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103 public posts

prednisone taper, what to expect

I originally started with this PMR as my diagnosis was presumed PMR. I have since been diagnosed with Sjorgens with a side of RA, not the erosive type RA. I basically have mild Sjorgens symptoms with shoulder pain and costochondroitis type pain. I’m 3 months into Plaquenil and am having some relief.
I originally started with this PMR as my diagnosis was presumed PMR. I have since been diagnosed with Sjorgens with a side of RA, not the erosive type RA. I basically have mild Sjorgens symptoms with shoulder pain and costochondroitis type pain. I’m 3 months into Plaquenil and am having some relief.
SLCR profile image
SLCR
in PMRGCAuk
9 months ago

Change to Humira injection

I have had rhematoid Athritis for 30 years now and are currently in 20mg methotrexate and 20mg of arava for the last 10 yrs. My bloods are excellent and I feel great. I recently changed my rheumatologist due to moving and she wants to put me on Humira injections. I don’t want to for fear of the reviews
I have had rhematoid Athritis for 30 years now and are currently in 20mg methotrexate and 20mg of arava for the last 10 yrs. My bloods are excellent and I feel great. I recently changed my rheumatologist due to moving and she wants to put me on Humira injections. I don’t want to for fear of the reviews
Lilpurple profile image
Lilpurple
in NRAS
9 months ago

Taken off Baricitinib and feeling much worse!

I was taken off Olumiant/Baricitinib (at least for a while) due to high creatinine numbers. I was taking it with Arava and an occasional NSAID. Honestly, I also ate way too much chicken around the time of the blood test. I wonder if anyone here experienced high creatinine numbers due to Baricitinib.
I was taken off Olumiant/Baricitinib (at least for a while) due to high creatinine numbers. I was taking it with Arava and an occasional NSAID. Honestly, I also ate way too much chicken around the time of the blood test. I wonder if anyone here experienced high creatinine numbers due to Baricitinib.
ubound profile image
ubound
in NRAS
2 years ago
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Failure with multiple biologics for RA

Hi. Has anyone had any failures with multiple biologics and what did you do? I was doing great with Humira for a long time then I had my second child and a huge flare up during pregnancy and after, which has not settled down 1 year later. I can’t be on methotrexate and Arava caused major hair loss so
Hi. Has anyone had any failures with multiple biologics and what did you do? I was doing great with Humira for a long time then I had my second child and a huge flare up during pregnancy and after, which has not settled down 1 year later. I can’t be on methotrexate and Arava caused major hair loss so
Esti profile image
Esti
in Behçet's UK
3 years ago

Branded meds - not allowed...

Hi All Firstly a sunny hello - looking forward to the weekend. Just wondered if anyone has ever been refused a brand of meds and told ’because it's too expensive and my consultant needs to write the brand name on the prescription.’ I have always used the brand Arava Leflunomide 10mg as it works for
Hi All Firstly a sunny hello - looking forward to the weekend. Just wondered if anyone has ever been refused a brand of meds and told ’because it's too expensive and my consultant needs to write the brand name on the prescription.’ I have always used the brand Arava Leflunomide 10mg as it works for
Hessie5 profile image
Hessie5
in NRAS
3 years ago

Arava

Has anyone been on arava I've started last week just wondering of the side effects
Has anyone been on arava I've started last week just wondering of the side effects
Hidden profile image
Hidden
in NRAS
3 years ago

Change of brand of meds

Hi Hope someone can help please I normally take leflunomide 20 mg and at moment no after effects and brand is Arava Today gone to pick up my meds and they have given me leflunomide but in a different box with leflunomide on so not arava. Is this just as good Thank you
Hi Hope someone can help please I normally take leflunomide 20 mg and at moment no after effects and brand is Arava Today gone to pick up my meds and they have given me leflunomide but in a different box with leflunomide on so not arava. Is this just as good Thank you
Legley profile image
Legley
in NRAS
3 years ago

Strange Pains with RA medication?

