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101 public posts

Taken off Baricitinib and feeling much worse!

I was taken off Olumiant/Baricitinib (at least for a while) due to high creatinine numbers. I was taking it with Arava and an occasional NSAID. Honestly, I also ate way too much chicken around the time of the blood test. I wonder if anyone here experienced high creatinine numbers due to Baricitinib.
I was taken off Olumiant/Baricitinib (at least for a while) due to high creatinine numbers. I was taking it with Arava and an occasional NSAID. Honestly, I also ate way too much chicken around the time of the blood test. I wonder if anyone here experienced high creatinine numbers due to Baricitinib.
ubound
in NRAS

Failure with multiple biologics for RA

Hi. Has anyone had any failures with multiple biologics and what did you do? I was doing great with Humira for a long time then I had my second child and a huge flare up during pregnancy and after, which has not settled down 1 year later. I can’t be on methotrexate and Arava caused major hair loss so
Hi. Has anyone had any failures with multiple biologics and what did you do? I was doing great with Humira for a long time then I had my second child and a huge flare up during pregnancy and after, which has not settled down 1 year later. I can’t be on methotrexate and Arava caused major hair loss so
Esti
in Behçet's UK

Branded meds - not allowed...

Hi All Firstly a sunny hello - looking forward to the weekend. Just wondered if anyone has ever been refused a brand of meds and told ’because it's too expensive and my consultant needs to write the brand name on the prescription.’ I have always used the brand Arava Leflunomide 10mg as it works for
Hi All Firstly a sunny hello - looking forward to the weekend. Just wondered if anyone has ever been refused a brand of meds and told ’because it's too expensive and my consultant needs to write the brand name on the prescription.’ I have always used the brand Arava Leflunomide 10mg as it works for
Hessie5
in NRAS
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Arava

Has anyone been on arava I've started last week just wondering of the side effects
Has anyone been on arava I've started last week just wondering of the side effects
Hidden
in NRAS

Change of brand of meds

Hi Hope someone can help please I normally take leflunomide 20 mg and at moment no after effects and brand is Arava Today gone to pick up my meds and they have given me leflunomide but in a different box with leflunomide on so not arava. Is this just as good Thank you
Hi Hope someone can help please I normally take leflunomide 20 mg and at moment no after effects and brand is Arava Today gone to pick up my meds and they have given me leflunomide but in a different box with leflunomide on so not arava. Is this just as good Thank you
Legley
in NRAS

Strange Pains with RA medication?

Lately I have been experiencing these random sharp pains all over my body at random times during the day. I take Arava for my RA. My wrists hurt and it was working like a charm and now suddenly it doesn't work well. I thought these random pains which are like sharp nerve pains were weird and are getting
Lately I have been experiencing these random sharp pains all over my body at random times during the day. I take Arava for my RA. My wrists hurt and it was working like a charm and now suddenly it doesn't work well. I thought these random pains which are like sharp nerve pains were weird and are getting
turtlemom2
in NRAS

Flu - Metrotrexate and Arava

Since Jun 2014 after I was diagnosed RA, this is the second time I had flu during my holiday in China. I had fever but I did not see any doctor there, I merely had the panadol to control my fever. I came back home and had my appointment to see my rheumy 2 days ago, I had no further fever but I still
Since Jun 2014 after I was diagnosed RA, this is the second time I had flu during my holiday in China. I had fever but I did not see any doctor there, I merely had the panadol to control my fever. I came back home and had my appointment to see my rheumy 2 days ago, I had no further fever but I still
Amy_Lee
in NRAS

ARAVA

Hey guys! This morning I went to see my rheumy. After 2 months of MTX 20 mg which made a lot of bruises appear on my legs without reason and no improvement in joint pain/stiffness, she decided to switch treatment to ARAVA. I've been told that Arava isn't as toxic as MTX, but I read on the internet that
Hey guys! This morning I went to see my rheumy. After 2 months of MTX 20 mg which made a lot of bruises appear on my legs without reason and no improvement in joint pain/stiffness, she decided to switch treatment to ARAVA. I've been told that Arava isn't as toxic as MTX, but I read on the internet that
cosana
in NRAS

Soft Tissue Inflammation Vs. Arthritis. Is this part of Bechet?

Hi all I have been MIA for some time now. Workload,reality of disease and then being just blown away by some symptoms. Have had X-rays done on my hands and hips Lo and behold the bones look apparently great (so here if feel embarrassed) if it was not for my Specialist that literally has been giving me
Hi all I have been MIA for some time now. Workload,reality of disease and then being just blown away by some symptoms. Have had X-rays done on my hands and hips Lo and behold the bones look apparently great (so here if feel embarrassed) if it was not for my Specialist that literally has been giving me
Zuzu798
in Behçet's UK

Feeling lost

I’m not one to reach out like this, so this is really difficult. Diagnosed with RA a couple of years ago during a 4 year bout with PMR that began Jan 2015. Was on prednisone for 2.5 years for the PMR. Have since tried Methotrexate (gave me severe mouth sores and hair loss); then Plaquenil (caused
I’m not one to reach out like this, so this is really difficult. Diagnosed with RA a couple of years ago during a 4 year bout with PMR that began Jan 2015. Was on prednisone for 2.5 years for the PMR. Have since tried Methotrexate (gave me severe mouth sores and hair loss); then Plaquenil (caused
Gracie2019
in NRAS

Moringa supplement

Hi everyone! I hope everyone is feeling well. I have been having some health problems and I am unable to have Rituxan infusions due to the complications of double chemo. It seems that back when I was on Arava almost two years ago It helped to get old pancreatic cancer started in my body. I have two
Hi everyone! I hope everyone is feeling well. I have been having some health problems and I am unable to have Rituxan infusions due to the complications of double chemo. It seems that back when I was on Arava almost two years ago It helped to get old pancreatic cancer started in my body. I have two
Maat2002
in NRAS

Arava &ldn for RA

Is anyone on Arava & LDN?
Is anyone on Arava & LDN?
Marciejo
in NRAS

ARAVA... Help!

