Hi guys, I have been diagnosed with Scerledema the last 5 years, had raynauds for two years previous this, also overlap of polymytosis, now Barrett's, osterperosis and the list goes on. I've got through so many things and learned to accept things now, eventually and live my life the best I can, although my old life has completely disappeared . The one thing that is getting me so down is my shrinking mouth, my lips have nearly disappeared and my mouth is puckered, I can't look in a mirror these days without getting upset. Seems crazy with all the other stuff going on but is getting worse and really struggling to cope. Pleases , please has anybody got this and have you had things done to make it less obvious ? I asked my specialist about maybe getting Botox but he said would be no good. I think he doesn't see it as a health problem, and maybe it isn't but it's getting me down, any advice out there please.