Lately I have been experiencing these random sharp pains all over my body at random times during the day. I take Arava for my RA. My wrists hurt and it was working like a charm and now suddenly it doesn't work well. I thought these random pains which are like sharp nerve pains were weird and are getting
Lately I have been experiencing these random sharp pains all over my body at random times during the day. I take Arava for my RA. My wrists hurt and it was working like a charm and now suddenly it doesn't work well. I thought these random pains which are like sharp nerve pains were weird and are getting
turtlemom2 profile image
turtlemom2
in NRAS
3 years ago

Flu - Metrotrexate and Arava

Since Jun 2014 after I was diagnosed RA, this is the second time I had flu during my holiday in China. I had fever but I did not see any doctor there, I merely had the panadol to control my fever. I came back home and had my appointment to see my rheumy 2 days ago, I had no further fever but I still
Since Jun 2014 after I was diagnosed RA, this is the second time I had flu during my holiday in China. I had fever but I did not see any doctor there, I merely had the panadol to control my fever. I came back home and had my appointment to see my rheumy 2 days ago, I had no further fever but I still
Amy_Lee profile image
Amy_Lee
in NRAS
4 years ago

ARAVA

Hey guys! This morning I went to see my rheumy. After 2 months of MTX 20 mg which made a lot of bruises appear on my legs without reason and no improvement in joint pain/stiffness, she decided to switch treatment to ARAVA. I've been told that Arava isn't as toxic as MTX, but I read on the internet that
Hey guys! This morning I went to see my rheumy. After 2 months of MTX 20 mg which made a lot of bruises appear on my legs without reason and no improvement in joint pain/stiffness, she decided to switch treatment to ARAVA. I've been told that Arava isn't as toxic as MTX, but I read on the internet that
cosana profile image
cosana
in NRAS
4 years ago

Soft Tissue Inflammation Vs. Arthritis. Is this part of Bechet?

Hi all I have been MIA for some time now. Workload,reality of disease and then being just blown away by some symptoms. Have had X-rays done on my hands and hips Lo and behold the bones look apparently great (so here if feel embarrassed) if it was not for my Specialist that literally has been giving me
Hi all I have been MIA for some time now. Workload,reality of disease and then being just blown away by some symptoms. Have had X-rays done on my hands and hips Lo and behold the bones look apparently great (so here if feel embarrassed) if it was not for my Specialist that literally has been giving me
Zuzu798 profile image
Zuzu798
in Behçet's UK
4 years ago

Feeling lost

I’m not one to reach out like this, so this is really difficult. Diagnosed with RA a couple of years ago during a 4 year bout with PMR that began Jan 2015. Was on prednisone for 2.5 years for the PMR. Have since tried Methotrexate (gave me severe mouth sores and hair loss); then Plaquenil (caused
I’m not one to reach out like this, so this is really difficult. Diagnosed with RA a couple of years ago during a 4 year bout with PMR that began Jan 2015. Was on prednisone for 2.5 years for the PMR. Have since tried Methotrexate (gave me severe mouth sores and hair loss); then Plaquenil (caused
Gracie2019 profile image
Gracie2019
in NRAS
4 years ago

Moringa supplement

Hi everyone! I hope everyone is feeling well. I have been having some health problems and I am unable to have Rituxan infusions due to the complications of double chemo. It seems that back when I was on Arava almost two years ago It helped to get old pancreatic cancer started in my body. I have two
Hi everyone! I hope everyone is feeling well. I have been having some health problems and I am unable to have Rituxan infusions due to the complications of double chemo. It seems that back when I was on Arava almost two years ago It helped to get old pancreatic cancer started in my body. I have two
Maat2002 profile image
Maat2002
in NRAS
4 years ago

Arava &ldn for RA

Is anyone on Arava & LDN?
Is anyone on Arava & LDN?
Marciejo profile image
Marciejo
in NRAS
5 years ago

ARAVA... Help!

