Pins and needles sensation, raynauds - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,836 members5,409 posts

Pins and needles sensation, raynauds

Stephgaslight profile image
10 Replies

Hi guys.

I have been suffering from raynauds for the last couple of years, and over the last two months I have been experiencing a pins and needles like sensation in both my lower legs.

Has anyone else experienced this, and if so Is there anything that can be done to improve the feeling.

Thanks

Written by
Stephgaslight profile image
Stephgaslight
To view profiles and participate in discussions please or .
10 Replies
kiltylyn profile image
kiltylyn

Yes I experience the same although the legs is a fairly new one to me , diagnosed 25 years ago , was just hands and feet , now from the toes it seems to work itself up the legs and quite painful , seeing GP next week , expect my dosage of medication will increase ..

in reply to kiltylyn

I have this too - it's been well over a year for me and my feet either burn or freeze - same with hands but no dramatic colour changes with either apart from toes go white. My ankles and legs ache with funny bone pain. Was told by GP it was Raynauds secondary to my RA - which seems to have vanished! But this pain for me is much worse and more invisible. Now I've been referred to a neurologist - see him end of November. My GP and rheumatologist both think it is a small fiber neuropathy. Keeps me up a lot at night.

kiltylyn profile image
kiltylyn

thanks twitchytoes . never heard of Raynauds secondary so will google that. Its the legs , its starts working its way right up to over the knee now and very sore , kinda scary , GP off till next week so will see what she says. Im on 3 nifedipine daily and sadly no more relief from it , thankfully not something that keeps me up at night, blanket is kept on low , let me know how you get on in NOV :)

Earthgirl86 profile image
Earthgirl86

I get this to, but more so when I'm using or touching an Electric device like a mobile phone

Earthgirl86 profile image
Earthgirl86 in reply to Earthgirl86

It started a few months ago with tingling in hands and legs but a couple days ago my left leg just went funny n burning it was crazy I was walking and had to stop because I didint no what was happening, my keen went all funny for around 40 mins. I have not seemed medical advice as doctors are useless

Stephgaslight profile image
Stephgaslight

Thanks for the response I am currenly on no medication, am back to the doctors next Friday to see what they say :)

Earthgirl86 profile image
Earthgirl86 in reply to Stephgaslight

Do you use a mobile phone a lot? Or iPod ect? Just trying to narrow it down myself. My bf has touched my arm when I've been using the mobile and has felt a electric run through me to him ?? It's strange

Stephgaslight profile image
Stephgaslight

I work in a mobile phoneshop so yeah quite often. I've never thought that the two could possibly link

Me neither - very interesting idea thanks!

graygirl1 profile image
graygirl1

Good morning,

Sorry to read of your discomfort. I have had pins and needles for ages. It was investigated and I was found to have Carpal Tunnel Syndrome. I was offered surgery but declined as it doesn't seem so desperate at the moment.

Taking Nefedipine tablets for Raynaud's seem to have helped to lessen the pins and needles somewhat.

Tell your doctor about it and ask if it can be investigated so you know for sure what the problem is.

Good luck!

Graygirl1

You may also like...

does anyone with raynauds, get pins and needles, pain, just on on one side of the body?

Pins and Needles in hand

For the past 5 mornings, I've been woken by pretty sore pins and needles and aching in my right...

Pins & Needles

sort of pins and needles sensation in about three fingers on one of my hands. They feel a bit like...

Pins & Needles - Carpal Tunnel Syndrome

blogged about the pins and needles I have been suffering with each morning. I have now discovered...

Totally numb hands with pins and needles.

Anyone else get this >>> my hands feel like when you get a dead leg with that weird numbness and...