On Tuesday morning I had never heard of this condition. My Rheumatolgy appointment that morning put paid to that! By 12 pm that day I was a person with Scleroderma and I have spent the days since then in a state of utter panic. It's the unknown I fear. I've been trying to get to speak to someone at the hospital to answer questions that have concerned me since then, such as as they still checking for the type, what are they sure of so far. I'm awaiting an ultrasound of my heart and some sort of breath test?? I'm so terrified of my mouth becoming smaller or of my lungs and heart being involved. When I look at other symptoms I have had over some time, such as difficulty swallowing and weight loss, it all fits into place now. The reason I was referred was because I had a particularly nasty, chronic infection on my finger tip which needed debrided and is now healing well. Raynauds was, as I had suspected, diagnosed but my doctor suspected something worse was at play than only that, as I had been having raised levels in blood tests. I love walking, particularly hill walking and have always found I get a bit breathless when going uphill and am so scared now that this is the reason and not just normal breathlessness. I'm sorry this has been a bit muddled but this is how my head is feeling at the moment. It doesn't help that I have had a flu bug for over a week, to boot.
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