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Abatacept
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On biological infusions to help my arthritis caused by my Lupus and white blood cells keep dropping..
Hi all, im on
Abatacept
4weekly infusions at hospital to help as my lupus has attacked my joints aparently there is only a choice of a couple of the biological infusions as most of them can actually make luus worse.
Hi all, im on
Abatacept
4weekly infusions at hospital to help as my lupus has attacked my joints aparently there is only a choice of a couple of the biological infusions as most of them can actually make luus worse.
Mellisa1066
in
LUPUS UK
7 years ago
More questions than answers......!
Have now been on SECOND biologic,
Abatacept
, for 9 weeks. That's 9 weekly injections, and there doesn't seem to be much improvement in pain level, or fatigue level. To be fair, not too many side effects either, except I feel increasingly grotty on day of injection, plus next 2/3.
Have now been on SECOND biologic,
Abatacept
, for 9 weeks. That's 9 weekly injections, and there doesn't seem to be much improvement in pain level, or fatigue level. To be fair, not too many side effects either, except I feel increasingly grotty on day of injection, plus next 2/3.
scotslass333
in
NRAS
7 years ago
Abatacept
on my legs, I haven't got a rash or anything but they just feel really strange, I'm also really struggling with my weight, I've followed weight watchers for 3 years and have lost 5 stone but just at the moment it's stopped working, has anybody had any experience in weight gain from the injections of
abatacept
on my legs, I haven't got a rash or anything but they just feel really strange, I'm also really struggling with my weight, I've followed weight watchers for 3 years and have lost 5 stone but just at the moment it's stopped working, has anybody had any experience in weight gain from the injections of
abatacept
Adalisone
in
NRAS
7 years ago
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Absolutely fed UP !
Five weeks now on
Abatacept
injections and the only change is that the side effects have kicked in....the pain in feet is worse if anything. All I've done this morning is go to the shops on scooter, then tackled a heap of forms that needed filling in.
Five weeks now on
Abatacept
injections and the only change is that the side effects have kicked in....the pain in feet is worse if anything. All I've done this morning is go to the shops on scooter, then tackled a heap of forms that needed filling in.
scotslass333
in
NRAS
7 years ago
Abatacept side effects?
Needless to say, I am still not taking the
Abatacept
but still taking Leflunamide which is prescribed to go alongside
Abatacept
. Has anyone had a similar problem?
Needless to say, I am still not taking the
Abatacept
but still taking Leflunamide which is prescribed to go alongside
Abatacept
. Has anyone had a similar problem?
dbmcscmc56
in
Arthritis Action
7 years ago
Ritiximab
The other one they suggested is
Abatacept
? Seeing the rheumy nurse on Tuesday to see which one they think I should take . Feeling quite confused Thank you 💐
The other one they suggested is
Abatacept
? Seeing the rheumy nurse on Tuesday to see which one they think I should take . Feeling quite confused Thank you 💐
Jillyanne
in
NRAS
7 years ago
Decision looming
Is
Abatacept
still prescribed? Rheumy did seem to prefer Tocil over
Abatacept
but I can't remember why. Am dreading all the side effects already! Does anyone know if you now get Tocil in a pen-injection thing, like Humira?
Is
Abatacept
still prescribed? Rheumy did seem to prefer Tocil over
Abatacept
but I can't remember why. Am dreading all the side effects already! Does anyone know if you now get Tocil in a pen-injection thing, like Humira?
scotslass333
in
NRAS
8 years ago
Restarting drugs after a break
My liver function had become deranged (his word not mine) and I must stop all RA drugs (methotrexate, hydroxychloroquine, and folic acid) and they had cancelled my
Abatacept
infusion the following week. I had to have blood tests every few days and quite quickly my results were back to normal.
My liver function had become deranged (his word not mine) and I must stop all RA drugs (methotrexate, hydroxychloroquine, and folic acid) and they had cancelled my
Abatacept
infusion the following week. I had to have blood tests every few days and quite quickly my results were back to normal.
thelmar
in
NRAS
8 years ago
New Year new plan
He also told me he is looking at
abatacept
? not sure if he will wait until I need it or put me on it anyway. He also told me that I have hyperparathyroidism that will probably require an op to remove.
He also told me he is looking at
abatacept
? not sure if he will wait until I need it or put me on it anyway. He also told me that I have hyperparathyroidism that will probably require an op to remove.
Someonesmother
in
NRAS
8 years ago
Frosty morning walk
I am doing better since being on
Abatacept
although still suffer from random swellings which have no apparent trigger which mysteriously come and go.