Started Arava. 3 weeks in. Went off prednisone. I am shuffling and have poor cognitive functioning!!!! Did not have this. I have had episodes in the past that last a day or so but NONE the likes of this one! I feel like a space cadet and I have shuffling like and a mild tenor. I stopped the drug.
Started Arava. 3 weeks in. Went off prednisone. I am shuffling and have poor cognitive functioning!!!! Did not have this. I have had episodes in the past that last a day or so but NONE the likes of this one! I feel like a space cadet and I have shuffling like and a mild tenor. I stopped the drug.
Kk22 profile image
Kk22
in PMRGCAuk
5 years ago

Advice for Rituxan plus adding Arava?

Ok, I could use a little advice here. If you view my history, I've been on a multitude of DMARD's and biologics for over 20 years with average to good results. The latest is Rituxan; however, I still deal with the fatigue and "sick" feeling. So, my dr. has added Arava to my Rituxan infusions. Any hope
Ok, I could use a little advice here. If you view my history, I've been on a multitude of DMARD's and biologics for over 20 years with average to good results. The latest is Rituxan; however, I still deal with the fatigue and "sick" feeling. So, my dr. has added Arava to my Rituxan infusions. Any hope
ccl51 profile image
ccl51
in NRAS
5 years ago

Horrible Rash

I’ve been on Arava (Leflunomide) for over 8 months. The only major side effect was my hands being terrible itchy.Two months ago my doctor started me Cimzia injections also. I was briefly exposed to the sun 2 1/2 weeks ago. (don’t know if that is relevant or not) One week ago, I started to get a pronounced
I’ve been on Arava (Leflunomide) for over 8 months. The only major side effect was my hands being terrible itchy.Two months ago my doctor started me Cimzia injections also. I was briefly exposed to the sun 2 1/2 weeks ago. (don’t know if that is relevant or not) One week ago, I started to get a pronounced
Lincroft242 profile image
Lincroft242
in NRAS
5 years ago

Hello there...

Hi there, My name is Liz...I have a complex set of health issues. In December 2014 I had a bad fall and broke my knee on my right leg... was left with a disability that has impacted my mobility...I walk with a cane and I use a scooter depending on how I feel. In May 2015 I was diagnosed with breast
Hi there, My name is Liz...I have a complex set of health issues. In December 2014 I had a bad fall and broke my knee on my right leg... was left with a disability that has impacted my mobility...I walk with a cane and I use a scooter depending on how I feel. In May 2015 I was diagnosed with breast
lizmey62 profile image
lizmey62
in NRAS
5 years ago

remicade and arava still have joint pain

I am on remicade 400mg. infusion every 6 weeks ,10mg. arava,7mg.prednisone,seems like it works good until I get to the 4th week,pain and swelling in hands and feet,etc,hands are deforming,and.toes are curling on rt. foot,feels so good after the infusion,they went up from 200mg.as it would only last 2
I am on remicade 400mg. infusion every 6 weeks ,10mg. arava,7mg.prednisone,seems like it works good until I get to the 4th week,pain and swelling in hands and feet,etc,hands are deforming,and.toes are curling on rt. foot,feels so good after the infusion,they went up from 200mg.as it would only last 2
dersert1030 profile image
dersert1030
in Arthritis Action
5 years ago

Cholestyramine

Hi all New member 👋 My partner has rheumatoid arthritis long term since childhood... he has been on leflunomide (arava) for almost 2 years after trying every biological and other medications this is the best one get has tried it's totally transformed him which is great... we have 2 children already
Hi all New member 👋 My partner has rheumatoid arthritis long term since childhood... he has been on leflunomide (arava) for almost 2 years after trying every biological and other medications this is the best one get has tried it's totally transformed him which is great... we have 2 children already
Amzy411 profile image
Amzy411
in NRAS
5 years ago
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