I went for PIP face to face assessment, assessor was very nice.
I was completely honest and ask her if she has seen the advert on TV with the young lad that has just got out of prison when he gets ready for his new job but can't move the next morning.
I said that is how scleroderma affects me, okay one day and the next everything stiffened up and you just write the day off as everything hurts.
She asked me a few questions about my lungs and I replied that I have been discharged from the Chest clinic and it's just something else that I need to live with. A little later in the assessment she asked me to do some movements and commented that I just completed a few simple movements and It was like I run a marathon and she said your been discharged from the Chest clinic, shaking her head.
I would like to carry on working but would like to qualify for PIP as when I have a flare up I just can't function on any level and need my employers to recognise that all is not as it should be.
I know it may sound silly but I felt better in just filling the assessment form in, it was like a release.
Family and friends are very supportive but I don't think they fully understand the overwhelming sense of lack of movement, pain and emotional turmoil that you experience on a regular basis.
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