I am doing better since being on
Abatacept
although still suffer from random swellings which have no apparent trigger which mysteriously come and go.
kaypiercy
in
NRAS
8 years ago
Abatacept
I,ve just come down with a cold,tight chest and i,ve lost my voice,can i still inject my
abatacept
on tuesday.
I,ve just come down with a cold,tight chest and i,ve lost my voice,can i still inject my
abatacept
on tuesday.
gradyjackjacob
in
NRAS
8 years ago
Abatacept Update
Hi All Have decided to bite the bullet and start on weekly
abatacept
as soon as healthcare at home can deliver and show me how to inject - a couple of weeks from now I have been told! Any tips on how and when I should inject please? Any immediate side effects or over the first 24 to 48 hours?
Hi All Have decided to bite the bullet and start on weekly
abatacept
as soon as healthcare at home can deliver and show me how to inject - a couple of weeks from now I have been told! Any tips on how and when I should inject please? Any immediate side effects or over the first 24 to 48 hours?
Mistydawn
in
NRAS
8 years ago
Cold sores and Orencia
Hi, can I ask if anyone has suffered with cold sores when taking Orencia (
Abatacept
)? I got 5 after taking my 2nd weekly injection, 2 up my nose (ouch) and 3 around my mouth. I've not taken Orencia for 3 weeks now, waiting for sores to clear up.
Hi, can I ask if anyone has suffered with cold sores when taking Orencia (
Abatacept
)? I got 5 after taking my 2nd weekly injection, 2 up my nose (ouch) and 3 around my mouth. I've not taken Orencia for 3 weeks now, waiting for sores to clear up.
bernese1225
in
NRAS
8 years ago
Confused
I have been offered
abatacept
which I am most certainly going to have to start shortly despite my reluctance to do so. My question is this: We take these drugs to manage our RA but then have to take other drugs to counter the side effects which in turn lead to others severe illnesses.
I have been offered
abatacept
which I am most certainly going to have to start shortly despite my reluctance to do so. My question is this: We take these drugs to manage our RA but then have to take other drugs to counter the side effects which in turn lead to others severe illnesses.
Mistydawn
in
NRAS
8 years ago
Feeling better
Right now I am on
Abatacept
120mg injections, being on this for only 3 weeks, have taken 20mg methotrexate for 3 years, Im not sure what this is doing?
Right now I am on
Abatacept
120mg injections, being on this for only 3 weeks, have taken 20mg methotrexate for 3 years, Im not sure what this is doing?
kaypiercy
in
NRAS
8 years ago
Methotrexate/abatacept - best time to take?
I go in on Monday to start the trial and I assume take the first dose of methotrexate (pills) and
abatacept
(injection) - that's unless the
abatacept
is a placebo which it might be. I'm not sure if I'll then always have to take the medication on a Monday or whether I can change the day.
I go in on Monday to start the trial and I assume take the first dose of methotrexate (pills) and
abatacept
(injection) - that's unless the
abatacept
is a placebo which it might be. I'm not sure if I'll then always have to take the medication on a Monday or whether I can change the day.
n1mble2
in
NRAS
8 years ago
Is omeprazole necessary with Naproxen?
I'll soon be on methotrexate and possibly
abatacept
too (a clinical trial).
I'll soon be on methotrexate and possibly
abatacept
too (a clinical trial).
n1mble2
in
NRAS
8 years ago
First Biologic
I guess bottom line I would like to know if anyone has been on Orencia (
Abatacept
) and your experiences with it.
I guess bottom line I would like to know if anyone has been on Orencia (
Abatacept
) and your experiences with it.
ezlong
in
NRAS
8 years ago
End of my tether looming......lol
Tried
Abatacept
with Ciclosporin, no good....Rheumy then decided to put me back onto Humira as had done so well before....well, 5 months later, have never felt so poorly in all my life.....so now going onto Enbrel....... Cant take Methotrexate or leflunomide as stupid liver doesn't like them.....
Tried
Abatacept
with Ciclosporin, no good....Rheumy then decided to put me back onto Humira as had done so well before....well, 5 months later, have never felt so poorly in all my life.....so now going onto Enbrel....... Cant take Methotrexate or leflunomide as stupid liver doesn't like them.....
carter57
in
NRAS
8 years ago
Abatacept
Hi, after struggling continuing with constant pain and debility from this interminable un-forgiving miserable disease, I have conceded to start another biologic
Abatacept
. Has anyone on here had experience with taking this drug?
Hi, after struggling continuing with constant pain and debility from this interminable un-forgiving miserable disease, I have conceded to start another biologic
Abatacept
. Has anyone on here had experience with taking this drug?
kaypiercy
in
NRAS
8 years ago
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