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Acalabrutinib
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Getting antivirals UK
I’m on
Acalabrutinib
, have had 2 jabs followed by covid infection and a test that was negative for antibodies. I have since had the the 3rd jab too. Obviously with my history I am concerned- and I have been so careful too!!!
I’m on
Acalabrutinib
, have had 2 jabs followed by covid infection and a test that was negative for antibodies. I have since had the the 3rd jab too. Obviously with my history I am concerned- and I have been so careful too!!!
camper2
in
CLL Support
3 years ago
Valneva COVID vaccine
and wondered if anyone knew more about it and whether it would be useful for us immunosuppressed people on the likes of
Acalabrutinib
. Would it be better than Pfizer? Is it approved yet?
and wondered if anyone knew more about it and whether it would be useful for us immunosuppressed people on the likes of
Acalabrutinib
. Would it be better than Pfizer? Is it approved yet?
camper2
in
CLL Support
3 years ago
O & V Treatment - ALC Doubling
It's nice that we have treatment choices here in the UK of either a time framed treatment such as O &V or a long term treatment such as
Acalabrutinib
but more importantly how effective they are. I opted for the 12 month Obi + V course as i'm 51. That's it.
It's nice that we have treatment choices here in the UK of either a time framed treatment such as O &V or a long term treatment such as
Acalabrutinib
but more importantly how effective they are. I opted for the 12 month Obi + V course as i'm 51. That's it.
C0llin
in
CLL Support
3 years ago
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Acalabrutinib Plus Venetoclax and Obinutuzumab Achieves High Bone Marrow uMRD Rate in Chronic Lymphocytic Leukemia - CLL
Acalabrutinib
, venetoclax, and obinutuzumab as frontline treatment for chronic lymphocytic leukaemia: a single-arm, open-label, phase 2 study.
Acalabrutinib
, venetoclax, and obinutuzumab as frontline treatment for chronic lymphocytic leukaemia: a single-arm, open-label, phase 2 study.
AussieNeil
Partner
in
CLL Support
3 years ago
Acalabrutinib and mouth sores
Hi everyone, My wife Gabriella started
Acalabrutinib
for CLL a couple of weeks ago and getting great results (lymph nodes in the neck area almost gone ) and very few side effects ( morning headaches taken of with a cup of coffee, thanks to a post I read ) Very painful mouth sore appeared a couple of
Hi everyone, My wife Gabriella started
Acalabrutinib
for CLL a couple of weeks ago and getting great results (lymph nodes in the neck area almost gone ) and very few side effects ( morning headaches taken of with a cup of coffee, thanks to a post I read ) Very painful mouth sore appeared a couple of
Sergi
in
CLL Support
3 years ago
Side effects of Acalabrutanib
Hi I've recently been diagnosed with CLL (March) and chose to start chemo taking
Acalabrutinib
. After the initial few weeks of nausea things seemed to settle down. My glands went down and my energy levels improved.
Hi I've recently been diagnosed with CLL (March) and chose to start chemo taking
Acalabrutinib
. After the initial few weeks of nausea things seemed to settle down. My glands went down and my energy levels improved.
Tomaljoe69
in
CLL Support
3 years ago
As any one with CLL tried Adaptogenic's mushrooms for stress reduction?
I have been taking
Acalabrutinib
for one month and feel okay, but on edge and reactive to every little upset. Thanks for your input, my friends 🙏🏼
I have been taking
Acalabrutinib
for one month and feel okay, but on edge and reactive to every little upset. Thanks for your input, my friends 🙏🏼
unairdefamille
in
CLL Support
3 years ago
Coughing a lot a lot of mucus.
Hi I’m really suffering on the
acalabrutinib
my bloods are getting better great but every morning I have a really bad chest coughing loads loads of horrible mucus I’ve sent a sample to the doctor I hope it’s going to pass it’s really hard to liv with has anyone else Had this it’s really quite depressing
Hi I’m really suffering on the
acalabrutinib
my bloods are getting better great but every morning I have a really bad chest coughing loads loads of horrible mucus I’ve sent a sample to the doctor I hope it’s going to pass it’s really hard to liv with has anyone else Had this it’s really quite depressing
scottfree
in
CLL Support
3 years ago
Information on chronic lymphocytic leukemia
Starting treatment next week with a infusion of obinutuzumab for 4 hours twice a week then off 28 days will do 6 cycles and start taking
acalabrutinib
twice a day for the rest of my life Wanting to see if anyone is doing this are has so I will know what to expect will it do any good or put it in to remission
Starting treatment next week with a infusion of obinutuzumab for 4 hours twice a week then off 28 days will do 6 cycles and start taking
acalabrutinib
twice a day for the rest of my life Wanting to see if anyone is doing this are has so I will know what to expect will it do any good or put it in to remission
William1955
in
CLL Support
3 years ago
CD49d
It’s been said that “cd49d + makes it more difficult for ibrutinib to do its job,” would this apply to the (BTK) class of treatments (
acalabrutinib
, etc.)?
It’s been said that “cd49d + makes it more difficult for ibrutinib to do its job,” would this apply to the (BTK) class of treatments (
acalabrutinib
, etc.)?