Started Arava. 3 weeks in. Went off prednisone. I am shuffling and have poor cognitive functioning!!!! Did not have this. I have had episodes in the past that last a day or so but NONE the likes of this one! I feel like a space cadet and I have shuffling like and a mild tenor. I stopped the drug.
Started Arava. 3 weeks in. Went off prednisone. I am shuffling and have poor cognitive functioning!!!! Did not have this. I have had episodes in the past that last a day or so but NONE the likes of this one! I feel like a space cadet and I have shuffling like and a mild tenor. I stopped the drug.
Kk22
in PMRGCAuk

Advice for Rituxan plus adding Arava?

Ok, I could use a little advice here. If you view my history, I've been on a multitude of DMARD's and biologics for over 20 years with average to good results. The latest is Rituxan; however, I still deal with the fatigue and "sick" feeling. So, my dr. has added Arava to my Rituxan infusions. Any hope
Ok, I could use a little advice here. If you view my history, I've been on a multitude of DMARD's and biologics for over 20 years with average to good results. The latest is Rituxan; however, I still deal with the fatigue and "sick" feeling. So, my dr. has added Arava to my Rituxan infusions. Any hope
ccl51
in NRAS

Horrible Rash

I’ve been on Arava (Leflunomide) for over 8 months. The only major side effect was my hands being terrible itchy.Two months ago my doctor started me Cimzia injections also. I was briefly exposed to the sun 2 1/2 weeks ago. (don’t know if that is relevant or not) One week ago, I started to get a pronounced
I’ve been on Arava (Leflunomide) for over 8 months. The only major side effect was my hands being terrible itchy.Two months ago my doctor started me Cimzia injections also. I was briefly exposed to the sun 2 1/2 weeks ago. (don’t know if that is relevant or not) One week ago, I started to get a pronounced
Lincroft242
in NRAS

Hello there...

Hi there, My name is Liz...I have a complex set of health issues. In December 2014 I had a bad fall and broke my knee on my right leg... was left with a disability that has impacted my mobility...I walk with a cane and I use a scooter depending on how I feel. In May 2015 I was diagnosed with breast
Hi there, My name is Liz...I have a complex set of health issues. In December 2014 I had a bad fall and broke my knee on my right leg... was left with a disability that has impacted my mobility...I walk with a cane and I use a scooter depending on how I feel. In May 2015 I was diagnosed with breast
lizmey62
in NRAS

remicade and arava still have joint pain

I am on remicade 400mg. infusion every 6 weeks ,10mg. arava,7mg.prednisone,seems like it works good until I get to the 4th week,pain and swelling in hands and feet,etc,hands are deforming,and.toes are curling on rt. foot,feels so good after the infusion,they went up from 200mg.as it would only last 2
I am on remicade 400mg. infusion every 6 weeks ,10mg. arava,7mg.prednisone,seems like it works good until I get to the 4th week,pain and swelling in hands and feet,etc,hands are deforming,and.toes are curling on rt. foot,feels so good after the infusion,they went up from 200mg.as it would only last 2
dersert1030
in Arthritis Action

Cholestyramine

Hi all New member 👋 My partner has rheumatoid arthritis long term since childhood... he has been on leflunomide (arava) for almost 2 years after trying every biological and other medications this is the best one get has tried it's totally transformed him which is great... we have 2 children already
Hi all New member 👋 My partner has rheumatoid arthritis long term since childhood... he has been on leflunomide (arava) for almost 2 years after trying every biological and other medications this is the best one get has tried it's totally transformed him which is great... we have 2 children already
Amzy411
in NRAS

Bad reflux

Bad Reflux. I have been 4 weeks on Methotrexate now at 17 mg 1x a week and 6 wks on Prednisone now at 16 mg. The acid reflux began 3 weeks ago and is so bad I think I need to change from MTX back to Arava. My chemo day is today and doc did not yet call back to say how much Arava equals 17 mg MTX.
Bad Reflux. I have been 4 weeks on Methotrexate now at 17 mg 1x a week and 6 wks on Prednisone now at 16 mg. The acid reflux began 3 weeks ago and is so bad I think I need to change from MTX back to Arava. My chemo day is today and doc did not yet call back to say how much Arava equals 17 mg MTX.
PattyMPA
in Vasculitis UK

CBD Oil and RA medication

Recently, a friend of mine suggested I try CBD Oil for my pains, but I´m in treatment with Arava and Prednisolona. My rheumy tells me to be patient (I started treatment in Nov. 17 and had to change mtx to arava one month ago ... like starting from zero) and not try anything else.. Has anyone experienced
Recently, a friend of mine suggested I try CBD Oil for my pains, but I´m in treatment with Arava and Prednisolona. My rheumy tells me to be patient (I started treatment in Nov. 17 and had to change mtx to arava one month ago ... like starting from zero) and not try anything else.. Has anyone experienced
cpetry
in NRAS
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