had the first 6 injections over two weeks and ever since my last one I’ve developed acne which I’ve never had. Any help would be appreciated Thanks
Becca2023
in
Pernicious Anaemia Society
1 year ago
thank you
I would like to thank all of you for your comments and replying to my post, it is such a reassurance to chat with others and their experiences , I had only 1 tumour measuring 3 and a half centimetres , which since the 1 TACE treatment has shrunk on each occasion I have had the 2 scans , I also went
I would like to thank all of you for your comments and replying to my post, it is such a reassurance to chat with others and their experiences , I had only 1 tumour measuring 3 and a half centimetres , which since the 1 TACE treatment has shrunk on each occasion I have had the 2 scans , I also went
Willow1950
in
British Liver Trust
1 year ago
liver transplant , I have cirrhosis and liver cancer but when I spoke to the specialist he said I would not be eligible for a transplant, I
I was told by a Harley street Consultant, my best way of a cure was a liver transplant, I have been diagnosed with HCC cancer along with portal vein and cirrhosis , I feel very fit and well and when seeing the specialists they thought I was a lot younger than my 73 years But it seems my age is an
I was told by a Harley street Consultant, my best way of a cure was a liver transplant, I have been diagnosed with HCC cancer along with portal vein and cirrhosis , I feel very fit and well and when seeing the specialists they thought I was a lot younger than my 73 years But it seems my age is an
Willow1950
in
British Liver Trust
1 year ago
Help! Palpitations on 1.5 grains NDT
I'm very conscious of my heart and am having annoying ectopic beats - these are old foes and I had them for years; they went away when I was put on a maximum dose of
ace
inhibitors
(I'm now taking ARB's).
I'm very conscious of my heart and am having annoying ectopic beats - these are old foes and I had them for years; they went away when I was put on a maximum dose of
ace
inhibitors
(I'm now taking ARB's).
Piranesi55
in
Thyroid UK
2 years ago
Webinar: Pegcetacoplan for Dry AMD
The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar. Pegcetacoplan, which will be known as Syfovre, was approved for use in the US in February to treat patients with late-stage dry AMD – often referred to as geographic atrophy
The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar. Pegcetacoplan, which will be known as Syfovre, was approved for use in the US in February to treat patients with late-stage dry AMD – often referred to as geographic atrophy
Carol_MacularSociety
Partner
in
Macular Society
1 year ago
TACE treatment and hair loss
I received TACE treatment for my liver cancer after being diagnosed last June , the treatment was in August , fortunately it was a great success and has killed off the cancer and shrunk the tumour , I have one question though, does anyone still suffer hair lose after 5/6 mths ?? Not patches , just thinning
I received TACE treatment for my liver cancer after being diagnosed last June , the treatment was in August , fortunately it was a great success and has killed off the cancer and shrunk the tumour , I have one question though, does anyone still suffer hair lose after 5/6 mths ?? Not patches , just thinning
Willow1950
in
British Liver Trust
1 year ago
some good news
I was diagnosed with liver cancer with 2 tumours, one measuring 3 1/2 cm, in June of last year. The oncologists said I would do well to have two years but with a treatment called TACE I am now cancer free. I do have cirrhosis which they say is the reason that I have the liver cancer, I also have varises
I was diagnosed with liver cancer with 2 tumours, one measuring 3 1/2 cm, in June of last year. The oncologists said I would do well to have two years but with a treatment called TACE I am now cancer free. I do have cirrhosis which they say is the reason that I have the liver cancer, I also have varises
Willow1950
in
British Liver Trust
1 year ago
Webinar: Charles Bonnet Syndrome Research
Our second My Macular and Me webinar of the month will welcome researchers from the Royal Holloway University of London who will discuss their latest research on Charles Bonnet Syndrome (CBS). Professor Robin Walker and his team are the first to study the effectiveness of recommended techniques to manage
Our second My Macular and Me webinar of the month will welcome researchers from the Royal Holloway University of London who will discuss their latest research on Charles Bonnet Syndrome (CBS). Professor Robin Walker and his team are the first to study the effectiveness of recommended techniques to manage
Carol_MacularSociety
Partner
in
Macular Society
1 year ago
Acne and reflux (worsening) on HCQ
Hi all, I was wondering if anyone has noticed a worsening of acne with HCQ (or alternatively a radically increased sensitivity to sugar)? Also, I’m on omeprazole but having to have so much rennies now too as my reflux is getting much worse. Has anyone else noticed these? I feel I’m going to have
Hi all, I was wondering if anyone has noticed a worsening of acne with HCQ (or alternatively a radically increased sensitivity to sugar)? Also, I’m on omeprazole but having to have so much rennies now too as my reflux is getting much worse. Has anyone else noticed these? I feel I’m going to have
Boo01
in
NRAS
2 years ago
Medication
Am on blood thinners,
ACE
inhibitors
and statins.
Am on blood thinners,
ACE
inhibitors
and statins.
Batty55
in
British Heart Foundation
2 years ago
Statin - Side Effects
It seems to be the same with other drugs like
ace
inhibitors
, beta blockers, etc. And why the endless questions about insurance? Having a heart or other health issue will impact on insurance.
It seems to be the same with other drugs like
ace
inhibitors
, beta blockers, etc. And why the endless questions about insurance? Having a heart or other health issue will impact on insurance.
Heythrop51
in
British Heart Foundation
2 years ago
Advice for self-injecting.
Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes
Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes
DocAJB
in
Pernicious Anaemia Society
1 year ago
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