Lavinia-Blue
in
CLL America Support
3 years ago
CD49d
It’s been said that “cd49d + makes it more difficult for ibrutinib to do its job,” would this apply to the (BTK) class of treatments (
acalabrutinib
, etc.)?
It’s been said that “cd49d + makes it more difficult for ibrutinib to do its job,” would this apply to the (BTK) class of treatments (
acalabrutinib
, etc.)?
Lavinia-Blue
in
CLL Support
3 years ago
Declining antibody levels after one month: What now ?
My husband ( with CLL and on
acalabrutinib
) had his first 2 Moderna shots in Jan and Feb 2021 with no anti spike protein antibody detected. At the end of Sept 2021 he got a Moderna vaccine again as his 3rd dose. On Nov 3rd ,6 weeks later, his antibody level was measured to be 1450 U/ml.
My husband ( with CLL and on
acalabrutinib
) had his first 2 Moderna shots in Jan and Feb 2021 with no anti spike protein antibody detected. At the end of Sept 2021 he got a Moderna vaccine again as his 3rd dose. On Nov 3rd ,6 weeks later, his antibody level was measured to be 1450 U/ml.
ikahan
in
CLL Support
3 years ago
4th booster shot ?
My husband ( with CLL and on
acalabrutinib
) had his first 2 Moderna shots in Jan and Feb 2021 with no anti spike protein antibody detected. At the end of Sept 2021 he got a Moderna vaccine again as his 3rd dose. On Nov 3rd ,6 weeks later, his antibody level was measured to be 1450 U/ml.
My husband ( with CLL and on
acalabrutinib
) had his first 2 Moderna shots in Jan and Feb 2021 with no anti spike protein antibody detected. At the end of Sept 2021 he got a Moderna vaccine again as his 3rd dose. On Nov 3rd ,6 weeks later, his antibody level was measured to be 1450 U/ml.
ikahan
in
CLL America Support
3 years ago
Shingrex, while on Acalabrutinib ?
Hey all, like the sign says, has anyone received Shingrex while on Acala? I need to get it and my GP and Oncologist says to get it. Just wondering what reactions I should look out for after the crap I went through with my 3rd Phizer. I never had reactions to vaccines before but puttin 2 and 2 together
Hey all, like the sign says, has anyone received Shingrex while on Acala? I need to get it and my GP and Oncologist says to get it. Just wondering what reactions I should look out for after the crap I went through with my 3rd Phizer. I never had reactions to vaccines before but puttin 2 and 2 together
chirish
in
CLL Support
3 years ago
Richter transformation of CLL: a British Society for Haematology Good Practice Paper
There is a UK trial for Richters - STELLAR trial which offers
Acalabrutinib
as part of the trial. https://bepartofresearch.nihr.ac.uk/trial-details/trial-detail?trialId=17999&location=Leeds,%20UK&distance=1.2 Jackie
There is a UK trial for Richters - STELLAR trial which offers
Acalabrutinib
as part of the trial. https://bepartofresearch.nihr.ac.uk/trial-details/trial-detail?trialId=17999&location=Leeds,%20UK&distance=1.2 Jackie
Jm954
Administrator
in
CLL Support
3 years ago
Any Knowledge of CLL in the eyes?
They tell me that
acalabrutinib
, which I'll start next week, is sufficient treatment. From what I've read, I'm still uncomfortable with this advice. Does anyone have any information to pass along?
They tell me that
acalabrutinib
, which I'll start next week, is sufficient treatment. From what I've read, I'm still uncomfortable with this advice. Does anyone have any information to pass along?
cll2013
in
CLL Support
3 years ago
UPDATE-visit to UCHL
leaning toward O/b as to keep
acalabrutinib
for when I relapsed which he thought could be within 2/3 years.
leaning toward O/b as to keep
acalabrutinib
for when I relapsed which he thought could be within 2/3 years.
9876
in
CLL Support
3 years ago
Just joined
Hi, I am about to start treatment with
acalabrutinib
for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer.
Hi, I am about to start treatment with
acalabrutinib
for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer.
Mtk1
in
CLL Support
3 years ago
Pfizer vaccine response tests four months apart
I have CLL and I am taking
Acalabrutinib
. One month after my second Pfizer vaccine shot, on April 20th I had a blood test to see if I produced antibodies. The result was .48, negative. Last Friday, August 20th, I had another blood test prior to receiving the booster shot.
I have CLL and I am taking
Acalabrutinib
. One month after my second Pfizer vaccine shot, on April 20th I had a blood test to see if I produced antibodies. The result was .48, negative. Last Friday, August 20th, I had another blood test prior to receiving the booster shot.
zsuzsiB
in
CLL Support
3 years ago
Skin barnacles ??
CLL and Bladder cancer , past used Ibrutinib,
Acalabrutinib
and Gyzava … all worked in controlling CLL … BCG infusions for Bladder cancer working , I think…. I have developed what Dermatologist calls .. skin barnacles … she says it from past sun exposure… Anyone have this problem ??
CLL and Bladder cancer , past used Ibrutinib,
Acalabrutinib
and Gyzava … all worked in controlling CLL … BCG infusions for Bladder cancer working , I think…. I have developed what Dermatologist calls .. skin barnacles … she says it from past sun exposure… Anyone have this problem ??
fish61
in
CLL Support
3 years ago
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